Thankful to be my kids dad

Fathers Day

A day centered upon, or celebrating being a father. I have always wondered how this national phenomenon came to fruition and after a little a research I found my answer. So before I ramble on with a long overdue edition of “Betty” let’s take a moment to enlighten our minds. If you already knew the answer please don’t ruin it for everyone else.

The nation’s first Father’s Day was celebrated on June 19, 1910, in the state of Washington. However, it was not until 1972–58 years after President Woodrow Wilson made Mother’s Day official–that the day honoring fathers became a nationwide holiday in the United States.

Mother’s Day: Inspiration for Father’s Day

The “Mother’s Day” we celebrate today has its origins in the peace-and-reconciliation campaigns of the post-Civil War era. During the 1860s, at the urging of activist Ann Reeves Jarvis, one divided West Virginia town celebrated “Mother’s Work Days” that brought together the mothers of Confederate and Union soldiers.

Did You Know?

There are more than 70 million fathers in the United States.

However, Mother’s Day did not become a commercial holiday until 1908, when–inspired by Jarvis’s daughter, Anna Jarvis, who wanted to honor her own mother by making Mother’s Day a national holiday–the John Wanamaker department store in Philadelphia sponsored a service dedicated to mothers in its auditorium.

Thanks in large part to this association with retailers, who saw great potential for profit in the holiday, Mother’s Day caught on right away. In 1909, 45 states observed the day, and in 1914, President Woodrow Wilson approved a resolution that made the second Sunday in May a holiday in honor of “that tender, gentle army, the mothers of America.”

Origins of Father’s Day

The campaign to celebrate the nation’s fathers did not meet with the same enthusiasm–perhaps because, as one florist explained, “fathers haven’t the same sentimental appeal that mothers have.”

On July 5, 1908, a West Virginia church sponsored the nation’s first event explicitly in honor of fathers, a Sunday sermon in memory of the 362 men who had died in the previous December’s explosions at the Fairmont Coal Company mines in Monongah, but it was a one-time commemoration and not an annual holiday.

The next year, a Spokane, Washington, woman named Sonora Smart Dodd, one of six children raised by a widower, tried to establish an official equivalent to Mother’s Day for male parents. She went to local churches, the YMCA, shopkeepers and government officials to drum up support for her idea, and she was successful: Washington State celebrated the nation’s first statewide Father’s Day on June 19, 1910.

Slowly, the holiday spread. In 1916, President Wilson honored the day by using telegraph signals to unfurl a flag in Spokane when he pressed a button in Washington, D.C. In 1924, President Calvin Coolidge urged state governments to observe Father’s Day.

Today, the day honoring fathers is celebrated in the United States on the third Sunday of June: Father’s Day 2017 occurs on June 18; the following year, Father’s Day 2018 falls on June 17.

In other countries–especially in Europe and Latin America–fathers are honored on St. Joseph’s Day, a traditional Catholic holiday that falls on March 19.

Father’s Day: Controversy and Commercialism

Many men, however, continued to disdain the day. As one historian writes, they “scoffed at the holiday’s sentimental attempts to domesticate manliness with flowers and gift-giving, or they derided the proliferation of such holidays as a commercial gimmick to sell more products–often paid for by the father himself.”

During the 1920s and 1930s, a movement arose to scrap Mother’s Day and Father’s Day altogether in favor of a single holiday, Parents’ Day. Every year on Mother’s Day, pro-Parents’ Day groups rallied in New York City’s Central Park–a public reminder, said Parents’ Day activist and radio performer Robert Spere, “that both parents should be loved and respected together.”

Paradoxically, however, the Great Depression derailed this effort to combine and de-commercialize the holidays. Struggling retailers and advertisers redoubled their efforts to make Father’s Day a “second Christmas” for men, promoting goods such as neckties, hats, socks, pipes and tobacco, golf clubs and other sporting goods, and greeting cards.

When World War II began, advertisers began to argue that celebrating Father’s Day was a way to honor American troops and support the war effort. By the end of the war, Father’s Day may not have been a federal holiday, but it was a national institution.

In 1972, in the middle of a hard-fought presidential re-election campaign, Richard Nixon signed a proclamation making Father’s Day a federal holiday at last. Today, economists estimate that Americans spend more than $1 billion each year on Father’s Day gifts.

~The History Channel/A&E~

 

Ok 1 billion a year on father’s day gifts? Where is my cut of that pie!! Of course Father’s Day was derived from Mother’s Day because without mom’s we would all be lost! And lastly its just like men to deny any recognition for becoming a father! There are so many baby momma and deadbeat dad jokes there I’m going to let you create your own! I do think an all parents day would be kind of cool, you know a consolidation of the whole thing. But that’s neither here nor there at this moment.

I am proud to be the father of four awesome kids! I know everyone thinks their children are awesome which makes that last remark a bit of a cliché, but in my world it is true.

My children are wicked smart, each in their own way. They are personable as hell, compassionate, loving and kind. They are also stubborn, temperamental, cranky, selfish and can be a complete pain in my ass when they want too leaving me with ulcers and migraines! YAY PARENTHOOD!!

But you know what? I have said it before and I will say it again. I have always wanted to be a dad so I wouldn’t have it any other way. I don’t know why I have always wanted to be a dad, it is something that has burned inside of me forever. The thought of raising, caring for and mentoring children through adulthood has always seemed to be the ultimate human responsibility. A challenge worth accepting.

Now as we know parenthood is hugely romanticized on television and in the movies. (Thank you Disney and Lifetime) Parenthood is also used to create lifestyle fantasies within the advertising industry to help ease you into parenting via the almighty dollar. But those of us who have walked that line know it is all crap! A child’s room does not need to be perfect, painted any specific color or arranged to create the greatest learning curve or challenge them mentally! They will love you no matter what! There is no way, no matter how you sell it to ever make changing a diaper, disposing of human feces, cleaning up pee or wiping spittle and vomit from your clothing ever look romantic or enticing! Although the endless humor that comes from these events can be priceless. You do not need to go on the perfect family vacations every year spending thousands of dollars to create a picturesque childhood of joy. The reality is the only thing you need is love, patience, creativity and a good glass of wine or beer at the end of a day.

What parenting is? Parenting is hands down the hardest job I have ever held and I have held quite a few temporary career choices that quite simply sucked ass! They can and will drive you crazy these loves of your life, apples of your eye, chips from the old block! There will be days you just want to run and hide but you don’t, even though every fiber in your body is screaming to do so! In the end you know deep down inside running away accomplished nothing because in reality what you would be running and hiding from is not your children, but yourself as (whether you like it or not) they are a mirrored reflection of you. Whoa! Mind blown huh?

Parenting is the most rewarding experience in your life if you put in the time. Don’t expect wonderful results with minimal effort. Parenting is learning how to turn disappointment into positivity. Parenting is learning how to say no when the child within you wants so desperately to say yes! Parenting is standing your ground until it is time to no longer stand that ground. Parenting is understanding why your parents raised you the way they did. Parenting is allowing them the privilege of failing or losing at something while letting them figure out the best way to recover with a little advice from you. Parenting is to give every bit of yourself to another little human being without (and this is very important) forgetting to put your significant other first. Keeping your relationship alive inspires trust and comfort within your children, and teaches them how to become good partners. Parenting is admitting when you are wrong, in front of your kids not just to your partner. Parenting is learning how and when to apologize. Parenting is teaching your children to laugh, at everything. Parenting is showing never ending love, even when you want to strangle them. Parenting is a testament to your foot print left here on earth for all to see.

I am proud to be the parent of our four children. They truly inspire me each and every day to try my hardest, be the best dad I can be, learn from my mistakes and do my best to evolve as a father and human being. I may not always have the answer for them but I will try to get it. I will always be there for them when they fall, helping to guide their way with advice whether warranted or not and I will no matter what love them unconditionally while doing my best to stand behind any life decision they choose.

Cody, Jake, Jessica and Parker thank you for being my children and allowing me to become a part of Fathers Day simply by becoming your dad.

And to my dad (who is no longer with us) and all the dads who ever took an interest in me, looking over me, correcting me when I was wrong and whooping my ass when I was completely out of line, thank you. Thank you for taking this very special job seriously, and knowing in your heart that to become a father to one, you inadvertently became a dad to all. It takes a village.

Happy Father’s Day everyone!

 

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To go gentle into that good night.

Do not go gentle into that good night, Old age should burn and rave at close of day; Rage, rage against the dying of the light. Though wise men at their end know dark is right, Because their words had forked no lightning they Do not go gentle into that good night. Good men, the last wave by, crying how bright Their frail deeds might have danced in a green bay, Rage, rage against the dying of the light. Wild men who caught and sang the sun in flight, And learn, too late, they grieved it on its way, Do not go gentle into that good night. Grave men, near death, who see with blinding sight Blind eyes could blaze like meteors and be gay, Rage, rage against the dying of the light. And you, my father, there on the sad height, Curse, bless, me now with your fierce tears, I pray. Do not go gentle into that good night. Rage, rage against the dying of the light.

From The Poems of Dylan Thomas

 

This poem has resonated with me since that of a young man. I have had it stuck in my head for months now trying my hardest to determine what it means to me.

It brings about stirred emotions of an unwavering inner strength, tormenting whispers of the unknown, and an inner fight that arises much like a demon awaiting a moment to reign terror upon those who doubt its power. For there are those who will challenge your age, your wisdom and use the word to chip away at all that you are, have accomplished in life, or look to become. They don’t understand this poem speaks to everyone, not just those who proudly wear the wrinkles of time.

And so with that said I write..

The assumed stands before demise.

So expected and anticipated according to annals of time that my brain is washed by hollowed expectation.

Waiting and waiting to crumble so frail. My strength gone from age’s elastration.

But I refuse to go gentle into that good night

I have too much to lose by allowing forked tongues in shaping my destiny

To live, to breathe, to gather life in a bottle and sip upon its soulful nourishment

A man whose wrinkles should bring about empathy while disparaging apathy

I am strong, I am whole, I am man, I shall move forward no matter life’s dreadful weight

A second half of life laden with baggage and yet its burden bears no consequence 

I cry for those entrapped, ones who are youthfully pointed towards, a folly of jokes and insults fall upon this wasteland created through a wrinkle of time. Burdening a man’s soul it does, with stereotypes of ancient freight.

For they too shall bare ages haunting truth and most likely through inner weakness go gently into that good night

Sickle in hand, cloaked from light.

But not I, for quiet has never been my right.

 

It feels as though lately people are dying all around me, I can no longer ignore this truth. I am starting to feel the pressure to survive at all costs. Every time I turn around another child has gone, another mother is ill, another father has crossed over to the other side. Some I learn from phone calls or social media and others because I was there, my hands unable to help. It has brought me to fully understand that I can longer hide behind disbelief, a realization rings solid that yes we all really do have an expiration date.

For years we have known this to be true; but we never think it could possibly happen to us. It can and yes it does. In the blink of an eye, this glorious gift given us from God can be taken away. Our hearts beat loudly, our minds work endlessly and yet it is all for nothing once our bodies have vanished.

Every day driving into town, there is always something that reminds me how much I love life. Our world is very complex and filled with so many wonderful things, I just find it hard to fathom that at some point in time I will no longer be here to enjoy the majesty that continually surrounds me.

I have seen and felt so many things in this short life, more than some less than others. I have cried until there were no tears left to give, laughed until my stomach felt like one giant cramp, put my fist through a solid door and thrown a wrench through a wall in shame and or anger. I have hugged another, held out a welcoming open hand and used those same hands to bring pain upon another’s wrongful deeds.  I have screamed towards the sky, lied to appease emotions, and mumbled quietly at the voices in my head, begging them to leave me alone. I have not only felt my pain, but your pain as well because of a sworn life choice. I have sat befuddled by life’s obstacles, gazing upon an open field wondering, praying, and yearning for answers to so many questions. Some days the answers come, most days they do not, and then there are days I believe obstacles have been placed in my way to keep me from myself.

In my humble opinion.

This life it was not meant to be easy, it was meant to be experienced.

You may not currently like the experience, you may not enjoy the outcome at any moment in time. But know this; this life, it is yours. It is not someone else’s, it belongs to you and you alone. It is up to you in determining how you see life’s obstacles, how you react when life’s ugliness knocks upon your door. Do you stand tall, find the answers and move forward? Do you strive to provide positivity, a ray of light and hope or do you bury your head in the sand ignoring the life around you?

Do you simply become that who goes gentle into that good night?

I have and always will choose to fight.

It’s in my nature, it is who I am..

Who are you?

 

 

Climbing life’s mountain. 

Woke up this morning and strolled around our property despite the 30+ mph winds. There is so much that needs to be done, it sometimes feels incredibly overwhelming. Taking care of this place, our children and my wife weighs heavy on me all the time. Yet this morning is different. Yes the amount of work gave a bit of panic, but then I looked across the way and spotted our dirty ole horse trailers, still hooked to their respective trucks, I paused, I smilied and I felt really great.

You see all to often we look at our lives as a continual shit pile (mountain) we need to climb. (Myself very much included) What we don’t see or fail to recognize are the smaller climbs we need to make first before we reach the top. We as humans naturally tend to complain which then becomes a habit so we complain about everything. Before long complaining is as normal as putting on our pants (which is a complaint because damn they make me look fat) and it remains the norm. It’s then that we struggle to make a change as we have decided enough is enough. (Myself also included in this category) I don’t understand why we become this way, or why it seems there are some who always see the positive. I guess it just is the human way. 

Today I didn’t feel that way. Because today part of me realized we have been traversing those smaller climbs all along. Sometimes those smaller climbs just take so darn long you lose sight of the mountain. 

All I could think about while staring at our parked traveling circus was our kids and a wife who against her own advice packed up her best clothes, a supply of all her medications, her portable oxygen machine in case of emergency, threw on a wig to hide her once again balding head, then set out with a beautiful, giant smile on her face and a super positive attitude for an entire weekend of rodeoing! She had such a great time surrounded by her friends-our friends. She was able to finally witness in person her youngest son throw a steer, her daughter run barrels and poles and her middle son bulldog. She was no longer alone at home stuck in bed unable to move, waiting for me to send a video. She will undoubtedly pay for it today, as her body I am sure will protest but the price of admission was well worth it. 

The oldest son is in college and doesn’t partake in our traveling side show. He has a life of his own, training hunting dogs, fishing, hunting and counting down the days until he can test then become employed with either an out of state troopers or in state CHP position. We are blessed to have him around to keep an eye on things while we travel. He of all of us has steadily chipped away at the mountain before him with tenacity and will power. 

Our middle son has had a rough year on the rodeo trail and although he doesn’t see it this way, I think it is good for him. He has always been in the hunt. Always fighting for first position. This year not so much. His skills are there, his attitude when he nods his head once backed into the box is solid. He helps every bulldogger who crosses that line into the arena. And although he doesn’t feel like he has anything to show for all his hard work and positive attitude I think quite the contrary. 

God is teaching him patience and humility.

His time will come. He needs to remember we are climbing that mountain in small segments. This is one of them. His mother and I are very proud of him, we only want the best for him. And although he thinks at times we are to hard on him, or we don’t understand,​​ I know one day he will look back and thank the lord for all that was provided.

I smile at the thought of our daughter and how far she has come. Once terrified of going fast on a horse she is slowly gaining ground on her fears. She loves nothing more than being at the rodeo with her giant second family. Each rodeo she performed a little better and that is all anyone can ask for. Right when we thought it was all over for her this year the good lord through a good friend blessed us with the best horse possible for her to improve her skills. Our daughter has grit, and when she wants something she gets after it. Her mother and I can’t wait to see what she accomplishes in the off season. 

My smile broadens at the thought of our youngest yesterday. A boy who once screamed and cried: NO RODEO, I HATE RODEO. Running around receiving high fives from all who watched him drop a steer in roughly 4 seconds! 

Parker rode horses every day, then during a  jr. rodeo season he was bucked off three times with three trips to the hospital. After the third trip he said no more. It took over a year to get him riding again, this was his mountain to climb. He cried every time and after riding a few of our horses, my horse Tank became the only one he would almost willingly climb aboard. Then unexpectedly Tank died. His mountain to climb just got bigger. 

Three quarters of the way through the rodeo season the lad still hadn’t tossed a steer in competition. He was feeling discouraged. Then last month he not only tossed one, but two!!! After a great Bulldogging seminar and some more practice his timing was coming together. We started talking about the possibility that if he could throw both steers at next months (this last weekend) rodeo he may just barley qualify for state. He became excited, and the light and love for something he has accomplished both on his own and with the help of his brother began to grow. 

Yesterday that’s exactly what he did! By throwing that one steer he qualified for state. To say he is excited is an understatement! He cannot wait for another opportunity to throw steers! He looks up to his older brothers, the oldest for fishing and the one for Bulldogging. To follow in their footsteps makes his chest swell with pride. Knowing that in two years he will need to bulldog from a horse, he is looking forward to riding again. 

His mountain just got a little smaller. 

So I guess what I am trying to say is we ALL have mountains to climb in our life. From our grandparents to our children. Complaining about them is fine, it lets us express our frustrations, deal with our emotions and relieve the pressure associated with realizing there are problems. But in the end, if we do nothing about anything other than complain all the time we miss the beauty of watching those who have figured out just how to chip away at that mountain of troubles one hill at a time, we miss out on the shared elation as one day those troubles are gone and a beautiful view from the summit can be seen. 

Just a thought from a windy morning walk. 

God, could I get a little help? Please……

I have a confession to make.

I think I am mourning the loss of my wife.

Over the last couple of weeks, the two of us have held some very emotional and poignant conversations in regards to her health, my mental health and our families future.

She is by far the strongest woman I know. Her courage and tenacity is second to none. This shit sandwich she’s been handed and forced to eat time and again would leave most average humans gagging while pleading for the feeding to stop. Yet she bites down, grits her teeth and trudges through every mouthful!

I try to remind myself that God will never give us anything we can’t handle.

The other day during a conversation with her doctor she told him she’d had enough! It was time to either get busy living or get busy dying!

Think about that statement! A mashing of words spoken with the seriousness of an appellate court judge! No bullshit, no grins or giggles, no carefully chosen not wanting to hurt anyone else’s feelings words! This is a line in the sand and no one had better fucking cross it! For the first time in a long time I didn’t laugh, find a joke or even smile a nervous smile. She was making a stand and if you truly know my wife then you know never to cross her when she makes a stand!

And I think once again: God will never give us anything we can’t handle.

The last couple of days have been harder then normal. My irregular heartbeat is back, (which always leaves me panicking) my stomach is on fire and the head is pounding pretty hard. These are all secondary reactions to an emotional outpouring trapped deep within this sack of skin. I don’t know how to adequately express what I’m feeling or even describe it’s magnitude which tears my innards apart! Three long years I have been holding it together! Three long years I worry about tommorow and what it may bring! Three long years have been the worst juggling act I could ever have performed, always feeling like I am one hand movement from dropping all the balls.

Three long years and I continue to think: God will not give us anything we cant handle.

In that time I have gained 25 pounds, developed sleep apnea which leaves my chest and head hurting every morning and I have cried more times than I care to remember! Seriously cried like a baby! I’ve cried in the truck, the barn, while working a horse, after waking up from a nightmare to find she isn’t there only to quickly realize she’s at her dads for treatment! I have cried while blogging, in my dorm at work, after a call with a cancer patient, while reading a book and even while taking a shower.

To be honest I cry at everything nowadays! Like some stupid, weak, lovelorn teenager!! Show me a stupid animal video! Hell here comes the waterworks! A love story movie. Tears! Wedding videos! You guessed it more water!! And you know what makes it even worse?

I am angry as hell, looking for someone to blame and yet I continually tell myself; God will not give us anything we cannot handle!

That anger leads me to yell at our kids way more than I should, I yell at drivers on the road and sometimes I daydream someone will cut me off so we can fight! Senselessly hoping not to win, but instead to feel the stinging pain of loss. I know it’s wrong and because I know it’s wrong I work really hard at tempering my emotions!! But this long term tempering is wearing me the fuck out!! All political rants get deleted from my FB feed so I don’t get angry. If an argument starts I do my best to walk out of the room or tune it out by acting dead or stupid, much like a fainting goat! I have figured out how to curb all this anger when cornered by using a tried and true method of striking first with wicked biting sarcasm! But sometimes that bites me in ass when I take it to far and then hurt someone else’s feelings! I can’t win! Developing these weird coping mechanisms are only piling more worry and angst on top of an already over loaded emotional mountain! Yet I keep doing it because going through this joint struggle over the last three years I have found there are more important thing for me to focus on in life! Like waking up, or breathing!

And there I am wondering if God is really giving me what I can handle or if it’s all a big fucking lie!

Today really brought it home for me and it hit me harder than before. A friend posted a picture of my beautiful wife from five years ago and through all my inspirational quotes, kind words and such I realized why I am in this strange place mourning for the loss of my wife. Not that she is gone in the traditional sense of the term, because she obviously isn’t, but for who she used to be! That woman, that confident, beautiful woman who could teach 30 kids in classroom, come home and ride horses with me and the kids, whip up a dinner from absolutely nothing, then toss her hair into a pony tail, throw on some clean clothes and let me strut her sexy ass out on the town!

I hate what the drugs have done to her, I hate what this disease has done to her, I hate that everyday she wakes up and no longer recognizes the person looking back in the mirror and sobs. She’s had me cover all the mirrors in the house so she doesn’t have to look at herself and that makes me mad at God. I hate that she shakes so bad she can’t hold simple items and there is nothing I can do help! I hate that she struggles to get up, walk or climb stairs! She was once a toned, hard fitness instructor and now is a frail version of her former self! I hate that I feel like I am failing her, and I can’t do a thing to make any of this any easier in any way! I hate that she doesn’t know how beautiful I still think she is or how she continually stresses over some imaginary thing that should drive us apart!

I hate, I’m angry so I hate some more and I think again; God will not give us anything we can’t handle.

The realization that I am also mourning the loss of OUR life together weighs like an anvil around ones neck. I go to parent meetings alone, doctor appointments alone, after school activities alone and rodeo with the kids alone. She is miserable because she can’t be there for her children and it is a horrible heavy guilt for her and I am torn up because I can’t imagine how that must feel as a mother. Now, I don’t mind being alone, it’s good to be alone every now and again, just not all the time. Thankfully I am surrounded by some of the most wonderful, caring families anyone could ever ask for and they treat my family as if we were part of their families! Rodeo families are hands down the best in the whole world!!! I seriously look forward to seeing these people every month! But at the end of the day, when everyone goes there separate ways, I sit alone, in the trailer, pondering what life would be like, if Jacy had never gotten sick. All of the fun she is missing out on and how guilty I feel when I forget for a moment and start to have fun myself.
Then I’m mad it’s not me. Jacy is something special. I am not. She has done almost everything right her entire life. I have not, in fact I spent most of my early life doing just the opposite. She is kind to everyone, I can be a bit of an asshole. So why? Why has God burdened her with this punishment and left me alone? Why is God putting this upon our family, our children, our friends and relatives? Is it truly because God thinks we can handle it? What kind of bullshit is that? Does that mean people who hold no struggles are weak in Gods eyes so they get a free pass?? That makes no damn sense!

I always say we need to have faith. Believe in our faith. I believe in God. I believe there is a reason all this is happening. I believe we are being tested. I believe there is a plan and I hope God reveals it soon for as of now I can no longer see the Forrest for the trees.

The fact is pride is what leads us to believe we can conquer all without help or faith. It is how this simple statement I have repeated and lamented over continues to come forth.

“God will not give us anything we cannot handle.”

In reality it reads: No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can stand up under it.” (1 Corinthians 10:13)

The way I read this is as such: God WILL give us all more than we can handle. He will challenge us, challenge our ability to retain faith and he will forgive us our temptations.

I believe my faith is strained right now. I believe we (my wife especially) have been given way more than we can handle. I believe the temptation to just quit is great.

So…..

God, could you give us just a little help? Please….

I’m not sure how much more of what you are giving us we can all take.

(Fuck I’m crying again)

I dreamed a dream about a dream until I realized I had been dreaming all along.

As a child I would lay awake at night gazing upon a ceiling of white, not knowing what darkness or light of a new day may bring. Excitement, happiness, sadness, confusion or worry were commonplace in those silent moments before slumber. This single moment of nightly reflection was a time I dreaded for I neither knew nor had the ability to process each and every thought or feeling rapidly infiltrating my developing brain. So I did my best to create an alternate reality (you know the dreaming before you actually dream) about the future and what it may hold. This was done with a gentle rocking back forth as if I was a baby clutched within my mother’s arms.

Eventually I would contort until finding I was flat on my back. My eyes cast toward the sky, head laid upon a pillow for which I would trust with my slumber until well into adulthood. Then and only then after dreaming about dreams would I drift off to sleep and eventually dream. It’s funny how things can become so very important when we are children and yet nominal as we grow older. That pillow was a lifeline to some nominal form of sanity. It was a trusted object for which I looked forward to after a long day. A moment of pure bliss as my head met its tattered misshapen form. It smelled good, it formed to my head just right and it meant that hopefully after a little blank moment or enlightened thought process the best was yet to come.

To dream

What is it to dream? We dream with eyes wide open about our futures and what they may hold. We dream about what we want to become as we grow older or where we wish to be within a certain designated time frame. We dream about that perfect human match, a soul mate who mirrors our better selves forming a solid foundation for which life and dreams can be achieved. We also dream as we sleep. The subconscious collecting data from deep within our cerebral cortex, correlating it into a one night only performance. Hyper-infusing our confidences and fears into a woven tale of wonderment, confusion or terror.

As a child I recall dreams were abundant. They would come and go, filled with mystery and wonder. Our subconscious mind working overtime filling our thoughts with the impossible, the amazing and at times the downright frightening! But as a child, I can remember the importance of dreams. How some mornings they left me mesmerized or flat out invigorated! I can remember getting dressed before school thinking today anything is possible! All from a dream that boosted my confidence or left me wondering whether or not it was in fact a dream.

During those very early years it was mostly dreams of playing baseball, swimming, learning to ride a bike, or flying! Flying like a superhero, swooping long and low over rooftops with the speed of lightening. My dreams always had a happy undertone that I was popular, or famous and life was licking my fingertips waiting for me to grab onto it and hold it tight!

Into the age of teen wonderment, nightly I would drift off with rock music playing in the background much to my parent’s dismay. My dreams consisted of cars, high school and girls. Real cars would fill my head, not the plastic ones rolling around our streets today! A 1957 Chevy or a 1966 Chevelle! Yes hardened steel and abundant horsepower!!! My 1964 Chevy truck became my world and before sleep I would dream about having the money to one day fix it up so that it would shine, making the cover of Hot Rod Magazine.

During this time I was particularly fond of writing (shocker huh?) and would pencil my dreams in the morning upon waking. I dreamed of being a writer one day, I also dreamed of being a cowboy, or a movie actor. This of course led to desk bound daydreaming where in class my thoughts would wander off and I would be dreaming about the day I would have enough courage to leave home to chase those exciting dreams. An actor, on stage or in the movies I didn’t care! Imagining myself in a full scale western movie, riding, shooting and doing my own stunts! Sometimes I would dream about being a doctor, going to school for a really long time just to prove to my parents that even though school was incredibly hard for me I was in fact smart after all.. It was certified Walter Mitty syndrome!

I never did have the guts to leave, head out on my own. Terrified of the unknown and worried about rejection along with where I would sleep or eat, those dreams became nothing more than lost hopes. I regret those decisions to this day.

Early adulthood and my dreams began to wane. Sleep becomes more of a necessity as life treats you a little harder and exhaustion gives way to reality. The reality being there is no longer time for dreaming about any future while lying in bed. Work became my outlet and I ran at times to the beat of two or three jobs at once. My cherished pillow, the one I longed for at the end of the day no longer mattered as resting my head anywhere warm and dry was more important than comfort or security. Life has picked up speed and there no longer remains time for my silly dreams.

Marriage and not long after children come, days are filled with responsibilities beyond comprehension. My thoughts range from love and pride with this life we are building as a team to worry and fear for what the future holds for us both and this family we have created. Today’s moments are about these people who are now the backbone/foundation of your life. Your dreams for the future are no longer your own but those of a collective whose agreeance is mandatory. These moments of life you will cherish forever, they will create a better and stronger you, you will achieve more than you imagined but those achievements may not be part of what you initially dreamed life would become. You will smile at how quickly life expands, grows and evolves with the continued addition of all who come into your life. I believe these years are the years which leave you with a smile upon your face when your time has come to an end on this earth. You are now following a path and new hopes and dreams will emerge, but you must not forget who YOU are and begin to allow those day dreams to come back. You need to listen to your heart and follow the right path. You long for the nights when deep sleep brings about happy dreams about life, love and family.

There for to quit dreaming is to quit living and hopefully your dreams continue on through the latter portions of your adult years. For me, life and my dreams are much different. I now dream for the thought processes of a child, returning to the innocence of adolescence with all its narrow minded wonder. My head hurts every day, my body is so tired, it’s as though I have drug a truck uphill for miles. When I lay my head down at night I no longer have a single trusted pillow, hell any pillow that is thicker than a postage stamp will do. I can no longer stare upon the ceiling to dream about any kind of future and what it may hold for sleep apnea has its evil grip upon my body. When sleep does come it is at the hands of my wife’s oxygen machine running, the sound of dogs barking, a television squawking hoping to ease my wife’s nervous mind and sheer exhaustion overtaking me while I struggle to breathe through the mask of a CPAP machine.

To dream a lovely dream would in fact be a delightful dream.

Many times I fear sleep depending on the day, the stress level over Jacy’s health or what may have transpired during a shift at work. These dreams do come and with them sometimes death, tragedy, harm and images to disturbing to mention. Often times awaking in panic or fear, drenched in sweat while ripping CPAP mask from my face! This will lead to walking the halls until I can calm down. Many times I awaken feeling as though I am having a full blown heart attack complete with chest pain, sweat and difficulty breathing! It is scary, and tiresome at the same time. Most nights I can no longer fall asleep until I know all my children are safe at home, in their beds. Sleep comes with a price as my worries surpasses any expectations of deep slumber. Listening to Jacy’s labored breathing, coughing and doing my best to stay out of her way as she tosses and turns for fear of waking her from a much needed rest. When I do get the chance to fall into a drop dead slumber my dreams lead to a land I wish not to visit and these places only lead to eventually being awake. Once there I daydream about a life once lived, a love inspired by the continual thought of a new day where my wife is healthy, happy and free from all this torment.

I wonder why life can’t be like the movies. A story with all its problems neatly wrapped up in 90 minutes. Where a young boy can dream while gazing at an arcade machine about being BIG and it happens. Or a girl dreams about running her own clothing company and she does. Or a rat believes it can be a chef in Paris and voila! He is..

What would we be without dreams?

You see things and you say why? But I dream things that never were; and say, “Why not?”

~George Bernard Shaw~

You are never too old to set another goal or to dream a new dream.

~C.S. Lewis~

Dream as if you’ll live forever, live as if you’ll die today.

~James Dean~

A dreamer is one who can only find his way by moonlight, and his punishment is that he sees the dawn before the rest of the world.

~Oscar Wilde~

And my personal favorite

A man is not old until regrets take place of dreams

~John Barrymore~

And with John Barrymore’s quote I say this.

You are born with the ability to dream and with the very same skill set you shall perish. What you do with it in between falls squarely upon you.

Whether asleep or awake, dream, dream big and never let anyone detour you from those dreams.

Jacy Update; One year later.

She walked down the hallway to a thunderous applause. Smiles, cheers, and hugs were the benchmark set for the morning. As always she made it (strolling down the hallway) look effortless and few would know she was doing her very best to simply stay upright. She had made it, she had survived when many felt she wouldn’t. She outwitted, outlasted and outplayed what was initially supposed to be at the very most a 4 month stay. It was almost 8 months instead. She had become a survivor.

That lone walk one year ago down a Stanford hallway, headed towards an exit was five minutes of pure bliss.

Fast forward one year.

Today marks the one year anniversary of my wife walking unassisted through the hallways of Stanford Medical Center to an awaiting car. She came home on that day and sobbed uncontrollably upon crossing through our gate onto the ranch. Her eyes cast upon land she felt she would never see again. It was a miracle and my faith had grown stronger.

Over the last year;

We have been to the Emergency room more times than I can count and it hasn’t gotten any easier. Even though no matter what hospital or emergency room someone remembers Jacy and we are always treated like family. But each time her body dictates we head that direction it feels like a giant step backwards and of course the inevitable panic attack associated with walking through those doors ensues! Fear solidly grips her mind as the thought of never coming back out is always present.

She goes to Stanford every two weeks for three to four days of treatment for her GvHD. It is a struggle, it rips at the fabric that is our family and we are very blessed to have continued help through immediate family and friends. We knew this wasn’t going to be an easy journey but wow, what a journey it has become!

I have become well versed on all medications associated with GvHD (Graft versus Host Disease) their indications and contraindications and with this knowledge my professional skills have been sharpened; specifically in the arena of assisting, acknowledging, and caring for any patient who has or has had Leukemia or cancer.

Our faith has been tested. We are constantly wondering what the bigger picture is here, what the “big” plan is supposed to hold and if we will ever receive a clue as to what is the answer. We wait patiently, trying our very best to understand, crying together, praying together, wondering about what the future holds-together. We feel robbed, she feels robbed of a life that once was so active and brisk. We both feel admiration and jealously as we watch other families, couples and dear friends moving on with their lives, posting pictures of holiday weekends, trips to Disneyland, camping and nighttime outings. It brings about feelings of remorse over time wasted, projects never tackled, feelings never shared, opportunities missed. All while a clock tic-tocs away in our heads.

It is a lot of weight to carry, not knowing if you are going to live or die. Knowing inside you can still feel the strong powerful woman you once were trying her best to roar like a lioness while recognizing those memories are waning, fading away, replaced by memories of milestones like the time you walked unassisted from your bed to the bathroom without collapsing or were able to get dressed with no oxygen on in just under 15 minutes. You are struggling to make the most of every day while only having enough energy to be cognoscente for 5 hours or less. Sleep is the only thing you know. You quit staring out the window because you can no longer have what’s outside. Fear gripping you constantly as anxiety rips through your soul. The only cure is more medication and a television filled with trash TV to keep your brain occupied 24/7. It becomes the new normal.

It is a lot of weight to carry not knowing if my wife is going to live or die. I have worked hard at caring for her over this last year. I have always thought of myself as kind of a half ass husband, but I can say without a doubt, I have done my very best to care for this woman I love. Making sure she has what she needs when she needs it, being there to hold her when she cries, assist her when she walks, make sure her medications are on time and she has food to eat before she takes her pills. I have grown to let her do things even though I don’t think she is ready for it. It gives her drive and purpose and if she can’t complete whatever she is trying to do, I am right there, a step away to encourage her when it is all over. I miss date nights with her, laughing our asses off at a little hole in the wall we would frequent in Winters, drinking wine and beer. Her staring into my eyes our faces inches apart and that smile! Oh that lovely beautiful smile!

But what I have instead is a better understanding of what marriage truly is. We all say the words; in sickness and in health, till death do us part. But how many truly understand the meaning? Marriage is a journey. And much like any journey it begins in the comfort of a room, with hopes, dreams and well intentioned plans. You both start out on the journey together, with fanfare, family and friends all wishing you well and it all seems smooth in the beginning; but when the journey strays off course, life becomes hard, bitter, with at times both of you not following the same plan you begin to define your relationship, and as storms come and go you rebuild, alter course and travel onward. A solid bond between two people and a solid relationship will flourish and grow with continued love and understanding thereby creating a foundation of stone.

I feel our relationship has done nothing but grow, leaving that foundation of stone for our children to stand upon and hopefully flourish. So although it has been a difficult year, good has come from this giant hill we are climbing together.

I haven’t been writing a lot about Jacy lately because we are living in our new normal. But as we move into the New Year approximately two hours from now I thought we would start the year off with an update.

Jacy has been feeling very sick, she is exhausted all the time, and can barely get out of bed. She has oxygen on 24/7 as without it her saturations levels fall dangerously low. Our family just returned from three days at the coast with family. Jacy was able to get out one day for four hours. She sat on the beach and enjoyed the ocean air surrounded by her sisters. It was an amazing moment for her and our family! Once back at the house she slept (not by choice) pretty much the rest of the time.

We are waiting to hear from her doctors as to what our next step should be.

She is scared as she doesn’t feel right, which of course is a different “right” from whatever “right” really has become for someone as sick as she is on a daily basis. She just seems to stay weak instead of getting stronger and that isn’t good. She has asked that as we head into the New Year, if people could please take a moment and send some prayers her way she would appreciate it. As we have seen over this three year journey a little prayer power goes a long way.

As the year comes to a close, I want to personally say Thank You to each and every one of you who have assisted my family in any way. Without the love and support we have received this journey would have been unimaginable.

Thank you all, Happy New Year and may all of you be blessed with an outstanding 2017!

 

 

 

 

 

Let’s go, let’s show, let’s rodeo.

Red was loaded down. The old truck held every conceivable piece of equipment one needed for a successful weekend. Saddles, bits, hay, shavings, chairs, clothes, food and one 33 foot long trailer. Three horses tucked neatly together separated by aluminum dividers munched on hay pressed into a bag that hung directly before their faces.

As we pulled out of the driveway the truck sputtered a few times, we even had to shut it off once or twice to reset the computer so she would keep dragging this heavy load. But no one cared. Any other weekend old reds antics would bring a look of nervousness upon our faces, an eye roll or two that this 208,000 mile beast was acting up again. But on this day we carried a bit more weight, and with that weight came a feeling of ease. Like we couldn’t do any wrong. I have to admit, even my feelings about whether we would make it or not waned.

For in the back seat, smiling from ear to ear, nestled between her two smallest children with a bag of needed supplies at her feet was Ms. Jacy!

Ms. Jacy had decided after two years of missing out on rodeo, not being a part of her children’s lives, unable to laugh and have fun in camp at night with all our friends, she was going to this rodeo hell or high water! No cancer, no leukemia, no AML, no bone marrow transplant, no GvHD, no nothing!! And so after carefully packing her bags, loading supplies into the trailer, GO, is exactly what she did!

There were plenty of worries/fears to go around. What if it is too dusty for her lungs to handle? What if she has an issue with her breathing? What if she becomes so fatigued she can’t move? What if she develops an infection from being around the animals??? What if, what if, what if?????

What if she was never able to personally witness the joys of her children participating in the one activity they really love ever again? Yeah, we believe that one thought outweighed all the other “what ifs”.

In reality, Ms. Jacy has been getting stronger. Her lungs still don’t want to fully co-operate, and neither does her body, but she has taken the stance of what doesn’t kill me should make me stronger! With that stance also comes a belief that she can look at life two ways.

  1. Sit in the house all day waiting for things to change, hoping they change, praying they change then regretting having done nothing but wait.
  2. Muscle through the pain, the discomfort and focus on what’s important. Living life, any life no matter what that life holds because in the end you can sit and watch it go by or jump on board and ride the wave!

Now as her husband I cannot lie, she worries me constantly. But if you know my wife then you know there is nothing, and I mean NOTHING anyone can say or do to change her stubborn Cuban mind once it is set!

So with that being said, she came along, which is exactly what we all wanted and it was a fabulous weekend! She was so happy to see her close friends, to watch her children perform, their children perform and to just be a part of life again! It was tough at times, by mid to late afternoon her feet would swell, she would be exhausted, but the kids were great, her friends were fantastic, and she never, not even once felt like a burden to anyone!

At one point during the rodeo we came back to find a poster on the side of our trailer! It was created by all the kids and it told of just how much she was missed and loved. It melted her heart.

Each morning she awoke with a smile, ready to watch rodeo, participate in any way possible, drink coffee, take pictures and catch up with people she hadn’t seen in years. It was the very best therapy anyone could have asked for!

The kids all did great! It was the best first rodeo I can remember in a long time! Oh Jessica struggled with her new horse and at one point actually fell off (of course she laughed at herself), Jake had a great Saturday but a stubborn Sunday and Parker didn’t quite get his steer wrestled, but it was a weekend filled with laughter and plenty of smiles.

Sunday night the traveling circus rolled back onto the ranch. Old red made it without a single hiccup which I found unusual. But as we cleared the front gate and rolled towards the barn, there lay three people, all half asleep, all exhausted from the weekend, all with looks of contentment upon their faces. (Jess rode home with friends) It was a thing of beauty.

Now of course this was short lived for as soon as I parked they all abandoned me to unload everything as if I was somehow their personal servant or barn boy which of course sent me into another stratosphere!!! But I digress…. Deep breath…. Phew…. Ok….

The point being, for a weekend, our family was back together, doing what we love, with momma in the stands cheering them on, sending them momma powers, and good mom mojo while I worked the arena, helped get horses ready and coached them along. It was the way it was supposed to be at that very moment in time. A step closer, as if life was almost back to normal.

It was a perfect weekend.

 

 

 

I met a woman today….

I stood nervously rocking back and forth. I don’t know why I still get nervous after all these years but I do. Just another presentation, a dog and pony show as it were but for some strange reason my brain reverts to when probationary was the status written below my helmets crest. Fear of failure, saying the wrong thing, not adequately relaying information to a public mass who in reality is really happy to have us around. Sure there is the occasional grump or bitter individual who for some reason carries a chip on their shoulder whenever we are around (and this night was no different) but the majority simply want to say hello, or thank you, or in some cases words can’t form and they sheepishly smile while politely waving as they pass.

It was a local schools annual harvest festival within our town. Our fire engine had been assigned to appear as part of an ongoing public education effort. We pulled up, met with organizers and took our place upon the basketball courts right next to our local Police department’s display. Doors opened, cabinets exposed, wrinkles shifted from our shirts, plenty of stickers loaded into the upper right pocket and in mere seconds they came and came and kept coming to our delight..

Over the course of two and half hours we helped children into our engine, showed them all our fire gear while explaining what we do along with a little bit of how we do it. Kids make me smile, they are honest, truthful, hilarious and have no filter. They are perfect human beings, their thought processes still untouched by the cruelty of adult life along with hurtful biases or opinions. There are days I wish I could still witness the world through their wide absorbing eyes. Days I wish I could go back and do a lot of things over again, channeling my inner child to greater achievements as an adult. But I can’t, none of us can and so the fun in my job is being surrounded by these fantastic awestruck little people.

Tonight though something else happened. This “something” has been happening more and more and I am not sure what to make of it. It always catches me off guard and I never know quite how to behave or present myself. Much like an acting student who for some unknown reason develops a serious case of behavior altering stage fright, I freeze under the pressure and become extremely uncomfortable.

In the middle of giving demonstrations a line had developed filled with children (and a few adults) waiting to climb into our Fire Engine. As we happily interacted with the masses by placing one child at a time inside the engine for picture opportunities a woman walked up and gently grasped my arm. She looked me in the eye and asked; Are you Betty? To which I replied; I am?

She then explained she had been battling breast cancer and with it how much she thoroughly enjoyed Betty’s writings.

As has been the usual mode of reaction, my cheeks felt flush, my heart rate doubled and I mumbled something. I don’t remember what I said because after I learn someone actually reads and enjoys my writings in person I suddenly feel like a 12 year old boy who has just professed his admiration to the prettiest girl in class and she’s responded by saying she likes me. Awkward and elated all at the same time!

This sweet lady with the kindest smile told me her husband was amazing, and how much she appreciated him along with all he has done for her during this very trying time in their lives. She asked if she could hug me, I said yes and as she did I felt thankful, warm, full of love and humbled.

As I have stated on numerous occasions, this blog took a life of its own when my wife became ill. It morphed into what I hoped would be nothing more than a journal to reflect upon after we hopefully conquered Leukemia. Then as time progressed it changed into an open forum for all to read hoping other spouses in my shoes would know they are not alone. A gnawing deep inside told me to share through my experiences with other spouses or caregivers. A reminder to others they have the power within them to carry on, pick up pieces and provide a solid foundation for not only their family and loved ones but for the countless other lives they touch along the way. Cancer, Leukemia, and Bone Marrow Transplants are no longer something someone else has, a blank face or nameless person looking sad upon a Facebook post or commercial asking for donations either monetary or life altering. But real people you know or someone you know knows! We can no longer turn our backs believing it is someone else’s problem to deal with because trust me the statistics showing those affected are all too real! This power lies within you to open others eyes, to reach out and comfort those who need your help because you my friend have walked this path and survived! These diseases do not curse just those who are carrying them and trust me their fight is hard enough for them to live with and handle on their own. But the entire process both physically and emotionally beats down hard upon all of us who live, love and care for those stricken. It is at times overwhelming at how much our lives change and the inner pain it can bring.

So to hear another human being while holding your arm explain with the warmest of smiles and softest of hearts exactly how your writings have meant something to them. Well that brings up emotions that are hard to contain.

I am not sure why I fumble my words, or feel uncomfortable. Maybe because I am shocked that anyone takes the time to read my blog at all. Helping people is all I have ever wanted to do, I always wonder just how many people actually take the time to read this spattering of words and I always wonder who? Who has it helped, who really needs to hear from someone right now because they feel as though they no longer can? Who? Who is at the end of their rope or feels like God doesn’t have a plan for them and this is all just a miserable dark place in their lives that will never end! Who? Am I reaching enough people? How do I reach more? If I do reach more am I writing the right material or am I even the right person they should be reading about? I really don’t think you can write the wrong material as long as it’s truthful and from the heart. But, what if I am wrong and someone out there is missing the point or thinking if that guy’s in pain, you know the one writing about always having faith and carrying on is in pain then why should anyone have faith things will be any better? I don’t have an answer to that!

Yet it remains so important to me; sharing that is. It has become so paramount there have been nights I lose sleep out of guilt for not having written in a week. Our loved ones and/or caregivers are so important, they bear so much emotional burden and over time people who were helping, slowly fade away. Its ok, they have lives, we as caregivers were and still are extremely blessed for the time any and all assistance was provided! It is how it’s supposed to be and no one expects anyone to still be constantly rescheduling their lives, away from their families and friends for 2, 3 or even 4 years later. Suddenly though one can understand how it is to become isolated and alone. 24/7 your whole world revolves around a single human being. Try as hard as you might at some point even your kids begin to suffer! Your intentions are great, you do the best you can and strive to keep their lives busy and full but trust me they feel it! They feel the isolation and to some extent a bit of emotional disconnect. Nothing changes though, we are still there, handling every aspect of our stricken loved ones lives? It is a job we take a lot of pride in, for if you love someone there is no greater gift than to care for them when they are down. It is what love is, it is what God would want.

So to the woman I met today.

Thank you, for filling my heart with joy, giving my writings meaning, and allowing me the honor of meeting you. I apologize if my response was awkward, it was not my intention.

You reminded me that one of the greatest gifts we as human beings have is the power to share ourselves openly with others. You gleefully shared your story with me by my having shared my story with you over time on these pages. Our lives crossed paths and I will never forget that.

My heart is full.

 

My name is Betty and I have an addiction..

Sitting in the stands watching junior rodeo today I couldn’t help but continually pull my phone from the upper left pocket of my shirt. Now this doesn’t seem like much of a “to do” as it were but as I kept referencing the electronic brain keeper between events it occurred to me I might just have somewhat of a problem. Not a dang it’s not working fast enough or shoot I left the sprinklers on or even an oops my wife texted me I forgot to call her type of a problem. But something much bigger than that! I believe I have an addiction?

Yep an addiction to instant gratification of flowing information spewing forth from this 2×4 inch screen! Every minute I am not moving this “apple” of a device comes out to fill an imagined or ill perceived void within my life! Seriously while I am typing right now my gaze continues to wander over towards this mesmerizing gismo as if it’s going to leave me, run away! You know self-destruct in Mission Impossible grandeur or heaven forbid its screen will just stay black, never to illuminate my life again with such mind bending information like what the hell Ryan Lochte is doing at this very moment or if a cage match has been declared between the two most unfit individuals to ever run a presidential campaign! Better yet I wonder who is posting something awesome on Facebook the “real” reality on the internet! Wait, ok that’s not a bad thing, I really like keeping up with all my friends. Until FB there were lots of people I cared about but lost touch with so the good intent or reason it was created side of FB still keeps a thumbs up from me! But with all of this power to reach out into our world instantaneously at my fingertips (once again I am not saying it is a complete bad thing) I also realized there is a bigger problem than my addiction to reading about Joe from Tennessee’s disgusting racism or Cheryl’s equally disgusting reverse racism or Brock the rapists light sentence (asshole) while along with all the inequalities, injustices and hatred pounding our senses every day making us wonder if we are headed towards anarchy and civil war (which is exactly what every other country hopes for) or if we can pull our heads out of are arses and get things together with love and understanding! Yes people there is a larger problem for me the newly crazed information junkie!!!

You see this open age of rapid fire information has changed my ability to read, absorb and understand! Ok I know that’s not worse than the direction our country is headed but hey, I needed a buildup so cut me some slack!

Yep, information today is fast and spun so well; but with whatever source it comes from who knows if it’s true or not and in reality I don’t think people really care! The way I read through stuff now is more like an Evelyn Wood reading dynamics course (only us older folks will understand that reference) than with retainable substance. If you don’t get me hooked within the first couple of lines well this magic device will find someone or something that will! Hence the ability to feed our minds with miss-information is formed. Don’t think for a second the story writing internet gurus don’t know this! Through careful data collection they have determined sensationalism earns clicks, clicks equal views and views equal a chance for an advertiser to be seen which in turn creates well spent advertising dollars funding the source or writer! The best part is these stories don’t have to be accurate or even good, and judging from the atrocious grammar contained within them it is obvious no one cares. But the damage done is there for all to see! When I read anything now I no longer settle in, gaining traction on whatever the author is describing; no absorbing relevant information or deducing a hypothesis from a well written piece. Nope, my brain begins to rapid fire after the second paragraph, I may stick it out through a couple more paragraphs but you better get to the point and quick or I begin scanning ahead, looking for key words to help me extrapolate what the author is “really” saying because let’s face it there is a hidden agenda in every written internet piece right? I mean that’s what all the commenting, shit stirring trolls who have anything to say about anything on any posting want you to believe while they are throwing emotional grenades in all directions just waiting for the explosion creating more hatred and discontent!

Also don’t get me started on what it has done for my ability to simply relax and enjoy a novel. My brain can no longer sit that long, moving slowly from page to page, waiting for a story to build, characters to develop, a plot to thicken as it were! Nope I might as well read just enough to learn who the characters are and then jump to the back of the book! There novel finished, case closed, I wonder what’s happening in the real world! Great job James Patterson killed your latest work in 42 pages! Don’t really care about the other 326! I Googled a review of the book helping me to plug in the missing clues. Cue me picking up my phone and OH LOOK IT’S A BABY IN A SKUNK COSTUME CRAWLING ON THE FLOOR FREAKING PEOPLE OUT!!!!! AWWWWWWW ISNT THAT CUTE! I MUST SHARE!!! Wait someone has commented it is child abuse, another has commented the child is suffering under the weight of that heavy costume and the parents should be arrested! Oh look a third says its Obamas fault! Yay!!!! Instantaneous gratification of idiot proportion right here at my fingertips!!! Ahhhh the world is right again, just as fucked up as when I put down my phone to try and read this stupid novel! Thank god that 15 minutes of my life I’ll never get back is over and I am on to more web surfing! My daily fix is in.

Now this is all happening to me; a 50 year old fairly educated, well-spoken adult who has no problems saying it like it is while being in command of his personal abilities to say yes or no to anything. Time and life experiences have brought me to this point. As an adult yourself I am sure you could probably draw the very same conclusion? Because you’re a smart, witty, thoughtful, educated, filled with life experiences person with the ability to put down that phone, turn off that pad or laptop at any time. Right?

So let me ask you this.

If a phone, pad or laptop with such far reaching potential and the power to change my personal ability to read, disseminate information, come to conclusions, and not just any conclusion but well education conclusions can change the way I learn and retain information, warp my sensibility, and control the extent of my emotions all while allowing me the freedom to say what I want when I want to anyone within the world wide web’s reach without repercussion can do this to me as an adult.

What do you think it is doing to our children?

Put it down, I dare you. Leave it down for the day, two days, a week! I dare you! I double dog dare you!!!

You can’t! Neither can I! We are addicted! Our children are addicted too and it is rewriting the hardwiring program witin their brains! I see it in our youth with emotional outbursts if juniors pad is taken away or it’s nowhere to be found. An inability to work our way through problems of any kind because the answer is on another web page or the YouTube channel! Kids becoming completely disorganized and afraid of trying anything away from their computer devices. I have heard stories of children in their rooms at almost midnight still scanning the internet with eyes either wide open and bloodshot or passed out with an iridescent glow upon their faces.

Teenager’s necks straining downward looking at their phones while walking, riding bikes recklessly, or sitting in their cars. A world of wonder passing them by all why they laugh at an instagramapictuetubeasnapchatamoment. They have no idea where they are when traveling with family because they are focused on their phones and can’t go a minute without texting someone, anyone, about anything. They are continually afraid they are missing some magic social moment, a minute shared between friends while moving blindly through life. Once I heard a story about a child’s phone that was broken and she had no device for a few weeks. According to a friend she was a different child, she was the daughter they had before biting into the apple.

Does any of this sound like addictive personality traits to you?

It is, I recognize it as an adult. I worry about what all of this is doing to our children and I worry what is to become of our country as we continue let the “benefits” of an electronic age rule our very lives.. The dumbing down of a society, the dependence on electronics, an inability to think for ourselves and the desensitizing of our youth. What about us adults? As we become more dependent what is it doing to our abilities to interact with others? We have a shield for our hatred, a hiding place for our sorrows and slowly our abilities to interact with each other are fading too as we sit together but rest alone, everyone focused on our individual portals to the world, ignoring what is right in front of our face. Other human beings.

I am no different, I am not preaching, I am simply stating what appears to me as fact.

My name is Betty and I have an addiction…

 

I can’t…

This morning I sat down, stared at the screen and thought; it has been awhile, I need to write. Hmm? What will I write about today? Maybe something funny, or pertaining to recently turning 50? I certainly do not wish to write anything sad. After reading a few of my last postings, I found my writings to be a tad whiney, or heavy. People certainly must be tired of the same old story.

Then as paragraph after paragraph littered the screen only to be erased by the mighty stroke of a delete button it came to pass I was trying too hard. So I asked myself; Self, why haven’t you written in a while?

And that’s where this posting truly began.

Betty, why haven’t you been writing?

The answer comes from a conversation openly held in the day room of a busy firehouse. Sitting in my recliner listening to others and their crazy busy lives. Camping trips, play dates with friends for themselves and their children. Fantastic vacations or simple evenings at home surrounded by family. Listening to life moving on as it should.

What was my answer?

Because I can’t…

Every time I think about writing lately, I stare at the screen and from the darkest bowels of my inner thinking machine a voice rises above all conscious thought and whispers; you can’t.

Getting up in the morning is a struggle. Oh I received 6-8 hours of sleep, yet the moment I must rise a fight with my inner voice arises. I can’t is all I hear. I may wander over to ensure the kids are up but then against my old daily routine I just climb back into bed, pull the covers over my head and pretend I’m not there because inside I just can’t see myself doing another day. I get over it and most days turn out pretty good after running into some of my favorite parents, co-workers and friends. But it is becoming an increasingly difficult struggle to get past step one of the day.

There is a mile long list of repairs and maintenance around our house. I wrote the list, and continually add to the list, yet I cannot seem to accomplish the list. I may get one or two of the easy things done, but then I panic, feel sick, and want to sit down near Jacy and veg-out. Excuses like needing to pick up the kids in an hour or man I am really tired all come to the forefront. But in the end, I just can’t seem to see myself getting anything done. I am sure it is no different with any other busy father, but for some reason that feeling is more burdensome than ever before.

Ever cry at sappy movies? Apparently the water works now turn on for just about anything! Ok watching the SPCA commercial where Sara McLaughlin is singing while sad eyed, unadoptable, abused animals are trapped at the shelter doesn’t count. You have to be pretty heartless to not squeeze a little water out of those orbital areas of yours after watching puppies cry. I found myself tearing up explaining a reality show the other day where the daughter of the contestant showed up to tell him he won! Kids doing well on Americas got talent, winning a round of American Ninja Warrior, or watching the friend’s episode where Ross and Rachel finally kiss!! Yep they all bring on the rain! WTF???? Hell Tommy Boy was on the other day and I was crying at the passing of Big Tom Callahan!!! I just can’t keep crying at everything it is wearing me out!

My fuse is much shorter and I can’t seem to control it or keep that Irish/Italian temper from rearing its ugly head. Poor Jake has been bearing the brunt lately. Now some of it rightly deserved but in hind sight more than a few times have gone over the line with things said that cannot be taken back. He always smiles at my apologies and says it ok he forgives me but all I can think about is deep inside I am probably hurting him, hurting his ability to grow and handle stressful situations. I am afraid one day I’ll snap over something stupid and he will have had enough. Irreversible damage complete. Then what? Oh well I can’t seem to wrap my mind around the parental complexities of this issue right now because I will start crying again and no one needs to see that here at work.

Everything seems impossible. From completing my monthly budget, paying bills, changing a light bulb or even just being something, anything. It all seems too much right now.

As I am writing this I just realized my heart rate has doubled. I figure it’s my fight or flight response to even mentioning any of this in combination with feelings trapped inside that I can neither recognize nor willingly let out.

I keep using the analogy that I am a bottle filling with sand. Burdensome, gritty, heavy sand. This sand has reached the top and either I am able to upset the bottle, pouring out this heavy, gritty, burdensome property carefully into a container of contentment or it will overflow, and we all know what happens when sand pours upon us against our will. We end up carrying it home, it’s stuck in the crack of our ass and it takes a month of vacuuming to get it out of the car!

Our life has been incredibly hard. It remains that way. Watching my wife suffer daily is taking a toll on me. Of course I have no right to complain in comparison to the toll it is taking on her. It has been a long, long road.

Jacy has had several hospital stays of late. The other day they put a port back in to help with her current treatment which feels like a giant set back. The steroids have doubled the size of her face and left her weaker than normal. The other day while at a friend’s house doing her very best to live life as normal as possible she fell. Yep, a simple walk down a 10 yard path from patio to arena and her legs just quit! She ended up with a bloody, black and blue eye as her sunglasses tore open the fragile flesh under her eye. She feels consistent insult to injury on a daily basis.

My wife has decided to live life, to go to rodeos, make trips to the store, and do her best to become the mom that she was pre-BMT. She doesn’t have the energy or the strength, but she does have the resiliency or ballsy moxie to do exactly what she wants, family or doctors be damned! I admire her on many levels. I do my best to let her accomplish what she wishes within reason, while at the same time worrying if she is doing more harm than good? Once again though, who am I to say? I don’t currently have the body of an elderly woman, no strength, no vision, with pain surging throughout my entire body 24/7. I don’t need to consume 23 meds, three times a day while also partaking in breathing treatments (4 different kinds) wearing oxygen and doing my best to keep myself fed when I either don’t wish to eat at all or only crave crap food of no real substance? I may be her husband, the only person she can truly confide in, the one who promised in sickness and health, till death do us part. Yes that may buy me some vote, but if it was me? If it was me this was all happening too, would I have the strength to make it another day for my kids the way she does every single day? Would I wake up every morning, take my meds, and then do my best to smile while making school lunches even though I really can’t see? Could I sit in a chair for most of the day either passed out from the very same medications or wide awake scanning the internet feeling like shit because I couldn’t go outside with my horses? Could I kiss my kids goodnight with confidence that tomorrow will be a better day like she does? She is angry, she is sad, she is happy, she is resentful, she is hopeful, she still wishes every day for one more day, one more week, one more month, and one more year. Another camping trip or the ability to take a family cruise. She is amazing.

Could I be like her?

I can’t………………………..

 

At the end of the day, whiny or not, dark and gloomy be damned. I decided to write these blog postings journaling my wife so others who may be feeling the same way would know it is ok. It is part of this weird, sometimes unforgiving magical mystery tour we are on and you are not alone. To those currently in treatment. This may be the way your caretaker or spouse is feeling and to know they love you, care about you and will do anything to make your life, your situation easier for you. We will never leave your side, so don’t be afraid to be who you want to be, use what strength you have to enjoy whatever moment you wish to enjoy and know the whole time we will be standing right by your side. Even though right now I feel as though “I can’t” when it comes to many things, I will always believe in the “can” most of us hold deep inside. I also believe that for the most part all people are good caring human beings and no matter the situation we all rise to the occasion.

Ok, I’m done. I can’t write anymore….