The top ten behaviors a man should practice after his wedding day to hopefully create a successful marriage/life.

Summer is upon us and with it a cavalcade of weddings adorning our handheld devices through many wonderful social mediums. A wedding is truly one of the most beautiful moments in a person’s life. The coming together of a young couple, their families, friends, associates all in the name of love. Both young and old find some nurturing aspect of these long held rituals. Whether it be a remnant of time gone by, the same warmth felt from that very day as you hold your partners hand many years later or simply the romance associated with watching others in love. It is all there for those who love, love, the idea of love, or being in love. Even the most cold hearted cannot help but smile as two become one in a union of souls and adoration. It is also a very special day for divorce attorneys as another crop of prospective clients march bravely into the streets!! Wow! Sorry got off track rather quickly on that one! In poor taste?? Oh well I apologize, now where were we? 

The thing is, what happens the day after your wedding? Is there an instant change in the relationship? Most say being married is just like dating, only now you share a name whether hyphenated or not, and a bank account. Life before marriage was perfect and arranging this union was the mere icing on top of a proverbial cake when it came to building a life together. There was and is that feeling of; nothing could ever tear the two of you apart and marriage was simply the concrete or glue needed to bind this relationship.

I know this all to be true because I felt exactly the same way, not once but twice.

My life has been filled with many ups and downs, hell some would say it has been quite the roller coaster ride! At 50 I am pretty sure I have experienced more than most, yet still less than others. There have been more tears and moments of doubt than I care to recall. I spend quite an amount of time wondering, contemplating how to make the lives better for those around me and am constantly trying my hardest to learn something, anything from any and all experiences I am exposed too.

When it comes to marriage as with most men, I am no genius. But I have and always will love the idea of being in love. There is someone for everyone, I truly believe in that premise. Sometimes it is not the person you are looking for and love will come up and slap you in the face! Your relationship blinders having been so thick and narrow you couldn’t see it coming! But there it is and all of a sudden you are awe struck/smitten. Sometimes it’s a feeling or a premonition or you even feel as though God or some form of higher power is steering you in that right direction. A perfect union that becomes love, eventually with a little luck becomes marriage and then when all is right, it becomes a life. Something to be proud of, a traveled road with a gigantic footprint left behind, hopefully a footprint of love pointing the way for others within your family to walk proudly in those very same steps.

No matter the journey traveled how do we get there? How do we have, or create a successful marriage? Television and the movies would have you believe marriage is either a gigantic disaster waiting to happen or sprinkled with chocolate upon the gilded wings of angels. Nice picture huh? MMM chocolate..

The fact of the matter is marriage is work, at times extremely hard, emotional work! You see the thing is as I asked previously; what happens the day after? And after looking at all the lovely wedding pictures on FB today for some reason I thought maybe, just maybe some advice whether warranted or not from a man who has gotten very lucky twice in his life when it comes to marriage might do the trick! Advice from a man who is still madly in love with his wife and the very spirit that drives her every day regardless of everything that has happened in our lives would or possibly should be in order. We learn from those who came before us and regardless of the age there are some basic strategies that I believe hold true no matter how old or young you have become. Strategies or an ideology that hopefully can be built upon and passed down to your children should you make that colossal child bearing mistake! I mean devoted loving moment that will fill your life with so much joy (misery), happiness (frustration), fulfillment (you’ll never be alone again) and love (feels so good when they say I hate you)!!

That was pure sarcasm so no one get their undies in a bunch!!! I absolutely couldn’t live without my children! (No seriously they are part of my retirement plan) Hee, Hee, hee!!!

Ok I’ll stop now.

So after much thought and deliberation, dwelling on the many times I have failed to follow my own advice, here are the top ten things in this man’s eyes, from obviously a man’s perspective that you must do to even attempt creating a long and happy marriage. I am sure some will disagree, but so far by following these simple rules my marriage has indeed been the highlight of my life.

  1. CONTINUE DATING

That’s right kiddo’s, just because you are now married does not mean dating stops! I know you youngsters are saying right now; duh! We date all the time! Well wine tasting weekends, sports venues, concerts, and even burning man will all fade away with time because children, finances and career choices seem to take its place so make it a priority. Year 1-5 will be easy! Its every year after that life seems to continually get in the way! Don’t let it! And if you make a set date night, keep it!!! Or at least do your very best to keep it! There are exceptions but don’t make them the rule, keep them the exception. Listen, date night doesn’t have to be at the Fairmont! A walk at the beach together, a night under the stars, a movie, heck even just shutting off all electronics and talking over dinner. (We will get into talking over dinner later) Just make it happen, you both need it!

  1. LIVE WITHIN YOUR MEANS

I think for men this may be the hardest! Let me break it down for you boys, just because you are now married does not mean YOUR income has doubled!! Oh I see you wringing those fists together thinking that new Malibu Wakesetter is on the way!! Or it might be time to upgrade from the old Ford Focus to the BMW M5! Here’s the sales pitch; I mean come on honey it will be a sweet luxury car you can drive too!!! Hey I know, now that we have combined our money we can put a swimming pool in the backyard and then all your hot friends can come swimming!! And about that pool thingy we need to buy a house so we can have a pool! Let’s get on that shall we!!

Yeah, ahhhhhhhh NO! STOP!!!!! It starts from day one, yes you now are a part of each other’s financials and that does make a difference in both your lives and the decisions that need to be made, but they are decisions made together, as equal partners in a hopefully thriving business (your relationship). Work together on all big purchases and decide together how, where and when any monies will be spent. Keep your expenditures to a minimum and never, ever live outside your means. Just because you have credit, and together your credit score is off the charts does not mean you need to use it!! The more money saved the better! Always have a minimum of 6 months’ salary for you both squirreled away somewhere and an emergency fund with a set minimum decided by you both that is for nothing but EMERGENCIES!! Just to help you out with that last one gentlemen, running out of beer on poker night with the boys is not considered and emergency! Are we clear on that? Your car breaking down (you know that four wheeled object that gets you back and for to work) when you’re short of cash between paychecks, that lads is an emergency!!!

So play it smart kids, save, save and save! Start a ROTH IRA early if you can, and save some more. Put a monthly set amount in an interest bearing account and trust me when I say; you’ll thank me for it later!

  1. ONE PERSON DOES THE BOOKS

Ok this one is up for debate, and I am sure many of you are saying right now; OH HELL NO!!! But I have found if the both of you in your love lorn, twitter pated state decide to combine finances (some couples don’t, keeping separate checking accounts and that’s perfectly understandable and ok too) then together determine who is better suited to manage those finances and assign that person to do so. There are those that believe every bill should be gone over together or splitting the bills like roommates is the perfect fit. You know if that works for you fine, but I am here to tell you, life between the two of you will be so much happier if only one person bears that monotonous monthly barrage of bill paying splendor! Then at the end of the month the two of you can discuss expenditures together if you chose to do so, ensuring your finances are still on track. Bills being paid on time will become a learned habit by one person and there will never be any miscommunication about how, where or when something should be paid. Now of course it also frees up that partner of yours to live their life very much like my wife does. She says she lives like a mafia wife. She don’t know where the money comes from and she don’t care, she knows the house is stocked and foods on the table, and that’s all that matters. So what if Jimmy Beans took one in the head for not delivering his monthly vig, he should of fucking paid up so mamma can get a new pair of shoes damn it!

  1. BE SUPPORTIVE

So here is one that’s going to be hard for some of the men to hear. Wait, no they will hear it, but not understand it, no wait! They will understand it but the definition of what it truly means to be supportive will be lost on them. Ok I am being tough on you guys with generalizations but it comes from a place of experience, understanding and acceptance of my failures as a man.

This was one that was hard for me because what I thought was supporting was in fact me devaluing her attempts at whatever it was she was attempting. Right now you are thinking; huh?? Let me explain.

Example; your wife comes home and states she would like to go back to school, adding onto her degree would help fulfill her desire for higher education.

Great! Right!

So you tell her you are behind her 100%! You tell the world how awesome she is for doing this and you expound all the benefits both didactic, mentally, professionally and emotionally she will receive by attempting this profound journey! Yep you are showing support.

Really you aren’t doing a damn thing but giving lip service.

Where are you when the laundry needs doing? When her dog needs walking, when she needs help juggling work and classes? Where are you when her study group goes late? Are you an understanding partner by having some dinner ready when she gets home, some alone time for her to decompress or do you play word games of guilt with her mind. Oh you think telling her how much you miss her since she has been hard at the books every night is supportive but the reality it is, you are whining and selfish. Afterwards she ends up feeling bad, then after a while she begins feeling so bad she starts slacking on school work needing to be done or she slowly starts resenting you for the pressure put upon her and your relationship. She knows going back to school has created an added strain to the relationship, but she doesn’t need you showing just how much on a regular basis. Now in a strong relationship she really misses you too and will definitely let you know without prompting. She will do her very best to keep date night in the forefront, alone time between the two of you is always in her thoughts, even just being together at night watching a movie should be considered a treat! But don’t throw guilt, even unintended guilt around like its everyday fodder. Don’t let your insecurities come across as support. Because it’s not.

A supportive spouse is there as a partner! Be supportive in any way possible. Remember guilt is bullshit and talk is just that, talk…

  1. WORK SHOULD NEVER COME FIRST

I know, I know, it’s a career thing! We should all retain that hardened resolve to succeed. In my chosen profession as a firefighter the building is filled with Type A personalities so it appears that working hard to obtain that next step, notch in the old career belt would be an absolute! One pitting themselves against the other, striving for success and always giving every ounce of what you have to become the very best you can be.

But there is something you should know now while you are young that may be really hard to understand. You cannot get back time you never held. From the time I left home as a young lad I have worked my ass off! Sometimes there were three jobs at a time, me scratching, clawing, working my way towards something anything! After marriage it was no different. My excuse was always centered on building a life for the two of us. Then I was trying to provide for the three of us, for a house we had purchased, and not long after I was providing for the four of us. I was never home, ever…

When I became a firefighter after years of working a fulltime job, a part time job and volunteering. I swore I would never put my family last again. I made a promise to my wife I would put her and the kids first no matter what! That first year and a half, I worked every overtime shift, every strike team assignment and went to every week long class I could attend. It never stopped, or should I say I never stopped. Promise after broken promise all under the guise of bettering our position through hard work and laborious conditions.

My first wife passed away that year.

She never reaped any of the benefits I promised. She never had any of the time I swore was coming, we never had any family vacations, time away just the four of us. There was never any special memories made, just memories of her life, my life and the two of us passing each other on the way in or out, me coming home from work then her heading to work. Me heading off to work then coming home one, two sometimes four or even seven days later. Her frustration and sadness was written all over her face. I could not get back that time I never held.

Her death taught me a lot about myself. What a selfish jerk I had been, that I was not who I thought I was but was exactly what everyone else made me out to be! It was painful to recognize, a horrendous image in the mirror looking back upon myself. Greedy and self-centered, a man caring only about his personal ambitions. I promised if I was ever allowed the privilege to do it all over again. Things would be different. A life that would be vastly different. I would no longer turn my back on those I loved for selfishness.

My family would/will always come first and to that end I have kept my word. I did remarry and my wife is a selfless, amazing human being. I don’t know where she came from or why she chose me. I don’t know where I would be without her and I have worked very hard at keeping my promises while always working on becoming a better man. I screw up time and again, after all I am a man! But make no mistake, she and our children have always been the first priority in our lives!

OT up on the books? Only taken after talking with my wife, my kids. Checking to make sure there are no family commitments that precede it.

Family vacation planned? Plan it! Take it, do it, enjoy it, and create those memories lasting a lifetime!

Kids are participating in school sports? I am there! No work or project will ever stop me if I can help it! From standing at the sidelines, cheering on my children or simply standing there quietly where they can see me and smile knowing dad never let them down.

Now don’t get me wrong, in my profession there are definitely times where it just cannot be helped and I am at work whether I like it or not. It is part of the emergency services life. But I chose, work for and have stayed with a department that is close to my family, their schools and sports activities. So even while I am at work, occasionally I am able to still participate depending on the activity. I am one very lucky man in that aspect. I am keeping my promise.

I will preach it a thousand times! Family, your family, your wife should always come first.

  1. TIME APART IS GOOD

Ok I know she is your best friend, the two of you do EVERYTHING together! She is the sunshine in your morning the heavenly silver lined cloud that adorns your evenings. When you look at her your brain turns to mush and your heart beats to no end. She is the non-existent unicorn you have captured and she is all yours, no one else’s. Skittles and ice cream for everyone!!!! Yay!!!!!

But who were you before her?

It is a valid question. Think about it.

Yes the two of you will grow as human beings together. There are parts of you both that will change over time as your lives expand and your beliefs change. But I ask the question, who were you? What were you? What were the things you loved to do or partake in that developed the person she fell in love with in the first place?

There is nothing wrong with a weekend away fishing or hunting. Poker night with the boys or wine tasting with friends now and again. There is nothing wrong with loading up the horses with a few buddies to disappear into the hills for a day or two! Still participating in the activities that made you well uh YOU!

For me it is fishing and riding motorcycles.

If I can get away fishing for a day or two I reboot my brain. Remember why I am who I am. Reflect on all that has happened over the last few weeks while finding where I have either failed or succeeded. It is that opportunity for me to remember who I am, while doing what I love with no expectations or assumptions.

The same goes with motorcycle riding. If I can disappear for a day or two, the open road helps me find myself. The solitude in combination with that motor humming beneath me, the openness out on the road, an ability to be one with my surroundings, smelling the air, feeling the temperature changes as I ride! I find myself very quickly. Motorcycle riding and motorcycles in general is something I am very passionate about, I have been riding motorcycles since I was 15. So you can see it is one of my activities that allows me to remember who I am, where I came from, cleansing my soul and regenerating my resolve.

So find that thing that is you! Keep it, hold onto it, and use it when needed. Your wife will understand, it is the reason she needs a girl’s weekend, rides that triathlon, participates in marathons or has bunko night and time with her best friends. We all need that something that defines who we are while allowing us the freedom to grow.

Now if your thing that defines you is bars and strip clubs! Buster you are on your own!

  1. CREATE YOUR OWN UTOPIA

This one to me is very important! So many of us live together as couples/partners but really we are living apart. We rent, we own, we live in a van down by the river! But we treat these places as stop over points, places to rest our heads at night, a place to keep us out of the weather and nothing more. All that is good and fine, but the reality is, as a married couple or partners your domicile should not only be a reflection of the two of you but a place you look forward to being!

Seriously, when you are at work you should not dread going home! Your home, no matter where it is should be your vacation spot before you even actually have a VACATION SPOT!!!!

Your mind is blown right now huh?

Think about it, don’t you want to live somewhere that you cannot wait to get back too? I know I do! Our house is exactly what we always dreamed it would be! Yes I totally need to remodel the kitchen and we need new carpets, ok the entire interior needs repainting, (shit feeling kinda bad about our place right now) but when you pull into our driveway and look around you see something we have worked very hard for, a place our children will remember the rest of their lives, a place where I can sit under a tree and watch the dogs run about. A place where my horses walk up to the back fence and say hello. It is not what everyone would want, it is more than some and less than others, but it is our place. I look forward to going home and being there and if I never was able to travel on vacation again it would be fine. You see I can simply move the trailer out back and build a campfire. We are there because it is our vacation spot before we had a vacation spot! It is our utopia.

Find what makes your place special and expand upon it! Dream it together, build it together, live in it together and before long it will be your utopia, your special place filled with love and personal growth! A place you long for every moment of the day.

  1. Children

I have talked about children a little in this list, as if it’s an assumptive equation. You know like;

Billy + Sally = Baby Dudley

But here is the thing and I cannot stress this enough if you decide children are for the two of you! Do not under any circumstances if at all humanly possible have children before you are ready! Ok that might have been a little strong, but here me out. I understand there are times accidents happen both pre and post relationship solidification. And you know what, if you are ready to meet that challenge head on then you do you and do it damn well!! Good on ya! But there is a family dynamic that has bugged me from before I even understood what it meant.

Family members that start pushing children the minute you get married.

Mom, dad, Auntie Bee, Uncle Rufus they all miraculously become that stock trader with the inside scoop on child rearing. Pulling you aside and whispering in your ear that little insider trading nugget that will undoubtedly enrich your lives.

Things like……

Hey buddy listen, you and the misses should really be getting to knocking boots seriously right now! The quicker you have kids the sooner you can retire without having to pay for the little shits anymore!

Or

Hey girl, you know if you have a couple little dumplings right away you will be young enough to rebound that body and still have time to rock a career after they get into school!!

Or

Hey guys my wife Gertrude is pregnant so why don’t you two get pregnant as well then we can raise our kids together!!! Doesn’t that sound like fun???

Or-and this is my personal favorite

Hey kiddo the faster the two of you procreate a couple of tax deductions the better off you’ll be financially. You know what I’m saying?

Why yes, yes I do because I speak English too… Ugggg!!!

Each one of those lines has been used on me over the years so the names have been changed to protect the innocent!

Here is the deal. Have children when you are ready. I know you are thinking; when will that be? Trust me you will know. Like dropping a hot iron your foot you will feel the pain and know the time is right. On the first round we waited five years. We decided we wanted to build OUR life together before bringing another life into the mix. It really bothered some of our family but we didn’t care. Also if it happens it happens and that’s ok too, just have the resolve to do it your way, the way the two of you want to make it happen. Everyone means well but sometimes you just need to remember that following your own path is alright, regardless of the popular consensus.

Also, and this very important as well.

Once you have children. Never, and I mean EVER let those cute, cherub like bundles of love divide you.

My wife comes before my children. Always! If there is no us then there is no them. Children are like sponges, absorbing everything they see and hear. By placing my wife first all the time it teaches them the importance of having respect for one another. They will do everything they can as they grow to wedge themselves between the two of you, to get what they want at all costs and most of the time they don’t even know they are doing it! But if much like the war, you are a united front then the enemy will never get through! Once they feel the repeated habit of unification they will understand its importance and actually relish in the reliability of two parents on the same page. It becomes a feeling of safety for them because they know both parents care enough to keep the emotional ship on an even keel.

  1. LEARN TO ACCEPT CHANGE

Life is about change, the sooner you figure that out the better off you’ll be. We grow older and our bodies change. The sun moves around the earth, time moves on and our jobs change. We wake up every day and our moods/tastes change. Our union or marriage will endure change time and again. I mean you aren’t still wearing that Cosby sweater from the early 90’s are you? No you changed and your taste in clothes has changed. Or at least I hope so because nothing is more sad than that 50’s something guy with a mullet still trying to rock the members only jacket and parachute pants from 30 years ago. No sir you can’t touch this! Nor does anyone want too!!!

Accepting change can be a daunting task at times, but accept it you must. To fight against the hands of time is ludicrous and I can say from experience that in the long run most times change is good. Yes some times change can be bad but after careful consideration I am sure you will have learned something along the way.

So remember it may be same as it ever was but in the end, change gonna come.

Embrace it.

Well Gentlemen! Here it is! After much thought and consideration, countless reflections and several self-inflicted go fuck yourself moments! If you are still reading this long ass diatribe written by someone with no real credentials and an incredible ability to sound important when in reality I am nothing more than a hack sitting alone in my basement!!! I bring to you the number one most important thing you as a newly married man can do to ensure a successful marriage with many years of unrelenting happiness falling upon your freshly adorned virgin feet of gold!!!

Are you ready? Can you feel it’s importance???

  1. LISTEN, PARTICPATE THEN RECIPROCATE

What? You already listen you say? You are the best listener in the world? You are a solid participant in your marriage and of course you love to reciprocate right? Of course you understand reciprocation is completely different from procreation? You got that? Yes?

A little confused right now? Let me help.

Us men are fixers, we love to fix everything! If we can’t fix it with our hands then of course we are going to fix it with sound advice, if we can’t fix it with sound advice then of course we will do our best to fix it emotionally. If we can’t fix it emotionally then we pretty much say fuck it and have a beer, it wasn’t worth fixing anyways!

Here is the problem fellas. If you want to have a blessed, wonderful marriage learn first to LISTEN.

Listen with your ears not your mouth. That’s right, one thing I have learned through many hard headed interactions is my wife 99% of the time does not want me to fix the problem, any problem. Nope she simply wants me to listen, quietly, without a response of any great magnitude. You see she already has the answer, she has already worked the problem out in her head, she has already taken the emotional steps to remedy her current situation, and she only needs me to support her by listening. Quietly, carefully, cautiously, while looking into her eyes with great interest. Don’t have a response ready, don’t talk Just listen.

She also needs you to PARTICIPATE.

You want to know why things have been a little, well shall we say, ICY between the two of you lately? Caught yourself holding in your stomach while gazing into a mirror wondering if she is no longer impressed with that ever changing bod of yours? Thinking maybe the fire is slowly dying because you cannot seem to get her in the mood? You have been married or partnered up for just over a year now, five years, ten years, twenty years! Can things really being going south?

PARTICPATE!!!!! You know what gets the old juices flowing with the supposed love of your life? Let her come home to find you vacuuming!!!! Want to see her strip those clothes off and jump you? (ok this is my fantasy but I think it fits good here) Let her walk in while you are folding the rest of the laundry no one could get to all week! Wanna see her smile and give you that adoring sly look she uses so well to weaken your fortress of steel? Have her come home from a long ass day surrounded by morons to a well cooked meal (Sorry Boston Market doesn’t count) and a glass of her favorite wine? You do know what her favorite wine is don’t you? If not you have some fucking homework to do!!!

That’s right fellas a marriage is a two way street. There are days it’s going to suck for you and there are days it’s going to suck for her! So be a team player my friend!!! After all the last time I checked the two of you were part of a union! A union by definition is the act of uniting two or more things! So start acting like it!!!

Kids need a ride to school? No problem, you got it! Participate!

Dry cleaning needs dropping off? Damn straight it’s on your way to work! Even if it isn’t!

Doctor’s appointment? Hell you will drive her! Of course unless she really doesn’t want you too then uh, hey how about we meet for lunch after??? Don’t know, I am winging it on that one! I said I was a hack working out of my basement so let it go, it’s still great advice!!

You see where I am going with this? Participate, become part of the solution not part of the problem. You no longer live at home with your mommy and if you decided marriage was for you so a woman or partner could cook, clean and do your laundry then you just married your mom! Uh GROSSS!!!!!

So get off the couch, clean up, do some laundry, make some dinner, and be a part of the great team you envisioned when you said; I do.

RECIPROCATE or to give and receive. For all that she gives you, brings to your life, shares with you unconditionally. Give it back and more. Living the selfish life is no way to live. Living it while married is a recipe for disaster. She fell in love with you just as much as you fell in love with her. You joined together, whether under the eyes of a God or the powers of the universe. For every little moment you share, a touch of a hand, sweet kiss or even just that special way you gaze at each other from across a room. Reciprocate, give it back, and then give it back some more. Never stop giving, never stop touching, never stop saying you love each other, never stop holding hands. Some days it will be hard, you may be mad at her, she may be mad at you, heck you both may equally want to throat punch each other! We are human, we are an imperfect animal. But where we can fix that is by always showing a love for each other. Remembering why we became a union in the first place. What it was that created this love and if we stop reciprocating on one side, the other or both, then the love dies. Boooooo!!!!!

No matter how mad I may get at my wife, or mad she may get at me. We have always done this one thing, this one simple thing and the minute we do it, we instantly begin to feel the love we have for each other, we start looking into each other’s eyes, and then we begin talking. Once you start talking the problem can be solved and even if it’s not solved you know what you just did? Right? That’s right gentlemen, you listened, you participated and then you reciprocated. BAM!!! IN YOUR FACE!!!!

That one thing we do? We hug.

At some point either she or I will say; do you want a hug? Sometimes it no, I am not ready. For me I am a hugger, it is who I am so I am always ready for a hug. I may not really want it yet, but I’m ready. It’s ok if neither person is ready. I wait patiently, and after a bit of time, we see that look in each other’s eyes and we know, we are going to hug it out! It’s only a matter of time before we are laughing and watching The Walking Dead or Americas Got Talent together!! Whoop, Whoop, case closed.

So there it is, just in time for the summer marriage season! I apologize if this was no help at all or you were looking for advice to help you with Farmers Only dot com.

I’m just a man, an imperfect being, trying my best to make the next day better than the last. If I can drag you along for the journey all the better. Learning is so much more fun in a group than all alone.

Good luck.

 

Remember if you like my page then PLEASE hit the like button! If you think my story is worthy, then please by all means share it with the world!

But if you hate it! Really hate it, well then, I have a very particular set of skills, skills I have acquired over a very long career. Skills that make me a nightmare for people like you. If you like my article, well then, that will be the end of it. I will not look for you, I will not social media stalk you. But if you hate it, Really hate it! I will look for you, I will social media stalk you, I will find you and I will leave you with a very nasty emoji…

 

 

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I dreamed a dream about a dream until I realized I had been dreaming all along.

As a child I would lay awake at night gazing upon a ceiling of white, not knowing what darkness or light of a new day may bring. Excitement, happiness, sadness, confusion or worry were commonplace in those silent moments before slumber. This single moment of nightly reflection was a time I dreaded for I neither knew nor had the ability to process each and every thought or feeling rapidly infiltrating my developing brain. So I did my best to create an alternate reality (you know the dreaming before you actually dream) about the future and what it may hold. This was done with a gentle rocking back forth as if I was a baby clutched within my mother’s arms.

Eventually I would contort until finding I was flat on my back. My eyes cast toward the sky, head laid upon a pillow for which I would trust with my slumber until well into adulthood. Then and only then after dreaming about dreams would I drift off to sleep and eventually dream. It’s funny how things can become so very important when we are children and yet nominal as we grow older. That pillow was a lifeline to some nominal form of sanity. It was a trusted object for which I looked forward to after a long day. A moment of pure bliss as my head met its tattered misshapen form. It smelled good, it formed to my head just right and it meant that hopefully after a little blank moment or enlightened thought process the best was yet to come.

To dream

What is it to dream? We dream with eyes wide open about our futures and what they may hold. We dream about what we want to become as we grow older or where we wish to be within a certain designated time frame. We dream about that perfect human match, a soul mate who mirrors our better selves forming a solid foundation for which life and dreams can be achieved. We also dream as we sleep. The subconscious collecting data from deep within our cerebral cortex, correlating it into a one night only performance. Hyper-infusing our confidences and fears into a woven tale of wonderment, confusion or terror.

As a child I recall dreams were abundant. They would come and go, filled with mystery and wonder. Our subconscious mind working overtime filling our thoughts with the impossible, the amazing and at times the downright frightening! But as a child, I can remember the importance of dreams. How some mornings they left me mesmerized or flat out invigorated! I can remember getting dressed before school thinking today anything is possible! All from a dream that boosted my confidence or left me wondering whether or not it was in fact a dream.

During those very early years it was mostly dreams of playing baseball, swimming, learning to ride a bike, or flying! Flying like a superhero, swooping long and low over rooftops with the speed of lightening. My dreams always had a happy undertone that I was popular, or famous and life was licking my fingertips waiting for me to grab onto it and hold it tight!

Into the age of teen wonderment, nightly I would drift off with rock music playing in the background much to my parent’s dismay. My dreams consisted of cars, high school and girls. Real cars would fill my head, not the plastic ones rolling around our streets today! A 1957 Chevy or a 1966 Chevelle! Yes hardened steel and abundant horsepower!!! My 1964 Chevy truck became my world and before sleep I would dream about having the money to one day fix it up so that it would shine, making the cover of Hot Rod Magazine.

During this time I was particularly fond of writing (shocker huh?) and would pencil my dreams in the morning upon waking. I dreamed of being a writer one day, I also dreamed of being a cowboy, or a movie actor. This of course led to desk bound daydreaming where in class my thoughts would wander off and I would be dreaming about the day I would have enough courage to leave home to chase those exciting dreams. An actor, on stage or in the movies I didn’t care! Imagining myself in a full scale western movie, riding, shooting and doing my own stunts! Sometimes I would dream about being a doctor, going to school for a really long time just to prove to my parents that even though school was incredibly hard for me I was in fact smart after all.. It was certified Walter Mitty syndrome!

I never did have the guts to leave, head out on my own. Terrified of the unknown and worried about rejection along with where I would sleep or eat, those dreams became nothing more than lost hopes. I regret those decisions to this day.

Early adulthood and my dreams began to wane. Sleep becomes more of a necessity as life treats you a little harder and exhaustion gives way to reality. The reality being there is no longer time for dreaming about any future while lying in bed. Work became my outlet and I ran at times to the beat of two or three jobs at once. My cherished pillow, the one I longed for at the end of the day no longer mattered as resting my head anywhere warm and dry was more important than comfort or security. Life has picked up speed and there no longer remains time for my silly dreams.

Marriage and not long after children come, days are filled with responsibilities beyond comprehension. My thoughts range from love and pride with this life we are building as a team to worry and fear for what the future holds for us both and this family we have created. Today’s moments are about these people who are now the backbone/foundation of your life. Your dreams for the future are no longer your own but those of a collective whose agreeance is mandatory. These moments of life you will cherish forever, they will create a better and stronger you, you will achieve more than you imagined but those achievements may not be part of what you initially dreamed life would become. You will smile at how quickly life expands, grows and evolves with the continued addition of all who come into your life. I believe these years are the years which leave you with a smile upon your face when your time has come to an end on this earth. You are now following a path and new hopes and dreams will emerge, but you must not forget who YOU are and begin to allow those day dreams to come back. You need to listen to your heart and follow the right path. You long for the nights when deep sleep brings about happy dreams about life, love and family.

There for to quit dreaming is to quit living and hopefully your dreams continue on through the latter portions of your adult years. For me, life and my dreams are much different. I now dream for the thought processes of a child, returning to the innocence of adolescence with all its narrow minded wonder. My head hurts every day, my body is so tired, it’s as though I have drug a truck uphill for miles. When I lay my head down at night I no longer have a single trusted pillow, hell any pillow that is thicker than a postage stamp will do. I can no longer stare upon the ceiling to dream about any kind of future and what it may hold for sleep apnea has its evil grip upon my body. When sleep does come it is at the hands of my wife’s oxygen machine running, the sound of dogs barking, a television squawking hoping to ease my wife’s nervous mind and sheer exhaustion overtaking me while I struggle to breathe through the mask of a CPAP machine.

To dream a lovely dream would in fact be a delightful dream.

Many times I fear sleep depending on the day, the stress level over Jacy’s health or what may have transpired during a shift at work. These dreams do come and with them sometimes death, tragedy, harm and images to disturbing to mention. Often times awaking in panic or fear, drenched in sweat while ripping CPAP mask from my face! This will lead to walking the halls until I can calm down. Many times I awaken feeling as though I am having a full blown heart attack complete with chest pain, sweat and difficulty breathing! It is scary, and tiresome at the same time. Most nights I can no longer fall asleep until I know all my children are safe at home, in their beds. Sleep comes with a price as my worries surpasses any expectations of deep slumber. Listening to Jacy’s labored breathing, coughing and doing my best to stay out of her way as she tosses and turns for fear of waking her from a much needed rest. When I do get the chance to fall into a drop dead slumber my dreams lead to a land I wish not to visit and these places only lead to eventually being awake. Once there I daydream about a life once lived, a love inspired by the continual thought of a new day where my wife is healthy, happy and free from all this torment.

I wonder why life can’t be like the movies. A story with all its problems neatly wrapped up in 90 minutes. Where a young boy can dream while gazing at an arcade machine about being BIG and it happens. Or a girl dreams about running her own clothing company and she does. Or a rat believes it can be a chef in Paris and voila! He is..

What would we be without dreams?

You see things and you say why? But I dream things that never were; and say, “Why not?”

~George Bernard Shaw~

You are never too old to set another goal or to dream a new dream.

~C.S. Lewis~

Dream as if you’ll live forever, live as if you’ll die today.

~James Dean~

A dreamer is one who can only find his way by moonlight, and his punishment is that he sees the dawn before the rest of the world.

~Oscar Wilde~

And my personal favorite

A man is not old until regrets take place of dreams

~John Barrymore~

And with John Barrymore’s quote I say this.

You are born with the ability to dream and with the very same skill set you shall perish. What you do with it in between falls squarely upon you.

Whether asleep or awake, dream, dream big and never let anyone detour you from those dreams.

Jacy Update; One year later.

She walked down the hallway to a thunderous applause. Smiles, cheers, and hugs were the benchmark set for the morning. As always she made it (strolling down the hallway) look effortless and few would know she was doing her very best to simply stay upright. She had made it, she had survived when many felt she wouldn’t. She outwitted, outlasted and outplayed what was initially supposed to be at the very most a 4 month stay. It was almost 8 months instead. She had become a survivor.

That lone walk one year ago down a Stanford hallway, headed towards an exit was five minutes of pure bliss.

Fast forward one year.

Today marks the one year anniversary of my wife walking unassisted through the hallways of Stanford Medical Center to an awaiting car. She came home on that day and sobbed uncontrollably upon crossing through our gate onto the ranch. Her eyes cast upon land she felt she would never see again. It was a miracle and my faith had grown stronger.

Over the last year;

We have been to the Emergency room more times than I can count and it hasn’t gotten any easier. Even though no matter what hospital or emergency room someone remembers Jacy and we are always treated like family. But each time her body dictates we head that direction it feels like a giant step backwards and of course the inevitable panic attack associated with walking through those doors ensues! Fear solidly grips her mind as the thought of never coming back out is always present.

She goes to Stanford every two weeks for three to four days of treatment for her GvHD. It is a struggle, it rips at the fabric that is our family and we are very blessed to have continued help through immediate family and friends. We knew this wasn’t going to be an easy journey but wow, what a journey it has become!

I have become well versed on all medications associated with GvHD (Graft versus Host Disease) their indications and contraindications and with this knowledge my professional skills have been sharpened; specifically in the arena of assisting, acknowledging, and caring for any patient who has or has had Leukemia or cancer.

Our faith has been tested. We are constantly wondering what the bigger picture is here, what the “big” plan is supposed to hold and if we will ever receive a clue as to what is the answer. We wait patiently, trying our very best to understand, crying together, praying together, wondering about what the future holds-together. We feel robbed, she feels robbed of a life that once was so active and brisk. We both feel admiration and jealously as we watch other families, couples and dear friends moving on with their lives, posting pictures of holiday weekends, trips to Disneyland, camping and nighttime outings. It brings about feelings of remorse over time wasted, projects never tackled, feelings never shared, opportunities missed. All while a clock tic-tocs away in our heads.

It is a lot of weight to carry, not knowing if you are going to live or die. Knowing inside you can still feel the strong powerful woman you once were trying her best to roar like a lioness while recognizing those memories are waning, fading away, replaced by memories of milestones like the time you walked unassisted from your bed to the bathroom without collapsing or were able to get dressed with no oxygen on in just under 15 minutes. You are struggling to make the most of every day while only having enough energy to be cognoscente for 5 hours or less. Sleep is the only thing you know. You quit staring out the window because you can no longer have what’s outside. Fear gripping you constantly as anxiety rips through your soul. The only cure is more medication and a television filled with trash TV to keep your brain occupied 24/7. It becomes the new normal.

It is a lot of weight to carry not knowing if my wife is going to live or die. I have worked hard at caring for her over this last year. I have always thought of myself as kind of a half ass husband, but I can say without a doubt, I have done my very best to care for this woman I love. Making sure she has what she needs when she needs it, being there to hold her when she cries, assist her when she walks, make sure her medications are on time and she has food to eat before she takes her pills. I have grown to let her do things even though I don’t think she is ready for it. It gives her drive and purpose and if she can’t complete whatever she is trying to do, I am right there, a step away to encourage her when it is all over. I miss date nights with her, laughing our asses off at a little hole in the wall we would frequent in Winters, drinking wine and beer. Her staring into my eyes our faces inches apart and that smile! Oh that lovely beautiful smile!

But what I have instead is a better understanding of what marriage truly is. We all say the words; in sickness and in health, till death do us part. But how many truly understand the meaning? Marriage is a journey. And much like any journey it begins in the comfort of a room, with hopes, dreams and well intentioned plans. You both start out on the journey together, with fanfare, family and friends all wishing you well and it all seems smooth in the beginning; but when the journey strays off course, life becomes hard, bitter, with at times both of you not following the same plan you begin to define your relationship, and as storms come and go you rebuild, alter course and travel onward. A solid bond between two people and a solid relationship will flourish and grow with continued love and understanding thereby creating a foundation of stone.

I feel our relationship has done nothing but grow, leaving that foundation of stone for our children to stand upon and hopefully flourish. So although it has been a difficult year, good has come from this giant hill we are climbing together.

I haven’t been writing a lot about Jacy lately because we are living in our new normal. But as we move into the New Year approximately two hours from now I thought we would start the year off with an update.

Jacy has been feeling very sick, she is exhausted all the time, and can barely get out of bed. She has oxygen on 24/7 as without it her saturations levels fall dangerously low. Our family just returned from three days at the coast with family. Jacy was able to get out one day for four hours. She sat on the beach and enjoyed the ocean air surrounded by her sisters. It was an amazing moment for her and our family! Once back at the house she slept (not by choice) pretty much the rest of the time.

We are waiting to hear from her doctors as to what our next step should be.

She is scared as she doesn’t feel right, which of course is a different “right” from whatever “right” really has become for someone as sick as she is on a daily basis. She just seems to stay weak instead of getting stronger and that isn’t good. She has asked that as we head into the New Year, if people could please take a moment and send some prayers her way she would appreciate it. As we have seen over this three year journey a little prayer power goes a long way.

As the year comes to a close, I want to personally say Thank You to each and every one of you who have assisted my family in any way. Without the love and support we have received this journey would have been unimaginable.

Thank you all, Happy New Year and may all of you be blessed with an outstanding 2017!

 

 

 

 

 

He wasn’t just a horse…

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When we received the phone call my wife sat me down and prepared me for the next statement. No it wasn’t anything drastic, we had been looking for a cutting horse for some time hoping to start Jake in that direction.

But with myself having grown up around horses and on a working horse farm she knew the words coming out of her mouth were instantly going to be met with resistance.

“I think we found a horse for Jake, I am going with our friend to look at him”

Me: Cool you found a nice gelding for Jake to ride?

Her: Um, no he’s a stud.

Cue: opinionated, I know more than you, obnoxious, are you freaking crazy look.

I ranted for a minute or two about the dangers of a stud in conjunction with no child should be on, near or around a stud let alone further learn, hone or develop their cutting skills aboard a stud! WE DON’T NEED IT, DON’T WANT IT, AINT HAVING ANY OF IT!!

Lil War Peppy- A.K.A Tank arrived at our doorstep the next day, out of shape, with long incorrect feet and a studly bellow which let everyone know on our ranch that although he didn’t exactly look the part, he was the new master of this domain.

I shook my head.

Tank was born April 6 1992 on Village Creek Ranch in Burleson Texas. He was born a direct son to the great world champion Stud Peppy San Badger who was introduced into the American Quarter Horse Association Hall of Fame in 2008. Yes he had royalty in his veins and soon enough we would see it shine through.

He traveled around a bit after his four year old year, moving to Wynnewood Oklahoma, the Compass R Ranch in Campbell Texas and through a sheer stroke of luck after a series of unfortunate events our little Blue Sky Ranch right here in Winters Ca.

We knew the minute this out of shape, screwy footed horse stood in front of a cow inside an open arena we had in fact made the right choice. 

The very moment he unloaded out of the trailer and I was finally able to be face to face with this majestic diamond in the rough I knew my wife was right, and I needed to just shut the hell up.

I heard about these fabled stallions, the ones that don’t act like idiots all the time that actually listen, even when surrounded by mares yet I didn’t believe. Every stud horse I had encountered my entire life had always been an idiot. Oh some were sweet as pie as long as they were isolated or surrounded by very docile geldings. But never had I seen a stud who was gentler and sweeter than any gelding could ever be.

Tank took some conditioning and gentle, corrective foot care to get him back in line. He had a horrible split in his right front hoof that took almost two years to completely repair. He was a little stand offish at first and after a few weeks of me establishing some solid ground rules he slowly came to realize this was indeed his home and no one was going to pen him up or harm him in any way.

My son Jake, took to him right away, and he to Jake. The horse was a bit rusty and he favored his right side but with some solid schooling from Wes Johnson Cutting Horses and a bunch of lessons with junior aboard the two became quite a team. They rode almost every day and it wasn’t long before Tank was following Jake along like a puppy. And right there is where I saw it. I saw the look, in his eye, his neck, his relaxed demeanor and his ability to adapt to whatever Jake asked of him. Tank knew when Jake wasn’t doing it right and I can’t tell you how many times I watched that horse scoop the kid up during a run! Jake was out of position so tank would lose the advantage and place himself out of position to scoop the kid back up hoping not to lose him while getting back to work.

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Whenever Jake was around Tank would lower his head and listen intently, it was a thing of beauty. Occasionally he would remember he was a stud, but with a little correction he would fall right back into the fold and remember his place.

Now not everything was always daisies and roses, there would be times when Jake would cross up signals or Tank just simply hadn’t been warmed up enough and he would say screw you guys and get a bit broncy. One time in particular I think Jake was about 12, during a practice Tank just flat had enough of the crossed up signals bullshit and after several attempts to save the kid told him to get off! As a father in my opinion it was the greatest moment of that kid’s life! He rode that bronc all the way across the arena, with two old guys (me and Wes) screaming ride er cowboy!!!!! They made it to the furthest wall when Jake did the unthinkable. He reached out mid buck and grabbed for the fence line. One of the deadliest mistakes any cowboy can make. Grabbing the fence mid buck is a one way ticket to some missing teeth, a broken rib or face and even death. You always ride it out and if you start losing it, look for a spot out in the open where you can hit the ground and roll away without harm. Never wedge yourself between a fence and a firing set of 1400 pound hooves.

Luckily for Jake Tank bucked off the opposite direction. Jake sat for a moment stunned at what just happened. Looked at us both, started to snivel a bit and then said; DID YOU SEE THAT??? I RODE HIM!!!

We all laughed and with a little coaxing, a minute or two of schooling by Wes and Jake got right back on and finished his set. It was a defining moment for them both.

The two of them went on to win a few things and finally came up reserve grand champions in our cutting club before we figured out just why no matter what we did this horse favored his right side.

He had a bum shoulder. We will never know if he injured it as young colt or even as a young stud. He spent ten years on one ranch with little on record to show for it. But no matter the limitation that horse would always give you his best try. It was just who he was, and if he couldn’t do it he still tried.

Over the years Jake moved on to younger, more agile and skilled horses and Tank became mine. I rode him three to four times a week, keeping him in shape and would cut on him to sharpen my skills. He was solid and slow and not always correct which allowed me to focus on my riding ability instead of the horses ability to cut. As long as I always remembered to go easy on that right side, we would be just fine. I got what I needed and he always strutted out of the arena feeling accomplished.

Eventually he became my turnback horse. It was the one job he truly loved. He always knew when we were headed out to the practice ring or off to a show. He would get excited and call for me as soon as the trailer backed up to the barn. He didn’t care for corner work, but that’s because I think he wanted to cut the cows, but he loved turning back, more specifically the left side of the arena. He could push off that left front much better on the jump so he knew his place inside the fence line.

Over the last three years of his life, he taught several kids how to ride, made several more happy to have a horse to ride, was used for senior pictures and was the go to horse for our youngest Parker. Tank and I also participated in a Sutters Fort reenactment where we rode in together as mail call for the settlers. He loved doing it and would get super excited as we rode around the park surrounding Sutters Fort in downtown Sacramento. As we passed people in the park they would smile and wave and he would calm down just so they could pet him. Once away from the pedestrians his head would come up, his ears would go forward and his tail would rise. He would strut, like a king, like the boss, like a stud. Once we passed through the forts front gates, it all went away, and it was show time.

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He loved those little kids which was the strangest thing to me. When little kids came around he would put his head all the way down to their level and wait. He loved nothing more than their little hands petting his face, stroking his neck and scratching his ears. He wouldn’t move so much as a single muscle. Just stand there like a statue, ears moving back and forth, lips being licked and eyes soft and gentle, not a tense bone in his body. I had somebody tell me once that Tank looked as though if he could have laid on his back like a puppy he would have just so the kids could scratch his belly.

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Tank became my best friend.

The hours we spent talking, going for rides, helping teach kids, riding alongside others and simply being a team I could not count. He was the first place I would go when walking into our barn. The first one to get rode while others sat saddled and tied to the barn or inside the arena. He stayed with me all day as my mount for when I was helping others. We have gathered cattle, doctored cattle, branded, rode the trails, gone sorting, cutting and worked the alleyways of events. But most all of he listened and gave me consistency when I needed it most. The last three years with Jacy being sick have been hell. He has always been my favorite confidant, that non judgemental set of ears that carried me and allowed me an hour or two of normalcy during our very abnormal times. 

No matter what I needed to do, where I needed to do it, be it rain or shine, this wonderful, kind, amazing animal was there for me. I truly loved him.

Tank passed away on Saturday the 17th 2016.

I got the phone call from one of our borders that he didn’t look right. He was breathing hard and not acting his normal self. She had seen him roll in his stall and he just didn’t act right after that. She sent me a video of him breathing hard and although it was hard to see I had a bad feeling.

Our barn manager showed up minutes later, calling me to say it was colic and she was starting treatment. I pulled off the freeway and we both started mass calling Vet’s to get someone there as soon as possible. By the time I arrived I knew it wasn’t good. His demeanor was poor, he was breathing very heavy and soaked in sweat. When I walked up and took him from one of the girls, he sighed heavy and just leaned into me. I stroked his mane, kissed his forehead and told him I loved him.

My heart was breaking.

Tank passed away later that afternoon.

I have lost quite few animals in my life. Some were closer than others, but losing this horse was hands down the toughest one to date. What this horse (the one I didn’t want) brought to our family was a piece of fabric that wove us all together. He was the best horse I have ever owned. I can say unequivocally that I loved him with all my heart and as he slipped away with his head near my lap, me stroking his mane, while he stayed relaxed because he trusted me, I could no longer hold back my emotions. 

If you know horses, if you love horses than you know just how powerful that moment was, when a stud horse not only trusts you, but trusts you all the way to the very end. He would have done anything I asked of him and the thought of this ranch without him was and still is overwhelming to say the least.

Some will say just get over it, there are a million great horses out there, and yes I will turn the corner from sadness to fondness for all he brought us the minute he crossed through those gates. But for right now, at this very point in time, well, I haven’t even been in the barn. His stall empty, no bellow or happy snort as I walk inside to greet me and no big 1400 pound hug. It just hurts my heart way too much.

Tank is laid to rest overlooking the ranch from under the old oak tree. Right next to him is the founder of our ranch and Cooper’s good dog rescue. Cooper himself. There were two dogs Tank let follow him around. One was Cooper the other is Jack.

I hope his spirit is running wild and free with Cooper right by his side hoping we will see each other again. 

I just wish I could ride him one more time, we have so much to talk about……..

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I met a woman today….

I stood nervously rocking back and forth. I don’t know why I still get nervous after all these years but I do. Just another presentation, a dog and pony show as it were but for some strange reason my brain reverts to when probationary was the status written below my helmets crest. Fear of failure, saying the wrong thing, not adequately relaying information to a public mass who in reality is really happy to have us around. Sure there is the occasional grump or bitter individual who for some reason carries a chip on their shoulder whenever we are around (and this night was no different) but the majority simply want to say hello, or thank you, or in some cases words can’t form and they sheepishly smile while politely waving as they pass.

It was a local schools annual harvest festival within our town. Our fire engine had been assigned to appear as part of an ongoing public education effort. We pulled up, met with organizers and took our place upon the basketball courts right next to our local Police department’s display. Doors opened, cabinets exposed, wrinkles shifted from our shirts, plenty of stickers loaded into the upper right pocket and in mere seconds they came and came and kept coming to our delight..

Over the course of two and half hours we helped children into our engine, showed them all our fire gear while explaining what we do along with a little bit of how we do it. Kids make me smile, they are honest, truthful, hilarious and have no filter. They are perfect human beings, their thought processes still untouched by the cruelty of adult life along with hurtful biases or opinions. There are days I wish I could still witness the world through their wide absorbing eyes. Days I wish I could go back and do a lot of things over again, channeling my inner child to greater achievements as an adult. But I can’t, none of us can and so the fun in my job is being surrounded by these fantastic awestruck little people.

Tonight though something else happened. This “something” has been happening more and more and I am not sure what to make of it. It always catches me off guard and I never know quite how to behave or present myself. Much like an acting student who for some unknown reason develops a serious case of behavior altering stage fright, I freeze under the pressure and become extremely uncomfortable.

In the middle of giving demonstrations a line had developed filled with children (and a few adults) waiting to climb into our Fire Engine. As we happily interacted with the masses by placing one child at a time inside the engine for picture opportunities a woman walked up and gently grasped my arm. She looked me in the eye and asked; Are you Betty? To which I replied; I am?

She then explained she had been battling breast cancer and with it how much she thoroughly enjoyed Betty’s writings.

As has been the usual mode of reaction, my cheeks felt flush, my heart rate doubled and I mumbled something. I don’t remember what I said because after I learn someone actually reads and enjoys my writings in person I suddenly feel like a 12 year old boy who has just professed his admiration to the prettiest girl in class and she’s responded by saying she likes me. Awkward and elated all at the same time!

This sweet lady with the kindest smile told me her husband was amazing, and how much she appreciated him along with all he has done for her during this very trying time in their lives. She asked if she could hug me, I said yes and as she did I felt thankful, warm, full of love and humbled.

As I have stated on numerous occasions, this blog took a life of its own when my wife became ill. It morphed into what I hoped would be nothing more than a journal to reflect upon after we hopefully conquered Leukemia. Then as time progressed it changed into an open forum for all to read hoping other spouses in my shoes would know they are not alone. A gnawing deep inside told me to share through my experiences with other spouses or caregivers. A reminder to others they have the power within them to carry on, pick up pieces and provide a solid foundation for not only their family and loved ones but for the countless other lives they touch along the way. Cancer, Leukemia, and Bone Marrow Transplants are no longer something someone else has, a blank face or nameless person looking sad upon a Facebook post or commercial asking for donations either monetary or life altering. But real people you know or someone you know knows! We can no longer turn our backs believing it is someone else’s problem to deal with because trust me the statistics showing those affected are all too real! This power lies within you to open others eyes, to reach out and comfort those who need your help because you my friend have walked this path and survived! These diseases do not curse just those who are carrying them and trust me their fight is hard enough for them to live with and handle on their own. But the entire process both physically and emotionally beats down hard upon all of us who live, love and care for those stricken. It is at times overwhelming at how much our lives change and the inner pain it can bring.

So to hear another human being while holding your arm explain with the warmest of smiles and softest of hearts exactly how your writings have meant something to them. Well that brings up emotions that are hard to contain.

I am not sure why I fumble my words, or feel uncomfortable. Maybe because I am shocked that anyone takes the time to read my blog at all. Helping people is all I have ever wanted to do, I always wonder just how many people actually take the time to read this spattering of words and I always wonder who? Who has it helped, who really needs to hear from someone right now because they feel as though they no longer can? Who? Who is at the end of their rope or feels like God doesn’t have a plan for them and this is all just a miserable dark place in their lives that will never end! Who? Am I reaching enough people? How do I reach more? If I do reach more am I writing the right material or am I even the right person they should be reading about? I really don’t think you can write the wrong material as long as it’s truthful and from the heart. But, what if I am wrong and someone out there is missing the point or thinking if that guy’s in pain, you know the one writing about always having faith and carrying on is in pain then why should anyone have faith things will be any better? I don’t have an answer to that!

Yet it remains so important to me; sharing that is. It has become so paramount there have been nights I lose sleep out of guilt for not having written in a week. Our loved ones and/or caregivers are so important, they bear so much emotional burden and over time people who were helping, slowly fade away. Its ok, they have lives, we as caregivers were and still are extremely blessed for the time any and all assistance was provided! It is how it’s supposed to be and no one expects anyone to still be constantly rescheduling their lives, away from their families and friends for 2, 3 or even 4 years later. Suddenly though one can understand how it is to become isolated and alone. 24/7 your whole world revolves around a single human being. Try as hard as you might at some point even your kids begin to suffer! Your intentions are great, you do the best you can and strive to keep their lives busy and full but trust me they feel it! They feel the isolation and to some extent a bit of emotional disconnect. Nothing changes though, we are still there, handling every aspect of our stricken loved ones lives? It is a job we take a lot of pride in, for if you love someone there is no greater gift than to care for them when they are down. It is what love is, it is what God would want.

So to the woman I met today.

Thank you, for filling my heart with joy, giving my writings meaning, and allowing me the honor of meeting you. I apologize if my response was awkward, it was not my intention.

You reminded me that one of the greatest gifts we as human beings have is the power to share ourselves openly with others. You gleefully shared your story with me by my having shared my story with you over time on these pages. Our lives crossed paths and I will never forget that.

My heart is full.

 

I can’t…

This morning I sat down, stared at the screen and thought; it has been awhile, I need to write. Hmm? What will I write about today? Maybe something funny, or pertaining to recently turning 50? I certainly do not wish to write anything sad. After reading a few of my last postings, I found my writings to be a tad whiney, or heavy. People certainly must be tired of the same old story.

Then as paragraph after paragraph littered the screen only to be erased by the mighty stroke of a delete button it came to pass I was trying too hard. So I asked myself; Self, why haven’t you written in a while?

And that’s where this posting truly began.

Betty, why haven’t you been writing?

The answer comes from a conversation openly held in the day room of a busy firehouse. Sitting in my recliner listening to others and their crazy busy lives. Camping trips, play dates with friends for themselves and their children. Fantastic vacations or simple evenings at home surrounded by family. Listening to life moving on as it should.

What was my answer?

Because I can’t…

Every time I think about writing lately, I stare at the screen and from the darkest bowels of my inner thinking machine a voice rises above all conscious thought and whispers; you can’t.

Getting up in the morning is a struggle. Oh I received 6-8 hours of sleep, yet the moment I must rise a fight with my inner voice arises. I can’t is all I hear. I may wander over to ensure the kids are up but then against my old daily routine I just climb back into bed, pull the covers over my head and pretend I’m not there because inside I just can’t see myself doing another day. I get over it and most days turn out pretty good after running into some of my favorite parents, co-workers and friends. But it is becoming an increasingly difficult struggle to get past step one of the day.

There is a mile long list of repairs and maintenance around our house. I wrote the list, and continually add to the list, yet I cannot seem to accomplish the list. I may get one or two of the easy things done, but then I panic, feel sick, and want to sit down near Jacy and veg-out. Excuses like needing to pick up the kids in an hour or man I am really tired all come to the forefront. But in the end, I just can’t seem to see myself getting anything done. I am sure it is no different with any other busy father, but for some reason that feeling is more burdensome than ever before.

Ever cry at sappy movies? Apparently the water works now turn on for just about anything! Ok watching the SPCA commercial where Sara McLaughlin is singing while sad eyed, unadoptable, abused animals are trapped at the shelter doesn’t count. You have to be pretty heartless to not squeeze a little water out of those orbital areas of yours after watching puppies cry. I found myself tearing up explaining a reality show the other day where the daughter of the contestant showed up to tell him he won! Kids doing well on Americas got talent, winning a round of American Ninja Warrior, or watching the friend’s episode where Ross and Rachel finally kiss!! Yep they all bring on the rain! WTF???? Hell Tommy Boy was on the other day and I was crying at the passing of Big Tom Callahan!!! I just can’t keep crying at everything it is wearing me out!

My fuse is much shorter and I can’t seem to control it or keep that Irish/Italian temper from rearing its ugly head. Poor Jake has been bearing the brunt lately. Now some of it rightly deserved but in hind sight more than a few times have gone over the line with things said that cannot be taken back. He always smiles at my apologies and says it ok he forgives me but all I can think about is deep inside I am probably hurting him, hurting his ability to grow and handle stressful situations. I am afraid one day I’ll snap over something stupid and he will have had enough. Irreversible damage complete. Then what? Oh well I can’t seem to wrap my mind around the parental complexities of this issue right now because I will start crying again and no one needs to see that here at work.

Everything seems impossible. From completing my monthly budget, paying bills, changing a light bulb or even just being something, anything. It all seems too much right now.

As I am writing this I just realized my heart rate has doubled. I figure it’s my fight or flight response to even mentioning any of this in combination with feelings trapped inside that I can neither recognize nor willingly let out.

I keep using the analogy that I am a bottle filling with sand. Burdensome, gritty, heavy sand. This sand has reached the top and either I am able to upset the bottle, pouring out this heavy, gritty, burdensome property carefully into a container of contentment or it will overflow, and we all know what happens when sand pours upon us against our will. We end up carrying it home, it’s stuck in the crack of our ass and it takes a month of vacuuming to get it out of the car!

Our life has been incredibly hard. It remains that way. Watching my wife suffer daily is taking a toll on me. Of course I have no right to complain in comparison to the toll it is taking on her. It has been a long, long road.

Jacy has had several hospital stays of late. The other day they put a port back in to help with her current treatment which feels like a giant set back. The steroids have doubled the size of her face and left her weaker than normal. The other day while at a friend’s house doing her very best to live life as normal as possible she fell. Yep, a simple walk down a 10 yard path from patio to arena and her legs just quit! She ended up with a bloody, black and blue eye as her sunglasses tore open the fragile flesh under her eye. She feels consistent insult to injury on a daily basis.

My wife has decided to live life, to go to rodeos, make trips to the store, and do her best to become the mom that she was pre-BMT. She doesn’t have the energy or the strength, but she does have the resiliency or ballsy moxie to do exactly what she wants, family or doctors be damned! I admire her on many levels. I do my best to let her accomplish what she wishes within reason, while at the same time worrying if she is doing more harm than good? Once again though, who am I to say? I don’t currently have the body of an elderly woman, no strength, no vision, with pain surging throughout my entire body 24/7. I don’t need to consume 23 meds, three times a day while also partaking in breathing treatments (4 different kinds) wearing oxygen and doing my best to keep myself fed when I either don’t wish to eat at all or only crave crap food of no real substance? I may be her husband, the only person she can truly confide in, the one who promised in sickness and health, till death do us part. Yes that may buy me some vote, but if it was me? If it was me this was all happening too, would I have the strength to make it another day for my kids the way she does every single day? Would I wake up every morning, take my meds, and then do my best to smile while making school lunches even though I really can’t see? Could I sit in a chair for most of the day either passed out from the very same medications or wide awake scanning the internet feeling like shit because I couldn’t go outside with my horses? Could I kiss my kids goodnight with confidence that tomorrow will be a better day like she does? She is angry, she is sad, she is happy, she is resentful, she is hopeful, she still wishes every day for one more day, one more week, one more month, and one more year. Another camping trip or the ability to take a family cruise. She is amazing.

Could I be like her?

I can’t………………………..

 

At the end of the day, whiny or not, dark and gloomy be damned. I decided to write these blog postings journaling my wife so others who may be feeling the same way would know it is ok. It is part of this weird, sometimes unforgiving magical mystery tour we are on and you are not alone. To those currently in treatment. This may be the way your caretaker or spouse is feeling and to know they love you, care about you and will do anything to make your life, your situation easier for you. We will never leave your side, so don’t be afraid to be who you want to be, use what strength you have to enjoy whatever moment you wish to enjoy and know the whole time we will be standing right by your side. Even though right now I feel as though “I can’t” when it comes to many things, I will always believe in the “can” most of us hold deep inside. I also believe that for the most part all people are good caring human beings and no matter the situation we all rise to the occasion.

Ok, I’m done. I can’t write anymore….

 

 

 

 

So this is 50…

“A man who views the world the same at fifty as he did at twenty has wasted 30 years of his life”

                                                                                                                                ~Muhammad Ali~

 

I can distinctly remember awakening on my 15th birthday, lying in bed while pondering the importance of this day. You see it was my last year before complete freedom, six months from now with a little effort I would obtain a learners permit, then if I kept my nose clean a full-fledged driver’s license would soon follow. I had dreamed of obtaining my license from the very moment I fell in love with cars and now we were but 12 short months from it becoming a reality!

And that my friends started a habit that has both served me well and left me face first in the dirt wondering why more times than I can count. The habit is known as looking forward.

Most people look forward to a vacation or the purchase of some tangible object. I on the other hand began looking forward to landmark dates and moments in time where my life would hopefully just fall into place. Laying my head upon the pillow at night I would count off the time. 5 years until I turn 20 then I will be able to drink legally, 5 more years and I will be 25, either dead or married but either way that’s 10 years away! Plenty of time in between to explore and have fun! 5 years after that I’ll be a dad that’s if some woman is stupid enough to marry me!! Wow think about that! At 30, 15 short years from now, I will become a father to some snot nosed kid! Ten years after that I will become 40 years old! Who wants to be forty that’s freaking old!! Oh well, I will still be the same just I will have a couple kids to hang out with, go skateboarding, ride bikes and work on cars!! It will be fun, like having your best friends over every day because of course they will see how obviously awesome I am!! Ten years later I will be 50 and then, well then I will be really old! Like the teachers with gray hair I see feebly walking the halls, or the old men that every morning make their way into Fords Café. Pretty sure they are too old to actually have a job, they’re just killing time. Wake up early, go meet with other old dudes who are counting the days until they die, eat breakfast, drink coffee, and repeat! At least when I am 50+ my kids will be grown and gone, and I will be able to party hard once again while watching my ancient body wither away..

 

Ahhh the mind of a young man without a clue. So sure of himself, self-absorbed and completely unrealistic.

I turned 50 years old yesterday. Really not sure what I was expecting to happen, but going to bed the night before was held with great trepidation. Moving my pillow, placing items on my nightstand in perfect unison as if by awaking the following morning to find they were moved held some form of significance in determining my age.

Staring at the ceiling I began my usual looking forward process, except this time I wasn’t looking forward but instead mourning the past. Rolling back in five and ten year segments, memories flooded my conscience and with it joy, pain, fear, sadness and tears. We work so hard at looking forward, to the next conquest, challenge or milestone in our lives I think we forget to honor the past. Not just remember the past but actually honor the past. Without the past we wouldn’t be able to say; hey you remember when we…..???? Or you remember that time….???? And of course; I can’t believe we/I survived……????

We forget to not just remember the good times because all of our good times whether we admit it or not are tempered by that portion of our brain protecting us from pain, but to remember while holding in the highest regards the bad times as well. I know you are thinking what, but I want to forget the bad times! Who needs that kind of grief in their lives? In reality if we don’t take a moment to remember our struggles, relive our pain, relish in strengths formed from having our souls drug through the deepest of dark pits, we would be doing ourselves a huge disservice. It is those struggles and pain that forge the human being we are today. Life is easy and lived well when you are always happy never feeling the burdens life can provide. Life is cherished and held even closer when you struggle then survive, rise above the darkest of times always searching for a better moment to bask under. The struggle helps us to become who we are and creates a human being who cares about others, feels empathy, and knows the importance of tolerance and understanding even during the most challenging of times.

I laid in bed for an hour watching my usual round of The Daily Show, The Amazing Race and Amy Schumer. My eyes were watching but my mind was a million miles away. 50 years old, double the amount of time I really thought I would live. Every person who walked through my life over the last 40 years that was no longer with us crossed my mind. Grandparents, friends of my parents, other family members and of course close personal friends. Human lives never afforded the chance to make it to 50 years of age. Life played out is hand and they were gone way to soon leaving those around them suffering with the stark reality that when it’s over, it’s over. We have no say, no choice and life is not a guarantee. So I ask myself, why am I different? Why did I make it here and the others didn’t? Some lost their lives in accidents while others to cancer, illness or the hard realities of a life not lived well. But here I was getting prepared to embark on this landmark (by societies standards) birthday. 50 years old. Some didn’t make to 20, some 30, others in their early 40’s. Either way they were no longer with us. So why am I still here? What is my purpose? Because if I made it this far there must be a purpose otherwise I may as well be nothing more than the walking dead.

When I awoke, I sat up straight like Bill Murray in Groundhog day! I looked around and everything on my night stand was right where I left it. My phone was already loading up with well wishes from friends and the kids were beginning to rustle for school. Jacy had retreated downstairs as she does most mornings around 3:30/4am due to the wacky schedule her medications have her body beholden too. My morning was fairly uneventful for having just turned 50! No new pains, my joints still working fine and there appeared to be no new grey hairs sprouting mysteriously from my head. I still needed glasses to see and when I stepped on the scale there appeared to be no rapid weight gain possibly warranting the use of suspenders with my belt. Brushing these 50 year old teeth I found myself thankful they were all still there and once my hair was combed it didn’t look as though it had thinned any more than normal. I guess you could say it was turning into an uneventful morning, nothing like what my inner fears told me turning 50 would become.

The 15 year old boy still trapped deep inside calling me an old man was happy none of his premonitions had come true.

Today I am much more cognoscente of my surroundings at 50 years old. Birds, fields, a certain smell or breeze that is just the right temperature hitting my face floods my brain with memories. Good, bad or otherwise. I appreciate life, not just my life, but any life. Animals hold a dear place in my heart, I cannot stand to see any animal mistreated; if you are mistreating an animal rest assured I will mistreat you! Nothing brings more joy than a nuzzle  from a horse, the purr of a cat or the slobbery happiness of a dog. I finally have the patience when fishing I wish I held when I was younger. A morning working a horse can erase an entire day of shit! There is something so calming about learning a horse, its character, abilities and personality. Happiness definitely comes from spending time with my children, whether at a rodeo, playing ball, going to the beach, sitting at a school function or just reading together, they are my world. My overall temperament has changed as well, although those very same children I love can on occasion bring me close to the explosive person I could be when I was younger, I now have the ability to walk away, calm myself down and look at things from another’s point of view.

Understanding the power of commitment. My wife is an amazing human being, she fights every day for the simplest things we all take for granted. Time with her children, the ability to walk outside, go to the store, or even just drive the car without wanting to fall apart physically. She lives in fear of the unknown and wonders if she will ever feel better. Every day she wakes, and works hard at making lunches for her children so they know she is still here and she loves them. She sleeps a lot due to her medications and her body doesn’t help when it comes to walking from point A to point B. She worries about everyone and everything. She is my hero. I am terrified of a life without her.

I miss my dad. Wasn’t sure at times how I would feel about that since we butted heads a lot over my entire life, but I really do miss my dad. I have also come to understand in the circle of life his departure leaves me up to bat as it were. I would rather read than watch TV, sit in a quiet room than listen to music at a million decibels, although there are the occasional times alone in the car or at work in my cubicle I have been known to crank up some Zeppelin or Van Hagar! (only those my age will understand the Van Hagar) I have grown fond of the complexities involved with classical music and nothing brings a smile to face faster than some down and dirty jazz. Real country music not that crap they play today is what is on my channel 80% of the time.

Mornings are amazing! Every morning is a little different and I now wonder why in my younger years I wasted all those mornings sleeping in when I could have been out watching in amazement as the earth rotates bringing a bright glowing sun from beneath the shadows of darkness. I feel the same way about a sunset. Something about dusk just speaks to me. It is the perfect time of day.

I worry about our future and what we are leaving behind for our children. There is so much hate in this world and our outlets for entertainment seem to thrive on exploiting only the negatives of life. We are developing a nation of self-centered glory hungry humans that care for no one but themselves. I know there is lots of good in this world I just wish there was more reporting of positives than negatives. I also feel as though we are ruining this planet and our great grandchildren are going to pay the price. If we don’t hurry up and make some major environmental changes than we will permanently damage this planet. It is our only home.

So as you can see the 15 year old no longer lives here and thank goodness! I think differently, and lord have mercy I look different! But looking forward will still be a part of my life as I grow older, just there will also be many more times where looking behind is just as important. There are many more challenges remaining in this life that I don’t WANT to accomplish but NEED to accomplish for my own growth and wellbeing and if I make it to my 60’s.70’s or god willing my 80’s I hope I still have the ability to dream big, love even bigger and hopefully are still able to help anyone who will listen to navigate this crazy thing called life so they can find out just who they are or are getting ready to become when they to hit the big 50.

[JF1]

365 days

One year-365 days

The day before yesterday I awoke to my phone buzzing incessantly on my leg. I had traveled back to the firehouse for an emergency recall as emergency units were fighting a stubborn structure fire and additional manpower was needed for daily operations. After changing into my uniform, checking the operations board, determining who went where and why. A moment came where I dropped into a chair to catch a minute while enjoying the air-conditioning. It is the last thing I remember. That is until my phone started buzzing upon my leg.

Answering it, my wife started talking and I quickly realized I had no idea what she was saying. Not only did I have no idea what she was saying but I didn’t know where I was, who I was, or why I was sitting in a chair inside the firehouse. I panicked and thought shit something is wrong, why is she calling? She is at the hospital what has happened? Is it bad news? Is she ok and once again, HOW THE HELL DID I END UP AT WORK!!! Had I been there for a couple a days? Was this my shift? CRAP!!! I was lost..

The entire time my inner self is freaking the hell out, my wife is simply asking me when I am coming home for dinner? When I didn’t answer she would simply ask me again.

This morning when I awoke to head off to work, I awoke alone. Seeing no one there, I panicked for a second, took a breath, cleared my eyes then remembered as I have reminded myself on multiple occasions she wasn’t in the hospital. Odds are she is probably downstairs in her recliner after another long, horrible, sleepless night filled with coughing and pain. Instead watching Netflix with her headset on, and most likely snuggled up in a blanket trying her best to let me sleep.

A year ago Jacy received a bone marrow transplant. Today, according to BMT lore is her new birthday. A new birthday is given to every transplant patient upon receiving their transplant. This transplant saved her life. We are, and will be forever grateful for such a generous, selfless gift given without hesitation by a person we have never met. Modern medicine is amazing and I find myself in awe at what these treatments have afforded our family.

But it has not come without a cost.

I wake up disoriented and confused all the time! Exhaustion is a standard of living for me. I can’t fall asleep until after midnight. I fill my time doing laundry, cleaning house or simply watching television while she lays beside me. But even then I am watching carefully, listening to her breathe, judging her every movement. I do my best by allowing her the freedom to make decisions on her own in regards to her day, energy exertion and tasks she wishes to complete on her own. Never overstepping my bounds but asserting myself when I think she may have done too much or is planning to take on more than she can handle. Of course who am I to say what she can, or can’t handle? This is Jacy after all and she is going to tell me what she can or cannot do. Then when things don’t go as planned I just smile a sly smile and without saying; “I told you so”, help her get to where she needs to be. Most of my days are spent working outside for a while, then coming inside to make sure she is surviving and comfortable; certainly being inside also has to do with the current heat spell we are experiencing; trying my best to get the hard stuff done before it becomes too hot. In the morning I generally awaken at first light, toss and turn, trying to sleep just a little longer which may or may not get me to 0630. Then its coffee with the wife and my day begins.

It is as though w have Bone Marrow Transplant PTSD. I panic at anything in regards to her health, position, status, whereabouts, etc.. It is hard to love someone with all your heart, be their caregiver, take care of children, work, run a household and ranch all while trying to remember it is all going to be ok and you should probably take a moment or two for yourself.

The phone calls, updates, a year of hearing it’s all going to be fine then 5 days later you are signing DNR paperwork. The next weeks prognosis is good, but a few days later she is back in ICU. She is going to live, she is going to die. She is a miracle from GOD, she praying to GOD. She is kissing her children, she is praying for one more day with them. Doctors patting you on the back and smiling. Doctors patting you on the back while they sit you down to explain some very serious complications. The amazing amount of time you have, alone in your car, traveling 2-3 hours one way, hoping to spend more than a couple hours with her awake, knowing it is not her fault as heavy medication kept her from any form of alertness.

For a year I have watched the very same medications saving her life wither her body away to nothing. Taking away muscle and tone she worked so hard for so long to achieve. Leaving skin and bone in its aftermath, tearing away at her self-esteem. I have watched as hair has fallen off, skin has flaked away leaving lesions, blotching and discoloration covering her body. I have held her as impaired vision causes her pain, balance issues and nausea.

She cries a little each time we go back to Stanford, afraid some nurse or doctor will admit her. She lives in constant fear that if she does get sick she is doomed. She has mini panic attacks when calling her doctor or making an appointment for the same reasons. The slightest sniffle or cough leads to worry as a fever or discolored sputum brings doubt as to her overall health.

A year has gone by and our children are no longer the same. Learning about life and hardship, struggle, pain, sickness and survival. They will never look at a hospital or doctor’s office the same way again. Our youngest feels that if you go to a hospital the odds of coming home right away are very slim. They no longer know the mother who rode horses, or played sports, gardened and ran the perimeter of our property. No a year has gone and with it all expectations of normalcy.

But I am not writing this to be a downer, because although it has been an extremely difficult year and continues to bring struggles to our family, it has also been of year of immense growth.

365 days of love, caring and a town that never quit supporting our family. Never did I have to worry about whether my children would have a meal, or a place to go hang out, friends to play with, or a parent to help them. My oldest learned what it meant to be a BIG brother. Not just their brother, but one who cares for them, keeps them safe and ensures they stick to their schedule. We are pretty sure they also ruined him for ever having children.

Those children who can’t play soccer, go camping or ride horses and bicycles with their mom anymore have instead learned the importance in taking care of another human being. They have also through helpful guidance from myself and their older brother (as mentioned above) learned how to take care of themselves. Has it been perfect? NO! Have they all made mistakes, some larger than others? YES! Have I screwed up numerous times trying my best to parent from afar while at Stanford? HELL YES! But after this bout of family struggle in their lives I have no doubt our children will grow into fine adults who will undoubtedly help others along the way. Something (compassion) a parent wishes for from the time their children are born. Do our children want things to be the way they were before? YEP, but they also know we cannot go backwards and though it has been challenging they are ready for whatever lays ahead happy with the knowledge mom survived and mom is home.

 

Those medications her and I despise are keeping her alive and with each day comes another opportunity to interact with not only her family, her children, but her friends as well. She still feels as though there is work here on this planet for her to do and although each day taking 23 medications three times a day is a struggle. It is a struggle worth the price. I remember her saying one time that if GOD would grant her the ability to survive she would be content just watching her children grow from the comfort of her easy chair. We all know that isn’t enough for our Jacy and it really doesn’t matter what those medications have done to her outer appearance. The inside is still the magnanimous, charismatic, hilarious, moody, determined, intelligent, caring, loving, the woman we all know. That my friends is all that matters. A teacher once asked me; what will you do when your looks are gone? I can say without a doubt that if we have the love of family, friends and most of all ourselves. Then looks never really mattered anyways did they?

As far as constantly being exhausted, worrying about everything from my wife, to our ranch, long term finances, our children’s welfare, work and beyond? It has been a reality check, and a very long exhausting two years. From first being diagnosed with Leukemia to her having the Bone Marrow Transplant. I am tired, so very tired, I am overweight and I don’t feel all that great, my inner confidence is waning and some days I feel as though I am drowning. But I also know this is exactly where I am supposed to be. I married an incredible woman, God gave me a second chance at life by introducing us. It is within our nature as human beings to complain and as much as I despise complaining I have done it a time or two, or three, ok maybe half a dozen, yet I wouldn’t trade anything. From the moment we met we both knew we were meant to be together. We both heard and felt a higher power formulating a plan while drawing us together. When we married, she began working to make me a better person, not because she had to, but because you just naturally become one once you are around her. Trust me, I didn’t always like it, we sometimes fought over it as I raged against change. But without her, I am not sure I would be who I am today and for that I am thankful and she deserves all the love and devotion I have to give. So a little exhaustion is fine, some residual hospital PTSD is ok and at some point I am sure I will stop feeling exhausted or falling asleep the moment my body quits moving.

But in the end, as tired as I am, through all the hell our family has been through, thanks to God, great friends and family along with Jacy’s incredible will power, she is still here on her new birthday, and for that I will be forever grateful.

kids

 

 

 

She fights

Every morning she wakes up between 4 am and 0930. Her sleep is not natural as pills determine the night or days slumber routine. Weight is something she cannot gain and although there would be some envious of this side effect it is anything but glamourous. Her eyes work somedays while others they are filled with a blurry focus similar to gazing through a plastic milk jug. Her breathing is labored at times and she needs oxygen throughout the day and night to help keep her lungs strong. Pain is everywhere and nowhere, moving from an arm or a nervous leg to her back, sides, head, teeth and eyes. Medication is everywhere, we have pill bottles around every corner (figure of speech) waiting to either empty or crack open in dire need. 23 little pills, swallowed three times a day. Each pill with a specific purpose, each pill supporting another as they cross paths within her tired system.

Each day is a new adventure, wandering from upstairs to down. There are moments of greatness! A trip to the basement, or a stroll to the tree outside, down the road. Muscles yearning for mass from not that long ago, arguing with her central nervous system over usage, proper form and desire. Prioritizing each need hoping it can guide her successfully towards a much needed strong finish.

The garden yearns for her touch, her flowers and fruit trees scream for attention! There is one big draft horse and its little Donkey friend who stare at the house wishing she could come out and play. Little do they know she stares right back?

Her teaching job calls to her as she misses each and every child who ever graced her classroom door. Their quirky attitudes, laughter and stories, making each day special in its own way. Instruction, knowledge sharing, testing, creating, and showing each child no matter their background that her classroom was always a safe place to be, a wonderful place to learn.

Friends come and go, happy to see their friend has made it to this place of reclusion. She moves about between the kitchen, living room and bedroom. Little stints in each area much like a 7th grader changing classes. Sitting just long enough to learn and appreciate either her surroundings or emotional moments shared between herself and her children. She laughs and loves to have endless conversation with her friends. She knows she will pay for it as with any two hour visit there is a three hour nap post get together with her pillow. But when she awakens she smiles, for a visit is something special when not more than three months ago there was talk of her not surviving.

She longs to be free. Free from this damn GVHD! Free from this home that has somewhat imprisoned her for hours on end. She longs to hop in the car and drive herself to the fabric store, feeling that independence so taken for granted not that long ago. Oh occasionally she spreads her wings and drives to a softball game, or over to the produce market. They are after all straight shots and if her eyes get to bad I am but a minute away. But it still isn’t the same.

The feeling of exhaustion from walking to the car, shortness of breath after lifting a couple bags or fruit, closing the cars hatch and finally sitting back behind the wheel. This is a mental war with her physical being that’s being fought and has escalated rapidly. There are times she wishes she could just tell herself to knock it off and get with the program! This runner, swimmer, biker mom who could out move most people on their best days now needs help just to get up the stairs. She is cooking dinner again and slowly starting to do laundry (because she wants too!). Anything to make her feel normal, like nothing has happened and life is just as it was or should be. She is sewing and drawing which are two things she very much enjoys. She is constantly trying her hardest to gain just a little more ground. No matter what that ground may be.

People constantly ask me how she is doing. My response is always the same.

No better, no worse, just one tough lady who is happy to be home.

Jacy survived chemotherapy, she survived remission, then recurrence; she survived chemotherapy once again and then watched with the strength of a thousand draft horses as a new immune system entered her body during a BMT transplant. She has survived every GvHD (Graft vs Host Disease) complication known to man and lived after putting her big girl panties on willfully accepting a new trial drug to combat her symptoms. Her doctors tell us each time we visit that we are in uncharted territory. She was not expected to survive but when asked what her thoughts were she said; I am not leaving my family! End of story! You can do what you want, but I am not leaving my kids or my husband.

And she hasn’t.

My wife has always been a fighter. She fought for our relationship in the beginning, she continually fights for our children; she fought for our daughter and fought for hundreds of children in Haiti. She fought this thing call Leukemia and now fights GvHD. She is currently fighting a bit of trapped in the house depression, along with an ability to hold onto hope for herself and her future. She fights against the elements, hoping one little organism isn’t out there with her name on it, waiting to attack! A nasty little bugger giving her something else to fight for with her back up against the ropes. She fights for herself and her need to succeed. She fights because that’s who she is and what she does well. She fights while keeping a patented Jacy smile affixed firmly upon her face.

She fights to come back to church, and pray.

She fights to have some semblance of her old life back.

She is my hero and that’s why I will always fight for her.

jacys hand

 

 

 

 

 

The road home and transition.

It is official, as of right now, Jacy is home for good! Tuesday we traveled from Stanford to Kaiser then over to Saratoga and when all was said and done, 14 hours had flown by, the car was loaded with all her belongings from the apartment and I had one very tuckered lady on my hands.

Our schedule currently remains the same. Once or twice a week we will continue making a roughly 2 ½ hour trip into Stanford for her doctor’s appointments. These appointments will ensure we are continuing down the right path, juggling a fine line between steroids and immunosuppresses. Blood draws, counts checked, dietary regimen consistently re-examined and of course there remains those damn pesky lungs that refuse to heal! We still are incredibly careful when it comes to her exposures and because of the high risk being at the ranch, she rarely makes it outside for more than a few minutes to enjoy her homestead surroundings.

Jacy’s body has made no real progress, we are in a serious holding pattern. Being in a holding pattern isn’t so bad, her doctors agree as long as she doesn’t slide backwards it will be counted as a win! Unfortunately not making any real progress is weighing heavy on her mind as she sees all of us hustling around taking care of everything. The go getter inside her is screaming to come out and play! But she can’t, she doesn’t have the strength or energy so rest is the order of the day, every day. She does her best to put in some light exercise to stimulate her atrophied muscles in hopes of getting back to normal sooner than later.  So a holding pattern is where we remain, and regardless of her progress after talking with her doctors we all agreed home is where she should be, in her own bed, watching her children, resting. No mother should have to be away from their children and regardless of her condition, just being able to converse with her kids face to face daily is all the medicine she needs.

My wife is constantly telling me she is sorry. For what?? I tell her she has nothing to apologize for but she doesn’t want to hear it. Jacy cannot believe everything I’m able to get done on my own and only wishes to ease some of this burden. To be honest I am exhausted, all the time, and some days am amazed myself how much this completely disorganized fool accomplishes! From sun up to sun down there isn’t a moment away from work that I am not moving. But there are no serious complaints. My wife is alive and that’s all that really matters to me. Making sure everyone else in my family is happy, healthy and participating in life is what’s important to us both and if that means little sleep and running all over this county daily well that just happens to be a side effect of our current condition. But she has nothing to ever feel sorry for, trust me when she is healthy again I will turn over the reins with a giant smile on my face and love in my heart.

Life is what you make of it. I personally have always believed there will be many times life turns on you, piling more and more on top of what you already believe you can handle and it’s what you do during those times that dictates the life you choose to live. It doesn’t mean you always like what’s happening or are even able to find a positive from the situation. Trust me the black cloud following our name has hung around way too damn long! But you can’t just roll up in a ball and quit either. There is always a plan and just because you cannot see the whole picture right now doesn’t mean you should ever think of giving up! I was taught strength comes from within the struggle.

I see couples on FB having drinks, wine tasting with friends, hiking in the mountains or on grand adventures around the globe and jealously sets in for a bit. It is so easy taking for granted just two short years ago that was us! We were shooting selfies at the bar or in the country somewhere on horseback! Snuggling under the moonlight, walking hand in hand in Haiti or simply enjoying dinner out with family! I long for the day she gets irritated while out on an evening walk because I am moving to slow! When I think about how much I would rather be on horse today, I remind myself that Jacy would much rather be anywhere but stuck in bed, with oxygen plumbed to her face and fluids flowing freely into her arm! Sleeping away large sections of the day, brought down through medication like an animal hit by a tranquilizer gun! I remind myself that my most important job in life is her, never taking it personally when she snaps at me exhausted from a long day of medications, travel and doctors, meanwhile cherishing every second she is able to snuggle and hold me, looking in my eyes the way she does filling my heart with love.

This whole process over these last two years has taken so much from her both physically and mentally and I am so grateful having her by my side once again. There is no doubt this will be an amazingly long road to recovery but it doesn’t matter because she is home, her numbers are holding, we have our family, friends, prayer and hopefully a little luck finally shining through that black cloud, chasing it away.

Its been a long road home, but home is good and family is even better..