Thankful to be my kids dad

Fathers Day

A day centered upon, or celebrating being a father. I have always wondered how this national phenomenon came to fruition and after a little a research I found my answer. So before I ramble on with a long overdue edition of “Betty” let’s take a moment to enlighten our minds. If you already knew the answer please don’t ruin it for everyone else.

The nation’s first Father’s Day was celebrated on June 19, 1910, in the state of Washington. However, it was not until 1972–58 years after President Woodrow Wilson made Mother’s Day official–that the day honoring fathers became a nationwide holiday in the United States.

Mother’s Day: Inspiration for Father’s Day

The “Mother’s Day” we celebrate today has its origins in the peace-and-reconciliation campaigns of the post-Civil War era. During the 1860s, at the urging of activist Ann Reeves Jarvis, one divided West Virginia town celebrated “Mother’s Work Days” that brought together the mothers of Confederate and Union soldiers.

Did You Know?

There are more than 70 million fathers in the United States.

However, Mother’s Day did not become a commercial holiday until 1908, when–inspired by Jarvis’s daughter, Anna Jarvis, who wanted to honor her own mother by making Mother’s Day a national holiday–the John Wanamaker department store in Philadelphia sponsored a service dedicated to mothers in its auditorium.

Thanks in large part to this association with retailers, who saw great potential for profit in the holiday, Mother’s Day caught on right away. In 1909, 45 states observed the day, and in 1914, President Woodrow Wilson approved a resolution that made the second Sunday in May a holiday in honor of “that tender, gentle army, the mothers of America.”

Origins of Father’s Day

The campaign to celebrate the nation’s fathers did not meet with the same enthusiasm–perhaps because, as one florist explained, “fathers haven’t the same sentimental appeal that mothers have.”

On July 5, 1908, a West Virginia church sponsored the nation’s first event explicitly in honor of fathers, a Sunday sermon in memory of the 362 men who had died in the previous December’s explosions at the Fairmont Coal Company mines in Monongah, but it was a one-time commemoration and not an annual holiday.

The next year, a Spokane, Washington, woman named Sonora Smart Dodd, one of six children raised by a widower, tried to establish an official equivalent to Mother’s Day for male parents. She went to local churches, the YMCA, shopkeepers and government officials to drum up support for her idea, and she was successful: Washington State celebrated the nation’s first statewide Father’s Day on June 19, 1910.

Slowly, the holiday spread. In 1916, President Wilson honored the day by using telegraph signals to unfurl a flag in Spokane when he pressed a button in Washington, D.C. In 1924, President Calvin Coolidge urged state governments to observe Father’s Day.

Today, the day honoring fathers is celebrated in the United States on the third Sunday of June: Father’s Day 2017 occurs on June 18; the following year, Father’s Day 2018 falls on June 17.

In other countries–especially in Europe and Latin America–fathers are honored on St. Joseph’s Day, a traditional Catholic holiday that falls on March 19.

Father’s Day: Controversy and Commercialism

Many men, however, continued to disdain the day. As one historian writes, they “scoffed at the holiday’s sentimental attempts to domesticate manliness with flowers and gift-giving, or they derided the proliferation of such holidays as a commercial gimmick to sell more products–often paid for by the father himself.”

During the 1920s and 1930s, a movement arose to scrap Mother’s Day and Father’s Day altogether in favor of a single holiday, Parents’ Day. Every year on Mother’s Day, pro-Parents’ Day groups rallied in New York City’s Central Park–a public reminder, said Parents’ Day activist and radio performer Robert Spere, “that both parents should be loved and respected together.”

Paradoxically, however, the Great Depression derailed this effort to combine and de-commercialize the holidays. Struggling retailers and advertisers redoubled their efforts to make Father’s Day a “second Christmas” for men, promoting goods such as neckties, hats, socks, pipes and tobacco, golf clubs and other sporting goods, and greeting cards.

When World War II began, advertisers began to argue that celebrating Father’s Day was a way to honor American troops and support the war effort. By the end of the war, Father’s Day may not have been a federal holiday, but it was a national institution.

In 1972, in the middle of a hard-fought presidential re-election campaign, Richard Nixon signed a proclamation making Father’s Day a federal holiday at last. Today, economists estimate that Americans spend more than $1 billion each year on Father’s Day gifts.

~The History Channel/A&E~

 

Ok 1 billion a year on father’s day gifts? Where is my cut of that pie!! Of course Father’s Day was derived from Mother’s Day because without mom’s we would all be lost! And lastly its just like men to deny any recognition for becoming a father! There are so many baby momma and deadbeat dad jokes there I’m going to let you create your own! I do think an all parents day would be kind of cool, you know a consolidation of the whole thing. But that’s neither here nor there at this moment.

I am proud to be the father of four awesome kids! I know everyone thinks their children are awesome which makes that last remark a bit of a cliché, but in my world it is true.

My children are wicked smart, each in their own way. They are personable as hell, compassionate, loving and kind. They are also stubborn, temperamental, cranky, selfish and can be a complete pain in my ass when they want too leaving me with ulcers and migraines! YAY PARENTHOOD!!

But you know what? I have said it before and I will say it again. I have always wanted to be a dad so I wouldn’t have it any other way. I don’t know why I have always wanted to be a dad, it is something that has burned inside of me forever. The thought of raising, caring for and mentoring children through adulthood has always seemed to be the ultimate human responsibility. A challenge worth accepting.

Now as we know parenthood is hugely romanticized on television and in the movies. (Thank you Disney and Lifetime) Parenthood is also used to create lifestyle fantasies within the advertising industry to help ease you into parenting via the almighty dollar. But those of us who have walked that line know it is all crap! A child’s room does not need to be perfect, painted any specific color or arranged to create the greatest learning curve or challenge them mentally! They will love you no matter what! There is no way, no matter how you sell it to ever make changing a diaper, disposing of human feces, cleaning up pee or wiping spittle and vomit from your clothing ever look romantic or enticing! Although the endless humor that comes from these events can be priceless. You do not need to go on the perfect family vacations every year spending thousands of dollars to create a picturesque childhood of joy. The reality is the only thing you need is love, patience, creativity and a good glass of wine or beer at the end of a day.

What parenting is? Parenting is hands down the hardest job I have ever held and I have held quite a few temporary career choices that quite simply sucked ass! They can and will drive you crazy these loves of your life, apples of your eye, chips from the old block! There will be days you just want to run and hide but you don’t, even though every fiber in your body is screaming to do so! In the end you know deep down inside running away accomplished nothing because in reality what you would be running and hiding from is not your children, but yourself as (whether you like it or not) they are a mirrored reflection of you. Whoa! Mind blown huh?

Parenting is the most rewarding experience in your life if you put in the time. Don’t expect wonderful results with minimal effort. Parenting is learning how to turn disappointment into positivity. Parenting is learning how to say no when the child within you wants so desperately to say yes! Parenting is standing your ground until it is time to no longer stand that ground. Parenting is understanding why your parents raised you the way they did. Parenting is allowing them the privilege of failing or losing at something while letting them figure out the best way to recover with a little advice from you. Parenting is to give every bit of yourself to another little human being without (and this is very important) forgetting to put your significant other first. Keeping your relationship alive inspires trust and comfort within your children, and teaches them how to become good partners. Parenting is admitting when you are wrong, in front of your kids not just to your partner. Parenting is learning how and when to apologize. Parenting is teaching your children to laugh, at everything. Parenting is showing never ending love, even when you want to strangle them. Parenting is a testament to your foot print left here on earth for all to see.

I am proud to be the parent of our four children. They truly inspire me each and every day to try my hardest, be the best dad I can be, learn from my mistakes and do my best to evolve as a father and human being. I may not always have the answer for them but I will try to get it. I will always be there for them when they fall, helping to guide their way with advice whether warranted or not and I will no matter what love them unconditionally while doing my best to stand behind any life decision they choose.

Cody, Jake, Jessica and Parker thank you for being my children and allowing me to become a part of Fathers Day simply by becoming your dad.

And to my dad (who is no longer with us) and all the dads who ever took an interest in me, looking over me, correcting me when I was wrong and whooping my ass when I was completely out of line, thank you. Thank you for taking this very special job seriously, and knowing in your heart that to become a father to one, you inadvertently became a dad to all. It takes a village.

Happy Father’s Day everyone!

 

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The basement and those never satisfied juvenile eating machines!

What the hell? What the holy freaking hell??? I mean I get it, kind of, they eat; they eat a lot! But I mean I never figured it would be like this!!!!

We as a family talk about how hard times come and go and right now our budget is squeezed a tad, we talk about the importance of shopping carefully, utilizing sale items, never being brand loyal and understanding the list dad has when he shops is because I have taken the time to figure out exactly what we need, when we need it so as to fall within those budgetary restraints! We talk about overeating along with understanding there are 3 meal times a day so you wont die from starvation if your little tummy pangs an hour before dinner! Apparently after all the long, loving, conversations held with temperance while speaking using the silky smooth stylings of Mr. Rogers some fucking remedial training is in order! 

I went into the underground cavern better known as our basement to watch television while partaking in my nightly ritual of laundry washing, drying and folding. (Apparently I am still a maid) As I began retrieving small piles of lovingly folded clothes from the day before off the floor (no one ever knows how they got from the table to the floor) while swearing like an angry Irishman, my Clint Eastwood, squinted fuming Dirty Harry gaze leveled down upon our pantry. Now this is no ordinary pantry mind you! This section of shelving is more than capable of holding a months’ worth of supplies to feed these two legged heathens and yet there is sits, almost empty..

I built cabinet doors, complete with locks to keep them out! They broke these crafted masterpieces, lost the keys and our honest little children swear they don’t know how any of that could have happened. I stored food in a manner that left bait food out front while everything else was hidden on the edges and in the rear. The bait food has been the last to be consumed while a small tornado seems to have traveled across all shelves leaving pasta and cans of soup on their side much like the remnants of a trailer park after such a storm. The middle shelves once glistening with ample product lay barren as the desert, nothing to show but dust and torn paper!

I stood straight up to make a play for our beloved angels, hitting my head on a rafter which further fueled the already raging fire consuming my being! Turning to march up the stairs I take a quick body check as to not add insult to injury upon my already throbbing noggin by clocking it again on the very same rafter!!! Carefully negotiating the piles of laundry strewn upon the basement floor I am headed up to rip some ass! Some apparently over eating fat asses need a stern talking too, because by now it has become abundantly clear their mother and I have laid no tantalizing tongue upon any of the delectable delights stored inside the sub cavernous residential pit! As I reach the stairs a little voice yells at me; look in the fridge! What??? Look in the fridge? There is no way our brooding hoard of teenage hormones has in any way decimated the fridge as well, I tell myself! My right foot hits the first stair and then my left foot makes the turn! My body has taken over, I am not sure if it is out of anger, curiosity or the little voice in my head has taken control. But quickly I am in a 180 headed straight towards the downstairs fridge! The ice cold box, filled with beer, sparkling waters, left overs, milk, sometimes candy and fresh fruit! Yes this will be fine, I begin consoling myself that 3 days ago when I filled both fridges and the pantry with five hundred dollars’ worth of supplies from our local grocery store and produce market it was going to last at least a week! A whole week, long enough for me to have retained half a paycheck, and there would be plenty for mother and I to feast upon when needed!

Opening the door my eyes cast upon a field of clear plastic shelving, like gazing through a frozen lake and yet instead of witnessing trout moving back and forth all I see is one lone grape, an empty plate of some foreign substance and beer, lots of beer. I mean thank GOD they aren’t swilling my only true inebriating pleasure, there may be at least one ray of heaven shining from within this glacial wasteland.

My anger intensifies!!!! I am headed upstairs again TO RIP SOME ASS!!!! Between the disrespect shown for the hard work in the laundry department and now this! Oh yeah, daddy is coming unglued, unhinged, the devil is shooting fire from my eyes!!!! I turn, slamming the fridge door, I’m angry, and to quote the HULK; you wouldn’t like me when I’m angry!!!!

Taking another step toward the stairs I promptly clock myself on the second rafter in our dungeon of delight!! There is a very small tunnel to which I staring, sounds coming from iPad are that of my new favorite show Bosch, yet to me they sound like eagles crying overhead! I’m sweating, hot and nauseous. The tunnel grows vastly smaller and I find the overwhelming need to hold my breath and bear down hard as to not lose consciousness. The world right now is NOT my oyster.

Coming around I find I am firmly planted on the staircase. It takes me a second to remember where I am at and why I am in the basement. Shaking it off while slowly getting to my feet I stare at the lovingly folded laundry which has somehow made it to the floor and begin picking it up while quietly cussing about our lazy children who don’t appreciate everything there father does for them. As I stand up my eyes throw a Clint Eastwood/Dirty Harry glare upon the empty cabinets that are our pantry and find myself in disbelief after stocking them not more than three days ago. I stand up as rage enters my being and scream what the bloody hell!!!!

I hate the basement…..

P.S. I came to realize after about ten minutes, there was a reason I knocked myself silly. The first time was Gods way of getting me to relax, take a hint. I didn’t listen. The second time was Gods way of saying, sit down and shut up!

I heard him loud and clear. Although our children can be frustrating, infuriating at times, and more than their mother and I can handle. We both know we have wonderful kids, we know they are going to become amazing adults, and I guess that means if they eat us out of house and home every now and again. Well so be it. No one ever said parenting is easy…

 

 

I dreamed a dream about a dream until I realized I had been dreaming all along.

As a child I would lay awake at night gazing upon a ceiling of white, not knowing what darkness or light of a new day may bring. Excitement, happiness, sadness, confusion or worry were commonplace in those silent moments before slumber. This single moment of nightly reflection was a time I dreaded for I neither knew nor had the ability to process each and every thought or feeling rapidly infiltrating my developing brain. So I did my best to create an alternate reality (you know the dreaming before you actually dream) about the future and what it may hold. This was done with a gentle rocking back forth as if I was a baby clutched within my mother’s arms.

Eventually I would contort until finding I was flat on my back. My eyes cast toward the sky, head laid upon a pillow for which I would trust with my slumber until well into adulthood. Then and only then after dreaming about dreams would I drift off to sleep and eventually dream. It’s funny how things can become so very important when we are children and yet nominal as we grow older. That pillow was a lifeline to some nominal form of sanity. It was a trusted object for which I looked forward to after a long day. A moment of pure bliss as my head met its tattered misshapen form. It smelled good, it formed to my head just right and it meant that hopefully after a little blank moment or enlightened thought process the best was yet to come.

To dream

What is it to dream? We dream with eyes wide open about our futures and what they may hold. We dream about what we want to become as we grow older or where we wish to be within a certain designated time frame. We dream about that perfect human match, a soul mate who mirrors our better selves forming a solid foundation for which life and dreams can be achieved. We also dream as we sleep. The subconscious collecting data from deep within our cerebral cortex, correlating it into a one night only performance. Hyper-infusing our confidences and fears into a woven tale of wonderment, confusion or terror.

As a child I recall dreams were abundant. They would come and go, filled with mystery and wonder. Our subconscious mind working overtime filling our thoughts with the impossible, the amazing and at times the downright frightening! But as a child, I can remember the importance of dreams. How some mornings they left me mesmerized or flat out invigorated! I can remember getting dressed before school thinking today anything is possible! All from a dream that boosted my confidence or left me wondering whether or not it was in fact a dream.

During those very early years it was mostly dreams of playing baseball, swimming, learning to ride a bike, or flying! Flying like a superhero, swooping long and low over rooftops with the speed of lightening. My dreams always had a happy undertone that I was popular, or famous and life was licking my fingertips waiting for me to grab onto it and hold it tight!

Into the age of teen wonderment, nightly I would drift off with rock music playing in the background much to my parent’s dismay. My dreams consisted of cars, high school and girls. Real cars would fill my head, not the plastic ones rolling around our streets today! A 1957 Chevy or a 1966 Chevelle! Yes hardened steel and abundant horsepower!!! My 1964 Chevy truck became my world and before sleep I would dream about having the money to one day fix it up so that it would shine, making the cover of Hot Rod Magazine.

During this time I was particularly fond of writing (shocker huh?) and would pencil my dreams in the morning upon waking. I dreamed of being a writer one day, I also dreamed of being a cowboy, or a movie actor. This of course led to desk bound daydreaming where in class my thoughts would wander off and I would be dreaming about the day I would have enough courage to leave home to chase those exciting dreams. An actor, on stage or in the movies I didn’t care! Imagining myself in a full scale western movie, riding, shooting and doing my own stunts! Sometimes I would dream about being a doctor, going to school for a really long time just to prove to my parents that even though school was incredibly hard for me I was in fact smart after all.. It was certified Walter Mitty syndrome!

I never did have the guts to leave, head out on my own. Terrified of the unknown and worried about rejection along with where I would sleep or eat, those dreams became nothing more than lost hopes. I regret those decisions to this day.

Early adulthood and my dreams began to wane. Sleep becomes more of a necessity as life treats you a little harder and exhaustion gives way to reality. The reality being there is no longer time for dreaming about any future while lying in bed. Work became my outlet and I ran at times to the beat of two or three jobs at once. My cherished pillow, the one I longed for at the end of the day no longer mattered as resting my head anywhere warm and dry was more important than comfort or security. Life has picked up speed and there no longer remains time for my silly dreams.

Marriage and not long after children come, days are filled with responsibilities beyond comprehension. My thoughts range from love and pride with this life we are building as a team to worry and fear for what the future holds for us both and this family we have created. Today’s moments are about these people who are now the backbone/foundation of your life. Your dreams for the future are no longer your own but those of a collective whose agreeance is mandatory. These moments of life you will cherish forever, they will create a better and stronger you, you will achieve more than you imagined but those achievements may not be part of what you initially dreamed life would become. You will smile at how quickly life expands, grows and evolves with the continued addition of all who come into your life. I believe these years are the years which leave you with a smile upon your face when your time has come to an end on this earth. You are now following a path and new hopes and dreams will emerge, but you must not forget who YOU are and begin to allow those day dreams to come back. You need to listen to your heart and follow the right path. You long for the nights when deep sleep brings about happy dreams about life, love and family.

There for to quit dreaming is to quit living and hopefully your dreams continue on through the latter portions of your adult years. For me, life and my dreams are much different. I now dream for the thought processes of a child, returning to the innocence of adolescence with all its narrow minded wonder. My head hurts every day, my body is so tired, it’s as though I have drug a truck uphill for miles. When I lay my head down at night I no longer have a single trusted pillow, hell any pillow that is thicker than a postage stamp will do. I can no longer stare upon the ceiling to dream about any kind of future and what it may hold for sleep apnea has its evil grip upon my body. When sleep does come it is at the hands of my wife’s oxygen machine running, the sound of dogs barking, a television squawking hoping to ease my wife’s nervous mind and sheer exhaustion overtaking me while I struggle to breathe through the mask of a CPAP machine.

To dream a lovely dream would in fact be a delightful dream.

Many times I fear sleep depending on the day, the stress level over Jacy’s health or what may have transpired during a shift at work. These dreams do come and with them sometimes death, tragedy, harm and images to disturbing to mention. Often times awaking in panic or fear, drenched in sweat while ripping CPAP mask from my face! This will lead to walking the halls until I can calm down. Many times I awaken feeling as though I am having a full blown heart attack complete with chest pain, sweat and difficulty breathing! It is scary, and tiresome at the same time. Most nights I can no longer fall asleep until I know all my children are safe at home, in their beds. Sleep comes with a price as my worries surpasses any expectations of deep slumber. Listening to Jacy’s labored breathing, coughing and doing my best to stay out of her way as she tosses and turns for fear of waking her from a much needed rest. When I do get the chance to fall into a drop dead slumber my dreams lead to a land I wish not to visit and these places only lead to eventually being awake. Once there I daydream about a life once lived, a love inspired by the continual thought of a new day where my wife is healthy, happy and free from all this torment.

I wonder why life can’t be like the movies. A story with all its problems neatly wrapped up in 90 minutes. Where a young boy can dream while gazing at an arcade machine about being BIG and it happens. Or a girl dreams about running her own clothing company and she does. Or a rat believes it can be a chef in Paris and voila! He is..

What would we be without dreams?

You see things and you say why? But I dream things that never were; and say, “Why not?”

~George Bernard Shaw~

You are never too old to set another goal or to dream a new dream.

~C.S. Lewis~

Dream as if you’ll live forever, live as if you’ll die today.

~James Dean~

A dreamer is one who can only find his way by moonlight, and his punishment is that he sees the dawn before the rest of the world.

~Oscar Wilde~

And my personal favorite

A man is not old until regrets take place of dreams

~John Barrymore~

And with John Barrymore’s quote I say this.

You are born with the ability to dream and with the very same skill set you shall perish. What you do with it in between falls squarely upon you.

Whether asleep or awake, dream, dream big and never let anyone detour you from those dreams.

2017 a story not yet written.

The easy way out is to sit and complain, feel sorry for yourself or constantly wonder why? I have never liked the phrase “It is what it is” and yet for some strange reason it seems to be flowing from my mouth more than ever lately. As though my repertoire of emotion driven responses has taken a thoughtless vacation. In reality I have allowed myself to quit, therefore to find conversation worth having has lost its drive, its zest, leaving no creative or emotional yield.

Our family has started the year out with continuing troubles. It is beginning to feel as though each year meets us with a newer version of this show we call our life. A downcast tragedy written and directed by who?

Our lives are a journey, we are never guaranteed safe passage through it all and though it would be easy to complain or blame God (trust me I have done my fair share of why me? And what the fuck!!) In the end it is up to me not God to make a difference. To cry towards the sky with a shaken fist screaming at a creator or heavenly being leaves only the foolish exhausted and hoarse. God (depending on what you believe) may have created you, but you and you alone need to be able to hear the voice when it calls to you. To open your eyes and your heart, to remove the blinders and stigmas that come with the drudgery of day to day living before you can make an appropriate decision or change with your life.

The reality of it all is we (my family) are nothing special in the grand scheme of things. We (my family) and our troubles are but a spec amongst the hundreds of thousands living with troubles/struggles of their own. What makes our struggles any different from those struggling around us? What I do believe is how we handle our situation in particular may lead to another feeling hope while they wallow in the despair of their own personal pool of troubles. Sharing, compassion, and the ability to constantly learn, change and grow is what makes us unique as human beings.

I often find myself thankful for the social media platforms we all enjoy. I believe it helps us all to find, create, share and understand much more than we ever could prior to living within our own social boxes or narrow geographical boundaries.

On one hand I believe much of our perceived troubles come from looking at others who consistently post online what appears to be a perfect life. If we don’t feel our lives are up to snuff we tend to live through others and that can lead to feelings of resentment or envy that we may not have the ability to recognize. And yet we also see others who are struggling with every aspect of life so we tend to either selfishly feel a little better about ourselves, or we become distraught with those troubles igniting our inner compassionate drive thus feeling an overwhelming need to help. Another amazing human trait that could easily be lost within the alternate reality world surrounding us. Although social media often times comes across to me as the biggest reality show on the planet (and I hate reality shows for there is nothing “real” about them) it is a mind boggling creation to say the least.

Where Social media becomes a place of hope from the heavens is during days like today. One blurb, a sentence or quip and Social media becomes what it was initially intended, a place of connection for everyone you care about to come together. Words of encouragement flow like rivers to the sea. When someone is in trouble, within seconds there is another there to help. When a message needs to be heard by the masses this electronic medium becomes the town crier! It has become a community without terra firma.

 

So thanks to this wonderful world of connectivity, 2017 has not started out as bad as one would think. We are here, we are all alive! Encouragement and love flow freely through texts, blurbs, snaps, postings, phone calls and the shared written word. I say take whatever life has thrown at you and find a way! There is always a way. No person should ever feel the world or deck is stacked against them solely. It is your life, you and you alone make the decisions on how you are going to handle the curveballs life can and will throw your way. I may not like what is happening right now, I may feel frustration over how our life is going and what is happening within the confines of my little niche in the world, it may pain me to see the woman I love and our children suffering through what is essentially a not fair situation. But there is always something to be learned, a message to be shared, a heart to be touched, a moment of never ending love to be cast upon those involved.

We will get through it all, journey be damned.

Jacy is still at Stanford and will be there for an as yet undetermined period of time. She has a pretty bad case of pneumonia along with Rhinovirus (a cold). Now a cold is not so bad except Jacy has an extremely compromised immune system which can lead to very serious complications if she becomes infected.

For a few months now, Jacy’s heartrate and ability to breathe have become a huge concern for us. She can’t make it from the bed to the bathroom without a heart rate of 160, and her oxygen saturation levels dropping into the high 70’s, low 80’s even with oxygen on at 4 liters per minute. She ends up winded and exhausted by simply moving 20 feet. It has left her demoralized and feeling defeated.

The other morning as Jacy was having trouble controlling her heartrate and breathing, and the world became rapidly smaller she felt as though she was going to die. It was painful and it was scary. There was no feeling of bliss or relaxation coming over her and in that moment as the lights were growing dim she realized this was not the way she wanted to go. She was choosing for herself, fighting for her right to pick where and when!

Yesterday in the hospital still sad that she missed out on Parkers birthday she vowed to fight even harder. This thing, this GvHD will not win! There is way too much at stake and no one is going to tell her how it is going to be!

So today she sleeps, today I quit whining about how tired I feel, today we relish in the endless love shown us by friends and family through phone calls, texts and the almighty social media! Today we look forward to what tomorrow has to bring.

Tomorrow isn’t written yet and what we do with it determines how this story goes….

 

 

 

 

Jacy Update; One year later.

She walked down the hallway to a thunderous applause. Smiles, cheers, and hugs were the benchmark set for the morning. As always she made it (strolling down the hallway) look effortless and few would know she was doing her very best to simply stay upright. She had made it, she had survived when many felt she wouldn’t. She outwitted, outlasted and outplayed what was initially supposed to be at the very most a 4 month stay. It was almost 8 months instead. She had become a survivor.

That lone walk one year ago down a Stanford hallway, headed towards an exit was five minutes of pure bliss.

Fast forward one year.

Today marks the one year anniversary of my wife walking unassisted through the hallways of Stanford Medical Center to an awaiting car. She came home on that day and sobbed uncontrollably upon crossing through our gate onto the ranch. Her eyes cast upon land she felt she would never see again. It was a miracle and my faith had grown stronger.

Over the last year;

We have been to the Emergency room more times than I can count and it hasn’t gotten any easier. Even though no matter what hospital or emergency room someone remembers Jacy and we are always treated like family. But each time her body dictates we head that direction it feels like a giant step backwards and of course the inevitable panic attack associated with walking through those doors ensues! Fear solidly grips her mind as the thought of never coming back out is always present.

She goes to Stanford every two weeks for three to four days of treatment for her GvHD. It is a struggle, it rips at the fabric that is our family and we are very blessed to have continued help through immediate family and friends. We knew this wasn’t going to be an easy journey but wow, what a journey it has become!

I have become well versed on all medications associated with GvHD (Graft versus Host Disease) their indications and contraindications and with this knowledge my professional skills have been sharpened; specifically in the arena of assisting, acknowledging, and caring for any patient who has or has had Leukemia or cancer.

Our faith has been tested. We are constantly wondering what the bigger picture is here, what the “big” plan is supposed to hold and if we will ever receive a clue as to what is the answer. We wait patiently, trying our very best to understand, crying together, praying together, wondering about what the future holds-together. We feel robbed, she feels robbed of a life that once was so active and brisk. We both feel admiration and jealously as we watch other families, couples and dear friends moving on with their lives, posting pictures of holiday weekends, trips to Disneyland, camping and nighttime outings. It brings about feelings of remorse over time wasted, projects never tackled, feelings never shared, opportunities missed. All while a clock tic-tocs away in our heads.

It is a lot of weight to carry, not knowing if you are going to live or die. Knowing inside you can still feel the strong powerful woman you once were trying her best to roar like a lioness while recognizing those memories are waning, fading away, replaced by memories of milestones like the time you walked unassisted from your bed to the bathroom without collapsing or were able to get dressed with no oxygen on in just under 15 minutes. You are struggling to make the most of every day while only having enough energy to be cognoscente for 5 hours or less. Sleep is the only thing you know. You quit staring out the window because you can no longer have what’s outside. Fear gripping you constantly as anxiety rips through your soul. The only cure is more medication and a television filled with trash TV to keep your brain occupied 24/7. It becomes the new normal.

It is a lot of weight to carry not knowing if my wife is going to live or die. I have worked hard at caring for her over this last year. I have always thought of myself as kind of a half ass husband, but I can say without a doubt, I have done my very best to care for this woman I love. Making sure she has what she needs when she needs it, being there to hold her when she cries, assist her when she walks, make sure her medications are on time and she has food to eat before she takes her pills. I have grown to let her do things even though I don’t think she is ready for it. It gives her drive and purpose and if she can’t complete whatever she is trying to do, I am right there, a step away to encourage her when it is all over. I miss date nights with her, laughing our asses off at a little hole in the wall we would frequent in Winters, drinking wine and beer. Her staring into my eyes our faces inches apart and that smile! Oh that lovely beautiful smile!

But what I have instead is a better understanding of what marriage truly is. We all say the words; in sickness and in health, till death do us part. But how many truly understand the meaning? Marriage is a journey. And much like any journey it begins in the comfort of a room, with hopes, dreams and well intentioned plans. You both start out on the journey together, with fanfare, family and friends all wishing you well and it all seems smooth in the beginning; but when the journey strays off course, life becomes hard, bitter, with at times both of you not following the same plan you begin to define your relationship, and as storms come and go you rebuild, alter course and travel onward. A solid bond between two people and a solid relationship will flourish and grow with continued love and understanding thereby creating a foundation of stone.

I feel our relationship has done nothing but grow, leaving that foundation of stone for our children to stand upon and hopefully flourish. So although it has been a difficult year, good has come from this giant hill we are climbing together.

I haven’t been writing a lot about Jacy lately because we are living in our new normal. But as we move into the New Year approximately two hours from now I thought we would start the year off with an update.

Jacy has been feeling very sick, she is exhausted all the time, and can barely get out of bed. She has oxygen on 24/7 as without it her saturations levels fall dangerously low. Our family just returned from three days at the coast with family. Jacy was able to get out one day for four hours. She sat on the beach and enjoyed the ocean air surrounded by her sisters. It was an amazing moment for her and our family! Once back at the house she slept (not by choice) pretty much the rest of the time.

We are waiting to hear from her doctors as to what our next step should be.

She is scared as she doesn’t feel right, which of course is a different “right” from whatever “right” really has become for someone as sick as she is on a daily basis. She just seems to stay weak instead of getting stronger and that isn’t good. She has asked that as we head into the New Year, if people could please take a moment and send some prayers her way she would appreciate it. As we have seen over this three year journey a little prayer power goes a long way.

As the year comes to a close, I want to personally say Thank You to each and every one of you who have assisted my family in any way. Without the love and support we have received this journey would have been unimaginable.

Thank you all, Happy New Year and may all of you be blessed with an outstanding 2017!

 

 

 

 

 

I met a woman today….

I stood nervously rocking back and forth. I don’t know why I still get nervous after all these years but I do. Just another presentation, a dog and pony show as it were but for some strange reason my brain reverts to when probationary was the status written below my helmets crest. Fear of failure, saying the wrong thing, not adequately relaying information to a public mass who in reality is really happy to have us around. Sure there is the occasional grump or bitter individual who for some reason carries a chip on their shoulder whenever we are around (and this night was no different) but the majority simply want to say hello, or thank you, or in some cases words can’t form and they sheepishly smile while politely waving as they pass.

It was a local schools annual harvest festival within our town. Our fire engine had been assigned to appear as part of an ongoing public education effort. We pulled up, met with organizers and took our place upon the basketball courts right next to our local Police department’s display. Doors opened, cabinets exposed, wrinkles shifted from our shirts, plenty of stickers loaded into the upper right pocket and in mere seconds they came and came and kept coming to our delight..

Over the course of two and half hours we helped children into our engine, showed them all our fire gear while explaining what we do along with a little bit of how we do it. Kids make me smile, they are honest, truthful, hilarious and have no filter. They are perfect human beings, their thought processes still untouched by the cruelty of adult life along with hurtful biases or opinions. There are days I wish I could still witness the world through their wide absorbing eyes. Days I wish I could go back and do a lot of things over again, channeling my inner child to greater achievements as an adult. But I can’t, none of us can and so the fun in my job is being surrounded by these fantastic awestruck little people.

Tonight though something else happened. This “something” has been happening more and more and I am not sure what to make of it. It always catches me off guard and I never know quite how to behave or present myself. Much like an acting student who for some unknown reason develops a serious case of behavior altering stage fright, I freeze under the pressure and become extremely uncomfortable.

In the middle of giving demonstrations a line had developed filled with children (and a few adults) waiting to climb into our Fire Engine. As we happily interacted with the masses by placing one child at a time inside the engine for picture opportunities a woman walked up and gently grasped my arm. She looked me in the eye and asked; Are you Betty? To which I replied; I am?

She then explained she had been battling breast cancer and with it how much she thoroughly enjoyed Betty’s writings.

As has been the usual mode of reaction, my cheeks felt flush, my heart rate doubled and I mumbled something. I don’t remember what I said because after I learn someone actually reads and enjoys my writings in person I suddenly feel like a 12 year old boy who has just professed his admiration to the prettiest girl in class and she’s responded by saying she likes me. Awkward and elated all at the same time!

This sweet lady with the kindest smile told me her husband was amazing, and how much she appreciated him along with all he has done for her during this very trying time in their lives. She asked if she could hug me, I said yes and as she did I felt thankful, warm, full of love and humbled.

As I have stated on numerous occasions, this blog took a life of its own when my wife became ill. It morphed into what I hoped would be nothing more than a journal to reflect upon after we hopefully conquered Leukemia. Then as time progressed it changed into an open forum for all to read hoping other spouses in my shoes would know they are not alone. A gnawing deep inside told me to share through my experiences with other spouses or caregivers. A reminder to others they have the power within them to carry on, pick up pieces and provide a solid foundation for not only their family and loved ones but for the countless other lives they touch along the way. Cancer, Leukemia, and Bone Marrow Transplants are no longer something someone else has, a blank face or nameless person looking sad upon a Facebook post or commercial asking for donations either monetary or life altering. But real people you know or someone you know knows! We can no longer turn our backs believing it is someone else’s problem to deal with because trust me the statistics showing those affected are all too real! This power lies within you to open others eyes, to reach out and comfort those who need your help because you my friend have walked this path and survived! These diseases do not curse just those who are carrying them and trust me their fight is hard enough for them to live with and handle on their own. But the entire process both physically and emotionally beats down hard upon all of us who live, love and care for those stricken. It is at times overwhelming at how much our lives change and the inner pain it can bring.

So to hear another human being while holding your arm explain with the warmest of smiles and softest of hearts exactly how your writings have meant something to them. Well that brings up emotions that are hard to contain.

I am not sure why I fumble my words, or feel uncomfortable. Maybe because I am shocked that anyone takes the time to read my blog at all. Helping people is all I have ever wanted to do, I always wonder just how many people actually take the time to read this spattering of words and I always wonder who? Who has it helped, who really needs to hear from someone right now because they feel as though they no longer can? Who? Who is at the end of their rope or feels like God doesn’t have a plan for them and this is all just a miserable dark place in their lives that will never end! Who? Am I reaching enough people? How do I reach more? If I do reach more am I writing the right material or am I even the right person they should be reading about? I really don’t think you can write the wrong material as long as it’s truthful and from the heart. But, what if I am wrong and someone out there is missing the point or thinking if that guy’s in pain, you know the one writing about always having faith and carrying on is in pain then why should anyone have faith things will be any better? I don’t have an answer to that!

Yet it remains so important to me; sharing that is. It has become so paramount there have been nights I lose sleep out of guilt for not having written in a week. Our loved ones and/or caregivers are so important, they bear so much emotional burden and over time people who were helping, slowly fade away. Its ok, they have lives, we as caregivers were and still are extremely blessed for the time any and all assistance was provided! It is how it’s supposed to be and no one expects anyone to still be constantly rescheduling their lives, away from their families and friends for 2, 3 or even 4 years later. Suddenly though one can understand how it is to become isolated and alone. 24/7 your whole world revolves around a single human being. Try as hard as you might at some point even your kids begin to suffer! Your intentions are great, you do the best you can and strive to keep their lives busy and full but trust me they feel it! They feel the isolation and to some extent a bit of emotional disconnect. Nothing changes though, we are still there, handling every aspect of our stricken loved ones lives? It is a job we take a lot of pride in, for if you love someone there is no greater gift than to care for them when they are down. It is what love is, it is what God would want.

So to the woman I met today.

Thank you, for filling my heart with joy, giving my writings meaning, and allowing me the honor of meeting you. I apologize if my response was awkward, it was not my intention.

You reminded me that one of the greatest gifts we as human beings have is the power to share ourselves openly with others. You gleefully shared your story with me by my having shared my story with you over time on these pages. Our lives crossed paths and I will never forget that.

My heart is full.

 

So this is 50…

“A man who views the world the same at fifty as he did at twenty has wasted 30 years of his life”

                                                                                                                                ~Muhammad Ali~

 

I can distinctly remember awakening on my 15th birthday, lying in bed while pondering the importance of this day. You see it was my last year before complete freedom, six months from now with a little effort I would obtain a learners permit, then if I kept my nose clean a full-fledged driver’s license would soon follow. I had dreamed of obtaining my license from the very moment I fell in love with cars and now we were but 12 short months from it becoming a reality!

And that my friends started a habit that has both served me well and left me face first in the dirt wondering why more times than I can count. The habit is known as looking forward.

Most people look forward to a vacation or the purchase of some tangible object. I on the other hand began looking forward to landmark dates and moments in time where my life would hopefully just fall into place. Laying my head upon the pillow at night I would count off the time. 5 years until I turn 20 then I will be able to drink legally, 5 more years and I will be 25, either dead or married but either way that’s 10 years away! Plenty of time in between to explore and have fun! 5 years after that I’ll be a dad that’s if some woman is stupid enough to marry me!! Wow think about that! At 30, 15 short years from now, I will become a father to some snot nosed kid! Ten years after that I will become 40 years old! Who wants to be forty that’s freaking old!! Oh well, I will still be the same just I will have a couple kids to hang out with, go skateboarding, ride bikes and work on cars!! It will be fun, like having your best friends over every day because of course they will see how obviously awesome I am!! Ten years later I will be 50 and then, well then I will be really old! Like the teachers with gray hair I see feebly walking the halls, or the old men that every morning make their way into Fords Café. Pretty sure they are too old to actually have a job, they’re just killing time. Wake up early, go meet with other old dudes who are counting the days until they die, eat breakfast, drink coffee, and repeat! At least when I am 50+ my kids will be grown and gone, and I will be able to party hard once again while watching my ancient body wither away..

 

Ahhh the mind of a young man without a clue. So sure of himself, self-absorbed and completely unrealistic.

I turned 50 years old yesterday. Really not sure what I was expecting to happen, but going to bed the night before was held with great trepidation. Moving my pillow, placing items on my nightstand in perfect unison as if by awaking the following morning to find they were moved held some form of significance in determining my age.

Staring at the ceiling I began my usual looking forward process, except this time I wasn’t looking forward but instead mourning the past. Rolling back in five and ten year segments, memories flooded my conscience and with it joy, pain, fear, sadness and tears. We work so hard at looking forward, to the next conquest, challenge or milestone in our lives I think we forget to honor the past. Not just remember the past but actually honor the past. Without the past we wouldn’t be able to say; hey you remember when we…..???? Or you remember that time….???? And of course; I can’t believe we/I survived……????

We forget to not just remember the good times because all of our good times whether we admit it or not are tempered by that portion of our brain protecting us from pain, but to remember while holding in the highest regards the bad times as well. I know you are thinking what, but I want to forget the bad times! Who needs that kind of grief in their lives? In reality if we don’t take a moment to remember our struggles, relive our pain, relish in strengths formed from having our souls drug through the deepest of dark pits, we would be doing ourselves a huge disservice. It is those struggles and pain that forge the human being we are today. Life is easy and lived well when you are always happy never feeling the burdens life can provide. Life is cherished and held even closer when you struggle then survive, rise above the darkest of times always searching for a better moment to bask under. The struggle helps us to become who we are and creates a human being who cares about others, feels empathy, and knows the importance of tolerance and understanding even during the most challenging of times.

I laid in bed for an hour watching my usual round of The Daily Show, The Amazing Race and Amy Schumer. My eyes were watching but my mind was a million miles away. 50 years old, double the amount of time I really thought I would live. Every person who walked through my life over the last 40 years that was no longer with us crossed my mind. Grandparents, friends of my parents, other family members and of course close personal friends. Human lives never afforded the chance to make it to 50 years of age. Life played out is hand and they were gone way to soon leaving those around them suffering with the stark reality that when it’s over, it’s over. We have no say, no choice and life is not a guarantee. So I ask myself, why am I different? Why did I make it here and the others didn’t? Some lost their lives in accidents while others to cancer, illness or the hard realities of a life not lived well. But here I was getting prepared to embark on this landmark (by societies standards) birthday. 50 years old. Some didn’t make to 20, some 30, others in their early 40’s. Either way they were no longer with us. So why am I still here? What is my purpose? Because if I made it this far there must be a purpose otherwise I may as well be nothing more than the walking dead.

When I awoke, I sat up straight like Bill Murray in Groundhog day! I looked around and everything on my night stand was right where I left it. My phone was already loading up with well wishes from friends and the kids were beginning to rustle for school. Jacy had retreated downstairs as she does most mornings around 3:30/4am due to the wacky schedule her medications have her body beholden too. My morning was fairly uneventful for having just turned 50! No new pains, my joints still working fine and there appeared to be no new grey hairs sprouting mysteriously from my head. I still needed glasses to see and when I stepped on the scale there appeared to be no rapid weight gain possibly warranting the use of suspenders with my belt. Brushing these 50 year old teeth I found myself thankful they were all still there and once my hair was combed it didn’t look as though it had thinned any more than normal. I guess you could say it was turning into an uneventful morning, nothing like what my inner fears told me turning 50 would become.

The 15 year old boy still trapped deep inside calling me an old man was happy none of his premonitions had come true.

Today I am much more cognoscente of my surroundings at 50 years old. Birds, fields, a certain smell or breeze that is just the right temperature hitting my face floods my brain with memories. Good, bad or otherwise. I appreciate life, not just my life, but any life. Animals hold a dear place in my heart, I cannot stand to see any animal mistreated; if you are mistreating an animal rest assured I will mistreat you! Nothing brings more joy than a nuzzle  from a horse, the purr of a cat or the slobbery happiness of a dog. I finally have the patience when fishing I wish I held when I was younger. A morning working a horse can erase an entire day of shit! There is something so calming about learning a horse, its character, abilities and personality. Happiness definitely comes from spending time with my children, whether at a rodeo, playing ball, going to the beach, sitting at a school function or just reading together, they are my world. My overall temperament has changed as well, although those very same children I love can on occasion bring me close to the explosive person I could be when I was younger, I now have the ability to walk away, calm myself down and look at things from another’s point of view.

Understanding the power of commitment. My wife is an amazing human being, she fights every day for the simplest things we all take for granted. Time with her children, the ability to walk outside, go to the store, or even just drive the car without wanting to fall apart physically. She lives in fear of the unknown and wonders if she will ever feel better. Every day she wakes, and works hard at making lunches for her children so they know she is still here and she loves them. She sleeps a lot due to her medications and her body doesn’t help when it comes to walking from point A to point B. She worries about everyone and everything. She is my hero. I am terrified of a life without her.

I miss my dad. Wasn’t sure at times how I would feel about that since we butted heads a lot over my entire life, but I really do miss my dad. I have also come to understand in the circle of life his departure leaves me up to bat as it were. I would rather read than watch TV, sit in a quiet room than listen to music at a million decibels, although there are the occasional times alone in the car or at work in my cubicle I have been known to crank up some Zeppelin or Van Hagar! (only those my age will understand the Van Hagar) I have grown fond of the complexities involved with classical music and nothing brings a smile to face faster than some down and dirty jazz. Real country music not that crap they play today is what is on my channel 80% of the time.

Mornings are amazing! Every morning is a little different and I now wonder why in my younger years I wasted all those mornings sleeping in when I could have been out watching in amazement as the earth rotates bringing a bright glowing sun from beneath the shadows of darkness. I feel the same way about a sunset. Something about dusk just speaks to me. It is the perfect time of day.

I worry about our future and what we are leaving behind for our children. There is so much hate in this world and our outlets for entertainment seem to thrive on exploiting only the negatives of life. We are developing a nation of self-centered glory hungry humans that care for no one but themselves. I know there is lots of good in this world I just wish there was more reporting of positives than negatives. I also feel as though we are ruining this planet and our great grandchildren are going to pay the price. If we don’t hurry up and make some major environmental changes than we will permanently damage this planet. It is our only home.

So as you can see the 15 year old no longer lives here and thank goodness! I think differently, and lord have mercy I look different! But looking forward will still be a part of my life as I grow older, just there will also be many more times where looking behind is just as important. There are many more challenges remaining in this life that I don’t WANT to accomplish but NEED to accomplish for my own growth and wellbeing and if I make it to my 60’s.70’s or god willing my 80’s I hope I still have the ability to dream big, love even bigger and hopefully are still able to help anyone who will listen to navigate this crazy thing called life so they can find out just who they are or are getting ready to become when they to hit the big 50.

[JF1]

A “Betty”Fathers day thought.

Its Father’s day.

Yesterday while saying our goodbyes as we prepared to leave Bishop California after a week at the California High School Rodeo Finals, a friend slapped me on the back and said; well at least we will all be home for father’s day!

I chuckled and made some smart ass quip about spending the day cleaning the trailer, tack, horses and clothing. Yup father’s day at its finest! Grumble, grumble…..

This morning after rousting my crew awake, driving one to craziness as he drug his very tired butt outside to feed, I decided maybe Father’s day was indeed a perfect day to be revered. But not in the way most would think.

Father’s day has always been a day for others to appreciate their dads. The men who shaped and modeled, be it through exemplary parenting, a fumbled menagerie of discourse or simply a reflection of horrific role modeling that brought you, now an adult, into the parental place you are today; good bad or otherwise.

One problem for me on this day of days.

My dad isn’t here anymore.

My father passed away on December 31st 2015. This is my first father’s day without him. Something I am realizing this morning I took for granted. He is not here for me to call in the morning, take to lunch or dinner in the afternoon, hand a card to and hug. His frail shaky body no longer walks the driveways between our houses, his voice no longer bellowing larger than life yelling “slow down” towards speeding cars lost on our dirt road. No lecturing my boys on speeding around the property aboard a quad, dirt bike, tractor or horse. No laughter at Jakes antics or pride while watching Cody triumph at just about everything he does. No glee watching Parker or a simple, sly faced smile while seeing Jessica ride in the arena. No dad for me to bounce ideas about a horse from, just silence, a vacancy, an emptiness and I cannot help but stare at the spot in the driveway where he passed.

Yesterday to make emotional matters worse my wife’s uncle passed away from a tumor in his brain. We all knew it was coming yet as I am sure you all know that doesn’t make it any easier. I understand it really shouldn’t matter but not making it an additional 24 hours, his children are now spending father’s day without their dad. It seems like a silly thought but it is one of the man things I found myself thinking about first thing this morning. How about instead I worry about the simple fact a good man is gone and the day has nothing to do with it? Maybe it struck me weird because I, an outsider thought Brian was an amazingly intelligent man, one of the kindest I have ever had the honor of knowing and to not be here for his family to revere just hit me weird. I always looked forward to seeing him at family functions because the conversation was always intriguing. He had done so many things few of us ever dream of doing. But most of all he was an explorer. To me that is what living life is about. We as human beings never truly explore beyond our little circle or comfort zone. I am speaking of not just what is beyond the horizon but within ourselves as well? Always talking a good game there are very few who actually follow through. Brian was one of those people who actually followed through. His presence within our family will be greatly missed and my heart aches for Jacy’s dad, Brian’s brother. Blair has lost his mom and now his brother all within a relatively short time. The void must be huge, the struggle within very tough.

I wish I could say I cannot imagine what his family is going through but I can and I am sure today, a holiday dedicated to fathers will feel empty at best.

This week for me was spent surrounded by kids, families and friends. Rodeo is an amazing collection of hard working people all trying their very best to survive while providing for their children. Family is always at the heart of this sport and it has always drawn me to it since I was a kid. Stands filled with cheering parents. Animals treated with love, better than many people treat themselves all working just as hard to perform. Kids not just competing against other kids but helping their competitors as well! It doesn’t matter what district you are from in this state it is not uncommon for kids from those competing districts to be helping others. They come here as competitors/rivals but leave here friends. District one rider needs a horse because theirs is hurt, no problem as District 8 lets them borrow one. District 5 needs a saddle? District three to the rescue! Don’t even get me started about the rough stock! It doesn’t matter what district you are from everyone is on deck supporting, helping and ensuring that not one competitor isn’t taken care of before they nod their head, signaling to open the gate! There are roughly 300 kids, the best in their events from across the state with parents who should be proud of not only what their kids have accomplished but what they as parents have accomplished as well.

So today on Father’s day since my father is no longer here to say thank you. I am going to go a different direction. Inspired by a week surrounded by children and family, a week filled with victory and loss, a week ending with my own family’s tragic sorrow.

I am going to say this;

Thank you to all the fathers who inspire children across this great nation, those who stand tall choking back tears during successes and failures of not only their own kids but others as well and doing so proudly while lighting the way for others to see. Every father who knows exactly when to say the right thing at the most inopportune time, creating those perfect building blocks for a child to use as a foundation for future success. Thank you to all the dads who understand the importance of putting their own dreams aside so children and again not just their own may flourish. Those dads who know being a father isn’t just about raising your own kid but holding a positive influence over every child who crosses your path. The world can only evolve if we love each other equally, help each other selflessly and not just focus on what is ours.

To the dads who become fathers to those who don’t have one any more. Who remember the importance a parental figure plays in a child’s life. Especially a child who is alone. To all the dads who were a father to me when mine wasn’t around. The ones who ripped my ass when I needed it without fear of reprisal from my own dad. My dad believed it took a village and if I was caught doing something wrong then by all means let me have it!! It is the same way I parent today and if someone doesn’t like it they can take it up with me in private. I am a very good listener.

Today is also important as I reflect on not just how special I believe my own children to be but all the kids I have had the privilege of parenting in some small way or another. I think of all of you all the time. I am thankful for this crazy social media thingy called Facebook because I can see your smiling faces, watch you all continue to grow as adults, friends, family members and even parents of your own. You all make me so proud (and you know who you are) my door is always open, there will always be a seat at my dinner table for you and an ear to listen if you ever need any help.

I think about my own kids on this day. How lucky I am to have four very different individuals living under this old farm house roof. They all drive me crazy at times, and leave me exhausted but I wouldn’t have it any other way.

To Cody, Jake, Jessica and Parker; Thanks for being my kids, allowing me to be your dad. Thank you for filling my life with memories, joys, laughter, and experiences that could never be replaced. But most of all on this Father’s day, a day where I cannot hug my dad and say thank you. Thank you for filling my life with love. I love you all so very much!!

I’m going to close out today with a simple request from all of you.

There are some who are hurting today because their father is no longer around. Reach out to them and let them know you care. There are those who you as a father or male figure have had an influence upon in your life. Drop them a note to say hello. There are some children out there who may need you as an extra fatherly figure in their life to help them along the way. Reach out to them. There are many who maybe don’t need you in a parental manner, but as a strong male figure they can trust. Step forward and make it happen. We all lead busy lives, and excuses are easy to come by, but I ask the simple question; if not you then who?

But most of all be thankful God helped create those children you have, who love you more than anything in this world. Remain the very best father you can be, you are going to screw up, make gigantic mistakes trust me! I am the KING of mistakes!!!! Just own them, apologize when needed, stand tall and do the very best job you can do.

The rewards are amazing.

Oh and Happy Father’s Day……

 

 

 

 

Can you hear me now?

In my twenties I never thought much about life and what it held for me. Every day the sun rose I tried my hardest to earn the respect of those around me. At that age you just want to be heard. Your ideas, thoughts, designs, you just want to be equal with those around you. To show the world that you are not just another dumb kid. Of course not helping matters much my looks were far younger than my age, therefor anything that came from my mouth was treated with kid gloves, quite literally.

Some life changes came and into my thirties a family was started, a career blossoming and again I yearned to be heard. The problem? I was the older guy as most in my profession started young and had already promoted to mid-level or even officer ranks. During that time I learned about fatherhood, gained some maturity and just when things started looking my way I also learned a lot about death. It was a challenging time and still no one was listening.

Welcoming my forties, our family grew, my inner child faded away as motorcycles, boats and fishing tournaments slid to the wayside for coaching baseball, and raising/riding horses. Trips to Haiti for humanitarian reason filled our summers, helping us grow as human beings and rodeo soon dominated our lives. For once in a really long time things felt as though they would look up, our family, especially myself could or would find contentment in life. Then came Leukemia, cancer, and a Bone Marrow Transplant. A very sick wife was struggling hard, fighting for survival and once again I found myself yearning to be heard.

This time it was different.

You see before, I longed to be taken seriously for whatever I may have learned along the way. Wishing those who I surrounded myself with would just listen, understand that maybe just once I actually did know something and could be thought of as equal or even a peer to someone new.

Over time I stopped yearning to be heard but instead chose to listen. Listening is one of the most important traits we can learn as a human being. Listening allows you the opportunity to feel empathy, compassion and love. Three of the best human characteristics we could possibly have or share with others. So I listened, and listened some more and I learned to love by not saying a thing. To empathize with those around me and show great compassion to those less fortunate than I. Listening gave me an opportunity to engage my brain instead of my mouth. Insecurity feeds a rapid fire mouth while silence often times shows great strength.

Now as I am but a few months away from my fifties I am yearning to be heard again.

My wife is struggling with all that has happened to her. She has been a pillar of strength for so many including myself. There is not a day or moment within the day I do not think about her. Alone, in her chair, or upstairs in bed, wondering, asking God why this happened to her. She has survived so much and yet she feels as though she has lost just as much as she gained. A woman who thrived in our barn, was an angel to so many children within a classroom setting and my best friend is still patiently waiting for things to get better. We are one year since chemo and one month away from her transplant. We are three weeks away from when she left the house for what was supposed to be at its worst no more than four months. It was eight months instead of struggling to survive. She is trying her hardest, but most days leave her incredibly exhausted and unable to move. She may have two good days and four really rough days. Her body is fighting her at every turn. She looks up and smiles at me but we’ve been together for 15 years and I can always tell when there is something hiding behind that smile. Some things she just can’t say, but my heart knows what they are because I have listened. 

So to my wife I hope you can hear me because this is what I have to say.

I love you.

I have loved you since they very moment we kissed. It was a confusing time, a scary moment but an inner sense told me it was supposed to be.

There is something about your personality that is mesmerizing. Like staring into an oasis after a long hot journey across the sand. You are that safe comfortable place so needed after such long travels.

You haven’t changed; your caring shines from the inside of your soul. I have yet to meet anyone who doesn’t instantly feel comfortable around you.

You are the devil when you are angry. But if you weren’t my strong personality would roll right over you and that wouldn’t be good for anyone.

I could never imagine a day without you. Just like chocolate

We have four super fantastic pain in the ass children who love you! They are frustrating and amazing all at the same time. They also have no idea just how serious ALL of this has been and because of that they can be a bit selfish at times. But remember, they love you. They show it every day by not doing their chores, arguing with you about homework and treating you like its days of old where you would pick up after them.

I am scared to death but refuse to show it to you. You have enough to deal with emotionally other than dealing with my fears. This whole thing is so unnerving and yet watching you fight so hard, how could I ever tell you I am scared as well.

Quit worrying about what GvHD has done to your outside appearance. I know its difficult, and I understand you miss your old body but; I love you, the person who is you, it doesn’t matter to me what you think you look like because when I look into your eyes and the smile lines under those eyes relax for just a moment, you are there, whole, kind, caring, soft, understanding and as beautiful as always. I only see you..

I don’t know what the future holds for us, for you. I will not pretend I have the answers anymore. This whole thing sucks, it is painful, emotional and at times beyond comprehension. But I do know this; There is no one on this earth that I would rather be with. I am thankful every day that you chose me for a spouse. Yes it is hard taking care of everything without my partner in crime but I got it. I am doing the best that I can and the only reason I am doing so well is because of my love for you and my faith that God is watching and has a plan.

So please my dear wife ease your worried mind, have faith, look into my eyes and know I will always be by your side, helping you any way I can; Loving you and cherishing every moment we are together. Lean on me all you need, and rest when ever you want.

For every day is a glorious gift from God.

. .

 

The Journey

Thursday we made our bi-weekly or so, journey to Stanford. These required visits are needed so doctors may track Jacy’s constant state of GvHD.  Whether it be dealing with a pulmonary function test, her intestinal tract, eyeballs, skin or simply drawing blood to determine antibody needs we always arrive nervous, expecting the worst but hoping for the best as in serious signs of improvement. These appointments can range from down and dirty, leaving us with more time on the road than actually inside any facilities, to eternally trapped on campus with no place to retreat between sessions! Moving from one appointment to another with sometimes more than an hour or two in between visits. We laugh at each other for it has become the only alone time we ever receive and of course nothing is more romantic than swooning surrounded by similarly sick people or holding hands beneath the deep shadow cast from a set of IV pumps inside a sterile chamber. On this particular day Jacy was meeting with her primary Doctor which is always a treat. She loves seeing Dr. Muffly and always comes away feeling as though she just spent time with a friend. But first a 4 hour IV infusion of antibodies to boost her multi layered, still very confused immune system. After that a little round of pulmonary function testing and then it’s back on the road to hash it out with every Bay Area commuter trying their best to get home in under 3 hours. Of course the first hour is fun for me as I play a time honored game started with my son Parker that centers on the Toyota Prius. Much like the road game slug bug only the Prius takes its place. We also play the car spotting game, Tesla, Ferrari, Audi, and Porsche. It is fun driving through a community where the majority of vehicles on the road are green or simply cost more than my house. Ahhhh to have that kind of disposable cash….. We pulled into Stanford’s Cancer center turn around at 10:30 am after a leisurely 3 hour traffic jammed ride when my wife suggested I find something to do other than sit by her side for 4 hours during her infusion. Now normally I would have balked at this absurd suggestion as I have always believed a husbands place is by his wife’s side, no matter what! But today she was right, I needed some Betty time. Time to reflect and be alone. Time for just me with no one needing me for anything. Trapped in the center of Silicon Valley with no excuses to hide behind, that is just what I chose to do and with a kiss, a hearty good luck and I’ll see you in a while, this guy headed out alone.

Where to go, where to go????

I thought about going to the Tesla store but I knew then I would want one and since that type of purchase is nowhere in our future I turned the old faithful 200,000 mile wagon left instead of right. Of course this also eliminated the Ferrari store, the Audi store and who couldn’t pretend car shop without sitting inside a Porsche 911 4S! To dream ah to dream.. First retreat I chose to patron was a little restaurant I have passed a hundred times. A quaint little place nestled in the hills above Palo Alto. A place I have yearned for my world to stop just long enough so I may cross its gastric threshold, yet there never seems to be enough time. Today would be different. When I pulled into the parking lot the first thing to hit me was a smell of ancient redwoods filling my nostrils. Walking up to this small, shake covered hut, heavenly aromas wafted across the open plane. Stepping onto a huge well seated porch I quickly took my place silently amongst some of my favorite people in the whole world. Bikers

That’s right Bikers, masters of the motorized two wheel sleds. Throttle squeezing, leather wearing, Carbon fiber covered, alloy loving, helmet adorning, race pipe thundering, high rev, revving BIKERS! Eating my breakfast a Cheshire cat smile glistened as I listened to each story about the mornings ride, or a previous ride or a tale about someone else’s unbelievably adventurous ride. Tech talk at table two involving power commanders and horsepower. New heads for table fives Harley and a freshly painted fairing to boot! I could almost feel a bike running underneath me! It was good to be back amongst these folks. Gazing across the landscape I recalled many of my bikes from days past. A simple street cruiser, bench seat KZ500, my very first Harley! I could still sense the raw power and throaty noise coming from one of my customs while aching for the sheer arm stretching torque produced by my ZX12R which had quite a few modifications. Each motorcycle reserving a special place in my heart, leaving me smiling, content and hoping I’ll know that feeling again. Yeah, someday day, I’ll be back. After settling up with the waitress I drove down the road a ways to a state park where walking off breakfast sounded like a good idea. Parking the car, walking to the trail head I chose a direction and headed out across this large open field. Working my way along the hillside there arose a bench in the distance. Reaching that bench I couldn’t help but laugh as I read the plaque inlaid upon its top plank. It was quite simply labeled “Bobs Bench”. Taking a seat the view was amazing. I thought to myself somehow dad knows I’m here, sitting on a bench with his name and wondering how he is doing. In return I knew he was looking down upon me, letting me know he’s watching over Jacy. He loved her so, they bantered back and forth and in reality the old man lived for her calling him out for his shortcomings.

Strolling farther down the path it felt as though the weight of my world had left for a bit, a beautiful fern laden path, some ancient trees, and even a few Mountain Lion tracks made this the perfect hike. I lost track of time and before you know it I had traveled 4 miles. It was glorious! Now I will say this, when deciding upon an impromptu adventure, ensure you retain alternate apparel somewhere in your vehicle for just such an occasion, for as I discovered the hard way; Vans are not for hiking! Just saying!

Back at the car I made it three miles down the road when Jacy called to say she was almost finished. Perfect timing. Picking her up some lunch then circling back into the Stanford Cancer Centers turnaround she climbed inside already a bit exhausted. We headed over to the main hospital where we arrived very early for her last appointment, a pulmonary function test. Luckily we didn’t have to wait very long and before we knew it back on the road we were, heading for home.

I thanked my wife for the wonderful morning, and I told her all about the day’s events. She told me about her appointments but before long she was drifting off to sleep. We weren’t 30 minutes into traffic when Jacy’s head nodded its final nod, resting gently towards the door, looking completely tuckered out.

These trips are hard on her and so is the process of recovery. She tires of being exhausted all the time and doesn’t understand why she just isn’t healing or regaining any of her former strength and vitality. Jacy is very thankful to have survived, to have fought as incredibly hard as she did, but the longing to just be normal, to ride horses, to help her kids, to be a teacher again surrounded by children who aren’t hers, but in reality are very much her children has become overwhelming for her at times. It is hard as her husband to see her in pain, to see her struggle, to see her longing for the past. As a man I am a fixer by nature and I can’t fix this, I can’t make it better, I can’t take it from her and make it my own.

The best I can do is support her, listen when she needs an ear, stay quiet when she screams at the ceiling, give advice when she asks for it and when my wife says to go do something on my own. In this case a journey within the monthly journey.  Do it, enjoy it, and thank her for it afterwards for without her coaxing me to do so, I wouldn’t. I would stay right by her side, making sure she is ok and telling her just how special she is to me.

I cant wait until the both of us can sit on Bobs Bench.

bobs bench