Tag: Death of a spouse

Scars

theycallmebetty2 Comments

We all have scars, for to live a life it is inevitable. Whether they lay upon your skin for the world to see, or deep underneath where only the devil resides. We have them, they are there and in most cases these scars are hard earned remnants most choose to ignore or forget.

But to me it seems what we do with them ultimately defines us as human beings.

I will show you mine.

I have all kinds of scars to share. Hard earned in the heat of battle, worn like an inner badge of honor. Obtained through circumstance, or byproduct of a life lived teetering towards the edge. Deep painful scars left on my psyche after watching as those you love most cease to exist. Mental scars developed from years of horrific imagery that never heal, growing, straining; leaving behind just enough meat for my eccentric brain to pick.  They thrive and live on, never quite healing, instead evolving in darkness.

I will gladly show you my scars because I feel it’s what we as human beings must do. My scars don’t define me, they never will. My scars don’t enrage me, for how can you remain mad at what was? I survived, learned, and grew, therefor my scars electrify me, making me stronger, hopefully wiser, tempered and kind.

To carry my scars both inner and outer, under wraps, stowed away from the world means I have lived a life for me and me alone. I believe we are supposed to live our lives for others. So we as a collective whole may learn and grow. Knowing there are more; that someone is never alone and they need not stare at their scars wondering why? What if there is one person out there who doesn’t see their inner scar(s)? You know them. They only see what’s pouring from the depths of their soul as an incurable leak. Like blood from an open wound. For them there is no ability to heal, to form a much needed inner scar. An ultimate reminder that what they went through was actually needed although it may not seem like it at the moment. To know they will survive, carry on and experience the life of their choosing.

The choices we make in life dictate our outcome.

My aunt and I (as we always do) had a wonderful conversation about life, death, the job I have done for over 20 years and the experiences associated. My Aunt having worked a suicide hotline and of me being a fireman. We talked about loved ones lost, people near death, and the loss of my dear uncle not more than a day ago.

The key being we talked.

She asked me; after everything, with all I have encountered in life.

Had I ever contemplated suicide?

My answer was, has and will always be; No.

Life, no matter how difficult at times is this amazing gift we have been given. It is ours to do with what we choose. I cherish every single second. I know there is a life is over for me ticket floating out there somewhere, waiting to be punched. But not today man, not today.

So every day I make a choice.

I get up in the morning and I look at my scars.  Several look like bullet holes across my abdomen, there is a 12 inch one that runs the length of my chest. I have scars on my legs, hands and feet. I have scars around my groin. Each representing a moment when I could have said quite simply; why me? Then given up..

I stare in the mirror at this aging 54 year old body. Once in peak shape ready to climb any hill, cut down a tree, drag some slash, pull some hose and spread water on a rapidly advancing fire.

Now, I get dizzy tying my boots. Sometime I lose my balance and just fall. I can no longer run, no longer climb, no longer carry 50 pounds of gear on my back like it’s nothing more than an extra jacket. Hell I can barley raise my right arm over my head! The absurdity at times is unreal. Medications are taken daily to regulate everything, and to keep bad things from happening to me somewhere, somehow, further down the road!

Quite a different world from simply a few years ago.

I stare, and I stare some more. Then I smile, because I am alive. I cheated death. I get to see another sunrise, another sunset, I live in a country where I can fulfill whatever crazy dream I chase no matter the age or restriction. The only thing to hold me back is me, myself and I.

I stare into my eyes.

I stare at my reflection to see the faces of those I have lost. The inner scars begin to show. My first wife Kim (heart failure), my second wife Jacy (Leukemia), an unborn child, my grandparents, my father, several friends, and now my uncle. I think of them all. I wonder what was, what could have been and what if? I thank them for all they brought into my life for I grew as a person from every experience shared with them all.

The outer scars are reminders, the inner scars are pain.

So what do you do? How do handle these emotions, these reminders, these in your face every fucking day reminders?

As I said; every day you make a choice. Every day you decide how you are going to deal with you and your bullshit.

Today, like every day. I choose life, I choose love, I choose forgiveness, I choose a future, I choose to wake up and see the sunrise, I choose to sit on the porch and watch the sunset. I choose to bring a smile to a friend, as well as to a stranger. I choose to never, ever let my scars hold me down.

Every day, every way.

Wake up, put your feet on the floor, stand up and take one step forward.

Only you can, for no one else can do that much, for you.

Learn to love your scars.

Look at them, look and look some more, then look away and ponder what the the day and life holds in store for you.

I promise you will become stronger.

I promise your fears will subside.

I promise your sadness will deepen before you rise above. But YOU WILL RISE ABOVE!!!

I promise you will tap into the aggressive beast that resides within.

I promise you will ONLY be you.

And that alone is worth the scars….

Coming to Terms…This ones for you Jim Wilson.

theycallmebetty11 Comments

“If I ever needed to know how he was doing, I would simply read his blog….”

So are the words of a man I hold in high regard.

To Jim, this one’s for you.

Coming to terms with a traumatic event in your life can at times become very difficult. You and you alone will ultimately decide how, where and when you face whatever collateral damage that event may have inflicted upon your mind, body and soul.

I do not believe there is any one answer. For those that believe there is a dedicated path to recovery, I have no words. That every human being is so cookie cutter perfect, a simple pathway of textbook answers by those in the know is exactly how each person will perfectly handle grief, suffering, stress, emptiness, loneness, mental isolation, adversity and a host of other emotions is absurd.

Now don’t get me wrong, the help afforded through networks of well-meaning individuals with countless hour of education is definitely needed, wanted and effectively utilized.

My problem is this; those preaching the loudest are not the ones in the know. They are not the ones who have suffered and been helped. They are not the ones with hundreds of hours of education within the process. To me, when I look around the ones preaching the loudest are those who are arrogant and the closest to you. With little regard to how you feel, or the knowledge you have obtained along the way, believing they know more about you under the guise of caring for you because they are close to you and you appear to be struggling. Yet their motive most times is very clear. They wish to be the ones to say at the end of the day, they were there, and it was because of them and them alone that you are making it. In the end it is about them and not you. Most don’t even know they are behaving in this irrational manor, a smaller handful do and enjoy it.

There is no substitute for experience and even though I am speaking for myself, I wish those experiences on no one but wear mine like a badge of honor. I have earned this shit! Good bad or otherwise, I have earned my way through surviving each and every single devastating thing I have witnessed or been party too these 53 years of life. The ones speaking the loudest have witnessed little in my opinion and although everyone’s tolerance or idea of what a tragedy may or may not be is differing, I am sure I will be chastised at some point for my view being wrong or delusional.

I don’t know why I felt the need to get that off my chest but I did. All part of the process I guess.

I digress; I said this one’s for you my friend so here we go.

I have not comes to terms..

I still haven’t comes to terms with the passing of my first wife Kim. She was an amazingly beautiful human being, the mother of my first two sons and quite simply the kindest person I ever met.

If she did something to upset you, the minute she knew there was nothing that would stop her from correcting that wrong. In ten years we fought once. Once and it lasted a whole 20 minutes or so. She gave me two of the greatest gifts I had ever received. One is currently a CHP officer and the other works construction hoping to one day be a fireman like his old man. She never saw them grow up, she never saw them off to school, helped with their classes, went to camp with them, or guided them into adulthood. She missed it all. All of it.

I know she is gone, I know she will never walk through the door again, I know this is part of life and I know I carried on the way she would have wanted me too. I wish I could say goodbye, but I never have been able too. My heart hurts when I think about her, she was taken way too soon. I would have given it all up, walked away, allowed her life to be with someone else, somewhere else if it meant she wouldn’t have been taken.

I had not dealt with a lot of death at that point in my life. It was strange to see her after she had passed. Serene, peacefully in eternal slumber. It always stuck with me, if I close my eyes I can see her now. My job had not jaded me yet, life hadn’t begun to punish me. Little did I know.

I am also incredibly thankful for our time together. She made me a better person, she built up my confidence, supported my decisions and always stood by my side through the consequences. And believe me there were many. To deal with the younger me, love me and stand by my side on a daily basis took a saint.

There is a picture of her on our wall. She will forever be 34. To be so lucky.

I have still not come to terms with the death of my father.

A man I revered early on in childhood, who through failure and disgust with what I can only assume was himself, became an angry, grumpy and at times violent man. As a young boy I looked up to him, idolized him, loved standing in his shadow and believe me when I say my dad cast a large shadow! I learned much from him. It is because of him I have always believed in doing what’s right, even when no one is looking. Speaking for those who cannot or do not have the power to speak regardless of the consequences and never faltering on a true friend. EVER!

It is also because of him that I have spent a lifetime struggling with an explosive temper. Fighting the urge to fight at the drop of a hat or hit my kids as a form of punishment! I wrestle with it daily, but I do it because it is what’s right. I hated him for the times he beat me, I despised him as a teenager for those years and knew I would eventually become bigger and stronger than he would ever become. I did eventually become bigger and stronger, it didn’t help.

As he grew older he became harder to be around. I became softer in my stance but the damage was done. Our years of butting heads made it where I had a hard time loving him, seeing him as anything but a bully. My parents moved onto my property so we could keep an eye on them as they aged. In my naïve thought process I thought it would bring us closer but it pushed us farther apart. Both of us stubborn, both set in our ways I found myself purposely avoiding him.

When he passed away in our driveway, all I wanted to do was turn back time and say I was sorry.

Sorry for being a troublesome child.

Sorry for fighting/rebelling against him all the time.

Sorry for never living up to his standard.

Sorry for not being the son I am sure he wanted as I was adopted.

Sorry for so many damn things I could write an entire book.

I carried, and still do; all the guilt.

I just needed to be eight again, when he was my dad. Really my dad! The man who held me, kissed me, hugged me, let me sit next to him during a Niner’s game. I will never truly know what happened or why. But that was all I needed and as I parent my kids feeling as though I am failing at every moment, I pray when I am gone, I did a good enough job and they won’t feel this way. It sucks…

I have not come to terms with my second wife’s death.

How do you say goodbye twice? How do you even fathom believing you can not only lose one wife but two! Seriously!! What the hell is wrong with life that this can happen again! How can two amazing women walk into my life, stay for a while and then be gone like the wind. Ten years the first time felt like a dream, this (16 years) felt like the blink of an eye. An alternate universe, a black whole.

Kim went fairly quickly; her heart failing, it was painful, scary but she only suffered for a short period of time. But Jacy, poor Jacy struggled and fought, and struggled some more. She lived with incredible pain every single day, while trying her very best to show a consistent positivity that one could only hope our society strives for, yet really; who deserves that much pain and struggle? Who?

Jacy was a people person and not one person I knew thought otherwise. She had the incredibly rare ability to make a friend from anyone. She could morph herself into any situation and always be loved by all. It was her gift. Anywhere anytime, it didn’t matter. The back of the school yard as a teacher or the far reaches of Haiti. People flocked to her, people loved her.

She willingly and gleefully raised, loved and cared for my first two sons, we added another son together and adopted our daughter. She always placed the kids first and did her best to keep them on their toes, created fun lasting moments in their lives. I still don’t understand how life can take away two moms from one set of boys and the only mother three of them ever knew. Leukemia is a bastard.

I am unable to clear my head from the vision of her taking her last breath. It is with me most days. I look at those I love and pray to never see them die the way I saw her pass away. When my children are sleeping, I stare at them to see that little movement. The rise and fall of the chest. I am permanently scarred. Always looking to see if you are alive. I have witnessed the passing of so many human beings, it wears on you over time. Death staring you in the face. It makes it hard to appreciate life sometimes. While others may hear a clock ticking in the background, I hear a life clock clacking loudly, harshly, reminding me it (death) can be at any moment.

I have not come to terms with my own mortality.             

Three important people in my life gone. People I never knew beyond the few seconds I attended to them in the course of my job, gone. Faces, feelings, the most awful things one could ever have seen done to the human body, emotional disconnect, doubt, all run through my thoughts every single day.

Spending my entire adult life hiding behind a wall of false security. Being a firefighter, we train, learn and work our best at protecting you while needing to feel invincible. It is the only way we could do our jobs. Nothing can touch you, nothing can hurt you, and your good deed bank is overflowing so how can anything bad ever happen to you?

Three gone and I feel wounded. Then I learn that I have an aortic aneurysm and a failing heart valve a mere 8 months after losing my wife. Where is the justice? Why do bad things keep happening? Is there any sunlight left in this world? Why does the darkness always fall upon me or the ones who surround me?

My oldest is a newly christened CHP officer. He has wanted this since he was 8 years old. I am beyond proud of this man for chasing his dreams. Success always follows hard work. Yet, I don’t sleep at night sometimes worrying about him, on his own, with back up 45 minutes away. Especially in today’s climate! He is a public servant, raised in a public service family. All people are to be treated with kindness and respect until proven otherwise. No one person is any better than the other. Yet all some see is the badge which incites hate. Never mind the person or the fact that even though you hate him for what he represents he will gladly protect you, while upholding the law. Praying daily I am the one carrying all the bad luck for the entire family. It all stops with me.

I have a girlfriend. She is amazing. But what is she in for by being with me? Is she destined to perish to soon as well? Will some other medical bullshit mow her down in the prime of life? Would she lead or live a better life by never being with me? Am I cursed? Will her family be cursing me if something does happen? How many people do you know who lost everything twice and are still sane? Still looking for the sunshine on daily basis? How many?

You know, funny tidbit, things come in threes! Are we truly fucked in the end?

Friends have come and many have gone over the last almost two years. Faces and attitudes changed. Some telling me what I should be doing and not supporting me when I didn’t agree. Others openly accepting changes in my life because they understood. Missing a few who kept quiet but just disappeared. Relearning people all over again.

Coming to terms means: To begin to or make an effort to understand, accept, and deal with a difficult or problematic person, thing or situation.

I don’t know if I will ever truly come to terms with some or any of what I have just described. But I do know this, because unlike many humans I have encountered. I know, like and love myself, regardless of any doubt, struggle or pain. I can look in the mirror and say yes; I would hang out with myself if we ever met.

In the end, there is this;

I will always, wake up each morning, put my feet on the floor and take one step forward. Life is so incredibly beautiful if you take a moment each day to look around. It is also too short to think otherwise. Move forward, every single day, breathe and know what will be, will be.

And this.

If you ever want to know how I am doing? Just read my blog.

Thank you for being you Jim Wilson..

Time

theycallmebetty2 Comments

What is there to say about time?

“Don’t waste your time with explanations, people only hear what theywant to hear” ~ Paulo Cohelo

“It has been spoken that time heals all wounds. I do not agree, I believe that time distorts the remembrance of pain teaching us how to survive, to move forward as we begin to live again” ~ Betty

“The past is gone, the future is yours and yet we are collectively mired in the moment. It is yours to grab a hold of and thrive or cower and fold” ~ Betty

“Time is the longest distance between two places” ~ Tennessee Williams

“There comes a time when the world gets quiet and the only thing left is your own heart. So you’d better learn the sound of it. Otherwise you’ll never understand what it is saying” ~Sarah Dessen

I chose in December to not allow time, or the perception of-time to dictate my future. To not allow those mired in their own perception of pain and loss to coerce or change my direction. I am a man of great conviction, faith, perseverance and inner confidence. I was raised that way, by a man who I didn’t always see eye to eye with, yet marveled in his ability to consistently reinvent himself, his family and his life. My father never gave up. Ever.

In the end he was tired, worn out and felt at times a failure. I learned from that too. My father taught me so much and he never knew I was watching. Watching his every move, the way he reacted, plotted, planned and did his very best to succeed.

It is why I strive to be a good man in front of my children all the time, not just some of the time. Because I know in time, they too will be faced with adversity, struggle and hardship. They too will need to draw upon a mental reservoir filled to the brim with lessons never taught but learned through observation. Life is filled with so many lessons and people to help teach them to us. I believe with all my heart people come into our lives for a reason and when they are gone their job is done. Just as I believe when I am gone hopefully I helped many and my job will be done as well. We just need to learn to listen to that voice guiding us constantly. I believe there are souls or energy that travel through space and time, allowing us the ability to find each other again and again hopefully creating a more perfect being assenting towards heaven.

I hated dad’s lessons that were heart to heart, always choosing instead to do things my way, the hard way, alone. I have one of three sons that is following in his father’s footsteps in that regard. He is in for a long uphill battle this I know but in the end he will be strong and wise, hopefully casting a larger shadow than his father did for him. Always helping those who need it through actions not words.

By watching and learning from my father I refuse to let life bring me down, to hold me back. There is a world to see and I plan on doing so.There are people to meet, to love, to keep close and there are those that will fade away. But I will have done my best to be a mentor, friend, and a man who loves with his heart and mind.

So what does time mean to me?

I don’t want to miss a second of time. If anything has hit me harder than a brick after losing not one, but two wives is that we only have so much time on this earth and none of it is guaranteed. Time with my kids, time with my family, time with friends and people I choose to love. Not one second or opportunity will I miss.  

Every day I wake up, put my feet on the floor and take a step forward. Every day I look for the good in everything and everyone. Everyday I pray at work I won’t see another human perish. I know that’s an impossibility but it’s nice to want and wish.  Every single day I willingly choose to make it better than the day before, to lead the way.

Jacy made me promise to live my life, to not mope around or feel despair, to fully recognize that her suffering was over and so was the 5 year struggle within our family. She made me promise to take care of our children and do what’s best for me. She knew she would die young and that her time or work here on this earth was done as well. She was one of the wisest, kindest people to those around her and those for whom she never knew I will have ever known. I learned from her, much like my father from simply watching.

The time is now. I cannot wait for what my life, our life, our families life has in store. Time is never a given and I feel as though our seasons of life are changing, there is no more bad luck and it is definitely time…

Flying home…

theycallmebetty5 Comments

Southwest flight 4262 has left the runway.

Sitting in the rear of this 737, by myself, (That’s right awhole row to myself) I am pondering because well let’s face it, there really isnothing else to do but ponder unless you have a laptop or a really good book. Iam pondering the last 100 days. Pondering what my life is supposed to bewithout her here, wondering where she is and how she is doing, but most of all.

That I miss her.

I miss having her hand to hold when we fly. She always heldmy hand during takeoff and landings. Silly really to think two grown people whohave traveled together for as long as we did would still need that reassurance.But we did, and I really do.  

I know it seems strange this 205 pound 5’9 20+ year veteranof the fire service would need someone’s hand to hold while flying. That a personwho carries the ability to calmly walk towards disaster is so fearful of a hurtlingtin can in the sky filled with other similar people he needs simplereassurance! But strangely I do and it’s always been that way. You see eversince I was a little kid while others would recite the horror of classic childhooddreams where they fell, never hitting the ground, or standing naked in front oftheir classmates as everyone laughs or being submerged in water never quitegetting to the top for a desperate gasp of air. I dreamed about falling fromthe sky in a plane, corkscrewing nose first in a ball of fire and darkness.Even now as an adult those dreams still haunt me on occasion. It is why for mycomfort I always held her hand. She understood and without fail always reachedfor my hand the minute we were cleared for take-off. She also had a way ofmaking it feel like I was the one comforting her not the other way around.Letting me play the protector. I can never repay her for that except in memorywith a smile.

This week I took a little time away for myself as anexperiment.

I went to Phoenix Arizona for Barrett-Jacksons annualauction of high end automobiles. It is something I have wanted to do for manyyears. One of my very closest friends in the whole world lives near Phoenix andoffered to put me up for the week! Cheap flight purchased, no hotel costs andwell it just made sense to go far enough away that I couldn’t run home at theslightest inclination of trouble from the family.

It was time. Time to get away from the kids, away from theranch, away from my life. It was a test model for what’s to come, (hence theexperiment) for you see I go back to work on Thursday for a 72 hour shift. Istill don’t know how I feel about it. There has been plenty of time to reflect,to grow, to move past a need for seclusion. Therefore it is time. As I fly homeI am hoping this test was a complete success. (The kids being without me andall.) It will help ease my mind on Thursday as I walk through the doors ofStation 81, knowing they can handle it without dad always being therephysically. But I know deep inside my heart will be at home and those 72 hoursare going to hurt like hell while they drag on slowly.

On the flip side of things I have been sticking to my post-Christmasresolution of not complaining about Jacy being gone.  By the way for reference the previousparagraphs were not complaining they were simply observations! Ok???

No complaining, no whining and moaning the minute somethinghappens knowing that if Jacy were here things would be different. No sir! Myresolve has been strong in keeping my promise to get up every day with a smile,put both feet on the floor, be thankful I am alive and surrounded by suchwonderful people and a loving family. I go out when I can to socialize and havesurrounded myself with a few very close caring people who allow me to just beme with no expectations what so ever. I am able to talk or text them anytimeabout anything, or do nothing at all, no judgement, and that is worth itsweight in gold.

Being a planner looking towards the future is always on mymind. It is just who I am. I don’t know what that future holds and that is hardfor a planner to handle, absorb or let become a reality. I may need to changesome things about the way I choose to live my life, push some boundaries, takesome risks, all things I have never been good at doing simply to help break myplanner addiction. Either way it seems to me the only thing I can plan is thatJames (Betty) is going to find out who he is regardless of what the futureholds. I hope I like who he becomes whether I spread my wings or stay exactly thesame, because the decisions, the inner growth, the choices and experiences willall be mine. The thought of that is kind of cool.

I know what my wife would have wanted and that helps mewhenever I need to make these decisions. She was my best friend after all. Sheknew me better than I knew myself and that is something I will never take forgranted. Just at some point, and this is the hard one, it’s no longer going tobe about her, it’s going to be about me and I am ok with that regardless of thedifficulty associated because I know she would kick my ass if it were any otherway.

So at 30,000 feet, 400mph, I watch the clouds go by out mywindow, I think this is as close as I can get to heaven for now.

Huh?

Maybe she really is sitting here with me holding my hand,letting me know I am doing just fine and everything will be alright.

Just maybe..

2019 I’m ready; so lets aspire to inspire shall we?

theycallmebetty1 Comment

Sitting quietly in a dark room, a flickering of light emanating from the television playing off in the distance dances across the somber mood in our living room. The Ball is about to drop ringing in a new year while saying goodbye to 2018.

I am pondering.

Life is a funny thing. Earlier in the evening I went to a friend’s house for a few hours to reconnect, feel a part of life’s tapestry and try my best to remember what life is like when lived. It worked, which is not what I expected. I laughed, hugged, lived and thought to myself on the way home about how much I missed this portion of my extended family. How many things we (Jacy and I) missed while she was sick and fighting for her life over the last five long dreadful years. And how terribly sad it was that she was not there with her million dollar smile, laughing, making new friends while smothering the old friends with love.

I came home early to be with my son.

Parker and I watched the ball drop together. We kind of chuckled at the horrendous attempt at entertainment the entire New Year’s Eve televised show had become. It was bad, really, really bad and to me showed what little value us as a society place upon ourselves or what we expect from others; but that is my opinion and for another conversation.

As expected at midnight the ball dropped, Parker stood up and said: well that was fun (sarcasm), hope 2019 is much better than 2018 for us dad!

I wanted to say; well it couldn’t get any worse!

But then I would be summoning the black cloud that seems to live over the top of us to rumble, crack and prove me wrong once again! Parker then announced he was taking shower; that he loved me and off to bed he strode.

I eventually went to bed, alone, sad, and wondering why? I knew why I was sad and alone, but why I should bother giving a shit was all I had left.

This morning while making coffee and wanting to write, I decided to look back at previous New Year’s offerings to see just what my advice or observations were for the coming years. Maybe that would help me to understand the why.

2012/13- it was all about resolutions. That’s right, I dug deep (sarcasm again) for that one and really hit it out of the park! Of course I had no idea what was instore for our family a mere 10 months later.

2013/14- I didn’t write a thing! You know why? Because I was knee deep in learning about Leukemia, treatments and how we as a family were going to tackle things head on! No mercy! It is the way this family has always handled adversity!

2014/15- New Year/New Fear. Living with the after effects of treatment, chemotherapy, and learning to live again for my wife. Understanding what it means to be in remission. It was a year filled with scares, and adventure. Jacy ran at it full bore because as I found out later, she knew deep inside but didn’t want to say it out loud that she felt Leukemia would come back.

2015/16- We focused on new beginnings, not letting this journey weigh us down, making the most of every moment because the truth is, nothing is guaranteed.  

2016/17- Handling ourselves appropriately. This journey was no longer about us, but how we could help as many people as possible by continuing forward. Both through my writings and her never saying no to any treatments. Finding joy in all the little things. Whether it be a week with some energy and no sickness to simply sitting in the sun with your children. My wife was an amazing human being and she continued to show her super powers during this dreadful year.

2017/18- This one was a little harder. I copied a portion of this former posting because I couldn’t accurately summarize my feelings.

Am I excited by the prospect of 2018 and what it has to offer?

No!!!!!

No I am fucking terrified of another year with more unexpected disappointment! Or maybe after all this time disappointment, disaster, despair should simply be expected and that’s why I am so tense! Wondering day and night as to whether or not there is more tragedy waiting for us just around the corner! I am constantly worrying about our future, her future, our children’s future and all the emotional toil our lives hold on a daily basis! I wonder if I can take on more. Is it humanly possible for me to handle another loss, another failure, another misfortune! Is there room for me to place more emotional unrest inside my soul?

I found myself mumbling; Fuck you 2018 every time I read someone’s cheery uplifting post today! I would start grinding my teeth the moment someone, anyone spoke of this dreaded New Year and it hasn’t even started yet!! That is just not me!!!

I want so badly to embrace this upcoming year, to feel hopeful, promise and opportunity! To know our future looks bright for all involved. But even as I am writing this my chest hurts, it’s hard to breath and the anxiety associated with wishing such selfish thoughts when I know there are thousands suffering in this world tonight. Struggling much harder than I. It is more than I can take right now. What the HOLY HELL!!!

Somewhere I learned the valuable lesson of keep your friends close and your enemies closer.

2018 you are not my friend, you are my enemy.

And there it is. It is like I knew or my negativity proved to be my downfall. I have had to read through the last five years while working on my book and it has been extremely hard. From 2012-2018 Heaven gained my horse Tank, Jakes Horse Twooey, Jacy’s Grandmother, and Uncle, my dad, a few friends and eventually Jacy herself.   

So what does all this mean for our family after looking through the past?

It means I am taking my own advice. Put up or shut up!!!

2019 you are not my friend, you are my enemy and the difference in regards to your arrival shall be that my tactics are changing.

I look forward to the upcoming challenges you present, my life will not be lived in sorrow or misery, it is not what my wife would have wanted for me and I know this because she made sure I understood the importance before she passed. She also knew it would take a while for me to come to terms with her passing, but she had faith I would or could carry on. She always had faith in me and that is something I cherish so very much.

After spending the evening a few weeks back with new friends, the holidays with our beloved family, and last night with old ride or die friends, it has come to my attention that now is the time. Her father sent me a video yesterday from his YouTube channel that really hit me hard. It was wise and insightful and I believe he needs to see I, his son in law, the man who loved his daughter more than I can ever show him, is taking it to heart. No more whining about her being gone. Oh that doesn’t mean I won’t miss her, or occasionally complain about it, or have terrible days for I know all too well they will come, when I least expect it, and it is 100% ok to let those emotions envelop me. Besides I don’t care who you are or think you are, a good cry now and again is good for the soul. But this family needs to look past all that and begin to live life again. We cannot besmirch her memory, her name, and her beliefs about family, life and love by wallowing in a wasted sea of tears.

Jacy Mirelle Franceschi showed me the meaning of love. She also showed me the meaning of life, living life, experiencing everything around you without slipping into the background. She showed how to make a new friend, to laugh or help someone to laugh when it’s needed, even if that means sacrificing your own dignity. She showed me the meaning of family. If you knew my wife, you knew exactly how important it was for her to have a family to call her own. She did, we loved her, and are forever grateful.

So, no, there will be no New Year’s resolutions, no pointless lists of things that couldn’t possibly be accomplished. Instead our family, my family, the family she loved and created are going to face this year head on! Not afraid of challenges, not afraid to explore, no expectations other than to walk out the door every day and live this thing called life to the fullest!

As I have said before, a mantra I have always lived by will surely be followed.

Every day you can get up, put both feet on the floor and take a step forward is a good day, a day to aspire to inspire.

So here goes.

Travel whenever you can, we will be.

Make a new friend at every opportunity, life is way too short not too!

Laugh, hard at everything, including yourself. Often!

Love with meaning, passion, and faith. To love is to be loved and I have been loved by the very best. For that I am both extremely lucky and eternally grateful. I still have so much love to share and so do you. Never forget that, ever!

Never take yourself or life to seriously. It just isn’t worth it.

Take time for yourself. Live, breathe and appreciate all this world has to offer.

And always take time for your friends and family. They are the most people in your life. Trust me after all of this, I know.

So come on 2019! Let’s do this! I am ready for whatever you have to offer. And if I am ever in question I will simply ask myself; what would Jacy do?

Wake up, put both feet on the floor and take a step forward.

theycallmebetty5 Comments

The sun has risen, the sun has set, over and over and over again. For 4.543 billion years the sun has risen, the sun has set. Under its warmth or hidden in the shadows of the earths darkness lies the stories of roughly 105 billion people.

My story is no different from millions of others, I loved then lost, then loved and lost again. My heart aches as did the hearts of somany others. We all shared or carry the darkness that comes with such grief. I am not special, I am not different; I simply am.

So why can’t my brain accept this fate of mine? Why do I feel so much pain and anger inside? Why can I not understand this outcome, accept this outcome, and realize that no amount of anything is going to change this outcome; bringing her back?

Why do the people I love die? Why have they died for so many before me and continue to perish all around us or so it seems. We all know death is our fate, we as a society choose to look the other way, to ignore its significance when it comes to ourselves claiming it will never happen to me or standing by the adage of when it’s your time, it’s your time.

She (Jacy) always knew she would die young. She always knew.I hate that, because I don’t know what the hell to eat in the morning and cannot fathom knowing, I mean hand on the bible knowing that I was going to die young. It is unconscionable to me, so how does that affect your life, your meaning of life, your belief system?

Every day I do what I have always done for my whole life, I am not happy about it, some days go better than others, but during my childhood I was never good enough, at anything and was reminded of that fact regularly; yet I still do the same thing I taught myself early on, over and over again.

I get up, I put my feet on the floor, and I always take one step forward.

The pain will always be there, the loss is very real, I absolutely hate walking into my house, her house, the house we built together, for there is no warm echo of her voice, only cold walls and pictures to remind me of what was, and what never will be again.

But I move forward.

I believe you need to keep moving to lessen the impact. To understand what that person meant to you, not by staying home curled up in a ball but by trying your hardest to laugh, have a good time and remind yourself that you don’t know you’re going to die. That you don’t have even the slightest inkling what your last day on this planet may be. So keep moving, keep your head up and keep striving for that next big finish line, covering ground, climbing not sinking further into a hole of despair.

Again the pain is still there, oh it’s still there, and it hurts badly, so very bad, yet in the morning I put both feet on the floor, and took another step forward.

I said goodbye to Jacy’s car the other day. It took me two hours to clean it out. We purchased it new in 2007 to support the adoption of our daughter. We traveled all over in that car, as a family, singing 80’s rock, watching movies, laughing, so much laughing. It was a part of our family as silly as that may sound. But at 220,000 miles, a computer that was bleeding off power, one power door that no longer worked and another that only opened manually, a front transaxle that needed replacement and an owner who was no longer alive, unable to ever drive it again, I felt that maybe it had to go.

Cleaning it out, I discovered Jacy had surrounded herself with the most precious of commodities; pictures. She had pictures from all years ofevery one of her children hidden in easily accessible places.  They were everywhere and it made me cry. She loved them all, so very much to the very end. To the very bitter end….

But I cleaned it out, with tears in my eyes, a wet sleeve from drying my eyes and patience for what she left behind. When I left the car at the dealership I took one last picture. I don’t know why, it was just a car, it was Jacy’s car.

I put both feet on the floor, and took another step forward.

I felt guilty driving my new/used car. It is nice, it has 60,000 miles on it, I will be paying for it for five years, and it will start anew chapter in our lives for child transportation. But I can’t help but think how much she would have enjoyed the ride. How her ribs wouldn’t have hurt so badly going from the house to Stanford, or her dads. How I should have thrown caution into the wind and just hoped we could have paid for it so she wouldn’t have suffered so badly. I cried most of the way home carrying so much guilt asI didn’t feel I deserved such a nice ride. I gazed at the empty seat wishing she was there, singing badly at 80’s songs, butchering the words and laughing between tears of pain.

The next morning I put both feet on the floor and took another step forward.

We celebrated Christmas. We did this by going to mass on Christmas Eve. It was the first time I had been to our church since she died. It was one of her favorite places. We gathered and prayed, we sang and prayed and I prayed she was there with me. I kept my eyes closed so tightly and tried sovery hard to feel her presence, to hear her voice when we sang, I wanted so badly to know she was with us, to feel her hand slide gently into mine. But it didn’thappen. I couldn’t feel her. I tried so very hard, so very hard it hurt. I kept it together, we took a family picture by the tree. We as a family went todinner after then home. I didn’t go to bed until 2am. I couldn’t sleep becauseI was so upset that I couldn’t feel her there with me! I was sad, angry and devastated.

The next morning I put both feet on the floor and took another step forward.

We gathered in the morning. Cody made a splendid breakfast and gifts were exchanged. Very quickly we noticed mom’s absence. All the goofy gifts she would order online for each of us. Well thought out with some form of funny undertone. There was a giant hole in the morning festivities, and after allwas said and done I found myself alone for the afternoon cooking dinner for just us. It was lonely and sad and well, strange. I closed my eyes and prayed for her to talk to me, I waited, I tired and nothing happened. The house was cold inside and to me there was no warmth of Christmas. But I tried, the kids didn’t seem to notice and all of them had smiles on their faces. They all enjoyed agood Christmas dinner, there was hugs and laughter, but it just wasn’t the same.

The next morning I put both feet on the floor and took another step forward.

Jacy’s dad’s house was the place to be. It was warm, it was festivious and it was filled with love. Everyone was happy and had a good time.I see her everywhere there, and her step mom does too. It is not easy. I walked out to the cabin where Jacy stayed when she needed to be close to Stanford.Just a short 24 months ago she would have been laying there, happy to see me, smile on her face and love in her heart. 24 months, 730 days, 17,520 hours ago,she was here in this spot. 4 months, 122 days, 2,928 hours ago she was asleepon the very couch I sat on today. 2 months, 67 days, 1,608 hours ago she told me she loved me for the last time.

It’s hard to be happy, when you carry so much guilt for things you could have done better. It’s hard to be happy when the center ofyour universe is gone. It’s hard to be happy when you sit on the end of the bedat night hitting yourself in the head because you don’t know who YOU are or howto find out. It’s hard to be happy when the only person on this earth who loved you unconditionally, who you could tell everything to is no longer there to hear you, to hug you, to give you the love you so desperately need. It is sovery hard to find inspiration.

But you know what?

Tomorrow, I will get up in the morning, put my feet on the floor and take another step forward.

Not for Jacy or because it is what she would want me to do.But because this is who I am. It is who I have always been. I don’t have tolike it, I only need to learn from it, to show the way for my children, and tohopefully help just one person who doesn’t think anyone knows, or understands this pain.

My only goal in life is to aspire to inspire. It is all Ihave left, it can’t be changed by time, it cannot die and leave me, and longafter I am gone if I have affected the lives of just one person then it was all worth it.

I love you Jacy Franceschi. I miss you terribly….

Two months

theycallmebetty4 Comments

Coming down the stairs every morning I have come to realize that about the time I hit the coffee pot I am no longer looking into jacy’s room, no longer searching for her or wondering why I haven’t heard her voice speaking my name.

That’s right, apparently I have gotten used to Jacy not being here, waiting patiently for me to have coffee with her while listening to the plethora of ideas she’d come up with during the night. I miss that, I really do miss hearing all her crazy ideas as I try my best to focus and sip that oh so important first cup of jo. The emptiness is very real.

Then I began to feel bad. Really bad..

Had 17 years of togetherness just disappeared in two months? I mean it will have been two months tomorrow since she passed away. Two long, lonely and I mean so fucking lonely months without my best friend. I am listening to recordings she made just so I can hear her voice. Sometimes it is what I need, other times it is an emotional train wreck and then there are times I talk back to it, hoping she can respond, even though I know she can’t.

I know the answer so don’t bother telling me and nothing has changed so whatever. If anything, absence has made the heart grow even fonder if that is even fathomable. But man, what a thing to live with an absence that can never be filled. Working on my book has left me reliving every single moment from the last five years and with that comes tons of tears. I promised her I would take care of her, I promised her I would look out for her, she trusted me so much and I was the voice she wanted to hear when things went south. Reliving the times she cried and wanted to quit, the times she cried and told me she was fighting for me, for us, for our family, the times she would call me sobbing that it was more than she could take and then it two seconds she would swallow it down and put on a positive face for whoever was walking through the hospital room door. Some days it is more than a man can take.

After reading the last five years over and over and over again, even though it hurts like hell, and nonetheless it would be easy to blame myself for not doing a good enough job. I do know I James Franceschi, her husband kept my word. I know that with every fiber of my being! I loved that woman with my whole heart, I stood by her side and I did the very best I could have done under the circumstances. I am so glad I chronicled the entire journey as without it being time stamped and dated, without precise recollections written down in the moment, it would be so easy for me to continue beating up on myself for the last 5 or 6 months when things became the hardest, and I have, but now I am not. Well I am not as much as I was previously.

When I do its over simple things that anyone or at least I think anyone in the same situation would second guess themselves for, like; I should have carried her upstairs that last month when she told me it was her sole dream to sleep in our bed again. I was terrified to for many reasons and I won’t get into them here but suffice it to say the stairs alone at my house would have killed us both. I still wish I had said I love you a hundred more times, and even if I had I would wish for a hundred more, it was the least I could have done for this amazing woman I was lucky enough to call my wife.  I still wish I wasn’t so tired all the time, that I had super human strength so I could have been more patient during the last 30 days. But even with all of that, the one thing I know beyond a shadow of a doubt is that I did the very best I could. I loved her with all of my heart and I never gave up on her. EVER! This woman was my angel, she was my everything, my best friend and it is so very quiet here without her in this house, on this ranch.

They say it’s till death do us part. Huh? What am I supposed to do with that? Should I just chuck my ring as if nothing ever happened?  My love for her is strong and my wedding ring is still planted firmly on my hand. I am not sure that’s right, I’m not sure what I am supposed to do or how I am supposed to do it. You think I would after playing this horrible game once before, but I don’t!! I guess I’ll figure it out as I go, but I sure wish she was here to help me along with good advice, hugs and a smile.

I wonder if this world we live in is really the hell we all know or have been taught to know. As if there is no fiery hole where the damned retire. No sir! It is here, out in the open and we are living in it! Because this is our reality we all need to earn our way into heaven through actions and deeds, but we must suffer first the way Jesus suffered for our sins. How else do explain all the good people who die and the world is filled with what remains? Anyone?

The thing is, I know I have been blessed. I feel her with me, by my side, and at the weirdest of times. I feel her heart pumping inside mine and can smell her perfume coming from nowhere. I am pretty sure she was needed elsewhere, and I know in true Jacy fashion she is running the show, making everyone laugh and showing you just how special you really are or need to believe that you can become. That was her gift to us all. It definitely was the greatest gift she ever gave me besides our family.

I just selfishly wish she was still with me, radiating her warmth in our room, the one I no longer look into out of habit, because it is cold and so very quiet. So very quiet indeed……

I have become afraid.

theycallmebetty2 Comments

I over think things, I really do. I try my hardest not too, but I am the guy who lays in bed all night long thinking, and thinking, and thinking, until I pass out! Of course then I wake up in the morning and start thinking about whatever the hell it is I was thinking about before I went to bed and thus the process starts all over again! Phew, I had to think about that for a minute..

So here is my problem.

When I think about Jacy, most of the time I no longer see her in my mind sick, in pain and getting weaker by the day. My brain for some reason has me grieving our life prior to Leukemia. You know, she is a mom, I am a doting husband, we date twice a week, have rodeo, Criners arena, Sugarland and lots of bbq’s with friends. Also on the flip side my brain is inundating me with Stanford visits and Kaiser Hospital runs/rituals acquired over the last 5 years. So that seems pretty confusing doesn’t it?

Let me rephrase or clarify the upper statement.

It has come to my attention that if I am in a crowd, or shopping, or any place there are people, I begin remembering moments from another time and Jacy being with me, or have memories of us doing things together in conjunction with “whatever” activity I am participating. She is healthy, and so damn beautiful and it crushes whatever spirit I had towards the activity I am trying my hardest to participate in! I begin looking for her desperately in the eyes of every woman that passes by me, every woman with her back to me, I search and search and I can’t find her in the crowd so my heart rate goes up, then I can’t breathe, I am afraid and just when things seem like they couldn’t get any worse they do! I find myself running for cover trying to hide so no one can see I am falling apart on the inside! Then it just happens, and I can’t stop it! I cry.

Crying is absolutely ok. I am rational enough to know that, but I don’t want the attention. I simply want to do so without anyone checking on me and when you are in a large crowd with nowhere to hide that simply is not possible. So I try swallowing it down, hard, which just makes it worse. Because as the tide comes and goes, if the waves are held back to long eventually one massive wave will break onto the shore.

Yeah picture that! So fun.

My face hurts, my chest hurts, I swear my heart is going to explode, I start sweating, I can’t breathe and then it happens, over and over again, her face flashes, events flash, her smile, her kiss, her hand in mine, I can’t fucking take it!!! I can’t see her and my head starts spinning!! Then just like that, it’s gone. She is gone and it’s like someone lifted it all off my shoulders, until something else sets it off and it starts all over again.

I went to Nevada City today to celebrate Christmas with my son since I really haven’t been feeling it at all. I was excited, he was excited; we walked past the entry sign and into the crowd. The deeper we went I felt the tightening in my chest. I began searching. For her…

Parker shopped away as one woman after another passed me and although no one even remotely looked like my wife there was something, some kind of resemblance; a dress, the shoes, the way she walked, a smile. Stupid really, but it only furthered my need to find Jacy! I become irrational, saying things to myself like; She would have loved this place, the smells, the people, oh my, she would have been talking to every stranger she could in every shop or booth! I knew she just simply had to be there! She couldn’t be dead there is no way my wife, the strongest fucking person I have ever known could be FUCKING DEAD!!! WHAT THE FUCK!!!!

Turning the corner looking for a place to run and there in the window of a shop is a pair of shoes. Not just any pair of shoes, but clogs, her favorite and they were decorated and colored and she would have loved them and I would have bought them for her for Christmas because we loved Christmas, and church and Christmas eve pajamas and snow balling our friends and FUCK, FUCK, FUCKITY, FUCK!!!!

But see it doesn’t get better either.

The second part is when I am driving. That’s when I run through five years of hospital rituals, three years of Stanford Hospital rituals. Sneaking her hamburgers when she wasn’t supposed to eat them. Playing words with friends for hours, watching Survivor, quite literally ever single season-twice. Spending all those moments together with machines beeping and nurses coming and going and holding her hand through it all. Listening intently and calming her down as she tells me to please murder the next nurse that puts her on bed alarm! Telling her I loved her a hundred million times, not because I had too, or was afraid she wouldn’t know but because I wanted too. The way when you are first in love and you say those words it feels magical. Yeah like that, every time. Even when things weren’t going well. That’s the way it felt for me. I haven’t heard those words back for 50 days now. It is killing me inside.

I had to go to Kaiser the other day for me. It took me 15 minutes to get out of the truck and go inside. I even parked in the wrong place because I was on auto pilot. Once inside I wanted to run away. I never want to be inside that building again. Either of them. It’s irrational and I know I am going to need to get over it but I can’t right now. Every corner I see her, in a wheel chair, waiting for me to push her into an elevator. Or sitting around the corner waiting for a blood draw. I see the same faces of the same ladies working at reception who helped her and I pray no one makes eye contact with me. I know they won’t know who I am, but if they look at me I will feel like I am supposed to walk up and say; hi good morning, yes Jacy Franceschi at 10:30-04039018. Thanks yes I know where the paperwork goes.

If I drive towards the city it’s all I can do not to head towards Stanford. Again partly on auto pilot and partly because I still feel like she is there and this is all one big misunderstanding! There is no way she is gone, there is no way she is dead; there is no way she is in this wood box sitting behind me! The summation of her physical being bound into a bag with a copper tag and number that have the earrings she was wearing taped to it! There is just no way!!! They said it was a 10/10 match!!! She had the very best odds. They said that, I heard it!! They said she was going to live and there was only the slightest of chances things could go wrong! I heard that too!!!! They fucking said it!!!

I want someone to wake me from this horrible dream. PLEASE!!!!

Listen, I know they said a ton of other things as well, but it is just where I am right now. I don’t blame them, everyone was amazing to us and our family.

I just want my wife back! Can I go to heaven just for the day? (yeah like the song) Just so I can make sure she is ok? It was my job for so long it just feels so unfinished, and yet that is exactly what it has become. Just a day so I can come back and take care of the kids knowing she is all right. That’s all I ask..

Oh well, I guess I will just have to assume.

Listen, I know it will get easier over time. I don’t know how long that is going to be and really I don’t care. I loved her for 17 years, she was my very best friend and I will love her still, no matter where life takes me. I will never quit loving her, or the memory of her, I just wish for a while, I could turn my brain off and quit being afraid.

Choices

theycallmebetty5 Comments

You know the funny thing about being a living breathing human being?

You and you alone have a choice. That’s right ladies and gentlemen, believe it or not you have a choice in everything you do, say, the way you react or don’t react to life.

Choice is powerful, we have the freedom of choice and how we wield that choice. I am thankful for that because it means as a human being I am allowed to choose which direction I go in any situation, including the precarious emotional moments I am currently living.

Right now, I have chosen sadness as my course. You heard me right, I have chosen to allow sadness into my life. To not meet the male dominated pre-requisite that we all understand to be a norm but is instead a gigantic falsehood of life; and that is to swallow it down, hiding from the sting of losing quite possibly the one person on this earth who will ever love me for who I am, who I was and who she always thought I could become. That statement alone as its read, and I recall all the times she looked me in the eyes, told me she loved me or was proud of who I had become, creates a surge of sadness that forms deep in my chest and moves like a wave towards my outer being. Who will do that? Who will be proud of me? Who will I champion for in the future, who has my back and loves me unconditionally? Who? And don’t say my children because;

1-that’s a given and

2-that is not what I am referencing here. It’s about the relationship built between you and your spouse..

My son texted me the other day, he wanted to know what I was doing, how I was feeling and our texting conversation ended with; I am feeling down. When prompted as to what was happening he replied; I just need to talk to mom. I replied: is there anything I can do? His response: No I just want to talk to mom about shit….. (in his vernacular “shit” means life)

Yeah; let that sit for a moment. Pardon my bluntness but you’re an asshole if that doesn’t tear you up inside just a little. Anyone who was close to their mom and has lost that person knows exactly how my son is feeling. Sad, alone, the boy inside of him simply needed his mommy. To hear her voice, to laugh together at stupid stuff, to hear I love you son at the end of the conversation. Fuck you Leukemia, fuck you GvHD, I hate you all to hell!

But even though those moments come and go, and even though each day that void widens I choose to keep going, to move forward, and to act in a manner that is respectful to both myself and my family. To set an example for our children. Our lives still need to be lived, there is so much out there to accomplish when it comes to our lives and the lives of others. We still have a choice.

Jacy has none of those choices. She didn’t choose this as her destiny. She can no longer choose an alternate outcome or make decisions based upon her feelings. She can no longer do anything from the confines of the handmade box sitting behind me on the table with her picture hovering over the top.

On the flip side though, Jacy did choose as a living, breathing human being exactly how she would exit this earth. She made it very clear what her expectations where and how we as the ones she loved and cherished most would handle that task. She did not want to go, even though her faith was strong, she wasn’t ready, she screamed she wasn’t ready, she felt as though there was so much left for her to do! In the end she was mad at God for stripping her of her family, something she had always wanted, but knew it was time and was welcoming the thought of heaven.

I am trying my hardest to honor her requests, and I will continue to do so until my very last breath. Why? Because I loved her unconditionally the same way she loved me. Because I made a promise to her 17 years ago, 5 years ago and two months ago! I always keep my promises. She was the center of my universe and even though she is gone I will cherish every single moment we spent together in memory over all those years.

I have no doubt as time rolls forward, our lives will change, priorities will change, and the look of our family will change. But her name, her memory and what she hoped for will not change as I will carry that forward with her in my heart and right by my side in spirit. It was and is my choice.

So what exactly is my point?

When the time comes and darkness hits your family, who are you going to become?  There is no reason to face it alone, because you don’t have too. As I have stated many times over the last five years, I started sharing our story because I didn’t want other spouses, partners or family members to feel alone. Like it was them against the world. I really wanted them to have a voice, a place to speak out, to read, understand and reach forward to someone such as myself who was open and accepting while painfully walking that walk.

Now our journey has ended and I am beginning a new journey forward, as one instead of two. It is scary as hell, I am worried for the future of this family, and the one person who understood me is no longer here to help guide me. But I am not alone.

You don’t ever need to be alone either! You know why?

Because you have a choice.

Sorrow is a bird…

theycallmebetty6 Comments

Let me preface today’s writings with a statement: I promised my wife I would keep writing, telling the truth and never masking it or watering it down for the sake of others and that if our story and struggle could help just one person understand they are not alone then we have done our job. Well the “we” has turned to me. Just me and it is daunting to be a me, not a we. So please share/like/subscribe to this blog share our story with everyone you know, because if many can be reached, then maybe the “me” can become a “we” again.

“Sorrow is a bird that sits in the rain. Hunkered down on a branch you see it from the comfort of your window. You think; how sad, that bird is cold and rain soaked beyond its feathers there must be something I can do. But there is nothing you can do, for you cannot help the bird because the bird knows what its up against and understands it must deal with what life has thrown it’s way. There is nothing you can say, for doing so may cause it to panic, flying deeper into the storm, you simply must watch painfully as the sky rains down upon it. For a time the bird must remain sorrowful.”

~Betty~

I am currently drowning in a sea of sorrow and tears.

The darkness in my heart holds me down under its weight. Each day it is becoming harder and harder to leave the house for any reason.

Everywhere I turn I see her face, each place in town or a restaurant or the grocery store or, or, or it never ends. Look there is a grey Honda Odyssey in the parking lot, maybe she is inside and I can surprise her? You never realize just how many grey Honda’s there are out there until you drop kids off at school. You also don’t realize how fast after the one you love is gone, free from all the pain and suffering that your mind takes you back and leaves you with images pre-Leukemia.

There is no reason she would be parked here at the grocery store with the Honda. She hadn’t driven in over 3 years. But that is the crazy game your mind plays with you. It sucks! It really sucks and it hurts a lot!

Lately my mind has been playing the cruelest trick of all. Reminding me or telling me how inadequate I really was and how much better I could or should have been.

Over the last few months, I had really hit bottom when it came to caring for myself. No sleep as it took all night to care for my wife and during the day I had children, ranch and pick up/drop off duties. Plus all the house chores with cooking and cleaning. Of course then there was doctor’s appointments, shuffling her to her dads, oh yeah and then for 48 hours a week I was a kind, caring firefighter for the citizens of our little community. I really was a real life walking zombie.

I found every excuse I could to stay away a few minutes longer when I got out of the house, (I rarely left her alone and only left when she was lucid) to get a break from wet beds, pee on the floor, picking her up because she was suffocating herself in her sleep due to the high number of drugs she was taking. Listening to her tell the same story over and over again as I simply nodded my head while coldly scrolling through my phone because I knew she couldn’t see me due to her GvHD induced blindness. I hate myself for that, I hate myself for every minute I spent away from best friend. Not because I really didn’t want to be with her, but because I just needed a minute to breathe. It was selfish and wrong, I will hate myself forever for not spending those moments engaged or by her side.

What makes things even worse lately is a few things.

My brain also won’t stop replaying every little thing she said to me over the last few months which currently leaves me hearing things I didn’t hear before due to mental exhaustion.

Jacy was starving for my attention! Not the attention I was giving her, the kind of attention she desperately needed. Approval.

I should have thrown the chores to the side and laid next to her more watching movies.

I should have cuddled her more.

I should have spent more time listening and less time talking.

I should have told her I thought she was beautiful despite what GvHD had done to her body. She hated the way she looked and I told her I loved her no matter what, and that I always would which was always followed with a kiss. What I should have said was I think you are beautiful, over and over again.

I should have never left her side even for a moment.

I miss her so badly and just the thought of her sweet face makes me cry. I can’t sleep, not really a fan of eating anymore, I am down to one meal a day. Thankfully I am not drinking on a regular basis or alone. I tried but it just made things worse, so very worse.

I am angry at all of you.

I am sad and angry that we won’t celebrate our twentieth wedding anniversary. I had big plans for that one. Watching all of you happily celebrating your anniversaries and birthdays and love, it just makes me angry at God for taking my best friend away. It’s not your fault, but it stings and I don’t understand why the people I love keep dying.

If one more person tells me to find the positives I swear to Christ I am going to punch someone! There are no positives! I cannot for the life of me understand why? Why are there so many pieces of shit walking this earth and the one human being who showed me how to believe in love, humanity, and selflessness is taken from this world in such a horrific way! I watched her die!!! I can never erase that image from my fucking head!

Jacy would always tell me she knew, she always knew that she was supposed to be with me. That god had guided her way and always been the strength in her life!

So was she sent here to rescue me? Was she my own personal angel and now the time has come for her to go home and if so, how could God leave her to suffer so much before she went? I just don’t understand that either. She was in so much pain, every single day, she lost her sight, couldn’t breathe, had to live with broken ribs that wouldn’t heal, always felt like someone was squeezing her chest, retained water like a camel, lost all bladder control and couldn’t walk to the front door without a full blown panic attack!!! This poised, loving, caring, mother of four, church going, humanitarian and god loving human being was left with no dignity at the end!

Then I think it was all the medications that killed her! I mean it’s what I do for a living and yet we blindly follow the doctor’s orders! Most of her medications caused many of the problems she was suffering from under the guise of providing relief!

Or maybe I am just looking for blame because I am mad, because I will never press her cheek against mine again, feel her whisper in my ear, hear I love you. You know that really hurts.

Oh and she won’t be there for Parker and Jessica’s graduation, all the kids marriages and forth coming grandchildren! She won’t be there for mother’s day, no longer around for everyone’s birthdays all the things she enjoyed about life.

Don’t even get me started on Christmas!

Yeah I am a ball of fun!

What do I do? How do I go forward? Each day is getting harder, not easier! I stare at her pictures and want them to talk to me so badly!!! About anything!! Hell I’d even like to hear about the last episode she watched in regards to the Real Asshole Housewives of any fucking stupid city!!

But the pictures don’t talk, they just remind me of a time that was and will never be again. They hurt my heart, they make me wish I had one more day to say I love you, one more day to apologize for any day I was short with her or not on my game, one more day to hear her tell Cody to have a good day on the way out the door or have her tell me Jake called her and it made her day! One more day to hear all the dirty little gossip she learned from Jessica after an hour long bed and dumb television session between the two of them. One more day to laugh as her Parker watch a movie together and they both make silly comments to each other in regards to the flick they would be watching! One more day to hear about how the dogs all piled on top of her, scaring her but at the same time relishing in their doggie love. One more day to hear about how when she was stronger she was taking me to England to show me all the cool things she loved about that country. One more day to hear the story about how she became a firefighter, which of course led to us meeting and how she counted those blessing each and every day.

But of course I know if I had one more day that would lead to me wanting just one more day.

I see her walking out of Stanford triumphantly after 8 months. Crying tears of joy because she felt like she had a chance to live again.

I see lots of things, I am reliving lots of things, I am dying inside over lots of fucking things over and over and OVER AGAIN!

I really am having trouble envisioning a world without my wife in it. It just doesn’t seem fair or right, or both. Not completely for me either, but for all of you, and to the world. She had such big dreams that would have benefitted so many. I would have been so proud to help her see her dreams come to fruition while continuing on as the Montessori kids used to call me; Mr. Jacy.

And thus none of this will happen and here I am on a capsized boat named life. I have no life vest and I am drowning, slowly.

Drowning in a sea of tears..

I know you can’t say it back. But I love you Jacy..