And so it begins…

One year ago I walked…

No.

One year ago I ran screaming away, as though I was a man literally on fire! What was I running away from?

This blog…

It wasn’t easy setting my emotional self on fire. But I did.

Yet it is in those moments where you as a human being know exactly what is best for you, you find yourself. Those moments helping nourish your soul, your mind, while giving you the necessary space to expand your future horizons.

I swore I wouldn’t be back. I swore I would start a new blog, under a new alias, eventually creating new material for all three of my readers to enjoy from what I always imagined was a big comfy, easy chair. Yet, I didn’t come back, I stayed away, far away, in a place where the world couldn’t touch me, hurt me, crush my independence. Where supposed friends couldn’t turn their friendship into something owed, or try ruining my reputation by spreading falsehoods and hearsay. In a place where I could rebuild myself and no one needed to know. A mental place that kept no record of time, or love, or friendship, or family, or well loss. Yeah, I would never face the written word of loss again, or feel the need to share, hoping to help others. A place that left a portion of my mind blank. It felt very safe there in the dark. I couldn’t see me and I couldn’t see you. Like when you were a little kid, burying yourself under the covers at night because it felt warm and safe. The best part? You couldn’t see me either. Only close family and friends mattered because I could feel them, know they were there, and hold them close. I didn’t need to see them in this dark, blank world I had created to know they cared.

That was wrong.

Many things have happened over the last year, both good and bad, amazing and scary, to which I will delve later. But suffice it to say, my brain is, or has been struggling. The very same weight I claimed to toss (cavalierly I might add) from my shoulders just one year ago was replaced by a new, heavier, weight! Succumbing to its enormous pressure I felt choked, smothered, and dull inside. I was mentally dying..

The answer was right there all along, under my nose, sitting covered in dust (my laptop) on my unused desk; I needed to write.

Not only do I need to write, but I want to write! I still felt the need to share, to let those who jumped onto this journey we call life know they are not alone! We all struggle and succeed in life and we need to do it together! We need to share these journeys and laugh! To revel in the absurdity while expressing our own similarities and differences.

The trouble for me was twofold.

To start

To start under the same blog.

After much thought, I have come to the conclusion/realization that Betty is just who I am.

Betty was born from a necessity, evolved and ultimately became me, or I became her? Not sure, maybe there is a “they” in there somewhere! Fuck! Sorry, I digress.. The reason I am back or coming back, or thinking of coming back is because I missed her, him or “they”! Whatever, you get the point, either way once again, I am hoping all three of my readers are still there, still interested.

So here goes! Bring it! I want to hear from the three of you, and don’t leave me hanging!!

THE END OR THE BEGINNING?

Last year I walked away looking for peace, new horizons, knowing deep in my heart after the struggles of the year before nothing, and I mean nothing could ever hurt me again. (If you’re confused, its ok, just scroll back to all posts from 2013-2018. You’ll catch up) Oh there were also the depressing ponderings of memories churned up from the year 2001 as well but hey! Who is counting right?

Yep I had hit the ceiling, dropped the trifecta and survived! First wife passed away, father dropped dead in the driveway of our property and then, second wife passes away. Oh there were other little family tragedies in between as well, but we as a collective whole trudged through.

I was looking at life, at the prospect of the next few years thinking, no, knowing nothing bad could ever happen to myself or my family again! We were safe, we bore the brunt of loss and survived!

It felt as though we had done a good deed for god, or the mafia, not sure which is better at this point but damn it! I knew we were in the good graces of some higher power! Whether it was god or Tony Soprano I really didn’t care. The way I saw it we were kissing some feet or a ring and either way we were getting the nod! This of course meant in the struggle department I was untouchable.

June 28, 2018

Lying in a cold hallway, staring upwards at the tile ceiling I am waiting my turn. There are four of us here. All dressed the same, in our one piece, easily removable, light blue gowns. Our hair covered in netting, our skin growing colder from the low temperature.

My mind is racing. Racing at a hundred miles an hour. What the holy fucking hell had I done in this life to lead to all of this! For the past month I have cried, and cried a lot. I have pushed people away, while holding others close who refuse to give up on me! Truth be told, I want you to hate me! I NEED you to hate me! I want you to go away! I don’t want you in my life, because if you as a person are not in my life you cannot be hurt when this is over!

What did I do God? I keep asking that. I did everything you have asked of me. I came to church when I didn’t want to, I changed the way I was living from reckless and absurd, to organized, caring and with charity. I traveled across the globe to administer to the less fortunate, to rebuild, to love and care for those I never knew. I dedicated my life to public service with great pride. I wrote about it and shared, all of it! Making me nervous and scared because I really don’t like putting myself out there that far. That is how you get hurt. I even let someone else in, close very close and she is in the waiting room with two of my three best friends, terrified, scared and she chose to be there when others would have, no, should have run! I did all those things God and what have I received for my efforts?

What?

Two wives dead, my dad gone, my dog killed. My two favorite horse’s dead, a struggle to keep this ranch going, shattered relationships and a fire career that feels tattered and destroyed. A new human being let into my inner circle who is scared to lose me so soon, which leaves her suffering because of me! My closest friends scared once again. Four children that don’t know what if any future may hold and feel so lost after five years of this continuous BULLSHIT!

Yet here we are….

A bulky man comes down the hallway and leans over me with a smile telling me its time. He grabs the gurney, and with a smooth calm voice reminds me it will be alright. As he is pushes me through the double doors the spot lights from above illuminate the white room, I ask if he could please play some Van Halen for me. He chuckles and asks; are you a Van Halen or Van Hagar fan? Van Hagar of course, is my reply! The needle is inserted, my hands are tied behind my back, I am asked to take a deep breath and count to twenty. He laughs and says, me too! I drift off with a smile because I have found a new kindred spirit.

My world has once again turned deathly black…

The final curtain call

The singers have sung, the dancers have danced, the orchestra has bowed, arisen and stepped away. The curtain has fallen.

Life is filled with chapters, our stories yet to be fully written. In reality we are but a show, actors or animals upon a stage for all to see.

It seems to me that as we grow older and our lives become intertwined within the workings of this world we actually may live in seasons. Seasons hidden so very deep within these so call chapters of life.

And so life goes.

Winter came upon us, leaving waste to our landscape. Unlike days of old, thanks to technology and the advancement of care within our structured society we knew the storm was coming and had braced ourselves for quite some time, thereby lessening the brunt of its blustery arrival. Easing fears in regards to the trail of waste it may leave behind was indeed a luxury. Letting us, the recipients of such travesty decide whether to allow this storm to rage uncontrolled or hunker down and get through it. It allowed us the opportunity in preparing to stand tall and rebuild our lives or possibly hide in obscurity for as long as we needed if not forever.

The storm came, the storm passed and now the seasons have indeed changed.

I have written on this blog for 8 years. Starting with my very first posting in 2011. My how the writings have changed, the author has grown while expanding upon a gift that has been given and received. To look back upon what started as a place to express my feelings as a father, husband and friend, to chronicling my wife, her sickness and ultimate demise. To share with anyone who chose to read it a sense of humor about life that some welcomed with open minds while others wondered what the hell I was thinking as they scratched their noggins. Yes also mastering the ability to arise emotions from even the hardest of readers was also a plus truth be told.  It really has been an amazing journey. A perfect documentation for my family to look upon long after I have left this earth.

But like most things, it must come to an end.

I have chosen to stand upon my own two feet, to move forward with my life, to live and yes I have even chosen to love again in finding a heart that met mine, a mind that challenges my thought process, a strength that holds me up when I am feeling bombarded or down and a knowledge that family comes first. We should all be so lucky! It is what life is about contrary to some popular belief.

Life should never be lived cowering under the shadows of others, the expectations created by those who have never walked in your shoes, but merely watched from a distance, judging only to fade away when the time was right. You only have one life, therefor only surround yourself with those who want nothing but the best and expect nothing in return. The kind of people who are positive and caring, for every day should be greeted with a smile, a deep breath and the knowledge that this is the one and only life you have therefore you should take it by the horns and ride it for all it is worth because your tomorrow may never come. I have seen it too many times where one loved one kisses another and like that, in the blink of an eye, they are never to be seen or heard from again. The grim reaper leaving its calling card, blackening their hearts, destroying their lives. Something I have sworn to never allow happen to myself.

Part of this season changing, part of a new crop (my life) growing comes from tilling the earth. Turning under empty soil in search of the rich nutrients I need to flourish. Which for me means it is time for this blog to end.

I have tried time and again to write the last couple of months. Nothing flows, nothing feels right and as I write this now I feel a giant weight being lifted from my shoulders. I must put this in the past, let go of all the negativity and allow the seasons to change thus creating a new chapter for my life.

Thank you to everyone and anyone who took a moment out of their lives to read this little blog. It has been a mental pleasure and a mind game of the highest proportions! It has been some of the best parts of my life and some of the very worst.

But it is time to go.

I will start a new blog eventually. I am not sure exactly what or how but I do know my need to write is strong. When it happens I will post it here for anyone who is interested in following along. The writing style will remain the same, the stories will be changed to protect the innocent!! Ha, Ha!!

So with that Betty bids you all a fair adieu.

She has said all she needs to say and as she lays down her proverbial pen, closing her laptop for the very last time she reminds you all to always have faith.

Goodnight, good luck and farewell…

Dream or is it a reality?

It always seems to happen when I am feeling that my life is good. No, let me rephrase, it always happens when I feel as though my life isn’t just going good or well, but great.

It sneaks in through the night using a cover of darkness and a weakness associated with slumber. Knowing the intended victim (myself) doesn’t stand a chance because there are no walls, no observance of its presence until it is too late.

Sometimes it masks itself using my family or friends as an intended target. Other times it drags up memories of the past, the atrocities associated with a long career such as mine. Either way it has a way of tearing me down, leaving me feeling spent both physically and mentally. Other days, it leaves me wrecked beyond belief and I wonder just how much more one man can take. I am confident and strong, I always have been, but there are days I want to curl up and cry for no reason at all.

Dreams of death.

Last night as I slept, Jake my second son came to me in a dream. I was fishing and he appeared in front of me from nowhere.

I said: Jake what are you doing, how did you get here?

Jake: I came to say goodbye dad

Me: Where are you going?

Jake: It’s time for me to go, just wanted you to know I love you

Me: what are talking about?

Jake: Goodbye dad (as he vanished)

The rest of the dream consisted of me doing everything I could to get home! To find my son! And as with most hectic, disorganized dreams every obstacle was put in my place! When I finally got there, he was in fact dead. Gone from this world. It was a nondescript death, a combination of every horrible thing I have witnessed over the life of my career. It was horrendous.

I haven’t been able to shake it.

Here is my problem. I know what it is, I know what these dreams manifest from, I know that it is not a reality.

But

I also knew every single thing about my first wife’s death before it happened because I had in fact dreamt about it over a several year period. I knew everything about where to go and what to do at Stanford Hospital because in my dreams I had been there even though I had never set foot on the property once.

I knew after my second wife was diagnosed with Leukemia that it wasn’t going to go well. Oh at first I believed it was my cynical side, you know that part of us that is carefully crafted from years of getting burned?

But as we went along I did my best to keep faith, to suppress my feelings of dread, to be the most important person in her life during every hiccup or stumble. All the while knowing, not guessing or having a feeling, but knowing she was in fact going to die. Why? Because I dreamt about it over time. From the hospital visits to the pharmacy runs, to her addiction to opioids. I dreamt it all. I knew she would die at home, I knew she was going to suffer and I knew she would leave a huge mark on this world. Not just because of who she was as a person, but because it always came to me in a dream. The only thing my dreams got wrong was her dying in our dining room. In my dreams she died surrounded by family at her dads.

So what is it about me that this happens too?

Is this a curse that only I can live with and if so, do I embrace the knowledge or cower from its implications?

I have so many wonderful people I talk with about my life, my emotions and how to deal with the past.

I have someone very close that I love who lets me talk openly about those last two years while watching the woman I cared for deteriorate and die. The ramifications of being alone but not alone, a caretaker, a warden, a nurse, a pharmacist and surviving nightmare after nightmare. Who listens to everything and anything that comes to mind while I am venting about these crazy notions in my head, understanding completely without thinking any less of me as a person. A beautiful safe space in my life.

But these dreams, these damn dreams, I just need them to stop! I’m weary of death, I am weary of pain, I no longer wish to carry the sufferings of so many in my head only to be replayed over and over again at the whim of nightfall’s grace.

So what do I do?

I do what I have always done.

I write about it for you.

If you are suffering in the slightest I need you to know you are not alone. I need you to understand it doesn’t feel ok, but it is and you are fine. I want you to feel as though you can talk about it, express those very same feelings without judgment or remorse.

I am blessed with the ability to write, to share, and to explain things in a way that you can understand. Everyone has a gift, a talent, something they are particularly good at, I have been told this is mine. Writing allows me to get these feelings out, to purge them from my mind, to let them go even if it’s just for a little while.

If you have something that allows you the same freedom you need to act when you feel down, you need to grab whatever gift you have been bestowed and make it your ritual. It will help I promise.

If you can’t, please find a professional to talk with, to council.

Now, I am going to try and call my son, I think he is out of class by now.

I just need to hear his voice.

Time

What is there to say about time?

“Don’t waste your time with explanations, people only hear what theywant to hear” ~ Paulo Cohelo

“It has been spoken that time heals all wounds. I do not agree, I believe that time distorts the remembrance of pain teaching us how to survive, to move forward as we begin to live again” ~ Betty

“The past is gone, the future is yours and yet we are collectively mired in the moment. It is yours to grab a hold of and thrive or cower and fold” ~ Betty

“Time is the longest distance between two places” ~ Tennessee Williams

“There comes a time when the world gets quiet and the only thing left is your own heart. So you’d better learn the sound of it. Otherwise you’ll never understand what it is saying” ~Sarah Dessen

I chose in December to not allow time, or the perception of-time to dictate my future. To not allow those mired in their own perception of pain and loss to coerce or change my direction. I am a man of great conviction, faith, perseverance and inner confidence. I was raised that way, by a man who I didn’t always see eye to eye with, yet marveled in his ability to consistently reinvent himself, his family and his life. My father never gave up. Ever.

In the end he was tired, worn out and felt at times a failure. I learned from that too. My father taught me so much and he never knew I was watching. Watching his every move, the way he reacted, plotted, planned and did his very best to succeed.

It is why I strive to be a good man in front of my children all the time, not just some of the time. Because I know in time, they too will be faced with adversity, struggle and hardship. They too will need to draw upon a mental reservoir filled to the brim with lessons never taught but learned through observation. Life is filled with so many lessons and people to help teach them to us. I believe with all my heart people come into our lives for a reason and when they are gone their job is done. Just as I believe when I am gone hopefully I helped many and my job will be done as well. We just need to learn to listen to that voice guiding us constantly. I believe there are souls or energy that travel through space and time, allowing us the ability to find each other again and again hopefully creating a more perfect being assenting towards heaven.

I hated dad’s lessons that were heart to heart, always choosing instead to do things my way, the hard way, alone. I have one of three sons that is following in his father’s footsteps in that regard. He is in for a long uphill battle this I know but in the end he will be strong and wise, hopefully casting a larger shadow than his father did for him. Always helping those who need it through actions not words.

By watching and learning from my father I refuse to let life bring me down, to hold me back. There is a world to see and I plan on doing so.There are people to meet, to love, to keep close and there are those that will fade away. But I will have done my best to be a mentor, friend, and a man who loves with his heart and mind.

So what does time mean to me?

I don’t want to miss a second of time. If anything has hit me harder than a brick after losing not one, but two wives is that we only have so much time on this earth and none of it is guaranteed. Time with my kids, time with my family, time with friends and people I choose to love. Not one second or opportunity will I miss.  

Every day I wake up, put my feet on the floor and take a step forward. Every day I look for the good in everything and everyone. Everyday I pray at work I won’t see another human perish. I know that’s an impossibility but it’s nice to want and wish.  Every single day I willingly choose to make it better than the day before, to lead the way.

Jacy made me promise to live my life, to not mope around or feel despair, to fully recognize that her suffering was over and so was the 5 year struggle within our family. She made me promise to take care of our children and do what’s best for me. She knew she would die young and that her time or work here on this earth was done as well. She was one of the wisest, kindest people to those around her and those for whom she never knew I will have ever known. I learned from her, much like my father from simply watching.

The time is now. I cannot wait for what my life, our life, our families life has in store. Time is never a given and I feel as though our seasons of life are changing, there is no more bad luck and it is definitely time…

Flying home…

Southwest flight 4262 has left the runway.

Sitting in the rear of this 737, by myself, (That’s right awhole row to myself) I am pondering because well let’s face it, there really isnothing else to do but ponder unless you have a laptop or a really good book. Iam pondering the last 100 days. Pondering what my life is supposed to bewithout her here, wondering where she is and how she is doing, but most of all.

That I miss her.

I miss having her hand to hold when we fly. She always heldmy hand during takeoff and landings. Silly really to think two grown people whohave traveled together for as long as we did would still need that reassurance.But we did, and I really do.  

I know it seems strange this 205 pound 5’9 20+ year veteranof the fire service would need someone’s hand to hold while flying. That a personwho carries the ability to calmly walk towards disaster is so fearful of a hurtlingtin can in the sky filled with other similar people he needs simplereassurance! But strangely I do and it’s always been that way. You see eversince I was a little kid while others would recite the horror of classic childhooddreams where they fell, never hitting the ground, or standing naked in front oftheir classmates as everyone laughs or being submerged in water never quitegetting to the top for a desperate gasp of air. I dreamed about falling fromthe sky in a plane, corkscrewing nose first in a ball of fire and darkness.Even now as an adult those dreams still haunt me on occasion. It is why for mycomfort I always held her hand. She understood and without fail always reachedfor my hand the minute we were cleared for take-off. She also had a way ofmaking it feel like I was the one comforting her not the other way around.Letting me play the protector. I can never repay her for that except in memorywith a smile.

This week I took a little time away for myself as anexperiment.

I went to Phoenix Arizona for Barrett-Jacksons annualauction of high end automobiles. It is something I have wanted to do for manyyears. One of my very closest friends in the whole world lives near Phoenix andoffered to put me up for the week! Cheap flight purchased, no hotel costs andwell it just made sense to go far enough away that I couldn’t run home at theslightest inclination of trouble from the family.

It was time. Time to get away from the kids, away from theranch, away from my life. It was a test model for what’s to come, (hence theexperiment) for you see I go back to work on Thursday for a 72 hour shift. Istill don’t know how I feel about it. There has been plenty of time to reflect,to grow, to move past a need for seclusion. Therefore it is time. As I fly homeI am hoping this test was a complete success. (The kids being without me andall.) It will help ease my mind on Thursday as I walk through the doors ofStation 81, knowing they can handle it without dad always being therephysically. But I know deep inside my heart will be at home and those 72 hoursare going to hurt like hell while they drag on slowly.

On the flip side of things I have been sticking to my post-Christmasresolution of not complaining about Jacy being gone.  By the way for reference the previousparagraphs were not complaining they were simply observations! Ok???

No complaining, no whining and moaning the minute somethinghappens knowing that if Jacy were here things would be different. No sir! Myresolve has been strong in keeping my promise to get up every day with a smile,put both feet on the floor, be thankful I am alive and surrounded by suchwonderful people and a loving family. I go out when I can to socialize and havesurrounded myself with a few very close caring people who allow me to just beme with no expectations what so ever. I am able to talk or text them anytimeabout anything, or do nothing at all, no judgement, and that is worth itsweight in gold.

Being a planner looking towards the future is always on mymind. It is just who I am. I don’t know what that future holds and that is hardfor a planner to handle, absorb or let become a reality. I may need to changesome things about the way I choose to live my life, push some boundaries, takesome risks, all things I have never been good at doing simply to help break myplanner addiction. Either way it seems to me the only thing I can plan is thatJames (Betty) is going to find out who he is regardless of what the futureholds. I hope I like who he becomes whether I spread my wings or stay exactly thesame, because the decisions, the inner growth, the choices and experiences willall be mine. The thought of that is kind of cool.

I know what my wife would have wanted and that helps mewhenever I need to make these decisions. She was my best friend after all. Sheknew me better than I knew myself and that is something I will never take forgranted. Just at some point, and this is the hard one, it’s no longer going tobe about her, it’s going to be about me and I am ok with that regardless of thedifficulty associated because I know she would kick my ass if it were any otherway.

So at 30,000 feet, 400mph, I watch the clouds go by out mywindow, I think this is as close as I can get to heaven for now.

Huh?

Maybe she really is sitting here with me holding my hand,letting me know I am doing just fine and everything will be alright.

Just maybe..

2019 I’m ready; so lets aspire to inspire shall we?

Sitting quietly in a dark room, a flickering of light emanating from the television playing off in the distance dances across the somber mood in our living room. The Ball is about to drop ringing in a new year while saying goodbye to 2018.

I am pondering.

Life is a funny thing. Earlier in the evening I went to a friend’s house for a few hours to reconnect, feel a part of life’s tapestry and try my best to remember what life is like when lived. It worked, which is not what I expected. I laughed, hugged, lived and thought to myself on the way home about how much I missed this portion of my extended family. How many things we (Jacy and I) missed while she was sick and fighting for her life over the last five long dreadful years. And how terribly sad it was that she was not there with her million dollar smile, laughing, making new friends while smothering the old friends with love.

I came home early to be with my son.

Parker and I watched the ball drop together. We kind of chuckled at the horrendous attempt at entertainment the entire New Year’s Eve televised show had become. It was bad, really, really bad and to me showed what little value us as a society place upon ourselves or what we expect from others; but that is my opinion and for another conversation.

As expected at midnight the ball dropped, Parker stood up and said: well that was fun (sarcasm), hope 2019 is much better than 2018 for us dad!

I wanted to say; well it couldn’t get any worse!

But then I would be summoning the black cloud that seems to live over the top of us to rumble, crack and prove me wrong once again! Parker then announced he was taking shower; that he loved me and off to bed he strode.

I eventually went to bed, alone, sad, and wondering why? I knew why I was sad and alone, but why I should bother giving a shit was all I had left.

This morning while making coffee and wanting to write, I decided to look back at previous New Year’s offerings to see just what my advice or observations were for the coming years. Maybe that would help me to understand the why.

2012/13- it was all about resolutions. That’s right, I dug deep (sarcasm again) for that one and really hit it out of the park! Of course I had no idea what was instore for our family a mere 10 months later.

2013/14- I didn’t write a thing! You know why? Because I was knee deep in learning about Leukemia, treatments and how we as a family were going to tackle things head on! No mercy! It is the way this family has always handled adversity!

2014/15- New Year/New Fear. Living with the after effects of treatment, chemotherapy, and learning to live again for my wife. Understanding what it means to be in remission. It was a year filled with scares, and adventure. Jacy ran at it full bore because as I found out later, she knew deep inside but didn’t want to say it out loud that she felt Leukemia would come back.

2015/16- We focused on new beginnings, not letting this journey weigh us down, making the most of every moment because the truth is, nothing is guaranteed.  

2016/17- Handling ourselves appropriately. This journey was no longer about us, but how we could help as many people as possible by continuing forward. Both through my writings and her never saying no to any treatments. Finding joy in all the little things. Whether it be a week with some energy and no sickness to simply sitting in the sun with your children. My wife was an amazing human being and she continued to show her super powers during this dreadful year.

2017/18- This one was a little harder. I copied a portion of this former posting because I couldn’t accurately summarize my feelings.

Am I excited by the prospect of 2018 and what it has to offer?

No!!!!!

No I am fucking terrified of another year with more unexpected disappointment! Or maybe after all this time disappointment, disaster, despair should simply be expected and that’s why I am so tense! Wondering day and night as to whether or not there is more tragedy waiting for us just around the corner! I am constantly worrying about our future, her future, our children’s future and all the emotional toil our lives hold on a daily basis! I wonder if I can take on more. Is it humanly possible for me to handle another loss, another failure, another misfortune! Is there room for me to place more emotional unrest inside my soul?

I found myself mumbling; Fuck you 2018 every time I read someone’s cheery uplifting post today! I would start grinding my teeth the moment someone, anyone spoke of this dreaded New Year and it hasn’t even started yet!! That is just not me!!!

I want so badly to embrace this upcoming year, to feel hopeful, promise and opportunity! To know our future looks bright for all involved. But even as I am writing this my chest hurts, it’s hard to breath and the anxiety associated with wishing such selfish thoughts when I know there are thousands suffering in this world tonight. Struggling much harder than I. It is more than I can take right now. What the HOLY HELL!!!

Somewhere I learned the valuable lesson of keep your friends close and your enemies closer.

2018 you are not my friend, you are my enemy.

And there it is. It is like I knew or my negativity proved to be my downfall. I have had to read through the last five years while working on my book and it has been extremely hard. From 2012-2018 Heaven gained my horse Tank, Jakes Horse Twooey, Jacy’s Grandmother, and Uncle, my dad, a few friends and eventually Jacy herself.   

So what does all this mean for our family after looking through the past?

It means I am taking my own advice. Put up or shut up!!!

2019 you are not my friend, you are my enemy and the difference in regards to your arrival shall be that my tactics are changing.

I look forward to the upcoming challenges you present, my life will not be lived in sorrow or misery, it is not what my wife would have wanted for me and I know this because she made sure I understood the importance before she passed. She also knew it would take a while for me to come to terms with her passing, but she had faith I would or could carry on. She always had faith in me and that is something I cherish so very much.

After spending the evening a few weeks back with new friends, the holidays with our beloved family, and last night with old ride or die friends, it has come to my attention that now is the time. Her father sent me a video yesterday from his YouTube channel that really hit me hard. It was wise and insightful and I believe he needs to see I, his son in law, the man who loved his daughter more than I can ever show him, is taking it to heart. No more whining about her being gone. Oh that doesn’t mean I won’t miss her, or occasionally complain about it, or have terrible days for I know all too well they will come, when I least expect it, and it is 100% ok to let those emotions envelop me. Besides I don’t care who you are or think you are, a good cry now and again is good for the soul. But this family needs to look past all that and begin to live life again. We cannot besmirch her memory, her name, and her beliefs about family, life and love by wallowing in a wasted sea of tears.

Jacy Mirelle Franceschi showed me the meaning of love. She also showed me the meaning of life, living life, experiencing everything around you without slipping into the background. She showed how to make a new friend, to laugh or help someone to laugh when it’s needed, even if that means sacrificing your own dignity. She showed me the meaning of family. If you knew my wife, you knew exactly how important it was for her to have a family to call her own. She did, we loved her, and are forever grateful.

So, no, there will be no New Year’s resolutions, no pointless lists of things that couldn’t possibly be accomplished. Instead our family, my family, the family she loved and created are going to face this year head on! Not afraid of challenges, not afraid to explore, no expectations other than to walk out the door every day and live this thing called life to the fullest!

As I have said before, a mantra I have always lived by will surely be followed.

Every day you can get up, put both feet on the floor and take a step forward is a good day, a day to aspire to inspire.

So here goes.

Travel whenever you can, we will be.

Make a new friend at every opportunity, life is way too short not too!

Laugh, hard at everything, including yourself. Often!

Love with meaning, passion, and faith. To love is to be loved and I have been loved by the very best. For that I am both extremely lucky and eternally grateful. I still have so much love to share and so do you. Never forget that, ever!

Never take yourself or life to seriously. It just isn’t worth it.

Take time for yourself. Live, breathe and appreciate all this world has to offer.

And always take time for your friends and family. They are the most people in your life. Trust me after all of this, I know.

So come on 2019! Let’s do this! I am ready for whatever you have to offer. And if I am ever in question I will simply ask myself; what would Jacy do?

I’m seeing ghosts..

Making my way through town I have always seen ghosts. Ghosts of incidents past rattling through my brain like an unwanted house guest! You know, wearing your wife’s robe and your slippers while they drink what’s left of the milk you needed for your morning cereal.  I have written about “them” these ghosts before, remnants of some of the worst things I have seen or participated in during my career. Who they were or are, how they have affected my current reality, and my inability to let them stay, well quite simply “dead”.

Last night I went to Vacaville to pick up tickets for a popular movie two hours early so the kids and I could go see it. Now if you know me well enough, then no need to ponder the movie. The answer is elementary.

Arriving at the theater, it is very obvious the movies are the place to be after Christmas, as the lot was full and I needed to park a block away. Walking up to order tickets a very polite young man behind the glass informed me they were in fact sold out for the night. Hands in my pockets while retreating to my car I heard a couple talking about heading to Winco after the movies.

Then it began.

I looked across the freeway, Winco hides on the other side and it dawned on me that Thursday was our Winco night. I could see her walking through the aisles, grabbing things and placing them close to her face so she could make them out, never ever wanting help unless she absolutely needed it because that tore away at her independence. We would slowly make our way from aisle to aisle and I remember that as much as I hated shopping ( I am a speed shopper, I know what I need and I haul ass outta there) watching the wonderment she held to each and every item she placed near her face always made me smile. It was like watching a child, or someone who had been in a coma for 30 years and just couldn’t believe all the amazing things that now existed! Winco was always a 2 hour affair and at that very moment I couldn’t believe how much I longed to go shopping with my frail, blind wife, spending those two hours together making our way up and down each and every aisle while she beamed with delight, thanking me over and over again for taking her.

UGH!

Vowing to never take another step inside Winco, I slid into the seat of my car and texted the kids; the movie is a no go, sold out, headed home. Then as I got on the freeway and began passing the Nut Tree area it was as if every single place we ever visited from the beginning of our marriage had a giant neon sign over the top of it flashing, brightly screaming that we had fun over there, we had date night right here, do you remember the time that this happened in this street and how you both rolled around laughing for hours!!! I tried to take it as good memories, something I should be so happy about, but instead it just created a bigger void, a tunnel of darkness that began enveloping me from the inside out! I couldn’t drive fast enough to get away, the signs wouldn’t stop flashing, I started breathing really hard and my chest hurt, I began sweating and I couldn’t focus.

Then out of nowhere!

That’s right out of nowhere I found myself in the Kaiser Hospital parking lot. I was parked in my normal spot. Yeah after you have been there a while you kind of pick a row and park there out of habit. Walking towards the building I had my hoodie pulled tightly down over my brow. I must have looked like the grim reaper as I made my way into the building. Stopping at the pharmacy I stared inside for a few minutes, reciting her medical record number then turning to make my way to the fourth floor. Exiting the stairwell I walked slowly down the hall, talking to her as I always had about how long she would be, did she want me to stay, cause I would stay and watch tv with her, should I go and get chores done, is there anything she needed me to pick up for her in Vacaville? All the right questions, praying I would hear an answer. Knowing there was none to be had.

Oncology, I stood in the threshold for a minute or two, still not quite understanding why I was there; then seeing the television was still on I sat down in the same chair I would always inhabit.

And there it was, right there for me to feel, my wife.

It was as if Jacy was sitting in her wheelchair right alongside me, I could feel her, she was talking to me, we had a long conversation about meds, her health and what lay in store. I eventually snapped from the same old topics we discussed and told her how much I missed her, how very lonely I am, how she was the very best thing that ever happened in my life and I don’t like not knowing what is in store for us without her. I told her I loved her so much and how I missed the touch of her hand. I asked her if she was ok. She just smiled, looking at me with her big beautiful eyes and said it was time to go. I asked her to please not go, don’t leave me again, she said; James, its time for my treatment and turned towards the door. She was gone.

And just like that I was back, alone in the very waiting room I had spent countless hours watching other people struggle with cancer while we were waiting for treatment.  

Walking down the hallway towards the stairwell, again slowly, hands in my pockets, hoodie still pulled down tight I felt heavy. No wheel chair to push, no bags to carry, no oxygen bottle to adjust, no wife whose shoulders needed rubbing, no best friend to reassure this was temporary, she wasn’t going to die, she was Jacy Franceschi, the toughest, most badass woman I have ever known and no amount of drugs or disease could possibly kill her.

I lied.

You can’t possibly know how that feels. To have lied.

She knew the risks, she knew what the outcome could be, she knew it all and she did her best each and every day for her family.

I still lied because I loved her.

I see ghosts everywhere I go, they don’t prepare you for that when you become a firefighter, but over time you develop the coping skills to understand it, to deal with it, to accept it when they arise.

No one can prepare you for the ghost being the one you loved more than anything on this earth.

No one….

Wake up, put both feet on the floor and take a step forward.

The sun has risen, the sun has set, over and over and over again. For 4.543 billion years the sun has risen, the sun has set. Under its warmth or hidden in the shadows of the earths darkness lies the stories of roughly 105 billion people.

My story is no different from millions of others, I loved then lost, then loved and lost again. My heart aches as did the hearts of somany others. We all shared or carry the darkness that comes with such grief. I am not special, I am not different; I simply am.

So why can’t my brain accept this fate of mine? Why do I feel so much pain and anger inside? Why can I not understand this outcome, accept this outcome, and realize that no amount of anything is going to change this outcome; bringing her back?

Why do the people I love die? Why have they died for so many before me and continue to perish all around us or so it seems. We all know death is our fate, we as a society choose to look the other way, to ignore its significance when it comes to ourselves claiming it will never happen to me or standing by the adage of when it’s your time, it’s your time.

She (Jacy) always knew she would die young. She always knew.I hate that, because I don’t know what the hell to eat in the morning and cannot fathom knowing, I mean hand on the bible knowing that I was going to die young. It is unconscionable to me, so how does that affect your life, your meaning of life, your belief system?

Every day I do what I have always done for my whole life, I am not happy about it, some days go better than others, but during my childhood I was never good enough, at anything and was reminded of that fact regularly; yet I still do the same thing I taught myself early on, over and over again.

I get up, I put my feet on the floor, and I always take one step forward.

The pain will always be there, the loss is very real, I absolutely hate walking into my house, her house, the house we built together, for there is no warm echo of her voice, only cold walls and pictures to remind me of what was, and what never will be again.

But I move forward.

I believe you need to keep moving to lessen the impact. To understand what that person meant to you, not by staying home curled up in a ball but by trying your hardest to laugh, have a good time and remind yourself that you don’t know you’re going to die. That you don’t have even the slightest inkling what your last day on this planet may be. So keep moving, keep your head up and keep striving for that next big finish line, covering ground, climbing not sinking further into a hole of despair.

Again the pain is still there, oh it’s still there, and it hurts badly, so very bad, yet in the morning I put both feet on the floor, and took another step forward.

I said goodbye to Jacy’s car the other day. It took me two hours to clean it out. We purchased it new in 2007 to support the adoption of our daughter. We traveled all over in that car, as a family, singing 80’s rock, watching movies, laughing, so much laughing. It was a part of our family as silly as that may sound. But at 220,000 miles, a computer that was bleeding off power, one power door that no longer worked and another that only opened manually, a front transaxle that needed replacement and an owner who was no longer alive, unable to ever drive it again, I felt that maybe it had to go.

Cleaning it out, I discovered Jacy had surrounded herself with the most precious of commodities; pictures. She had pictures from all years ofevery one of her children hidden in easily accessible places.  They were everywhere and it made me cry. She loved them all, so very much to the very end. To the very bitter end….

But I cleaned it out, with tears in my eyes, a wet sleeve from drying my eyes and patience for what she left behind. When I left the car at the dealership I took one last picture. I don’t know why, it was just a car, it was Jacy’s car.

I put both feet on the floor, and took another step forward.

I felt guilty driving my new/used car. It is nice, it has 60,000 miles on it, I will be paying for it for five years, and it will start anew chapter in our lives for child transportation. But I can’t help but think how much she would have enjoyed the ride. How her ribs wouldn’t have hurt so badly going from the house to Stanford, or her dads. How I should have thrown caution into the wind and just hoped we could have paid for it so she wouldn’t have suffered so badly. I cried most of the way home carrying so much guilt asI didn’t feel I deserved such a nice ride. I gazed at the empty seat wishing she was there, singing badly at 80’s songs, butchering the words and laughing between tears of pain.

The next morning I put both feet on the floor and took another step forward.

We celebrated Christmas. We did this by going to mass on Christmas Eve. It was the first time I had been to our church since she died. It was one of her favorite places. We gathered and prayed, we sang and prayed and I prayed she was there with me. I kept my eyes closed so tightly and tried sovery hard to feel her presence, to hear her voice when we sang, I wanted so badly to know she was with us, to feel her hand slide gently into mine. But it didn’thappen. I couldn’t feel her. I tried so very hard, so very hard it hurt. I kept it together, we took a family picture by the tree. We as a family went todinner after then home. I didn’t go to bed until 2am. I couldn’t sleep becauseI was so upset that I couldn’t feel her there with me! I was sad, angry and devastated.

The next morning I put both feet on the floor and took another step forward.

We gathered in the morning. Cody made a splendid breakfast and gifts were exchanged. Very quickly we noticed mom’s absence. All the goofy gifts she would order online for each of us. Well thought out with some form of funny undertone. There was a giant hole in the morning festivities, and after allwas said and done I found myself alone for the afternoon cooking dinner for just us. It was lonely and sad and well, strange. I closed my eyes and prayed for her to talk to me, I waited, I tired and nothing happened. The house was cold inside and to me there was no warmth of Christmas. But I tried, the kids didn’t seem to notice and all of them had smiles on their faces. They all enjoyed agood Christmas dinner, there was hugs and laughter, but it just wasn’t the same.

The next morning I put both feet on the floor and took another step forward.

Jacy’s dad’s house was the place to be. It was warm, it was festivious and it was filled with love. Everyone was happy and had a good time.I see her everywhere there, and her step mom does too. It is not easy. I walked out to the cabin where Jacy stayed when she needed to be close to Stanford.Just a short 24 months ago she would have been laying there, happy to see me, smile on her face and love in her heart. 24 months, 730 days, 17,520 hours ago,she was here in this spot. 4 months, 122 days, 2,928 hours ago she was asleepon the very couch I sat on today. 2 months, 67 days, 1,608 hours ago she told me she loved me for the last time.

It’s hard to be happy, when you carry so much guilt for things you could have done better. It’s hard to be happy when the center ofyour universe is gone. It’s hard to be happy when you sit on the end of the bedat night hitting yourself in the head because you don’t know who YOU are or howto find out. It’s hard to be happy when the only person on this earth who loved you unconditionally, who you could tell everything to is no longer there to hear you, to hug you, to give you the love you so desperately need. It is sovery hard to find inspiration.

But you know what?

Tomorrow, I will get up in the morning, put my feet on the floor and take another step forward.

Not for Jacy or because it is what she would want me to do.But because this is who I am. It is who I have always been. I don’t have tolike it, I only need to learn from it, to show the way for my children, and tohopefully help just one person who doesn’t think anyone knows, or understands this pain.

My only goal in life is to aspire to inspire. It is all Ihave left, it can’t be changed by time, it cannot die and leave me, and longafter I am gone if I have affected the lives of just one person then it was all worth it.

I love you Jacy Franceschi. I miss you terribly….

Two months

Coming down the stairs every morning I have come to realize that about the time I hit the coffee pot I am no longer looking into jacy’s room, no longer searching for her or wondering why I haven’t heard her voice speaking my name.

That’s right, apparently I have gotten used to Jacy not being here, waiting patiently for me to have coffee with her while listening to the plethora of ideas she’d come up with during the night. I miss that, I really do miss hearing all her crazy ideas as I try my best to focus and sip that oh so important first cup of jo. The emptiness is very real.

Then I began to feel bad. Really bad..

Had 17 years of togetherness just disappeared in two months? I mean it will have been two months tomorrow since she passed away. Two long, lonely and I mean so fucking lonely months without my best friend. I am listening to recordings she made just so I can hear her voice. Sometimes it is what I need, other times it is an emotional train wreck and then there are times I talk back to it, hoping she can respond, even though I know she can’t.

I know the answer so don’t bother telling me and nothing has changed so whatever. If anything, absence has made the heart grow even fonder if that is even fathomable. But man, what a thing to live with an absence that can never be filled. Working on my book has left me reliving every single moment from the last five years and with that comes tons of tears. I promised her I would take care of her, I promised her I would look out for her, she trusted me so much and I was the voice she wanted to hear when things went south. Reliving the times she cried and wanted to quit, the times she cried and told me she was fighting for me, for us, for our family, the times she would call me sobbing that it was more than she could take and then it two seconds she would swallow it down and put on a positive face for whoever was walking through the hospital room door. Some days it is more than a man can take.

After reading the last five years over and over and over again, even though it hurts like hell, and nonetheless it would be easy to blame myself for not doing a good enough job. I do know I James Franceschi, her husband kept my word. I know that with every fiber of my being! I loved that woman with my whole heart, I stood by her side and I did the very best I could have done under the circumstances. I am so glad I chronicled the entire journey as without it being time stamped and dated, without precise recollections written down in the moment, it would be so easy for me to continue beating up on myself for the last 5 or 6 months when things became the hardest, and I have, but now I am not. Well I am not as much as I was previously.

When I do its over simple things that anyone or at least I think anyone in the same situation would second guess themselves for, like; I should have carried her upstairs that last month when she told me it was her sole dream to sleep in our bed again. I was terrified to for many reasons and I won’t get into them here but suffice it to say the stairs alone at my house would have killed us both. I still wish I had said I love you a hundred more times, and even if I had I would wish for a hundred more, it was the least I could have done for this amazing woman I was lucky enough to call my wife.  I still wish I wasn’t so tired all the time, that I had super human strength so I could have been more patient during the last 30 days. But even with all of that, the one thing I know beyond a shadow of a doubt is that I did the very best I could. I loved her with all of my heart and I never gave up on her. EVER! This woman was my angel, she was my everything, my best friend and it is so very quiet here without her in this house, on this ranch.

They say it’s till death do us part. Huh? What am I supposed to do with that? Should I just chuck my ring as if nothing ever happened?  My love for her is strong and my wedding ring is still planted firmly on my hand. I am not sure that’s right, I’m not sure what I am supposed to do or how I am supposed to do it. You think I would after playing this horrible game once before, but I don’t!! I guess I’ll figure it out as I go, but I sure wish she was here to help me along with good advice, hugs and a smile.

I wonder if this world we live in is really the hell we all know or have been taught to know. As if there is no fiery hole where the damned retire. No sir! It is here, out in the open and we are living in it! Because this is our reality we all need to earn our way into heaven through actions and deeds, but we must suffer first the way Jesus suffered for our sins. How else do explain all the good people who die and the world is filled with what remains? Anyone?

The thing is, I know I have been blessed. I feel her with me, by my side, and at the weirdest of times. I feel her heart pumping inside mine and can smell her perfume coming from nowhere. I am pretty sure she was needed elsewhere, and I know in true Jacy fashion she is running the show, making everyone laugh and showing you just how special you really are or need to believe that you can become. That was her gift to us all. It definitely was the greatest gift she ever gave me besides our family.

I just selfishly wish she was still with me, radiating her warmth in our room, the one I no longer look into out of habit, because it is cold and so very quiet. So very quiet indeed……

I have become afraid.

I over think things, I really do. I try my hardest not too, but I am the guy who lays in bed all night long thinking, and thinking, and thinking, until I pass out! Of course then I wake up in the morning and start thinking about whatever the hell it is I was thinking about before I went to bed and thus the process starts all over again! Phew, I had to think about that for a minute..

So here is my problem.

When I think about Jacy, most of the time I no longer see her in my mind sick, in pain and getting weaker by the day. My brain for some reason has me grieving our life prior to Leukemia. You know, she is a mom, I am a doting husband, we date twice a week, have rodeo, Criners arena, Sugarland and lots of bbq’s with friends. Also on the flip side my brain is inundating me with Stanford visits and Kaiser Hospital runs/rituals acquired over the last 5 years. So that seems pretty confusing doesn’t it?

Let me rephrase or clarify the upper statement.

It has come to my attention that if I am in a crowd, or shopping, or any place there are people, I begin remembering moments from another time and Jacy being with me, or have memories of us doing things together in conjunction with “whatever” activity I am participating. She is healthy, and so damn beautiful and it crushes whatever spirit I had towards the activity I am trying my hardest to participate in! I begin looking for her desperately in the eyes of every woman that passes by me, every woman with her back to me, I search and search and I can’t find her in the crowd so my heart rate goes up, then I can’t breathe, I am afraid and just when things seem like they couldn’t get any worse they do! I find myself running for cover trying to hide so no one can see I am falling apart on the inside! Then it just happens, and I can’t stop it! I cry.

Crying is absolutely ok. I am rational enough to know that, but I don’t want the attention. I simply want to do so without anyone checking on me and when you are in a large crowd with nowhere to hide that simply is not possible. So I try swallowing it down, hard, which just makes it worse. Because as the tide comes and goes, if the waves are held back to long eventually one massive wave will break onto the shore.

Yeah picture that! So fun.

My face hurts, my chest hurts, I swear my heart is going to explode, I start sweating, I can’t breathe and then it happens, over and over again, her face flashes, events flash, her smile, her kiss, her hand in mine, I can’t fucking take it!!! I can’t see her and my head starts spinning!! Then just like that, it’s gone. She is gone and it’s like someone lifted it all off my shoulders, until something else sets it off and it starts all over again.

I went to Nevada City today to celebrate Christmas with my son since I really haven’t been feeling it at all. I was excited, he was excited; we walked past the entry sign and into the crowd. The deeper we went I felt the tightening in my chest. I began searching. For her…

Parker shopped away as one woman after another passed me and although no one even remotely looked like my wife there was something, some kind of resemblance; a dress, the shoes, the way she walked, a smile. Stupid really, but it only furthered my need to find Jacy! I become irrational, saying things to myself like; She would have loved this place, the smells, the people, oh my, she would have been talking to every stranger she could in every shop or booth! I knew she just simply had to be there! She couldn’t be dead there is no way my wife, the strongest fucking person I have ever known could be FUCKING DEAD!!! WHAT THE FUCK!!!!

Turning the corner looking for a place to run and there in the window of a shop is a pair of shoes. Not just any pair of shoes, but clogs, her favorite and they were decorated and colored and she would have loved them and I would have bought them for her for Christmas because we loved Christmas, and church and Christmas eve pajamas and snow balling our friends and FUCK, FUCK, FUCKITY, FUCK!!!!

But see it doesn’t get better either.

The second part is when I am driving. That’s when I run through five years of hospital rituals, three years of Stanford Hospital rituals. Sneaking her hamburgers when she wasn’t supposed to eat them. Playing words with friends for hours, watching Survivor, quite literally ever single season-twice. Spending all those moments together with machines beeping and nurses coming and going and holding her hand through it all. Listening intently and calming her down as she tells me to please murder the next nurse that puts her on bed alarm! Telling her I loved her a hundred million times, not because I had too, or was afraid she wouldn’t know but because I wanted too. The way when you are first in love and you say those words it feels magical. Yeah like that, every time. Even when things weren’t going well. That’s the way it felt for me. I haven’t heard those words back for 50 days now. It is killing me inside.

I had to go to Kaiser the other day for me. It took me 15 minutes to get out of the truck and go inside. I even parked in the wrong place because I was on auto pilot. Once inside I wanted to run away. I never want to be inside that building again. Either of them. It’s irrational and I know I am going to need to get over it but I can’t right now. Every corner I see her, in a wheel chair, waiting for me to push her into an elevator. Or sitting around the corner waiting for a blood draw. I see the same faces of the same ladies working at reception who helped her and I pray no one makes eye contact with me. I know they won’t know who I am, but if they look at me I will feel like I am supposed to walk up and say; hi good morning, yes Jacy Franceschi at 10:30-04039018. Thanks yes I know where the paperwork goes.

If I drive towards the city it’s all I can do not to head towards Stanford. Again partly on auto pilot and partly because I still feel like she is there and this is all one big misunderstanding! There is no way she is gone, there is no way she is dead; there is no way she is in this wood box sitting behind me! The summation of her physical being bound into a bag with a copper tag and number that have the earrings she was wearing taped to it! There is just no way!!! They said it was a 10/10 match!!! She had the very best odds. They said that, I heard it!! They said she was going to live and there was only the slightest of chances things could go wrong! I heard that too!!!! They fucking said it!!!

I want someone to wake me from this horrible dream. PLEASE!!!!

Listen, I know they said a ton of other things as well, but it is just where I am right now. I don’t blame them, everyone was amazing to us and our family.

I just want my wife back! Can I go to heaven just for the day? (yeah like the song) Just so I can make sure she is ok? It was my job for so long it just feels so unfinished, and yet that is exactly what it has become. Just a day so I can come back and take care of the kids knowing she is all right. That’s all I ask..

Oh well, I guess I will just have to assume.

Listen, I know it will get easier over time. I don’t know how long that is going to be and really I don’t care. I loved her for 17 years, she was my very best friend and I will love her still, no matter where life takes me. I will never quit loving her, or the memory of her, I just wish for a while, I could turn my brain off and quit being afraid.