Rambling, for the love of God, I am rambling!!

Yesterday, from the passenger side of my truck while Cody drove, I slowly raised my feet and stuck them out the window to rest against the mirror support. Seat back, shorts on, flips on the floorboard my feet hanging out the window feeling a warm breeze running between my toes while I watched the world travel by at 65 mph.

I felt 16

(From here I start rambling, please forgive me)

My mind wandered to a time when I had no cares. My biggest worry was whether or not I could earn enough money during the week to keep gas in my truck or purchase lunch or help pay for beer. I worried constantly about how much trouble I would be in for poor grades or not coming home on time. I worried about a kid who felt like he wouldn’t live to see 25. Life was good, life was free.

I never understood just how free my life was.. Everything when you are young is important, blown out of proportion, lost in the minute. You behavior is strewn with emotions, feelings that you really have no control over! You are loud and obnoxious, hyper and animated, life is just beginning to open up for you to explore with not only yourself but your closest friends as well. You just want to make a difference, be taken seriously and to be heard! You really don’t know what you want to become or who you are but you cannot wait to find out. You look forward to the future.

I am turning 50 in roughly 10 weeks the future is here and I still don’t know. I still feel deep inside as though there is more!

My life has become heavy, tiring and I can’t think straight. There is so much to do around here and I just don’t want too. That is not me. I don’t know who I am, or what I want to be when I grow up and I wonder how to convey that urgency to my children. Luckily they all say they know what they want to become, hopefully they are right. I am depressed. It is hard to admit but I think I am. Writing this right now, my heart hurts and I want to cry. I want to hide. I want to go camping and not come back. I want to run into the woods like a spoiled child avoiding their parents when reprimanded! I want to disappear. Disappear onto the Pacific Crest Trail hoping to find myself once again. To feel the confidence I once held at 25.

But I cannot, life gets in the way doesn’t it?

For a long time now I have been pushing my feelings down, shoving them deeper into some void, doing my best to keep one foot in front of the other, smiling, hoping, and trying for everyone. My wife is my world, she has been my friend, confidant, lover, and advocate; of course no marriage would be complete without her also having been a staunch, frustrating at times adversary. But in the end she has always been there for me in one way or another and these last 14 years.  I too have been there for her (even more so these last 24 months) and continue to do so taking care of her anywhere, anytime.

I am a convoluted mesh of emotions. A walking mess. I cannot sleep yet when I do I cannot wake up. My stomach hurts all the time and it only stops when I eat, so I eat, a lot. My inner self hurts which makes my outer self-hurt as well. Exercise was once an escape, now it pains me to walk to the corner and back. I haven’t worked a horse in almost a month, it has been easier to have others do it for me.  There is so much to do, so I choose to do nothing at all. I am a whiney complaining, ball of self-doubt. I cant seem to escape.

But as I write this, I know what I am going through it not ok, but ok at the same time.

To everyone who will undoubtedly dissect my inner emotions, claiming I need therapy or some form of self-help assistance. I know these feelings are ok. Not healthy, but ok none the less. It is ok to feel the way I do, yet knowing doesn’t help me right now. I was raised to not complain, to cry only when it really hurts, to rub dirt on it and walk it off. So even sharing this with all of you is painful and embarrassing to me. It admits defeat and leaves me fearing being judged. I know I have lost nothing, I know there was no competition for me to lose at, but the man I have grown to become, laid upon the fondation of my upbringing feels confused and utterly defeated.

If there was some way to clear my head, to take away the confused, angry, afraid, emotional, distressed feeling I wake up with every day? I would do it in a heartbeat. But unlike a computer I cannot hit delete or save as and place it neatly in a folder labeled “crybaby” for future reference.

I wonder how many people struggle on a daily basis with trying to overcome these types of feeling inside their heads. A feeling of hopelessness, like you can never get ahead, achieve solitude or even make it through the day successfully without just quitting? I wonder how many turn away from friends and family finding alternative methods hoping to quiet the voices of despair. I wonder how many pray at the beginning of each day to feel as though they can take on the world again.

I selfishly wish to fall asleep and wake up to my wife pre-leukemia. Not for me, but for her. It is tearing me apart inside watching her hurt. She hates looking at herself in the mirror, she wants so desperately to be her old self again. She cries at the thought of only having enough strength to get up and down the stairs once or twice during the day. She is terrified at each and every visit to Stanford that they will tell her it’s time to be readmitted into E1 for long term treatment. She is sick of feeling like a prisoner in her own home. She is exhausted from everyone telling her what to do or how she should live. She is horrified at what this has all done emotionally to our family, friends and most of all her children. She just wants so desperately to get better, to be better, to excel the only way Jacy knows how! She is and always has been a winner! She isn’t feeling that way right now. It is tearing her down.

She misses her students.

I cannot begin to explain to what depths this woman misses her students! It is as though a piece of her has been amputated. She can feel the appendage as if it was still there, but she can no longer see or touch what was once hers. It has handicapped her spirits, her self-worth, and her ability to thrive inside. Every moment she is alive, she believes is one more step towards having a classroom to herself once again. Every moment her body takes a step backwards she feels it slipping from her grasp. I will never forget the moment she was offered a job at this school. We were in Vegas, the phone rang, and she answered, five minutes later she was bouncing off the walls! I can honestly say it was one of the happiest moments I can recall. These children, your children, the children of people she doesn’t even know, they all breathe life into her! You see them as your children, she sees them as our future. Each and every little personality there to grow, expand and blossom simply by being themselves.

This has and continues to be a long arduous journey. I guess all this rambling comes down to a few points. Thank God for everyday. Even though it doesn’t sound like it, I am thankful for each and every day. I get to spend them surrounded by my wife and children. I can never take a day with her or them for granted. You never know what you can handle until it is time to step up! Every day is a challenge for me right now, but I am making it. Some days are incredibly harder than others, but I am still here.  Jacy is handling it, some days are incredibly harder than others, but SHE is still here! At the end of the day sometimes that is all that matters. Know you are not alone! I have my writing, but I also have prayer, and a huge support network. I still feel alone at times, but I know I am not! When your day is shit! Just remember things could be worse. Look around on the inter-web, there are plenty of people who have it much worse off than you or I. Last but not least, thank God for faith, otherwise think of how hard this thing called life would really would be.

To the (three) people who actually read my blog. Thank you. Thank you for allowing me to ramble incoherently as I did today, to share my thoughts and feelings without judgement, to simply be. Today’s posting held no real significance other than to purge my endless inner long winded musings along with some of what is painfully shoved down deep inside hoping to offload enough that I may gather my inner Betty once again.

Betty loves you all….

The Grey Area

Over the last several years a strange phenomenon has occurred within my personality. It’s as though forces are conspiring against me to change who I am and how I think. On one side, my inner Betty feels as though I haven’t aged at all! Looking through these eyes, it’s really hard to believe that 50 is right around the corner because my brain still perceives our world with the wonderment of a 20 year old. On the other side wisdom garnered from age has taken hold, expanding my view points, quelling my youthful rage thus allowing me to become softer and gentler when it comes to this world’s constant bombardment upon my soul.

But something HAS changed. I really don’t believe it is a change solely within me. I believe whatever “it” is has been going on for a long time with little notice from the public. Similar to a small leaky pipe, nothing anyone notices at first then after time a small spot of condensation makes you think; hmmm, should probably take a closer look at that? More time passes and occasionally you stroll by the leaky pipe, noticing there is now a puddle. You think damn I really need to do something about this, yet you keep on without attempting a repair. One morning you wake up and the entire downstairs is flooded in three to four inches of water! What the Hell is your first thought! How did this happen! How do we fix this! The damage irreparable!!!! Its then you realize it was within you to make a small repair long ago when you had a chance. But you didn’t because it was time consuming, required effort, and you really couldn’t be bothered. You knew the right thing to do, you chose not to do it, hoping no one would notice and now it is costing you.

That change in us all for which I am speaking is known as living in “The Grey Area”.

When I was younger I did not notice this phenomenon as much probably because I pushed the envelope every chance I could without recognition of any wrong doing. Although lately it seems to me we as a society have let “the grey area” become more of a reality or fact than left as just that; a grey area of interpretation. Something for fodder, or a disillusioned discussion between participants without a clue. Now that I am older I have acknowledged we all know how to recognize a problem, to fix a situation as it arises or interpret right from wrong. We all know or should know the law and how it reads or is understood pertaining to almost any behavioral moment or simple civil situation. We all were taught or should have been taught the basics in regards to following rules/laws put in place for our own safety and or protection. Yet for some strange reason they no longer seem to matter anymore. For some strange reason it feels as though we are all working against ourselves, living within this grey area of life.

I will use the most simple of examples being a Californian.

The California stop

That’s right a grey area rule breaking motion that went from an occasionally seen abnormality usually kept to the slip of a brake pedal when approaching a stop sign to a repetitively normal operation perpetrated by almost every motorist on the road today! Don’t believe me? While filling your car with fuel, do so at a gas station corning a four way, two way or single stop sign intersection. Watch, just watch! I hedge to bet one in every ten cars actually stops, waits then goes. Even when other traffic is present each car will try their hardest to keep moving forward leading to a “me first” mentality! This is also extremely prevalent while driving our fire engine code three! I cannot tell you how many people pull out in front of my fire engine while we are enroute to someone’s emergency! The reason? They California stop the intersection! No look, no care about anyone else, just tap the brake and go! Once in my lane of travel with me rapidly slowing down, only then does said motorist wonder what that annoying sound is behind them, only to look, panic then pull off the roadway finally allowing our engine to pass!

Here is another example, unfortunately it has to do with driving again.

A newly minted driver can only carry family members as passengers for the first six months before being given the nod to terrify their friends with newly tempered driving skills.

Yet I cannot tell you how many kids I see rolling through our local high school parking lot whom I know personally have not crested the six month mark and are driving around with their friends! It’s now become a grey area! A standard for acceptance! The excuses usually sound like this; It is ok, only this once dad, really it will save you guys from having to pick us up later! Aren’t you glad my friends have their license, look at all the trips we’re saving you guys and all the other parents too!

How about underage drinking?

We drank as kids and survived right? So therefore it must be ok to further that wrong by allowing it for our kids! Plus it totally makes you the cool parent who really just has our children’s best interest in mind? Right? But in your “Grey Area” mind this theory only works as long as every child leaves their keys upon arrival to your casa party central! Wait I know how this plays out inside that Grey Area void! It is so a counter balance thing, you are countering the whole underage drinking issue that you created by keeping them from driving home drunk? Grey area wins again! Good for you sport; good for you!

It is the same with so many other issues as well, from politics to law enforcement, from raising your kids, to how we treat our educators, we continually are pushing those boundaries using these grey area themes as a crutch! We have behaved this way for so long many things have naturally become the norm! Unfortunately it’s allowing our society to morph into an incredibly self-centered and rude place that’s fracturing into separate cells! Our cascading inability to care for others or place others first because we have accepted our ability to do whatever we want as long as we don’t get caught is more prevalent than ever before! Yet when we do get caught we cite example after example of others prospering from the very same infractions as if their examples of getting away with things makes everything ok! No recognition of wrong doing because you were working within a grey area of interpretation.

All of this weighs heavy as I see it time and again, not just as a parent but in my job as well. If we are going to remain a civilized society centered of progression and not regression it is our responsibility to stand up and say enough is enough! No more television shows tearing us down with attacks upon women, children, race or gender. No more allowing our politicians to live under the standard of; do as I say not as I do! No more allowing people into public office who don’t uphold our countries constitution and that is from the local city mayor upward! We have laws for a reason, we have standards and ethics that must be followed, it our job as parents to instill these attributes upon our children and if we continue to give in at every sign of a bump in the road or transgression interned upon us then yes we will turn upon each other as simple little grey area’s here and there converge upon each other building into one dark giant nasty storm!

Then much like a tornado siren sounding after an F5 has hit the ground it will be too little, too late. All we will have left is a giant mess and many pieces to pick up.

 

Can you hear me now?

In my twenties I never thought much about life and what it held for me. Every day the sun rose I tried my hardest to earn the respect of those around me. At that age you just want to be heard. Your ideas, thoughts, designs, you just want to be equal with those around you. To show the world that you are not just another dumb kid. Of course not helping matters much my looks were far younger than my age, therefor anything that came from my mouth was treated with kid gloves, quite literally.

Some life changes came and into my thirties a family was started, a career blossoming and again I yearned to be heard. The problem? I was the older guy as most in my profession started young and had already promoted to mid-level or even officer ranks. During that time I learned about fatherhood, gained some maturity and just when things started looking my way I also learned a lot about death. It was a challenging time and still no one was listening.

Welcoming my forties, our family grew, my inner child faded away as motorcycles, boats and fishing tournaments slid to the wayside for coaching baseball, and raising/riding horses. Trips to Haiti for humanitarian reason filled our summers, helping us grow as human beings and rodeo soon dominated our lives. For once in a really long time things felt as though they would look up, our family, especially myself could or would find contentment in life. Then came Leukemia, cancer, and a Bone Marrow Transplant. A very sick wife was struggling hard, fighting for survival and once again I found myself yearning to be heard.

This time it was different.

You see before, I longed to be taken seriously for whatever I may have learned along the way. Wishing those who I surrounded myself with would just listen, understand that maybe just once I actually did know something and could be thought of as equal or even a peer to someone new.

Over time I stopped yearning to be heard but instead chose to listen. Listening is one of the most important traits we can learn as a human being. Listening allows you the opportunity to feel empathy, compassion and love. Three of the best human characteristics we could possibly have or share with others. So I listened, and listened some more and I learned to love by not saying a thing. To empathize with those around me and show great compassion to those less fortunate than I. Listening gave me an opportunity to engage my brain instead of my mouth. Insecurity feeds a rapid fire mouth while silence often times shows great strength.

Now as I am but a few months away from my fifties I am yearning to be heard again.

My wife is struggling with all that has happened to her. She has been a pillar of strength for so many including myself. There is not a day or moment within the day I do not think about her. Alone, in her chair, or upstairs in bed, wondering, asking God why this happened to her. She has survived so much and yet she feels as though she has lost just as much as she gained. A woman who thrived in our barn, was an angel to so many children within a classroom setting and my best friend is still patiently waiting for things to get better. We are one year since chemo and one month away from her transplant. We are three weeks away from when she left the house for what was supposed to be at its worst no more than four months. It was eight months instead of struggling to survive. She is trying her hardest, but most days leave her incredibly exhausted and unable to move. She may have two good days and four really rough days. Her body is fighting her at every turn. She looks up and smiles at me but we’ve been together for 15 years and I can always tell when there is something hiding behind that smile. Some things she just can’t say, but my heart knows what they are because I have listened. 

So to my wife I hope you can hear me because this is what I have to say.

I love you.

I have loved you since they very moment we kissed. It was a confusing time, a scary moment but an inner sense told me it was supposed to be.

There is something about your personality that is mesmerizing. Like staring into an oasis after a long hot journey across the sand. You are that safe comfortable place so needed after such long travels.

You haven’t changed; your caring shines from the inside of your soul. I have yet to meet anyone who doesn’t instantly feel comfortable around you.

You are the devil when you are angry. But if you weren’t my strong personality would roll right over you and that wouldn’t be good for anyone.

I could never imagine a day without you. Just like chocolate

We have four super fantastic pain in the ass children who love you! They are frustrating and amazing all at the same time. They also have no idea just how serious ALL of this has been and because of that they can be a bit selfish at times. But remember, they love you. They show it every day by not doing their chores, arguing with you about homework and treating you like its days of old where you would pick up after them.

I am scared to death but refuse to show it to you. You have enough to deal with emotionally other than dealing with my fears. This whole thing is so unnerving and yet watching you fight so hard, how could I ever tell you I am scared as well.

Quit worrying about what GvHD has done to your outside appearance. I know its difficult, and I understand you miss your old body but; I love you, the person who is you, it doesn’t matter to me what you think you look like because when I look into your eyes and the smile lines under those eyes relax for just a moment, you are there, whole, kind, caring, soft, understanding and as beautiful as always. I only see you..

I don’t know what the future holds for us, for you. I will not pretend I have the answers anymore. This whole thing sucks, it is painful, emotional and at times beyond comprehension. But I do know this; There is no one on this earth that I would rather be with. I am thankful every day that you chose me for a spouse. Yes it is hard taking care of everything without my partner in crime but I got it. I am doing the best that I can and the only reason I am doing so well is because of my love for you and my faith that God is watching and has a plan.

So please my dear wife ease your worried mind, have faith, look into my eyes and know I will always be by your side, helping you any way I can; Loving you and cherishing every moment we are together. Lean on me all you need, and rest when ever you want.

For every day is a glorious gift from God.

. .

 

The Journey

Thursday we made our bi-weekly or so, journey to Stanford. These required visits are needed so doctors may track Jacy’s constant state of GvHD.  Whether it be dealing with a pulmonary function test, her intestinal tract, eyeballs, skin or simply drawing blood to determine antibody needs we always arrive nervous, expecting the worst but hoping for the best as in serious signs of improvement. These appointments can range from down and dirty, leaving us with more time on the road than actually inside any facilities, to eternally trapped on campus with no place to retreat between sessions! Moving from one appointment to another with sometimes more than an hour or two in between visits. We laugh at each other for it has become the only alone time we ever receive and of course nothing is more romantic than swooning surrounded by similarly sick people or holding hands beneath the deep shadow cast from a set of IV pumps inside a sterile chamber. On this particular day Jacy was meeting with her primary Doctor which is always a treat. She loves seeing Dr. Muffly and always comes away feeling as though she just spent time with a friend. But first a 4 hour IV infusion of antibodies to boost her multi layered, still very confused immune system. After that a little round of pulmonary function testing and then it’s back on the road to hash it out with every Bay Area commuter trying their best to get home in under 3 hours. Of course the first hour is fun for me as I play a time honored game started with my son Parker that centers on the Toyota Prius. Much like the road game slug bug only the Prius takes its place. We also play the car spotting game, Tesla, Ferrari, Audi, and Porsche. It is fun driving through a community where the majority of vehicles on the road are green or simply cost more than my house. Ahhhh to have that kind of disposable cash….. We pulled into Stanford’s Cancer center turn around at 10:30 am after a leisurely 3 hour traffic jammed ride when my wife suggested I find something to do other than sit by her side for 4 hours during her infusion. Now normally I would have balked at this absurd suggestion as I have always believed a husbands place is by his wife’s side, no matter what! But today she was right, I needed some Betty time. Time to reflect and be alone. Time for just me with no one needing me for anything. Trapped in the center of Silicon Valley with no excuses to hide behind, that is just what I chose to do and with a kiss, a hearty good luck and I’ll see you in a while, this guy headed out alone.

Where to go, where to go????

I thought about going to the Tesla store but I knew then I would want one and since that type of purchase is nowhere in our future I turned the old faithful 200,000 mile wagon left instead of right. Of course this also eliminated the Ferrari store, the Audi store and who couldn’t pretend car shop without sitting inside a Porsche 911 4S! To dream ah to dream.. First retreat I chose to patron was a little restaurant I have passed a hundred times. A quaint little place nestled in the hills above Palo Alto. A place I have yearned for my world to stop just long enough so I may cross its gastric threshold, yet there never seems to be enough time. Today would be different. When I pulled into the parking lot the first thing to hit me was a smell of ancient redwoods filling my nostrils. Walking up to this small, shake covered hut, heavenly aromas wafted across the open plane. Stepping onto a huge well seated porch I quickly took my place silently amongst some of my favorite people in the whole world. Bikers

That’s right Bikers, masters of the motorized two wheel sleds. Throttle squeezing, leather wearing, Carbon fiber covered, alloy loving, helmet adorning, race pipe thundering, high rev, revving BIKERS! Eating my breakfast a Cheshire cat smile glistened as I listened to each story about the mornings ride, or a previous ride or a tale about someone else’s unbelievably adventurous ride. Tech talk at table two involving power commanders and horsepower. New heads for table fives Harley and a freshly painted fairing to boot! I could almost feel a bike running underneath me! It was good to be back amongst these folks. Gazing across the landscape I recalled many of my bikes from days past. A simple street cruiser, bench seat KZ500, my very first Harley! I could still sense the raw power and throaty noise coming from one of my customs while aching for the sheer arm stretching torque produced by my ZX12R which had quite a few modifications. Each motorcycle reserving a special place in my heart, leaving me smiling, content and hoping I’ll know that feeling again. Yeah, someday day, I’ll be back. After settling up with the waitress I drove down the road a ways to a state park where walking off breakfast sounded like a good idea. Parking the car, walking to the trail head I chose a direction and headed out across this large open field. Working my way along the hillside there arose a bench in the distance. Reaching that bench I couldn’t help but laugh as I read the plaque inlaid upon its top plank. It was quite simply labeled “Bobs Bench”. Taking a seat the view was amazing. I thought to myself somehow dad knows I’m here, sitting on a bench with his name and wondering how he is doing. In return I knew he was looking down upon me, letting me know he’s watching over Jacy. He loved her so, they bantered back and forth and in reality the old man lived for her calling him out for his shortcomings.

Strolling farther down the path it felt as though the weight of my world had left for a bit, a beautiful fern laden path, some ancient trees, and even a few Mountain Lion tracks made this the perfect hike. I lost track of time and before you know it I had traveled 4 miles. It was glorious! Now I will say this, when deciding upon an impromptu adventure, ensure you retain alternate apparel somewhere in your vehicle for just such an occasion, for as I discovered the hard way; Vans are not for hiking! Just saying!

Back at the car I made it three miles down the road when Jacy called to say she was almost finished. Perfect timing. Picking her up some lunch then circling back into the Stanford Cancer Centers turnaround she climbed inside already a bit exhausted. We headed over to the main hospital where we arrived very early for her last appointment, a pulmonary function test. Luckily we didn’t have to wait very long and before we knew it back on the road we were, heading for home.

I thanked my wife for the wonderful morning, and I told her all about the day’s events. She told me about her appointments but before long she was drifting off to sleep. We weren’t 30 minutes into traffic when Jacy’s head nodded its final nod, resting gently towards the door, looking completely tuckered out.

These trips are hard on her and so is the process of recovery. She tires of being exhausted all the time and doesn’t understand why she just isn’t healing or regaining any of her former strength and vitality. Jacy is very thankful to have survived, to have fought as incredibly hard as she did, but the longing to just be normal, to ride horses, to help her kids, to be a teacher again surrounded by children who aren’t hers, but in reality are very much her children has become overwhelming for her at times. It is hard as her husband to see her in pain, to see her struggle, to see her longing for the past. As a man I am a fixer by nature and I can’t fix this, I can’t make it better, I can’t take it from her and make it my own.

The best I can do is support her, listen when she needs an ear, stay quiet when she screams at the ceiling, give advice when she asks for it and when my wife says to go do something on my own. In this case a journey within the monthly journey.  Do it, enjoy it, and thank her for it afterwards for without her coaxing me to do so, I wouldn’t. I would stay right by her side, making sure she is ok and telling her just how special she is to me.

I cant wait until the both of us can sit on Bobs Bench.

bobs bench

 

M is for Mom….

Mother’s day was founded in 1908. Its reverence came to fruition after Anna Jarvis held a memorial celebration in honor of her mother Ann Reeves Jarvis at St. Andrews Methodist Church in Grafton West Virginia. Anna had begun campaigning for the holiday a year after her mother a well-known peace activist who cared for wounded soldiers on both sides of the American Civil War died. Ann also created Mother’s Day Work Clubs to address public health issues within the community. Anna wanted to honor her mother along with honoring every mother out there for as she stated they were “the person who has done more for you than anyone in the world”.

In 1908 The US Congress rejected a Mother’s Day proposal joking they would also need to honor a “Mother in Laws Day”! Yet through persistence and a need to recognize the extraordinary efforts by Anna’s mother Ann, by 1911 all US States began to observe Mother’s Day as an official holiday.

No matter its origins, Mother’s Day is upon us once again. A holiday that in my opinion has become less about its true intentions and more about commercialization, much like Father’s Day and Valentine’s Day.

Mother’s day for me is not about just saying Happy Mother’s day to my mom. Although due to my extremely hectic life that is about all my poor mom gets as of late. A woman who deserves only the utmost of respect for all the dread I put her through. It is about taking a moment to recognize not only all mom has done for you, but all she has not done for you as well. It is the things mom hasn’t done for you that have built and developed your character into what it is today. Yes she does so much to ease your life’s miniscule burdens simply by being your mother. But it is the hard choices you make on your own, the times she isn’t there as a crutch to lean on, but is a phone call away to listen, leaving you to your own devices without interfering that make all the difference in the world. It is about allowing you to become you with nothing more than a look or facial expression that needs no words. There isn’t a mom alive that cannot change a young man’s course with nothing more than an MMMMMHHHMMMM or what were you thinking tone in her voice, all while allowing you to believe you made the correction in course all on your own. Our moms are the planet for which we orbit. Without them we would be lost.

Mother’s day for me is also about everyone else’s mom as well.

You see I wouldn’t be the man I am today without a hoard of surrogate mothers grabbing me by the ear, sitting me down to chew my ass, or giving me a hug when I needed it most. The moms who fed us after school without so much as a complaint, helped us with our homework because we were together as friends! A group of scraggly hoodlums helping each other out and that made these moms smile. It was the mom’s that approved of me dating their daughters and believe it or not it was also the mom’s that did not approve of me dating their daughters that made a huge difference in my life.

Swim team moms, wrestling moms, 4-H moms (those were the toughest), FFA moms, and any mom who thought if even for a moment I was worth it are permanently lodged in my heart. From laughing at my jokes, treating me as one of their own, fixing up my scrapes, not telling my parents the whole truth when I was complete jackass or telling me to get the hell out complete with a motherly ass chewing! These women, mothers of my friends who knew it was up to them to not only ensure their own kids turned out ok, but their children’s friends did as well. They showed us love and compassion, making sure we knew they would always be there for us if and when we needed.

Each one of these women made a huge impact on my life whether they knew it or not. They are the sole reason I try my hardest to make a positive impact on every single young person I meet, or that crosses through our threshold at the ranch!

To not only my mom, but ALL moms who have taken the time to love and care for more than just their own children.

Happy Mother’s Day

Without all of you there really would be none of us….

Michael J Fox ruined my life…

for love or money

Being a child of the eighties was something that well, only us children of the eighties fully understand. It was a time of freedom, rebellion, exploration, awesome music from all genre’s, cocaine and money. Lots of money. Ok lots of cocaine too but that’s neither here nor there! We as a nation oozed money, it poured from our skin like Don Johnson sexy sweat! Our country was thriving on a robust bond market, a sizzling hot Wall Street, real estate, and oil, black gold, Texas tea. Our parents (or so history would have you believe) were reaping the benefits of an administration that fostered free trade along with the opening of borders and capitalism. Dancing in the street led us all to be a bit Footloose.

A country had emerged from two decades of war, drought, protest, reform, political unrest and of course who could forget the gas crisis? Line after line of cars waiting, hoping there was still gas left when their turn arrived at the pump.

Our youth of the sixties fought racism, fought for woman’s equality and against war, people of the 60/70’s cared more about social reform than capitalism believing higher education created unequal social classes, while caring for one another through shared progress brought much higher rewards. Citizens struggled with the after effects of Vietnam and in doing so turned their backs on soldiers who were struggling mentally when they came back ashore. A recession in the 70’s showed us higher interest rates, and economic instability with most Americans struggling to earn enough money to survive. Our country was tired, emotionally spent having put forth so much effort in finding balance, only to be rewarded with a lying president (Nixon) who stepped down, cover-ups, just plain dirty politics and a new administration (Carter) that did nothing to create or foster stability.

I remember these times well. Worrying about how much money was left at the end of the week and where it should be utilized. Do we buy more gas that we can’t get or food for the table? My parents arguing about money and finances, over interest rates and fees, they were always working just to survive.

When things began to turn around in the eighties it became clear Americans were looking to become more self-involved as opposed to socially invested. Americans were looking for relief in any way shape or form. That relief appeared in the form of fantasy. But like many Americans Fantasy has a way of mimicking reality.

New television formatting arrived and with it shows like Dallas, and Dynasty were on top of the Nielsen ratings chart. Fading away was American staples like All in the Family, Chico and the man or the Jefferson’s; these shows broke new ground showcasing America’s struggle with diversity and acceptance. These shows handily worked at creating a better vison for America through entertainment. The eighties arrived and popular television shows turned self-centered, focusing on money, wealth, fast cars, lavish homes and expensive clothes. Changing the face of what America perceived as being American. Intertwined in this new gluttonous direction was a story line focused on the philandering practices of each cast member, showcasing a need for greed in both monetary and the flesh. We were a country desiring an escape. So many years of war, hate, death, struggle and need. The eighties came and took that from us each and every night corralled in either 30 or 60 minute segments.

As a child I too felt the pain. We never spent a lot on food, clothes or shoes. Food purchased was just enough to feed us in hopes dad had a good week on the road. (He was a salesman during this time) The change in the way I perceived how life should be lived came with a little family television show called Family Ties. It had everything I described above, as its two main characters were children of the 60’s now raising a family in an 80’s world. Struggling with a former social conscience while enveloping themselves in an emerging capitalistic society.

Their son Alex Keaton was an upstart young Republican, fighting against his parents democratic values, learning along the way that when you merge the two an amicable resolve can always be found. It peaked my interest as I identified with young Alex. A lad who didn’t have much but wanted more despite his parents trying to create a well-rounded giving child. It became my first taste of a capitalism fantasy.

That fantasy grew as most movies around this time also focused on the imaginary cash flow that Hollywood felt every American was living with during the Reagan era. Every high school film focused on kids coming from households either struggle or affluence. Either way you and your friends would end up driving BMW’s, Ferrari’s, Jeep Grand Cherokee’s and Porches. It was Weird Science but girls were at the ready and no one seemed to ever wonder where the money came from unless it was Risky Business. We all knew what pot held that cash! Of course if things didn’t work out the way you had planned there was always a Breakfast Club nearby to reignite friendships and ease your disturbed young mind. Or you could just have a Ferris Bueller’s Day Off. The world would stop, just for you because you were young, smarter than your parents and that combination always led to success.

But during this time as we emerged from high school wondering what awaited our young eager minds, we were not met with BMW’s or Ferrari’s, rich girls or money. I was met with three jobs, working hard just so I could find my Bright Lights Big City. It was hard and tiring, leaving me many times sleeping on the side of the road in my work truck, or in my own car at the back of my dad’s restaurant.

Why? Why did I work so hard? Because I had a dream. A dream to one day be successful, own a BMW, live in a giant mansion and become the Secret of my Success. Michael J Fox had shown me that it was as easy as being a part of a family that always did the right thing, having a dream, sneaking into a large company, assuming another’s identity while dating the boss’s wife or girlfriend then once inside the inner circle just woo many wealthy investors with you childlike wit and charm! Bam! Money and success are all yours!! On top of that if you have to choose For Love or Money you can’t lose! Education be damned! Our ambition will win out every time!!! It was the eighties remember!!! Michael showed me time and again through different directorial visions that is how it’s done!

Unfortunately my brain believed all this could be true and as I worked hard providing ideas while trying to prove that I was willing to go that extra mile, work 14-16 hours a day looking for just a snippet of financial excess. Something happened. The truth, I was nothing more than an employee. You see the movies and television told me hard work paid off, long days, endless hours helped you get noticed and ultimately afforded you a seat at the head table. But 90% of the time it does no such thing. Don’t get me wrong, you are valued, I never felt as though in some small way I wasn’t valued at the jobs for which I worked the hardest. But unlike what Michaels movies had taught me, there was no monetary reward at the end of a hard day. That to this day is held for the exceptional family member, investor or capitalist. Not the hard working outsider. Of course maybe I just didn’t work hard enough, or my ability to recognize opportunity wasn’t sharp. Either way I walked away with only the satisfaction of doing a good job. I only wish I hadn’t been brain washed to believe there was more. For that Michael J Fox you crushed me.

Today, I have an enlightened social conscience, a family that makes the Huxtables look lame and I am trying my hardest to instill a solid work ethic combined with education so when my four children hit the world after college they have an ability to choose between a capitalist lifestyle or a socially conscience one. Hey maybe I’ll have one of those children that can do both, you know that ultra-rare animal, the one that leaves you in awe whenever you gaze upon its presence; the philanthropist? One can only hope.

So as I creep up on my 50th year, struggling at times to make ends meet, still keeping just a slim hope that Michaels words, ideas and strategies might just pay off. I think; Fuck it!

In the end I could never stay mad at you Michael J Fox! I guess you really didn’t ruin my life and your movies allowed me to dream big. I try to share dreaming big with my children because of you and truth be told you are still one of the funniest actors I have ever seen. Hopefully my children can figure it all out. Succeed where I have failed. Heck someone has to take care of me when I get old, and they are not allowed to warehouse me in a convalescent home! I will not be put in an institutional Cocoon but prefer instead to be On Golden Pond.

On-Golden-Pond-2

 

 

Lets talk about????

Today while driving our children to their various locations of education, we crested a stretch of roadway that always leaves me feeling warm and fuzzy if I hit it at just the right time. You know sun placement across the tree tops, smell of damp dew in the air, that sort of thing. In the morning my brain is at its most active as this time in the car allows me to correlate the days activities into a hopefully well thought our prioritized list.

Driving through this little moment of Zen, I looked over at my teenage son and remember when my father used to tell me how a morning’s dawn was one of the most peaceful serene moments in a day. It bothered him that I usually slept right through it, missing the earth’s transformation from dark to light. I wondered if one day he would be in the same situation thinking the very same thing, wishing he had listened to me way back when?

And there it was. That moment when one thought creates a burst in the mental dam! Will he have heard anything during his adolescent tenure while fighting against his need to challenge the bull? All Teenage boys go through this period, some sooner, some later, but at some point their testosterone tells them it is time to challenge the bull. It is where they learn to take a beating (metaphorically), get up, learn, and try again. It is a period of time that molds them into the men they will become, learning to follow rules because it is the right thing to do. It is also when they fight an overwhelming need for acceptance from not only their parents but friends and love interests, or prospective love interests and this is where personally and socially things can begin to become, well, convoluted.

Let’s talk about sex.

Now both my sons and I have had “THE TALK”, and we have held this little sexual information conference on many occasions. I have felt it overly important as my parents and I never really covered the bases besides the obligatory: don’t have sex, it leads to kids and you will be in a lot of trouble.

We have discussed everything (if you are uncomfortable please leave now) from their own penises, to female body parts, how they function and what purpose each intricate portion serves. They were “grossed out” in the beginning for having such conversations with their father, but it has gotten easier over time.

The gist after all from my perspective is a little saying I have shared on numerous occasions with any teenager that will listen to this old man.

Boys are boys, girls are girls and you are all just friends until you get into college. It is impossible for you to commit to someone else until you discover just who the hell you are. Then and only then can you decide whether or not you are able to share yourself with someone else.

This is wisdom not handed down to me but learned the hard way as my entire youth and young adult life was spent chasing someone else’s dreams in hopes of finding out who I was. As a 49 year old man I still have not chased my dreams, I know who I am now, (and I kind of like myself) but have no ability to discover myself further due to many responsibilities that rest upon my shoulders. I have been blessed with wonderful friends, children and an equally excellent partner in life. But to have learned much more about myself at a younger age would have been worth its weight in gold.

What worries me as we continue into town on this serene morning is even though my focus was off when it came to myself, I did have a great youth, meeting new friends and dating some super awesome young women. But that’s just it, we dated. There were phone calls, in front of parents, and nervousness when it came to even talking to some of these girls. I was always terrified to ask a girl out. If there was a girl I liked it took me weeks sometimes to get the nerve up to do it! The funny thing is they always knew it was coming, boys just act stupid when they really like someone. It was the way it was. I heard lots of no’s. And even though it crushed me at times, there were some yes’s as well. It was fun, exhilarating and exhausting at times. We learned whether or not we actually liked each other or if we should just remain friends. In one case a girl I had liked for a really long time actually said yes, we went out on one date and everything that could go wrong did! When the night was over we tried to kiss and we realized instantaneously it felt like a brother and sister trying to smooch! YUCK!!! We had been friends for so long we had become family! It was an important lesson learned and taught me so much about myself and how my relationships affected people in ways I wasn’t even recognizing.

This is what’s eating at me! Our children today don’t need to do that anymore. Somewhere over the last thirty years we have gone from nervous dating to sexting! The theme is hooking up not going out! Our children are partaking in a very dangerous game of emotional instability centered on sex, photography, and one night hook ups all done through their phones! There is no more nervousness in making an impression! No more terror about what you should wear, how you should look, will she like me for who I am, will we have a good time and will she still like me when she gets home. Nope! Kids today are playing a very deadly game, combining image and self-worth, which can only lead to disaster! This really worries me! No, let me re-phrase, it scares the hell out of me! They are no longer asking for dates, but naked pictures! Texted or Snap-Chatted from their bathrooms, bedrooms and cars! That’s right mom and dad, while you are out working, doing laundry or watching Dancing with Stars downstairs your little angel has her or his pocket computer squirreled away popping high resolution photo’s for all to see. There is no worry about how it will affect someone or the damage caused if any of these pictures leak. And let me just say from what I am hearing the girls are as aggressive, as the boys!

None of them have a clue what they are doing or the implications associated and trust me, if you are reading this thinking; not my little angel or slugger! You are dead wrong. It has become a game for our children and they don’t understand the ramifications one bit.

Now we all know the mental end of it. Girl sends picture to boyfriend, boyfriend shares with all his friends because well, he is a teenage boy and that’s a half-naked girl! (Not an excuse, just the facts) Girl finds out about picture sharing and is devastated (rightfully so), feels as though she cannot look anyone in the face at school because she doesn’t know who has or hasn’t seen her naked. This scenario goes any direction you place it too. Boy/boy, girl/girl, boy/girl, girl/boy, it does not matter! It is damaging and cruel leaving psychological scars upon its victims that take years to repair. A few children have even committed suicide from suffering through their inner torment. These kids feel they doing something harmless but do not have the mental faculties to see the long term effects of their actions.

But let’s look at the legal aspect. Same scenario as above only now mom and dad are aware and have decided taking action is the appropriate response.

Police are notified, School is notified, an investigation ensues.

Our children are placed in handcuffs and hauled to jail for questioning. Why? It is the trafficking of child pornography. It doesn’t matter that said child wanted to send this naked picture, the child is underage. It does definitely matter the moment said child shared picture with friends, that is the very second they became a trafficker of child pornography. Remember all parties are underage.

The minimum sentence for trafficking is dependent upon your particular region but from what I could find doing a little old fashioned research it carries a minimum of 15 years!! 15 years in jail because two kids sent nudies to each other then, shared them with the world! Of these sentences vary upon severity and incidents. But the outcome is the same. Someone is getting arrested, someone may go to jail, many may have their lives ruined forever and someone may have to register as a sex offender.

So who do we blame? Because this is America and someone needs to be blamed for this heinous act continually perpetrated amongst our youth!

OURSELVES….

Didn’t see that coming did you?

We as adults are being outwitted and outplayed, not just by our children but society as a whole. It is our responsibility to keep up with technology and yet much as our parents did, we have taken a stance of ignorance. Touting such phrases as; it’s too complicated, if I need it worked on I’ll give it to my kid, they understand it much better than I do, why does it have to have so many features, it needs to be simpler. Funny thing about those blurbs are they come from recalling my parent’s excuses when it came to working this hot new little item called a VCR. Funny how it fits into today’s issues with computers and technology as a whole.

The problem is by taking that stance we are essentially giving the keys to the inmates so they may run the asylum. Our society as a whole has turned to electronics as a babysitter, a pacifier, a walking teacher loaded with information used under the guise of homework and learning. But the dark underbelly lurking inside is too much temptation for our young minds to handle. We have decided to accept its positives turning a blind eye to the negatives believing we have raised our children to know better. To be strong enough not to try and locate the end of the internet along with all of its little side roads and travels.

I began researching this issue after wondering just what exactly was on my teenage son’s phone. After searching through its contents we found some questionable apps and began wondering just what they may hide and why anything needed to be hidden at all. A long discussion was had about the power he held by owning his phone and using the technology appropriately. It also shined a light on our ability to monitor just what he was using his phone for and why. We spoke to him in detail about what is going on with others across the nation and how serious some of the offenses can become.

Today, he turns his phone in nightly. Yes now and again we slip up on that and don’t catch it and he feels a certain victory as is he has gotten away with something, but in the end he loses it for a few days and as he puts it; his social life is dead! Re-affirming my earlier comments about how sad it is our children no longer know how to date or socialize face to face for that matter.

The password cannot be changed. If it is he loses the phone again for a specified period of time. If it happens twice the phone is gone permanently.

When I ask for it, no matter where or when, he must turn it in without question. If he tells me to wait a minute while he erases texts, the phone is gone for a specified period of time. Second offense the phone is gone permanently. He is reminded to text as if a parent were reading it, for, as I often do, they just might be. Am I so naïve to believe he will never text inappropriate things? No, he has just gotten better at deleting them before I get ahold of his phone.

If he so much as thinks about touting that it is in fact his phone, I remind him it is not his phone, it is my phone, under my name, my contract and until he is 18 it is my job as a parent to ensure his growth as a human being, his safety from doing expectantly stupid things and until that time comes that he is an adult with all its super fun responsibilities. Tough shit.

I hate the goddamn phone but in today’s world it has become somewhat of a necessity. So we as parents who choose to arm our children with these boxes of mystery must become incredibly proactive. We must be on the watch out constantly because as soon as we learn one aspect of this electronic wonder there are numerous other factors working against us. The largest perpetrators working to defeat our parental policing?

Apps.

No matter what we do, or how we do it there are numerous app’s working to thwart our actions. Checking your kid’s iPhone and find it clear of all wrong doing? Look again. For there are numerous applications to help hide what junior doesn’t want you to see. These apps are the anti-parent. They share information then make it disappear! They capture screen images from the very transparent app for you to keep in a secret locked folder that only you have access! If that wasn’t enough to have a locked folder there is even an app to hide the app!!!!!

Here are a few app’s to keep an eye out for!

Calculator applications. There are a ton of these but here are a few of the more popular ones.

Best Secret Folder

Secret Photo& Video

Calculator hide

HiCalculator- Private Album

Private Photo

Fake Calculator

 

Individual app’s with unique app pictures that lead you to believe they are something other than what they are which is a locked secret folder.

Settings lock

Secret Piano Icon

Keep Safe photo vault

Don’t touch this

HiFolder

Vault

Hidden Secret Files

Photo Umbrella

FileMaster

iDiscrete

HIDE

Picture safe

Private photo

Album lock

My Media

 

Snapchat

Snapchat is a fun little app, there is no doubt. Many parents I know use it exactly the way it was intended, for amusement. The issue is still the same, if there is a way to abuse something, we as human beings will determine what that is and exploit it! Thus the issue with our children. Naked pictures, under the guise of anonymity that can be captured, saved and shared. Scary.

Yik Yak

Another social site that offers discreet chatting with locals in your area. Unfortunately from what I have witnessed many times it is sexually explicit and self-deprecating. There are comments made in reference to teens that are demeaning and hurtful. Another opportunity for those who remain unethical to berate others from behind a hidden wall.

Of course there are the standard sites that everyone visits such as Facebook, Instagram, twitter, Tumblr etc.. Some would say these sites allow our children to be more social to a broader section of society and to some extent that is true. They still need our daily supervision as it is easy for them to post or repost an item they might find harmless but in reality could be detrimental to someone else or themselves. As I remind our children on a regular basis, once it’s (whatever you post) out there on the internet there is not taking it back. It is there forever, for all to see. It becomes your electronic legacy.

So as I drop the kids off and ask them to have a nice day, I smile and wink. They tell me they love me and run off to school. The high schooler who is sans-phone for not turning it in at night again grumpily gets out of the car, reminds me what time to get him and then slowly gives me a sly smile and says; see ya!

He walks away and I wonder, besides all the other advice I hope he remembers will he appreciate this struggle we went through together? Will he be thankful we diverted him at every chance he had to derail?

I don’t know, but I do know this, no computer or application can give you the feeling I had the first time a girls said yes to going out with me. Nothing can replace that first time holding hands or the very first kiss. Nothing replaces a nervous heartbeat, the smell of perfume or watching the sunset together with her head on your shoulder. And nothing feels like the world does when the sun comes up in that certain place on the road that gets me every time firing my brain into overdrive allowing me to feel alive.

Hopefully one day my children will understand that without looking it up on their phone.

4/14/16 addendum

Tonight after reading my blog, my teenage son came into the dining room and sat down. Calmly and with the maturity of an adult, he asked if I would please stop writing about him on my blog. He felt I portrayed him in a somewhat negative light and he didn’t want people to think badly of him. I have never been more proud of the way he handled himself and the conversation that ensued.

So let me add this, it has never been my intention to show any of my children in a negative light.  Only to share with other parents that we all are in the same boat! I am saddened that I have hurt his feelings. He is an amazingly funny, warm and generous young man. I am overwhelmingly proud of who and what he is becoming as he spreads his wings and there are numerous others who care for him as if he were their own.  My use of him came naturally as he is the only teenage reference to date in my household. His offenses are minor in nature even though at times they bring forward major topics of discussion.  I will honor his request and cease to use him as a basis for my writings because I love him and respect his wishes.

~Betty~

 

 

 

YOU….

As of late there has been a long enduring power struggle taking place within our home. It seems our 15 year old has taken it upon himself to follow in his father’s footsteps despite my best attempts to thwart his actions. To say I am disheartened would be an understatement.

My mother once told me at the height of my rebellious, disrespectful path that she hoped I had children and they were all J U S T L I K E M EEEE! Thankfully that didn’t happen, yet the one that is like me, JUST LIKE ME has embraced my persona of old with full-fledged gusto.

I once had a teacher in high school, I believe she was my French/English teacher who at the end of my junior year grabbed me, pulled me in close and with a quiet voice asked me a question that’s stuck with me for 33 years.

What are you going to do when your looks are gone?

That’s all she said, then with a smile wished me a good summer and went about her business. No explanation, no further words of wisdom, just that, a wink and into the classroom she vanished.

Now it wasn’t that I was a particularly great looking kid, I was average at best. But that damn question would pop into my head out of nowhere and it haunted me from senior year and beyond. 

What are you going to do when your looks are gone?

Why would she say that to me? What was its purpose? Was it a joke? It took many years with it rolling around my head when one afternoon while pondering the good old days I figured out exactly what Ms. Kaplan meant.

It really had more to do with my personality than anything. About buckling down and putting myself and my future first! I treated everything as a joke. I still do to this day but on a much smaller scale as life has honed my ability to recognize the importance in certain situations. Take an average kid who likes to be the center of attention, make everyone laugh at all costs and who is willing to go along with just about any plan that may arise to ensure I was someone’s friend and well you had me. You also had a gigantic recipe for disaster.

Late for class? Who cares, I am with my friends. Disrupting class, oh well I made everyone laugh, who cares that I missed todays assignments and disrespected my teacher. I’ll apologize with an honest smile on my face and a caring tone in my voice. It will all smooth over, it always does. Sent to the office for cutting class? A twinkle in my eye, some cool charm and I will get out of it. Trust me.

Ms. Kaplan saw this in me. She never bought any of my bullshit and there was rarely a time when one of my sly patented smiles ever got me anything other than a smile in return.

And so here we are. Today I asked my son the very same question.

What are you going to do when your looks are gone?

For you see unlike myself, my 15 year old is a very good looking kid (got it from his mother). He has a million dollar smile and has learned to use it to his advantage. But he is struggling ethically and scholastically. He disrupts class to be the center of attention, does anything, anytime, anywhere to make someone laugh, and has a very strong sense of who he is and what he wants to become. So needless to say when I posed Ms. Kaplan’s question to him he merely stared off into the distance not knowing what to say.

He looked just like me.

I explained the importance of this question and what it ultimately meant to me. I explained that for the most part these people he is trying to impress will be long gone from his life 5 years from now. I tried my best in showing him the importance of working hard now for a later reward. That all his dreams of participating in college rodeo are rapidly slipping away as he chooses his in the moment friends first, making them laugh while slacking on his responsibilities and rarely living up to his word. I even explained that saying no to your friends sometimes is ok and if they get mad or don’t want to be friends anymore because you are chasing you’re dreams that’s ok as well! The hardest thing to explain or get him to understand was that a few of my closest friends are the ones who understand when I’m busy, care about my dreams as I care about theirs and at one point or another before we became good friends we may have even told each other to Fuck off at some point. Respect was earned and friendships arose from the ashes. It is ok!

We only want the best for our kids, parenting hopefully through learning from our own mistakes, but one sentence spoken through echoes of my past brought it all home, and it hurt.

It hurts because I don’t want to see him fail yet his stubbornness is strong (yeah that one’s mine). It hurts because if he keeps going he is going to land hard and that will hurt him, although that may be exactly what it takes. It hurts because we love him as we love all our children.

A repeated theme came from our discussion and I thought I would share.

YOU

Only YOU can make a difference in YOUR outcome

YOU are the only one in charge of YOU no one else

YOU are the only one who can chase YOUR dreams

YOU have the power to say no

YOU are the only one responsible for YOUR grades

YOU are the only one responsible for YOUR homework

YOU are in charge of YOUR emotions, no one else

If YOU need help then YOU need to ask

YOU should rely on YOU to complete tasks, if you receive help fantastic but make sure it’s YOU that determines if they are complete

YOUR word is really all that YOU have that explains who and what YOU are

Only YOU can hate and only YOU can love

YOU need to remember we love you always

And YOU were a gift from God, don’t waste that gift.

All of this came from one child struggling to find YOU in himself and one English/French teacher who haunts my past.

Thank you Ms. Kaplan If you touched me this way from so long ago, I can only imagine how many you touched during your career.

And all of this insightfulness was because of YOU.

 

 

 

 

The scary stuff…

The scary stuff hides in plain sight, we try our best to ignore it but in reality the scary stuff is what lets us know we are living.

I am terrified of death. It surrounds me with in your face realism, implication and pure dishonesty. Lying in bed, staring at the ceiling wondering when it will come, how it will come and have I done all I could to let those I care for know just how much they mean to me? Have I spoken a word in haste leaving someone disappointed or was I able for just a moment to make someone’s day?

Do you close your eyes and feel all the world has to offer or do you clench your teeth frustrated by the very movements within your realm? Do you drift away from the sight, sound or smell of another place thankful for having been there or do you grasp tightly to the past angry at what the future holds in store?

I cannot control the panic within, a feeling there is something more and I am running out of time. That I haven’t lived to my full potential, achieved all my dreams, helped all that could use assistance, or been the best human being I could possibly be. My brain runs out of control and there are moments the thought of trying to stop it long enough to grab any form of tangible information to act on is overwhelming.

So the scary stuff creeps in, like a game, toying with my ability to reconcile myself.

I stare at my wife while she sleeps, scared she won’t be there in the morning. Two years of this nightmare have worn away my ability to be realistic about things at times. Watching all she has gone through and yet she still tries to smile, to have a positive attitude, even when she really doesn’t want to anymore. Being at work is an eternity as my subconscious leads me into a room of dirty tricks. How is she? Why won’t she answer the phone? Has she taken her medications? Are the kids helping her? Is she eating enough? Has she walked today? I know she is ok, she has her phone to call me, and my mother is right next door, able to check in at a moments notice. I know the kids are helping and our close friends/family are doing their best, but the scary stuff keeps pushing my insane fears into the light so I may remain bewildered and lost.

Stressed beyond what I ever felt I could handle, my stomach, head and neck hurt all the time. I have ridiculous nightmares always revolving around the loss of someone near me. Last night it was one of the boys in a vehicle accident. The scary stuff lurking in my brain won’t let me gloss over anything in a dream either, its graphic and designed to always leave me terrified upon waking. The scary stuff knows how to leave me down and out through shock value. I am tired… All the time….

What do I do? How do I control it? It feels at times like a giant weight upon my chest. Somedays I can’t breathe and find myself sobbing for no reason at the very stupidest of things. Like an imaginary scary creature hiding under my bed, only I know it’s there, only I can feel its presence, and only I can battle it when it comes out at night to play. It is my burden to bare.

The scary stuff is what tears at your soul, leaving you scarred, hurt, but alive. We all have scary stuff lurking in our brains, without it we would never understand the value in cherishing every moment on this earth. For the good stuff is even sweeter if you’ve had to deal with the scary stuff life is made of.

I wrote this tonight because many have asked me repeatedly how I have been able to handle everything through this Leukemia/Bone marrow transplant infused portion of our life. Truth be told, many days I don’t! I do my very best to juggle everything while keeping a smile on my face, sharing a joke here and there, trying to keep my children smiling all while letting my wife know she is the very center of my universe. I vent a lot on friends and I believe in having faith! God looks over us all and challenges us daily, it is up to us as too whether or not we accept those challenges. There is always hope, and even though the scary stuff is a reality in my life, my way of never letting it win is by writing about the fear so others who read this know its ok to feel everything I just described. If you take time in recognizing your flaws, sharing your pain and understanding there is always a better day ahead, the scary stuff doesn’t stand a chance. It may not be today or even tomorrow, but faith is there waiting to put the scary stuff we all feel and worry about right back under the bed where it belongs.

 

 

 

The road home and transition.

It is official, as of right now, Jacy is home for good! Tuesday we traveled from Stanford to Kaiser then over to Saratoga and when all was said and done, 14 hours had flown by, the car was loaded with all her belongings from the apartment and I had one very tuckered lady on my hands.

Our schedule currently remains the same. Once or twice a week we will continue making a roughly 2 ½ hour trip into Stanford for her doctor’s appointments. These appointments will ensure we are continuing down the right path, juggling a fine line between steroids and immunosuppresses. Blood draws, counts checked, dietary regimen consistently re-examined and of course there remains those damn pesky lungs that refuse to heal! We still are incredibly careful when it comes to her exposures and because of the high risk being at the ranch, she rarely makes it outside for more than a few minutes to enjoy her homestead surroundings.

Jacy’s body has made no real progress, we are in a serious holding pattern. Being in a holding pattern isn’t so bad, her doctors agree as long as she doesn’t slide backwards it will be counted as a win! Unfortunately not making any real progress is weighing heavy on her mind as she sees all of us hustling around taking care of everything. The go getter inside her is screaming to come out and play! But she can’t, she doesn’t have the strength or energy so rest is the order of the day, every day. She does her best to put in some light exercise to stimulate her atrophied muscles in hopes of getting back to normal sooner than later.  So a holding pattern is where we remain, and regardless of her progress after talking with her doctors we all agreed home is where she should be, in her own bed, watching her children, resting. No mother should have to be away from their children and regardless of her condition, just being able to converse with her kids face to face daily is all the medicine she needs.

My wife is constantly telling me she is sorry. For what?? I tell her she has nothing to apologize for but she doesn’t want to hear it. Jacy cannot believe everything I’m able to get done on my own and only wishes to ease some of this burden. To be honest I am exhausted, all the time, and some days am amazed myself how much this completely disorganized fool accomplishes! From sun up to sun down there isn’t a moment away from work that I am not moving. But there are no serious complaints. My wife is alive and that’s all that really matters to me. Making sure everyone else in my family is happy, healthy and participating in life is what’s important to us both and if that means little sleep and running all over this county daily well that just happens to be a side effect of our current condition. But she has nothing to ever feel sorry for, trust me when she is healthy again I will turn over the reins with a giant smile on my face and love in my heart.

Life is what you make of it. I personally have always believed there will be many times life turns on you, piling more and more on top of what you already believe you can handle and it’s what you do during those times that dictates the life you choose to live. It doesn’t mean you always like what’s happening or are even able to find a positive from the situation. Trust me the black cloud following our name has hung around way too damn long! But you can’t just roll up in a ball and quit either. There is always a plan and just because you cannot see the whole picture right now doesn’t mean you should ever think of giving up! I was taught strength comes from within the struggle.

I see couples on FB having drinks, wine tasting with friends, hiking in the mountains or on grand adventures around the globe and jealously sets in for a bit. It is so easy taking for granted just two short years ago that was us! We were shooting selfies at the bar or in the country somewhere on horseback! Snuggling under the moonlight, walking hand in hand in Haiti or simply enjoying dinner out with family! I long for the day she gets irritated while out on an evening walk because I am moving to slow! When I think about how much I would rather be on horse today, I remind myself that Jacy would much rather be anywhere but stuck in bed, with oxygen plumbed to her face and fluids flowing freely into her arm! Sleeping away large sections of the day, brought down through medication like an animal hit by a tranquilizer gun! I remind myself that my most important job in life is her, never taking it personally when she snaps at me exhausted from a long day of medications, travel and doctors, meanwhile cherishing every second she is able to snuggle and hold me, looking in my eyes the way she does filling my heart with love.

This whole process over these last two years has taken so much from her both physically and mentally and I am so grateful having her by my side once again. There is no doubt this will be an amazingly long road to recovery but it doesn’t matter because she is home, her numbers are holding, we have our family, friends, prayer and hopefully a little luck finally shining through that black cloud, chasing it away.

Its been a long road home, but home is good and family is even better..