Every minute of every second of every day…….

 

I have not written in a while and for that I apologize. Today while thinking about my children, watching the news and looking into the eyes of some of our youth. This came to me. I don’t know what it means, but once I started typing I could not stop.

Every minute of every second of every day, we grow older. Life moves before us at an astonishing rate, faster than our minds are able to fully comprehend. In reality we stand frozen facing the hourglass of life, witnessing what appears as agonizing seconds, thunderous ticking of a tock, movement that seems to stand still as life revolves at a pace that is not to our liking and yet we breathe.

Breathing an absurdity that is our arrogance. For as we breathe we continue to expire and yet no reality of decay meets comprehension. It is within our egotistic nature to face the hands of time and laugh. Laugh through our young mouths as we expire, laugh with our condescending young minds as we inhale, laugh and laugh some more, for we fear not what may lay ahead when youth is our only guide. We fear not what lies ahead when youth is our only means, we fear not what lies ahead for we have never known otherwise.

Every minute of every second of every day we are older, we are wiser, and once age has gripped us tightly we slowly become irrelevant. The youth of this world hears not what we say, they hear not what we have to offer, and they fear not the repercussion of blind foolishness. Though we have learned through experience, though we know from pain, though we still struggle with suffering, we have mentally surrendered to the tick tock, we stand brave faced into the hands of time ignoring what we could never have known and yet we are to be considered by youthful brigades as obsolete.

Breathing in we struggle with ignorance of youth along with an hypocrisy that is born of our own. For through inspiration knowledge falls away, sloughing from the skin of an aged arm, what little remains unused, thrown to the wind by the deafness of youth. Exhalation of life reveals that our future is of our own making; its remnants left from advice unheard throughout our journey of youth. Elders ignored, a blind eye turned to the very history we were scorned for not abiding.

The world, our future, our children’s future can never be realized until the hand of youth joins with the strength of age. Youthful creativity meeting elderly knowledge, young love and passion mixed with aged temperance, wide-eyed exuberance with sometimes narrow but skilled guidance. One melded with another, not two separate living beings fighting for space and time to no real conclusion.

Every minute of every second of every day we grow older, and unless we understand a world will always turn, a day will turn to-night and then to-day again and soon what came from nothing will return to nothing. There will never be a unified progression.

We all leave this world with only what we chose to share.

I choose to share love, wisdom, peace and tolerance for all. Some days are harder than others, the fight for tolerance on all levels is tough, but I have been guided by many great people who imparted wisdom that remains heard though they are gone. Hopefully my children or the youth, will understand, listen and realize that one day they too will be older, they must share, understand and guide others.

For every minute of every second of every day will soon be over.

What else do I have to leave behind, what else do we all have to leave behind but love?

 

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2015- I cant wait to meet you.

AND NOW A TRIP DOWN MEMORY LANE…

On January 1, 2014 I wrote this piece, posting it on the 2nd. My 2015 post is at the bottom of the page..

The Face of Leukemia 2014

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2014 Day 1……..

364 days to live.

364 days to wake up every morning, count our blessing and live. 364 days to write a new and exciting story! You see my dearies pontificating New Years resolutions involving the standard fare of weight loss, higher education, finding love, spending more time with our children, adding onto the house, finding a better job, saving more money, vacationing more, visiting family and friends and so on and so on is just not my style this year. But watching my wife live is.

364 days, until I can count 365 more days of life lived, 365 days written into the history books of our family. Cancer has this funny way of cheating you from a reality lived by so many others, changing the way your life story is told.  Cancer also has a way of sticking in your craw like an annoying persons laugh or an itch you just cant scratch.  It’s there, no one else can see it, no one else can feel it, only those who have it, or love someone burdened by it understand, yet the rest of the world just goes on with its business of worrying about resolutions for which a majority will sadly never achieve.

A new year a new fear.

We are winning this battle! Jacys superwoman body has done incredibly well! The last bone marrow draw showed no signs of Leukemia swimming in her blood, lurking in the darkness like an evil monster. Consolidation therapy starts on Monday and she will begrudgingly return to the hospital for 5 days of chemotherapy.  Her strength is back, she is feisty as ever, feeding horses in the morning and an occasional walk in the afternoon! (rumor has it she was spotted jogging on a levee, but its only a rumor) The next round of therapy will knock her down again and from what we understand recovery gets harder each time she finishes a session. She will come home weaker and a little sicker. Chemotherapy is not for the light-hearted, these patients (my wife included) are my heroes as I have witnessed the strain it places on the human body.  Yet Super Jacy has never deterred from her mission. Kicking cancers ass one cell at a time!

A fear still remains though. What if it (Leukemia) comes back? What if her white blood cell count doesn’t recover? What if she catches a common cold during these periods, (something that could kill her) what if?????? These are fears we will live with for the rest of our lives.  Every cough that arises, every sniffly nose, every fever, every-time she feels run down, for the rest of her life she will need to go have blood drawn and see the doctor. 3 more times to go, 3 more week-long sessions, three more weeks of hell.  In the end, a small price to pay to live. Jacy promised me she loved me enough to beat this, she is keeping her word.

Day 1…. Today began our 2014 journey and Jacy spent it the only way she knew how.

It was a day filled with visiting friends, making her children laugh, planning a birthday party for her son and wondering whether or not to shave the small patches of hair fighting against the laws of chemistry. Little strands hanging on for dear life, trying their very best to make my wife look like a chia pet. Biggest decision of the day? Shave the head or let those little hairs grow only to meet an untimely death in 4 days.

With the beginning of a new year I wonder about the thousands of other spouses, significant others, and children all living and loving someone close to them with Leukemia. I worry about the ones who struggle to support their loved ones without the means of expression such as writing brings to me.  Do they lay in bed at night afraid of the darkness, wondering how long, why them, all while scooting a little closer to the one they love just to feel their body heat. Are they ok, do they know its ok to feel the way they feel, can they find peace? I am sure they do and I am just rambling, but its in my nature to worry about everyone and everything.

So welcome 2014! I welcome you with open arms (and Betty’s arms are plenty big enough) for the hug of a lifetime! 2014 we hope you are filled with many misadventures, happiness and love! But most of all 2014, we pray you don’t leave us reeling like your bastard predecessor 2013 did! But if you do, not to worry, the story you tell will be interesting none the less…

364 days… The story begins right now…

images-18And what a story the year 2014 became.

2014 was indeed a year of highs and lows and yes I embraced it all with open arms.

Leukemia, sickness, emergency rooms, a torn up knee, a hurt back, a bum shoulder, my horse injured yet again.  An old friend lost while other old friends struggled to understand why?

A senior headed off to college, a Freshman headed to Nationals for rodeo, a daughter no longer scared of horses and trying her hardest to train them herself. A littlest son, discovering his love for art, painting, drawing, and creating.

Hundreds of new friends, family members united, a wife who Kicked Cancers Ass and cheated death!

2014 was indeed a challenge; it has left myself feeling many years older than my earthly age. I am tired, worn, raw, broken and quite frankly even though there were scattered good times, very glad to see it go!.  This year found me working hard at remaining mentally strong throughout the first half while floundering physically during the second half. It was indeed a struggle to keep a positive attitude at times, but thankfully I had an entire village of people supporting me, something I will never forget.

Highs and lows, isn’t that what its all about? Highs and lows?  We travel this pathway of life learning, absorbing, growing and hoping one day we understand what it all means. Changing, evolving, sculpting our little piece or niche that we can point to and claim as our own, our destiny, our end game.

I don’t know what’s in store for this year 2015. So many things swimming in my head about life, the future and what it may or may not hold for myself and our family. What direction our lives should take, both personally and professionally. What lays around the corner, hiding in the darkness? Are more demons waiting to rear their ugly heads, further terrify our souls or is this family finally going to see a silver lining surrounding us for some time to come? My fingers remain crossed…

Either way there is one thing I know for sure, I am and always have been a believer in new beginnings; that each day you arise from slumber a fresh day awaits you like a clean chalkboard, an empty etch a sketch, or a blank canvas just waiting for your creation.  No matter the pain felt inside, no matter the physical or mental limitations holding you down, and no matter the baggage carried by others in your name. A new day awaits. But one must remember, with a new day comes a responsibility to create, otherwise it is just that and nothing more. Only your vision achieved through hard work and positive thinking can mold an unforgettable day, a brighter week and eventually with time and practice a spectacular year.

No one can hand you these skills, no one can will you an outcome, steal success for you or force you into making changes you need to succeed. Just you, only you, and only through an ability to let go of the past and look forward to a brighter future.

So even though I am tired, worn, raw and broken, a new year is on the horizon and with it, anticipation for 364 more days of creation…

Betty thanks you for following me in 2014 and wishes you all the very happiest of New Years…. 2015 here we come!

 

48- How did that happen..

James Franceschi (AKA- Betty)

Born August 19, 1966

Chosen Profession (note I said “chosen”) Firefighter

Dream profession Writer

Betty is now 48 years old.

That is right 48 years walking this spherical hunk of rock, dirt, sand and water! 45 of them I didn’t even know I was a Betty! Pretty strange huh?

30 of them spent learning and trying to understand the world. 18 of them raising children, doing my best to be a father with no guidebook to help. 19 of them as a firefighter dealing with the very worst of someone’s day on a regular basis. 10 of them spent behind the wheel of a semi truck crossing the highways of these western United States. 8 of them (because that’s the farthest back I can remember my brain acting this way) praying to be able to shut my brain off with no real success…

So what’s a guy to do now that he is 48?

I have decided to make a list of things to accomplish before I am 50 years old. The half century mark, gateway towards my “golden” years, the beginning to a silver lining covering my head and beard, doorstep to AARP, Social Security, and the old folks home.  Thank goodness for Dentu-grip, Efferdent, Ben-Gay and the Clapper! Bring forward the oatmeal cause Wilford Brimley said so, find me a no slip tub and time to obtain a reverse mortgage right after purchasing my Life Alert so when I have fallen some one can get me up! Anyone have the number for a Lark distributor because according to my co-workers I will be in need of one very soon.

Anyways I am a list maker. If it is not written down it was never said, implied, intended or goal driven to completion. Therefore a list of awe-inspiring, door stopping, jaw dropping exploits shall ensue. (ok not really but here’s the list anyways)

  1. Jump from a perfectly good airplane. Been a motto my whole life, why would anyone wish to do such a thing. Well time to conquer my fear of dying and just do it.
  2. Climb to the top of Half Dome. I made it all the way to the base, started up and had to come back down because we were sliding so badly on the granite, my ten-year old son was terrified, so I gently coaxed him back to the bottom where we patiently waited for the remainder of the group. I must stand at the top and survey all before me.
  3. Score a 72 on a cutting horse. Unless you have ridden a cutting horse or are a fan of cutting horses, you will not understand just how important this really is to me.
  4. Finally quit putting everything aside for everybody else and purchase a jeep. I have wanted one for well over ten years and every time I get close we find something else we need, or something breaks, or I need to use the truck replacement fund plus money set aside for this all terrain, topless wonder to repair, replace or re-use something else. I quit riding motorcycles, sold my bass boat and it is has become a personal quest I must complete for me. Its selfish, but I don’t care, after all I am almost 50.
  5. Run the Tough Mudder with my son. My wife and I competed in one and completed it, Cody was to young and I made a promise we would do one together. I need to not let that promise go by the wayside and follow through.
  6. Write a book. I have several avenues to work on, I just need to quit making excuses as to why I can’t, and start focusing on how I can.
  7. Go hiking more. It’s not a big one, but our country is beautiful and it just can not be seen from the windshield of your car.
  8. Ride my mountain bike more.  Now I know this also isn’t a big one, but according to statistics, my ability to do so shall dissolve within three to five years. (hence the need for a Lark)
  9. Zip line over a forest canopy. Once again fear of things out of my control.
  10. Lose thirty pounds! I am overweight again and it seriously is affecting me both physically and mentally. If only I could just put down the fork at dessert time!

Bonus listing: Learn to forgive myself. Not sure the next 50 years will be any fun until I figure out how to do that one little thing.

So there is ten things for me to work on.  I am sure other goals will be set and a few of those will be destroyed, but they are written down and if history has anything to do with it, when ever I write something down, nine times out of ten I complete them.

What kind of lists have you written, are there any goals you aspire to complete?

Wish me luck only 728 days to go….

 

Thank you….

 

Today my heart is a tad heavy as I process two individuals that meant something to separate portions of my life. To help explain I am going to do something I don’t normally do; jump on the media bandwagon for one.  Then I will tell a tale of overwhelming gratefulness towards the other.

#1

Yesterday as we all know by now (if you were unaware I apologize for breaking it to you this way) Mr. Robin Williams ended his constant struggle with depression, taking his own life inside his home near San Francisco California.

Now for some this may mean nothing and judging by the overwhelming reaction through social media it is devastating to say the least for most.

I was first introduced to Robin Williams as a teenager of 13. His character introduced through Happy Days, then his own show Mork and Mindy was brilliant.  I could not wait to watch him, to sit with my family as we all of laughed to his crazy antics. He made Thursday nights one of the most popular nights in our house and the ability to watch his show a driving force in completing homework, chores or what ever else my mother could use as leverage.

Something most people don’t know is Robin Williams made me want to become a stand up comedian. I would practice jokes in the bathroom, jokes to our horses, jokes to a tree if I could.  For those who remember, he was the reason I practiced impressions of people or cartoons or who ever I felt I could impersonate. I laid in bed dreaming of standing on stage, being crazy and giving people the gift of laughter. In groups of friends he is the sole reason I learned to tell a good tale, just to make you laugh. Alas, I am not that funny, it wasnt my calling, fear plagued me from performing and I would only cautiously do impersonations if I knew you and felt comfortable enough to do so.

Fast forward 7 years.

I was lucky enough to meet mister Williams at the Sonoma Mission Inn one evening over a dinner being hosted by some notable people.  He was kind, friendly and as always genuinely funny.  Working there I met plenty of celebrities and most were arrogant, full of themselves and came across as though they were special.  Not Mr. Williams. In one evening over a few hours Mr. Williams showed he was an everyday guy with an incredible gift. To make people laugh.

Today

Yesterday when I heard the news it hit me in the stomach, like losing a war hero, an astronaut, someone we ALL have come to idolize in one way or another. Yes he wasnt a personal friend or family member, but for some reason he feels like one.  Like a long-lost relative you knew about, heard about but never saw.  I have him to thank for bringing me out of my shell as a child, something I am sure he has done for countless individuals.  So many people (myself included) wish we could be that crazy, wish we could make people laugh with such power, such animation, such free-spirited will! I know I do.

The world has lost a wonderful, innovative, amazingly funny human being. There is no one person of his caliber to follow in those shoes. For that I am sad…. For that the country shall mourn.  May the heavens glow under this mans light.

#2

His name: Roger “Deets” Winslow

Many of you have never heard of Roger “Deets” Winslow or Deets as we all knew him.  I found out last night the Napa county sheriffs office was searching for his body at the bottom of Lake Berryessa following some type of boating accident.

Now I could give you all the very same stories that most who knew him are expounding at this very moment, (awesome dad, super great coach, best of friends, etc..) but I wont. The reason I am struggling with the news of what appears to be his passing is quite simple.

I never was able to say thank you..

Once again through life spinning at a hundred miles an hour, turning in multiple directions, and never making it a priority. Quite simply I never was able to say thank you.  High school was struggle for me as I have explained on numerous occasions.  There were three individuals that saved me. Two saved me my sophomore year, and one saved me my junior year. What did they save me from? Myself.

Kurt Hornaday (rest in peace buddy) and Deets Winslow.

These two men saw a kid who wasnt doing well, couldn’t stand up for himself, had a mouth the size of texas, and took him (me) under their wings.  They both introduced me to wrestling, they both took the time to become friends with a underclassmen, and they both helped guide me through my junior year; while letting me continue to write checks with my mouth that couldn’t be cashed, then teaching me (through friendship) how to right those wrongs.

The third person was Deets dad-Mr. Roger Winslow.  I joined the wrestling team my junior year because of Kurt and Deets, Roger was the coach. I know he wanted to boot me from the team, I was weak, not fast, had no real comprehension when it came to drills, but he kept me, pushed me, and made me believe I could be better than I was every single practice.  I only won a single JV match that entire year, but coach Winslow made me feel as though I had won the championship.  He still resonates within me to this day and his coaching abilities/skills are why I became a coach and why the kids I have coached have had such a great time.

Deets and Kurt were friends, they were mentors, they were honest wonderful side by side buddies that would do anything for you at the drop of a hat.  My senior year I struggled without their presence.  Dont get me wrong I was surrounded by awesome people, spectacular friends who put up with me besides myself, but without that straight and honest advice whenever I felt I was straying or doing wrong, that year emotionally and physically (I hurt my knee pretty bad, the first few weeks of wrestling practice and just never came back) I was lost.

I never was able to thank Deets, I don’t think he even knew the impact he and Kurt had on my young messy life.  I was never able to thank Kurt either and found out about his passing through a dear friend.  I once again have procrastinated way to long…

Rest in peace my friend.  May your family find some comfort through the lives you touched..

So there it is, I apologize for it being a bit messy, with a few run on sentences and goofy content. The main point is this; Dont procrastinate, tell those who are important to you, that helped you get to where you are; Thank you.  They don’t do it for the recognition, they do it because they were raised right, held empathy in their hearts and cared about passing those feelings on to others.

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It is your time….

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Fear resides as the devils left hand while hope lies within the depths of the right.

As a young man I would lay in bed wondering what would become of my life. Not just the normal glossary topics such as marriage, children etc.. But what would BECOME of my presence here on earth, both in the present and long after I am gone. There has always been a yearning to become more, a feeling as though there is more for me to accomplish, left gazing to the heavens wondering what more could be out there and hoping that one day all would reveal itself to me. You see fear has always kept me from being exceptional at anything and hope has continued to keep those dreams alive through wild daydreaming and at times pointless planning. But in the end my inability to control my fears have left me with nothing more than hope and for that an empty feeling deep within my soul remains.

As we enter the final days until Cody leaves for college, it has occurred to me this conversation has never taken place between the two of us. Is he prepared to strike out on his own? Does he have a true vision of what his life will become, where he is headed, and if he has a plan? Or does he even need one?

Do his daydreams have meaning, has anyone ever told him they are part of the fabric for which his inspiration will evolve. When we are young we should be encouraged to follow those dreams to strike out on our own, throw caution to the wind, find out who we are by testing the very mettle molded by our parents and the experiences held up to this point.

As a child I was constantly warned that daydreaming was a complete waste of time. But it was where I went, or could go to be whatever I wanted to be at any moment. As a child I was also terrified to daydream out of fear of punishment, chastised for the very waste of time others felt my mental trips to be. As an adult I believe daydreaming, contemplation, to meditate is the mystical treasure map of our lives. Where do we want to be? What do we want to become? It’s all right there, trapped within our magnificent, organic, computers (the brain). Stare into the distance; let your mind take over and what do you see? Are you on a beach in Tahiti or piloting an aircraft? Can you feel the warmth between your toes as you stroll across a cobblestone path or are you closing big deals in the heart of New York’s financial district? Can you hear the applause of a packed theatre as your performance brings down the house or the cold sting of a winter’s night as you walk carefully up the side of a car you just pulled over for speeding, no back up, alone? Does a fire engine race by as you gaze into the unknown whilst its sirens leave you with chills, or do you feel empathy and an inner strength as though you could perform that very job? Can you smell the dirt roads of an impoverished country and see yourself guiding those in need or walking across an unknown landscape with no destination in sight until you unknowingly stumble across a new challenge, or fortune.

Do you see yourself doing GREAT THINGS!

There is an old adage that our parents told us as youngsters; when you grow up you live in a country that will allow you to be whatever you choose to be. Personally I prefer: There is nothing you can’t do once you put your mind to it. But my personal favorite is: if you can dream it, you can be it.

So to my son, his friends, every boy and girl heading out into the world I say; this is your time! This is when you take a moderate amount of responsibility and huge dose of dreams and find out who you are, what you are, how much you really like yourself, then squish it all together and become whatever you want to be too this world! Yes! It won’t be perfect! Yes it will be messy at times and involve meeting new people, understanding those you have nothing in common with and occasionally like a sculpture in the works need a little molding from time to time. Yes you will leave behind people you care about as well as those you don’t, but have learned something from just the same. Yes! It will take work, hard work, so hard at times you will feel like quitting but you won’t because you have a dream. Leave a legacy, a mark, have a moment in time that will forever be yours and remember to never, ever quit daydreaming.

To every adult out there who reads my blog. I have never stopped daydreaming, but I have allowed my inability to control fear keep me from accomplishing my dreams. Hopefully life, burdened with all its responsibilities has not left you stunted in the same fashion, unable to dream big, achieve those dreams then close your eyes and smile wide; for now that you have done your job as a parent; it is “your time” as well.

Dream big, open your eyes and see what happens when you push fear aside….

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Graduation Day

This week has come and gone, a moment in time a memory for recollection. 13 years of life, tied so closely with friends, teachers, sleep overs, field trips, sporting events and many peanut butter and jelly sandwiches. I cant believe this day arrived so soon and left in such haste. Your school life started out simple enough; tears of separation, happiness upon returning home from a half day of school. Full days and mounds of homework, new friends, old friends, friends who moved, sadness and joy. Skinned knees, new bikes, scooters, baseball, the park. Swim meets, wrestling, cross-country events, awards, disappointment, contentment and successes.

Days where I felt we were losing you, days were we knew it was all going to be alright and days of unbridled pride watching you do what you do. Time spent, heart-broken, filled with sadness as reprimanding you or having to raise my voice while losing my temper as a last resort secretly brought me to my knees. Reflections of my father I choose to leave hidden in darkness. Time wondering if I spent enough time with you, if you needed me and I just didn’t pick up on it or if you are content with the time we have spent together? Happy with how it has all turned out?

Here we sit third row up, middle section staring directly at a stage you shall soon cross with pride. I didn’t sleep last night, worried I would over sleep and miss the opening of this venue to stake out my territory, claim a prime vantage point for this most important of days. 5 am I rose, fed our animals then slipped off into the morning, ensuring our seating success.

It has been a hard year for our family, we have all struggled, physically and emotionally and you son have not been immune. Yet somehow you kept a level head and completed this 13 year journey all on your own.  I sat staring at that stage, wondering how it must feel for you? What emotions are worming their way through your brain?

This is after all a very special day, no pressure or anything. The 100th class to graduate from Dixon High School, The first in our family to head off to college and thirty years to the day from when your father finished high school. To say I am proud of all you have done, accomplished and survived at such a young age is an understatement. You are my hero son, there is nothing more I could ever have asked for in regards to you.

A friend at work asked if I was going to cry during the ceremony, and of course a terse “no” came quick and fast.  Not losing any man points within the confines of my firehouse, no way! In truth, I didn’t cry, but not because any lack of emotion existed, or due to a hardened soul. Instead my chest was filled with immense pride, for you had done it! You graduated high school, you applied to and were accepted by the colleges of your choice, you asked for help when you needed it and handled any issues you felt you could handle alone.  You son don’t need us to hold your hand anymore and that is nothing to cry about! Instead it is a sign of success for us as parents, it is what this entire journey is all about! Creating, molding, testing, and yes being frustrated with this living being, this boy you brought into the world. Hoping and praying in the end you have done all that you can to ensure when he walks out the door he will do the best he can, stand upon his own two feet and find a world not molded by callous misplaced prejudice, but one molded by his own experiences, using your guidance as a key. Nothing more.

You walked across the stage, the principal read your name; cheers from family and friends erupted and echoed through the stands. Cody James Franceschi high school graduate. A summer lay before you, a weight has been lifted and the relaxation of a job well done is definitely showing across your face. I love you son and I always will. Your mom and I have done everything within our power to help create this person you see in the mirror. We know you have become your own man, but know this. The phone is always in your pocket, we will always be at the other end of the line and just because you will no longer be able to walk out your bedroom door to ask us a question doesn’t mean you cannot find a quiet place and call us, anywhere, anytime. For though we have worked hard to get you to this point, your mother and I have countless reams of knowledge to share with you still. In the end my hope is you will still need us, still feel as though you can ask us anything, whether near or far, what ever it takes we will be there. You are our son, there is no other like you and for that we are incredibly thankful to God! We love you…

Now lets talk about the second week of August when you go off to college.

Wait! What is this wet stuff streaming from my eyes? There is something in my eye! There is something in my eye! “sniff sniff”.

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A fathers love…

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Nine days until life comes to an end.

Ok not really, but when I ponder the ramifications of this emotional moment in time, nine days from right now; it feels as though a portion of my life, one held so closely to my chest will inevitably come to an end. My heart is breaking, even though my exterior is strong, even though I show no care in the world towards the upcoming moments, even though it is how things are supposed to be and even thought this is what we have prepared for over a very long period. Like a sliver you hardly notice at first, time passes and it slowly augers into your skin a little farther with every movement until eventually you can’t help but notice it, notice it’s agonizingly minute annoying pain. Then a week maybe two, it’s in far too deep to do anything now. It is beginning to hurt.

July 11 1996

A baby boy was born into this world. He was pale, screaming, shivering, with 10 fingers and ten toes. He was perfect. Six months straight he screamed, six months straight he cried, I swore I would never have another child; this was it for no adult should endure such torture as this child provided for six long months! Then one morning I awoke to find we had slept the entire night! Oh it was a glorious feeling, an entire night’s sleep, no rocking a child for hours on end, no midnight cup of coffee and long car ride to reignite his sleep filled head, no sir, all night long just me and my sheets all bawled up into one!
Jumping out of bed in a panic! Heart rate busting through my chest! Scared to death as I acknowledged the real reason sleep had been with me all night long! Rounding the corner into the nursery, Bear my Rottweiler by my side nervously barking, I was expecting the worst! Oh how the imagination wanders in a matter of seconds when fear is involved! Smothered by his own pillow, SIDS death, head wedged in between side rails of our crib. The evil of a first time parents fear (especially a firefighters) was reigning king upon my psyche! Yet standing, pajama bottoms on, dog by my side eyes gazed upon this infant jail cell, there laid our boy, happy, pink cheeks, cooing. All was right with the world.

He never cried at night again.

Just kidding, but after those first six months Cody James Franceschi never made a huge 321613_2371954104839_641442329_nfuss over anything again (ok except for saliva). YES there was a small period after a biology class where he learned about saliva that an unexplainable debilitating fear overtook his body and every time he felt saliva forming in his mouth he thought he was going to die! It was hilarious!

Growing up he remained fairly quiet, studious, with a shy charming way about himself. He traveled through elementary school with many of the same struggles as most children, Sixth grade being the hardest for him; un-organized, frustrated with his grades, but somehow he just became quieter, figured people out and what they needed from him. Cody began to read nonstop, anything and everything he could get his hands upon and he grew. He played sports; baseball, basketball and once he entered Jr. High cross-country his athletic course was plotted.

We slowly watched this quiet child develop this wickedly dry sense of humor that many of his friends enjoyed. During jr high I realized he was the Ferris Beuller of his group. On campus talking with teachers and other students it became rapidly clear there wasn’t 200116_1004284233947_3369_nanyone who disliked this kid. No fights, no quarrels, every social group knew of him and not one person had anything bad to say. He was and is; “a righteous dude”
He became interested in hunting, fishing and archery. Cody remained surrounded by a very core group of friends including one he shared the very same birthday. In eighth grade he was voted male student athlete of the year, it was an amazing moment, but our Cody downplayed its significance, just like he has downplayed every single activity he has excelled at since.7525_1231633557538_3887792_n

High school held no surprises, no serious troubles with his studies, no girl problems to speak of, he continued to run cross-country, eventually making it to state his sophomore year, then again his Junior year only to give his spot away to a very close senior friend stating; we were so close in time, I ran for him earlier in the year and it just seemed right, it is his last chance ever to go to state and run. I have a chance to do it next year. I have 1962732_10203278372304070_1868046438_nnever been prouder of my boy than I was at that moment. He traveled to Haiti with me that year on a mission trip. Watching this boy become a man before my very eyes, kind and gentle with the locals, yet labeled by the Haitian people we worked with as:” the boy who works like a man”. At a meeting with the local town’s people one evening we held a question and answer period and one of the men stood up and wanted to know in a very aggressive voice why Cody never spoke. It took some creative wording on the part of our interpreter to calm this man’s emotions as we suspected he felt it was disrespectful to not speak or engage in such meetings. But we all stood strong that Cody was just shy. Once the village figured this out to be the truth, is when Cody’s work ethic became one of much discussion. The men accepted him and all of them wanted to work alongside my son.
During his senior year he was voted team captain and he did a very good job. Boosting people’s spirits and quietly, silently with his dry sarcasm, saying just the right thing at the perfect moment to get the very best out of someone. He also ran his personal best at every cross-country event, but as he improved so had many others across the state and in the end, he went to state, but only to support the two runners who made the cut. He was proud of what he’d done this year on the XC courses, but Cody’s pride is a silent one and once cross-country was over, it was over and out of his mind. On to the next challenge life will bring. 217942_10151147319311649_1513114350_n

Cody obtained a driver’s license at 16 and took right to the roadways. My fears of adolescent lead foot syndrome for which I had been afflicted where not to be as friends would tell of seeing my son driving around town to which he was affectionately referred to as: driving Miss Daisy. 424626_4540849645872_1564129365_n

He has wanted to be in law enforcement since 6th grade. One time he met with a family friend who works at UC Davis and participated in career day on campus. Our son sitting with a FBI recruiter at 12 years of age in a suit and tie learning every step it takes to become a member will forever be a story I cherish.

Taxidermy, archery, shooting, raising pigs, riding motorcycles, quads, mountain bikes, wake-boards, off-road skateboards, hiking, are just a few of the things he loves to participate. He is much more adventurous than me, much more assured of his direction, yet leaves conversation about himself locked up like a vault. 59253_1507280874813_2469541_n

Cody will head to Humboldt State University in the fall. He has finally chosen a plan A and a plan B for his education. His major will be criminal justice with a minor in environmental sciences. Plan A; finish the four-year college, obtain his degree and apply for CHP. Plan B; finish the year college and become a game warden.
Either plan sounds fantastic. I am so proud of our son, for years I have touted the strength every man wishes they held deep inside, that unbreakable, solid as a rock man who won’t shed a tear over his son moving on with his life. Walking out that door to the world we tried so hard to protect him from while educating, preparing and hopefully guiding him in the right direction when this moment came.

The day is growing closer.

Strangely as of late I no longer see the man he has become. When he walks into the house, I hear his prepubescent squeaky voice talking to me. His cheeks are round; he’s small and needs his daddy. My heart breaks as I realize how long it’s been since I was able to cuddle him on his bed and help him get to sleep after a bad dream. Stroking his hair while telling him no bad monsters can get past me, I promise! He doesn’t cry anymore when he is hurt, he builds things on his own, fixes things on his own and even though he is messy as hell and it drives his mother and I crazy, he cooks on his own!

He is my first-born; he will always be my first-born! A vision I dreamed of over a 9 month period, wondering what he would look like, who he would become, praying this little life308369_2387626496639_979319657_n would grow to be just like me, but in the very same breath praying to God he wouldn’t. As he progressed, learning from his successes and mistakes there were many restless nights where I was left wondering if I was failing him or leaving him with good advice, solid guidance. Nights spent outside away from them all (there are 4 children total) head in hand sobbing, feeling overwhelmed, disgusted with myself for yelling, screaming like my father had done to me, punishing, demeaning, saddened, worried I was screwing him up permanently. Yet finding solace in showing him it’s ok to admit when you are wrong by apologizing when those moments had gone too far with harsh words.

251527_10150300192451649_2825994_nI look at him, watch his soft emotions change on a dime, from sweet and funny to harsh and jagged, noting the very same attitudes shown from myself at his age. The need, desire to spread his wings and fly, but not knowing how without actually having to leave this home, his sanctuary, his place of solace all alone in his room, beloved dog cricket by his side.
He must go. It will be far away and his mother and I will hate it at first. Overtime it will become easier as our family gets accustomed to his absence. Yet his spirit, his soul will always live in our home. I know the very first night I open his door and he is not there I am going to cry. It will be very reminiscent of when I drove a stick shift for years. After purchasing my first automatic, I spent the better part of a month still slamming my left down to an empty floor. No clutch in sight.

I am pretty sure I am going to spend the better part of a month, shutting a door to an 250602_4091191164691_1963527086_nempty room and longing just to say goodnight while giving him a hug that only he can give back (and if you have had one of Cody’s hugs you know they are awesome). 18 years gone in a flash, a whole lifetime to him, a moment in time that’s come and gone way too fast for me. His father, the most important man in his life, I have stood strong for 18 years, showing him how to hopefully be a good man.
I cried tears of joy when he came into this world, into our house, into my heart.
I will cry tears of joy when he heads off to college and quietly I will cry tears of selfish sorrow for the empty space he will leave behind.
One day hopefully he will understand.
It is a fathers love….

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Leukemia an uneasy rider…

Unknown-2Grasping, clawing thin air, holding her chest she weaves back and forth, side to side. A look of terror covering her face, showing blaring signs of confusion, her eyes wildly searching the very corners of our room. My chest hurts, I can’t catch my breath, somethings wrong honey, something is really really wrong! Am I hot? Do I feel hot to you? James? James? James I can’t hold myself, where are you? Somethings wrong, somethings really wrong! My stomach hurts, my stomach hurts real bad, James? Somethings wrong (speech beginning to slur)

In fact something was wrong, very wrong. I was alongside of my wife as she jumped straight up from what seconds earlier had appeared to be a sound sleep. Starting a downward progression, a health scare that would for a few moments challenge my ability to cope, compensate and help this sweet woman through the opening moments of what would become a 12 hour medical journey.

Me: Babe I am right here, right next to you, what is wrong?

Jacy: I am hot, I don’t feel good, something is wrong (speech slurring), where are you?

Me: I told you I am right here, do you need me to call 911?

Jacy: No, somethings wrong, somethings really wrong, I don’t feel good, my heart is beating out of my chest and I can’t breath! Somethings wrong (repetitive answering)!

At this point Jacy began slurring her words even more! Her eyes rolled around within their orbits and she forced herself into a tripod position that was wobbly at best.  I began to panic! My head was spinning, what do I do, do I call 911, what is wrong with her, she isn’t speaking to me, holy shit is she dying! It felt like an eternity, sitting there staring as my wife’s body began shutting down, doing things I had never seen it do before. I wanted to open a window and scream for help! For some reason my phone wouldn’t bring up 911 and every time I tried my fingers fumbling from shaking, inadvertently locked the device, rendering it useless until I could hold one digit still long enough to manipulate the finger scanner. I by all accounts upon reflection was that guy! A swearing, stuttering completely useless basket case.

Then something happened. A recollection, a memory, a proverbial light bulb flashing over my head like a Las Vegas strip sign! And like the flip of a switch the realization struck me: I don’t need help! I am the help! Yep that’s right folks, through the heart pounding, fear laden panic of watching my woman disintegrate physically and mentally I recalled a somewhat important fact. I know what to do! I am trained to deal with this very situation! Holy shit! HELLOOOOOOOO MCFLY!!!

That is right, apparently when the patient is someone you love, that one person you have pledged your life too, the human being you swore in front of God to love till death do you part, you tend to forget important information like, well uh like you are a firefighter with 18 years experience as an EMT! You have evaluated, and helped prepare for transport more sick people than you care to remember! Triaged, treated and transported every type, diseased, ill, injured, trauma, heart attack, respiratory distressed, overdosed, ingested, kidney failure, cancer ridden, etc… human being on the planet! So why on earth are you dropping the ball on one of the most valuable patients ever to be in your presence?

And like that the light switch flipped! Questions changed, responses changed, and within a few quick seconds, just by shutting off my emotional side, I had determined my wife was either in the midst of a possible life altering allergic reaction to the Neupogen injection I had given her not more than 50 minutes earlier or she was mid TIA (Transient Ischemic Attack) Layman’s terms; a minor stroke! She met all the criteria for both! Confused speech, altered level of consciousness, rapid heart rate, pale, cool diaphoretic, loss of muscle function to a side of her face, blotchy redness on the chest and involuntary muscle movements. Yep mirroring symptoms to the point, one could have invariably irritated or influenced the other.

UnknownSo I did what any man in my position would do, could do, or hopefully would think to do. I threw her in our car and headed to the emergency room! Now hold on, before you put a hand over your mouth and yell at me through the computer screen: Why didn’t you call 911? Its simple math really. I live exactly 7 minutes from a level 2 Kaiser hospital. It took me under a minute to get her in the car. That is 8 minutes. It takes 1 minute to reach dispatch from my phone, another 30 seconds to dispatch our engine in combination with a responding ambulance for a ride out to my house that is at best 12-14 minutes.  After toning out the call it takes an average of 2-3 minutes for crews to look up the address and get out the door. That is a total of (rounding) 18 minutes to receive help. By the time they would have gotten to my house we were already in a room being treated. It was scary, it was risky, it may have been stupid on my part, and I would never under any circumstances pose that any one person take that risk upon themselves, but it was done, and we were in the ER, safe and sound!

Arriving at the hospital, she was wheeled into the waiting area where she promptly declared BATHROOM!!!!  Mario Andretti would have sure been proud at that way IUnknown-1 was moving when I passed that crowd (gratuitous Charlie Daniels plug). Sliding sideways into the first bathroom, Jacy began vomiting, and vomiting and crying. A very nice security guard came in and helped me take care of her, while the registering nurse took my word we were who we said we were and put us right into the system.  Within seconds we were relocated to the triage nurse who stared confused at my patient transfer rundown in regards to my wifes medical condition. Moving like a rabbit the triage nurse wheeled us into the ER and as we turned the corner it was obvious which room we  were destined as two nurses feverishly wiped everything down with disinfectant! (special germ precautions for Chemotherapy patients) Then as we drew closer my heart leapt with joy as I recognized the smiling friendly face of our RN (registered nurse). It was one of the moms from Jacys school. Jacy had taught her daughter and my wife was one of her favorite teachers. Truth be told her daughter is one of our favorite students! I say ours, because my wifes students are my students too. Over the years I have come to know most of them by name and when ever I see Jacy at work they all talk with me, give me high fives and generally bring out the dad in me! I am Mr. Jacy! They all make me smile, but some make me smile more than others and this little girl is one of them.

Things moved very rapidly, I helped where I could and stayed out-of-the-way when I needed too. Just as things began to slow down a bit another surprise walked through the door. One of our firefighters who works as an ER Tech was also on that night. It was fantastic to see his face, my fears were quickly calmed as now there were two people who knew us, knew my family and genuinely cared for my wife.

Thus began a long night at a Kaiser ER. Needles here, blood drawn there, chest x-rays, CAT-scans, blood pressure, oxygen, 3 I.V. bags of fluid, antibiotics, and the best damn treatment I have ever had at a hospital. I cannot emphasize enough how well we were treated! The on duty ER doc that night was funny, charming, with honest concern for our well-being. She was the kind of person you hope to meet someday outside of work to share a drink and a few laughs! I am forever in Kaisers debt.

12 hours later we walked out the back door. Ok I walked, Jacy shuffled. We slowly climbed back into our car, and drove carefully home. The final diagnosis? Undetermined, but it was narrowed down to either a minor TIA or an allergic reaction to the Neupogen.  A phone call later that evening from Jacy’s oncologist would confirm most likely the latter. Yep I still got it!

Returning to our house we walked upstairs, my goal was to tuck her into bed and watch her sleep for a while ensuring all was good. Apparently being up for 28 hours doesn’t agree with my aging body anymore because the next thing I know its 4 hours later and I am in bed looking at her sleeping peacefully. Getting up, I kiss her forehead, thank God for getting us through this day and say a little prayer for all who helped us the night before. Walking downstairs my mind cant help but ponder how many more times we will travel this road, how many more scares will we survive? How many more long sleepless nights will we endure? Then I realize, it doesn’t matter, because no matter how many more “times” there are, we will win in the end. Jacy continues to kick cancers ass and I will continue to do what I can to support that ass whooping!

Sleep or no sleep, fear of confidence, vomiting or solid good health, it really is as simple as that… There is no other option…

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A day in the Face of Leukemia.

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10 pm. Finally there is peace and quiet. I am alone with my thoughts. (not great company at times) I am…..exhausted. The children are all nestled in for the night, leaving me alone to rest, think, plan, and prepare.  Ok also to drink a nice cold beer…

These children, these genetic markers, fruit of my loins, incredible individuals who are searching, striving to understand what exactly is happening to their mom, taking my every moment with inquisitive thinking, questioning, testing my very patience. It is easy to forget they are not at a level to fully comprehend exactly what is going on with their mother. As each day unfolds and my fervor reaches pitch, they are unwitting victims to my own personal demise. A tossed bit of clothing here, an untended animal there, a room in disarray, teeth forgotten and hair occasionally not washed during the cleansing process. All lead me to instant eruption at times.

As my mind continually works at an ever rapidly processing pace, my inner ability to control or grasp a solid foundation of patience seems to crumble. It is not as though these little cherubs have truly faltered in any way, but more as though their little mistakes are magnified by worrisome frustration on my part.

A day in the life of the husband supporting a cancer patient.

Every morning I awake exhausted! My back aches beyond belief although I am beginning to feel this is some form of sympathy pain helping me relate to suffering my wife may be feeling. Breakfast is some delicious Javita coffee and a small bowl of oatmeal. Thankfully most mornings, the horses are already fed. Two of our “borders” in particular have become my barn angels. (Lisa and Olivia) Saving me from this chore as lately I just can’t seem to function with any repetitive, normalcy as the sun arises. After staggering around like a lost puppy looking for its master, I can usually get dressed before our children awaken wanting, no needing my utmost attention. During this time my mind is already checking off a multitude of things that may or may not need accomplishing before I abandon ship, heading off to be with my wife in the hospital.

After a short morning briefing the kids have their chore lists lined out, some laundry is done, dishes, washed, bathrooms cleaned, dogs taken care of and out the door I go to work a few horses that need to be on a daily routine. After completing this chore, its back into the house, showered, clean clothes, check in on the kids progress with their chores, hugs all around, a list of objectives to the oldest who is now watching siblings until my return and then off to Vallejo to be with my wife.

Easy enough, yes?

Walking through the door of room 5020 after saying hello to many nurses who know me by name, I lay eyes upon her, and begin feeling guilty. I still cannot understand why this is happening to her. This beautiful, vibrant, glowing woman, who by all accounts has never done a horrible thing to any ONE person in her entire life. It just doesn’t make sense to me. Why isn’t it me? Why hasn’t this awful disease happened to me? It would make more sense, I havent always been the nicest of people, I didn’t always care about others, their needs, their troubles, or problems. In my youth I was a very self-centered individual, who didn’t always treat people with the respect they deserved. But then I suppose life isn’t about who deserves what, as we see on a daily basis in the news, but for myself it just doesn’t make sense why this woman, this person who saved me from myself, this angel who puts everyone and everything ahead of herself, why it has to be her.

She is happy to see me! Like a prisoner is happy to see a loved one during their monthly visit. Trapped in a 15×20 room, with crappy food and lines pumping chemicals into you from all directions, one could understand the importance of familiar human contact. She proclaims her affection and declares how much she misses me, it makes my heart sink, yet fills me with joy at the same time. Sinking because I feel her lonely pain; surrounded by many but alone none the less. Yet to have someone who needs you, who loves you so much that after all this time together can honestly say they have missed you. Well it is powerful.  I watch couples these days fight over the stupidest things. Complaining in front of everyone, tearing down their marriage on a stage for all to see and it makes me sad. These people don’t realize the gift given by proclaiming their love for one another or what blessings are right in front of them,  focussing instead on the possibility that some grass may greener on the other side. Marriage is work, it takes hard work at times, but there is an old saying; you reap what you sow. I try daily to plant and fertilize my marriage and I believe it shows. It shows when I walk in the room and my wife beams at me with that million dollar smile. It shows when she grabs my hand, squeezing tightly and says; don’t leave me. It shows when she tells me she cant wait to be home so she can feel the security that comes with sleeping alongside her husband. It shows when I leave and all the way to the car I feel like part of me has been left inside that fifth floor room.

Jacy has cancer. I know she is winning this battle, but every time I say it, every time I write about it, it chokes me up. Jacy has cancer. My throat tightens. Jacy has cancer. My stomach feels sick. Jacy has cancer. My eyes become moist. Jacy has cancer. A dark cloud overhead looms like a storm waiting to throw lightening my direction. Jacy has cancer. I thank God the children don’t fully understand and only feel as though mommy is just on vacation in the hospital. Jacy has cancer, Jacy will always have cancer, Jacy has cancer.

Coming home, I am met by the many blessings of being surrounded by those who care. Nice notes, cards, letters of hope and understanding, dinners dropped at our door, the barn taken care of again and a multitude of additional support. But just as Jacy wishes nothing more than to escape her sterile cell, pulling needles from her veins to resume a normal life, I wish for her to be home, covered by the safety of these four walls, never having to travel this journey ever again.

Tomorrow she does comes home. The first few days are going to be rough as sickness, fatigue and living immunocompromised will be scary. But she will be home. In three more weeks she gets to do it all over again, returning to hospital, becoming reattached to chemicals that will save her life. Its a small price to pay to beat this evil demon, but then that’s easy for me to say as I am not the one fighting to survive. Or maybe its easy for me to say because it’s the only way I know how to deal. Placing things in categories and checking off  lists, one box at a time. The main thing is she is coming home.

So as I reach the end of another long day, I just want to say; Thank you to everyone, all of you, the kind words, the hugs that mean so much ( I love hugs, it’s the dad in me) , the smiles and great conversation. This is a fight, a fight we are going to win, no one fights alone and all of you have proven that to be true. Jacy is definitely not fighting alone because of all of you and standing by her side as her husband has been my absolute privilege.

Thank you for allowing me to make that happen..

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Leukemia’s house of horrors!

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Phase two of AML treatment. The beginning of ongoing chemotherapy or Consolidation Therapy (CT) as it is known.

So what does that mean? Quite simply it means that Jacy’s immune system has bounced back to epic proportions. But because the original treatment was a bombardment of all aspects of AML she was exposed to many different drugs that all had different jobs.  Thier goal was to kill everything, both good and bad! The nuclear bomb of cancer treatment! The primary drugs classes for this procedure fell upon Alkylating Agents and Antimetabolites.

Alkylating Agents: 

Alkylating agents directly damage DNA to prevent the cancer cell from reproducing. As a class of drugs, these agents are not phase-specific; in other words, they work in all phases of the cell cycle. Alkylating agents are used to treat many different cancers, including leukemia, lymphoma, Hodgkin disease, multiple myeloma, and sarcoma, as well as cancers of the lung, breast, and ovary.

Because these drugs damage DNA, they can cause long-term damage to the bone marrow. In rare cases, this can eventually lead to acute leukemia. The risk of leukemia from alkylating agents is “dose-dependent,” meaning that the risk is small with lower doses, but goes up as the total amount of the drug used gets higher. The risk of leukemia after getting alkylating agents is highest about 5 to 10 years after treatment.

Antimetabolites:

Antimetabolites are a class of drugs that interfere with DNA and RNA growth by substituting for the normal building blocks of RNA and DNA. These agents damage cells during the S phase. They are commonly used to treat leukemias, cancers of the breast, ovary, and the intestinal tract, as well as other types of cancer.

So as you can see these are some pretty harsh buggers and can make a person very sick while performing their duties. The problem is even though they kill everything and Jacy’s counts have rebounded with astounding veracity there still could be stragglers. Evil doers hiding, lining her sacred DNA, waiting to join up forming an alliance, then pouncing on her fresh new unsuspecting immune system!.

Because of these sneaky little bastards we are in Consolidation Therapy. So what is Consolidation therapy(CT) ? Well I am glad you asked, Consolidation therapy is:

Treatment that is given after cancer has disappeared following the initial therapy. Consolidation therapy (CT) is used to kill any cancer cells that may be left in the body. It may include radiation therapy, a stem cell transplant, or treatment with drugs that kill cancer cells. Also called intensification therapy and postremission therapy.

So as you can see Consolidation therapy (CT) is very important. It is the clean up crew of cancer treatment. The crew that cleans up the stadium after a ball game. The squad that ensures a scene is all clear after a major crime. The Firemen that perform salvage and overhaul after a fire. The-oh well you get the point.

Jacy’s CT consists of Cytarabine. Now one may think WHOOO HOOO, only one drug instead of 4 or 5! But let me tell you this one is just as evil as the rest. You see when taking Cytarabine you must first be medicated with pain and anti-nausea medications! Because if you aren’t, hello toilet! Watch me steer the porcelain bus! Pray to the Sloan valve gods! Kiss the tile floor!  To make matters even worse some patients will develop a fever, body rashes, red eyes, and of course exhaustion.

During treatment your doctor will test your blood on a regular basis. Not just to see if Cytarabine is wiping out any stragglers but checking your kidney and liver functions ensuring it’s not killing more than it should.

But hey whats a little vomit, itchy skin, red eyes, exhaustion  and possible kidney damage when it means you will live! Right! Am I right?images-19

Luckily enough Jacy only had a few of the symptoms and is doing remarkably well! She is going to beat cancer, we are witnessing it first hand. She is going to become stronger and live a long and happy life.

So how do they administer the CT treatment? I am so glad you have inquired!

It is done through a port placed just under your skin. Since she has to under go three-week long treatments over the next three months in the hospital, instead of placing a Picc-line (acronym for Peripherally Inserted Central Catheter) into her arm every time she comes into the hospital an out-patient surgical procedure is performed to place a small port (PowerPort) just under the skin for easy access to a vein for administering drugs. (see picture)port.illustration220px-Portkatheter_Röntgen

On Monday we arrived at the hospital at 7am for admission. Jacy’s surgery was scheduled for 11:30 and by 1:00 she was wandering back out into the lobby. Procedure finished, right side of her chest numb, black and blue and swollen. She was supposed to start chemotherapy at 3pm but by 5pm we still had no room available as the hospital was full.

Around 7:30pm a room finally opened up, we got settled and lucky for us two of Jacy’s favorite nurses where on and had been assigned to her for the evening. Watching her start the pain medications and anti-nausea drugs, we knew it was going to be a long night.  Jacy felt I should go home to be with our children, and like a good husband I did as I was told; but only because I knew she was in great hands. Kissing her good night, looking into her gleaming eyes, little did I know the hell she would go through not more than three hours later.

0800- Jacy calls me gravely voiced and sounding weak; asking if she was ok; she says no. You see the PowerPort site was so swollen and inflamed no one could make contact with the palpation points to locate the insertion site. They grabbed it manipulated it, poked at it trying to insert the PowerLoc infusion device and nothing. Now imagine 12 hours earlier someone cut open your chest in two different places, inserted a device through one opening just under the skin then fed a line down into a vein at the other insertion point, then sewed it all up and sent you on your way. Now pain meds have now worn off, it hurts like hell and people are grabbing it, pulling on it, doing everything they can to stick a needle inside of this bruised swollen section of skin! Not maliciously mind you but trying their very hardest to perform this manuever quickly because underneath this swollen, inflamed area and little plastic device lays a 146 pound woman screaming and crying in pain! Proclaiming to all that will listen this pain is worse than childbirth! (that is saying something)

Both of Jacy’s nurses were crying too as they both love my wife and the thought of her hurting was crushing them inside. One nurse refused a doctors suggestion of going straight into another vein to start the procedure because she knew Cytarabine had a high probability of collapsing the vein at insertion point. They were wonderful advocates for my wife. After four failed attempts over a few hour period, additional pain medications and a lot of prayers, one of the nurses asked Jacy if she thought she could bear one more attempt. Through gritted teeth, screams of pain and sobbing tears from all involved they got it first stick. Chemotherapy started.

The nurses all met with management to implement some changes in regards to the insertion of the PowerPort device. The Powerport device is usually inserted a few days prior to the patient receiving treatment. This allows the insertion site to recover, swelling to diminish and a healing process to develop a good strong foothold before someone pokes it with a needle. Through the dissipation of swelling the palpation points are also easier to locate. It came about that all patients with same day insertion will have the adjoining PowerLoc insertion device put into place. No more torture sessions for patients to start Chemotherapy.

Today Jacy is doing much better. First round is going very well and she feels like a prisoner trapped in a room. At least this time she wont be trapped there for 21 days.  She comes home on Saturday night or Sunday morning. She will be confined to her room until her white cell counts rise to normal levels. She will be extremely immunocompromised. She will be extremely nauseous, she will inevitably become a tad bit cranky, but she will also be one step closer to beating this disease. One step closer to returning to a normal life, one step closer to seeing her students and one step closer to placing this chapter of her life in the books.

She will have kicked cancers ass.

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