Category: Families

I dreamed a dream about a dream until I realized I had been dreaming all along.

theycallmebetty2 Comments

As a child I would lay awake at night gazing upon a ceiling of white, not knowing what darkness or light of a new day may bring. Excitement, happiness, sadness, confusion or worry were commonplace in those silent moments before slumber. This single moment of nightly reflection was a time I dreaded for I neither knew nor had the ability to process each and every thought or feeling rapidly infiltrating my developing brain. So I did my best to create an alternate reality (you know the dreaming before you actually dream) about the future and what it may hold. This was done with a gentle rocking back forth as if I was a baby clutched within my mother’s arms.

Eventually I would contort until finding I was flat on my back. My eyes cast toward the sky, head laid upon a pillow for which I would trust with my slumber until well into adulthood. Then and only then after dreaming about dreams would I drift off to sleep and eventually dream. It’s funny how things can become so very important when we are children and yet nominal as we grow older. That pillow was a lifeline to some nominal form of sanity. It was a trusted object for which I looked forward to after a long day. A moment of pure bliss as my head met its tattered misshapen form. It smelled good, it formed to my head just right and it meant that hopefully after a little blank moment or enlightened thought process the best was yet to come.

To dream

What is it to dream? We dream with eyes wide open about our futures and what they may hold. We dream about what we want to become as we grow older or where we wish to be within a certain designated time frame. We dream about that perfect human match, a soul mate who mirrors our better selves forming a solid foundation for which life and dreams can be achieved. We also dream as we sleep. The subconscious collecting data from deep within our cerebral cortex, correlating it into a one night only performance. Hyper-infusing our confidences and fears into a woven tale of wonderment, confusion or terror.

As a child I recall dreams were abundant. They would come and go, filled with mystery and wonder. Our subconscious mind working overtime filling our thoughts with the impossible, the amazing and at times the downright frightening! But as a child, I can remember the importance of dreams. How some mornings they left me mesmerized or flat out invigorated! I can remember getting dressed before school thinking today anything is possible! All from a dream that boosted my confidence or left me wondering whether or not it was in fact a dream.

During those very early years it was mostly dreams of playing baseball, swimming, learning to ride a bike, or flying! Flying like a superhero, swooping long and low over rooftops with the speed of lightening. My dreams always had a happy undertone that I was popular, or famous and life was licking my fingertips waiting for me to grab onto it and hold it tight!

Into the age of teen wonderment, nightly I would drift off with rock music playing in the background much to my parent’s dismay. My dreams consisted of cars, high school and girls. Real cars would fill my head, not the plastic ones rolling around our streets today! A 1957 Chevy or a 1966 Chevelle! Yes hardened steel and abundant horsepower!!! My 1964 Chevy truck became my world and before sleep I would dream about having the money to one day fix it up so that it would shine, making the cover of Hot Rod Magazine.

During this time I was particularly fond of writing (shocker huh?) and would pencil my dreams in the morning upon waking. I dreamed of being a writer one day, I also dreamed of being a cowboy, or a movie actor. This of course led to desk bound daydreaming where in class my thoughts would wander off and I would be dreaming about the day I would have enough courage to leave home to chase those exciting dreams. An actor, on stage or in the movies I didn’t care! Imagining myself in a full scale western movie, riding, shooting and doing my own stunts! Sometimes I would dream about being a doctor, going to school for a really long time just to prove to my parents that even though school was incredibly hard for me I was in fact smart after all.. It was certified Walter Mitty syndrome!

I never did have the guts to leave, head out on my own. Terrified of the unknown and worried about rejection along with where I would sleep or eat, those dreams became nothing more than lost hopes. I regret those decisions to this day.

Early adulthood and my dreams began to wane. Sleep becomes more of a necessity as life treats you a little harder and exhaustion gives way to reality. The reality being there is no longer time for dreaming about any future while lying in bed. Work became my outlet and I ran at times to the beat of two or three jobs at once. My cherished pillow, the one I longed for at the end of the day no longer mattered as resting my head anywhere warm and dry was more important than comfort or security. Life has picked up speed and there no longer remains time for my silly dreams.

Marriage and not long after children come, days are filled with responsibilities beyond comprehension. My thoughts range from love and pride with this life we are building as a team to worry and fear for what the future holds for us both and this family we have created. Today’s moments are about these people who are now the backbone/foundation of your life. Your dreams for the future are no longer your own but those of a collective whose agreeance is mandatory. These moments of life you will cherish forever, they will create a better and stronger you, you will achieve more than you imagined but those achievements may not be part of what you initially dreamed life would become. You will smile at how quickly life expands, grows and evolves with the continued addition of all who come into your life. I believe these years are the years which leave you with a smile upon your face when your time has come to an end on this earth. You are now following a path and new hopes and dreams will emerge, but you must not forget who YOU are and begin to allow those day dreams to come back. You need to listen to your heart and follow the right path. You long for the nights when deep sleep brings about happy dreams about life, love and family.

There for to quit dreaming is to quit living and hopefully your dreams continue on through the latter portions of your adult years. For me, life and my dreams are much different. I now dream for the thought processes of a child, returning to the innocence of adolescence with all its narrow minded wonder. My head hurts every day, my body is so tired, it’s as though I have drug a truck uphill for miles. When I lay my head down at night I no longer have a single trusted pillow, hell any pillow that is thicker than a postage stamp will do. I can no longer stare upon the ceiling to dream about any kind of future and what it may hold for sleep apnea has its evil grip upon my body. When sleep does come it is at the hands of my wife’s oxygen machine running, the sound of dogs barking, a television squawking hoping to ease my wife’s nervous mind and sheer exhaustion overtaking me while I struggle to breathe through the mask of a CPAP machine.

To dream a lovely dream would in fact be a delightful dream.

Many times I fear sleep depending on the day, the stress level over Jacy’s health or what may have transpired during a shift at work. These dreams do come and with them sometimes death, tragedy, harm and images to disturbing to mention. Often times awaking in panic or fear, drenched in sweat while ripping CPAP mask from my face! This will lead to walking the halls until I can calm down. Many times I awaken feeling as though I am having a full blown heart attack complete with chest pain, sweat and difficulty breathing! It is scary, and tiresome at the same time. Most nights I can no longer fall asleep until I know all my children are safe at home, in their beds. Sleep comes with a price as my worries surpasses any expectations of deep slumber. Listening to Jacy’s labored breathing, coughing and doing my best to stay out of her way as she tosses and turns for fear of waking her from a much needed rest. When I do get the chance to fall into a drop dead slumber my dreams lead to a land I wish not to visit and these places only lead to eventually being awake. Once there I daydream about a life once lived, a love inspired by the continual thought of a new day where my wife is healthy, happy and free from all this torment.

I wonder why life can’t be like the movies. A story with all its problems neatly wrapped up in 90 minutes. Where a young boy can dream while gazing at an arcade machine about being BIG and it happens. Or a girl dreams about running her own clothing company and she does. Or a rat believes it can be a chef in Paris and voila! He is..

What would we be without dreams?

You see things and you say why? But I dream things that never were; and say, “Why not?”

~George Bernard Shaw~

You are never too old to set another goal or to dream a new dream.

~C.S. Lewis~

Dream as if you’ll live forever, live as if you’ll die today.

~James Dean~

A dreamer is one who can only find his way by moonlight, and his punishment is that he sees the dawn before the rest of the world.

~Oscar Wilde~

And my personal favorite

A man is not old until regrets take place of dreams

~John Barrymore~

And with John Barrymore’s quote I say this.

You are born with the ability to dream and with the very same skill set you shall perish. What you do with it in between falls squarely upon you.

Whether asleep or awake, dream, dream big and never let anyone detour you from those dreams.

7 Habits of a grateful Rodeo kid

theycallmebetty4 Comments

 

parker-rodeo

 

I read an article today on being a grateful athlete in todays world.

The article was called; 7 Habits of a grateful athlete. It was authored by Brian Smith and can be found at www.athletesinaction.org

As I read through this article I found it refreshingly mirrored some of the very qualities we have been teaching our children. I then sat back and pondered what the 7 habits of a grateful rodeo kid would be? Using my own beliefs and the beliefs of many of my fellow rodeo parents, I came up with my own spin on the topic. My list holds a few similarities but also a few sport specific beliefs that many parents such as myself and my wife uphold on a daily basis.

Before we start though lets have a refresher for those who are unfamiliar with Rodeo and its concept.

So what exactly is rodeo?

Rodeo

The American English word “rodeo” is taken directly from Spanish rodeo ([roˈðe.o]), which roughly translates into English as “round up

Rodeo is a competitive sport that arose out of the working practices of cattle herding in Spain, Mexico, and later Central America, the United States, Canada, South America, Australia and New Zealand. It was based on the skills required of the working vaqueros and later, cowboys, in what today is the western United States, western Canada, and northern Mexico. Today it is a sporting event that involves horses and other livestock, designed to test the skill and speed of the cowboys and cowgirls. American style professional rodeos generally comprise the following events: tie-down roping, team roping, steer wrestling, saddle bronc riding, bareback bronc riding, bull riding and barrel racing. The events are divided into two basic categories: the rough stock events and the timed events. Depending on sanctioning organization and region, other events such as breakaway roping, goat tying, or pole bending may also be a part of some rodeos.

Many rodeo events were based on the tasks required by cattle ranching. The working cowboy developed skills to fit the needs of the terrain and climate of the American west, and there were many regional variations. The skills required to manage cattle and horses date back to the Spanish traditions of the vaquero.

Early rodeo-like affairs of the 1820s and 1830s were informal events in the western United States and northern Mexico with cowboys and vaqueros testing their work skills against one another.[9][10] Following the American Civil War, rodeo competitions emerged, with the first held in Cheyenne, Wyoming in 1872.[10] Prescott, Arizona claimed the distinction of holding the first professional rodeo, as it charged admission and awarded trophies in 1888.[11] Between 1890 and 1910, rodeos became public entertainment, sometimes combined Wild West shows featuring individuals such as Buffalo Bill Cody, Annie Oakley, and other charismatic stars.[10] By 1910, several major rodeos were established in western North America, including the Calgary Stampede, the Pendleton Round-Up, and the Cheyenne Frontier Days.

Rodeo-type events also became popular for a time in the big cities of the Eastern United States, with large venues such as Madison Square Garden playing a part in popularizing them for new crowds. There was no standardization of events for a rodeo competition until 1929, when associations began forming.

In the 1970s, rodeo saw unprecedented growth. Contestants referred to as “the new breed” brought rodeo increasing media attention. These contestants were young, often from an urban background, and chose rodeo for its athletic rewards. By 1985, one third of PRCA members had a college education and one half of the competitors had never worked on a cattle ranch.[12] Today, some professional rodeos are staged in large, air-conditioned arenas; offer large purses, and are often telecast. Many other professional rodeos are held outside, under the same conditions of heat, cold, dust or mud as were the original events.

~Wikipedia~

My wife and I have always preached being grateful as an adult and I believe that comes from a tempered or aged wisdom which allows adults to see what the youthful eye cannot. For when we are young it is very easy to become self-centered; forgetting the where, why and how of it all. Believing there is only one person in the universe that matters and that person is yourself. Parents often times inadvertently help with this self-absorption. Creating often times a very self-centered child by constantly praising their failures, awarding them for mediocre performances while never allowing them to work hard after recovering from the sting of defeat. These parents will purchase the newest greatest next everything including horses at the drop of a hat without any consideration the equipment they have is fine and the horse may not be the problem, but the child themselves. As a parent, in my opinion constantly bowing to a child whenever things don’t go their way is a set course for disaster! This often leads to a rodeo athlete who doesn’t understand just how lucky they are to be where they are, doing what they are doing, all why relying on a partner who speaks no English, knows nothing of what the game plan is other than a learned skill and has no way to say afterwards; Hey dude that wasn’t me this time it was all you! Hence ungratefulness and emotional meltdowns ensue.

I will constantly tell a child to smile while leaving the arena, no matter the outcome of a run! A simple reminder that this moment you are in was the luckiest, best thing you could have done today! Who else gets to do these amazing things on horseback in front of a cheering crowd? Who else but you and your closest friends? You have already beaten the odds by even being here! Smile! Smile big! You practiced and this time it didn’t work out, but next time it will! Just remain grateful and keep working hard.

I tell my children no matter how poorly you may have done, get up, knock the dust off and smile! People always remember the kid who gave it their all with a smile on their face! You can be mad at yourself, mad at the run, hell even mad at your horse because yes, even though I always preach look at yourself first before being angry at the horse, horses have bad days too! But take your time, wait until you are out of the arena, away from everyone else before you let any evil out of the jar!! Take a few minutes, compose yourself and remember you participated and did something most people only dream about. Hell most parents envy you a little because we can no longer compete! So you did something most people don’t get to do and your parents secretly envy you? Yeah I’d say that is pretty freaking cool!

One day coming out of the cutting pen my son reminded me of just how important my own words had become by throwing them right back into my face. I had worked hard during the winter on getting my horse just right. I strolled slowly into the herd as confident as I had ever been. I knew what cattle I wanted, my horse was supple and relaxed, Hell as far as I was concerned they should have already written the check out to me! After pulling my first cow out for a clean cut, I dropped my hand, sat back, turned out my toes and completely relaxed. This was going to be a kick ass run. In the end it was an; I got my ass kicked run. Nothing and I mean nothing went right after the second or third jump and I ended up schooling my mare. Instead of winning the round, I walked out with a zero.

As I passed through the gate, angry as hell, dejected and wanting to punch something (I am a little competitive) my son said; Great job dad! Smile! Who else gets to go out and do what you just did!

The son teaching the father. I smiled because I was in fact grateful.

With that little story here are my 7 habits of a grateful Rodeo kid

  1. Always thankful to God. We get up each morning and from the minute we pull our boots on we should be counting the many blessings put before us. Riding rough stock, training and riding horses, learning to rope, steer wrestle, goat tie and chute dog, it all takes time and skill. Thank God each and every day for the gift of life, the ability to thrive for everything you have achieved or will achieve. Thank God for the ability to fail! For failures are what eventually leads to improvement and a solid winning attitude.
  2. See’s the run in their head. You have practiced it, you have done it a million times the right way at home. Enjoy the very moment coming before you by closing your eyes and seeing yourself completing an amazing run, rope a steer perfectly, or wrestle a steer to the ground with ease. Riding bulls or Broncs? Who is your favorite rider, picture yourself making the very same ride your hero has, using the very same technique and effort! Enjoy this moment and use the power of your mind to see the perfection locked inside.
  3. Helps someone every single chance they get. Rodeo is a giant family and somewhere, someday you might need help in return. Always sharing knowledge you have gained, what you’ve seen while comparing notes you have taken. A truly grateful rodeo athlete knows that by helping others you are raising the competitive bar and that makes for a better rodeo all the way around. Be the first to congratulate another competitor when they have done well, always have an encouraging word, share a smile, a pat on the back, a high five! Your support will be returned tenfold, I promise!
  4. Always remains humble. Rodeo athletes who come across as entitled just don’t get it. They aren’t thankful, grateful and their attitude can bring about resentment and hate. Remain humble, honest and true to the values your parents gave you. Honesty, good sportsmanship, empathy and desire to be the best (best partner, contestant, coach, friend etc.) Buckles are great, money is awesome but those things should never define who YOU are. Remember you are only as good as your last run.
  5. Listens, listens, listens. You are never too good to take advice. The learning process never ends and someday when you are older you will hopefully feel the desire to pass everything you learned to another, whether it be your own children or clients. Remember to treat others the way you expect to be treated and that sometimes means to listen more and talk less..
  6. Treats ALL animals as if they were their own! You cannot compete without livestock! Don’t treat your horses, cattle and goats like a piece of machinery to be fueled, worked and thrown in a garage never to be seen until the next rodeo. Be grateful for their existence and abilities. Care for them like they were family because in some cases if you are really lucky that is exactly what they become. I have seen many of the meanest bucking bulls in the arena act like little puppies loving on their human for some ear scratching outside the arena! These animals truly love their jobs when treated right and in the end there is no greater bond than a grateful child and their horse.
  7. Continually thanking everyone that helped you along the way. Your parents, grandparents and even in some cases your brothers and sisters, they spent countless hours getting you where you needed to be when you needed to be there. Trainers, horses, cattle, ropes, saddles, tack, everything you need mom, dad and even sponsors did their best to make it happen. Nothing says you are a grateful human being like showing gratitude for the sacrifices these people all made so that you could ride into an arena, good, bad or otherwise and ride out with a smile on your face.

There you have it! How I feel our children should approach this great American sport. I know my children hear this all the time. It starts from the minute I remind them to remove their hats during the national anthem and continues until the moment they are asleep in the truck during our long ride home.

Our children should dream big! Shoot for the stars! But at the end of the day where ever they end up, these days here rodeoing with friends will be some of the best, most memorable days of their lives. Why not help by building a solid foundation that will lead them out into this world with a grateful attitude? It can only bring them success in life.

Let’s go, lets show, lets rodeo!!!

 

 

 

 

 

Wins and losses = PTSD

theycallmebetty2 Comments

fire 6

 

It is by the numbers they say, we live our lives in columns of wins and losses. Every day we, the human beings walking this gigantic greenhouse we call earth walk out the door and in the blink of an eye easily break down our existence to nothing more than wins and losses.

From the time we can understand the gibberish coming from our parent’s lips we are told to pick our battles, get along with others, speak only when spoken too, judge not lest ye be judged, and we can be anything we choose to become yet be prepared for the struggle that may lay ahead.

Every one of those tidbits of wisdom revolve around wins and losses.

It further convolutes our mental wellbeing as we grow older. For we no longer look to our parents for sage advice. These challenges be it work, relationships, sports, after hours activities, projects and dreams of our own that must be chased can all be boiled down to wins and losses! We take them on; lumps to the head, body and mind be dammed! We are adults now and can handle our own business.

We hear it all the time! WINNNING!!! Or man you are such a loser. An assumption made upon a moment, movement or emotional situation resulting in an action, deed or punishment.

Therefore our societal needs dictate we win! Nothing brings fame, fortune, happiness or simple satisfaction more than winning! When we are younger and we win at a team sport, that moment of exhilaration is breath taking, amazing, a real high produced by natural endorphins leaving us exhausted upon its retreat from our system.

But when we lose if we are truly driven individuals we strive harder for success, fighting, clawing, learning, adapting, becoming one who grows and develops into that winner or winning individual again. Why? Because we crave that sensation, we lust for that endorphin rush, we yearn to be someone or something special, not just in our own eyes or the eyes of the ones we love but in everyone’s eyes!

So no matter what we chose to do in life, thanks to the imprinting our parents and society have placed upon us (and this not a bad thing mind you, just stay with me) we are left with wins and losses, our whole life can be simplified into easily accessible columns of wins and losses.

It is what makes us as human beings strive for the very best. It is what I believe keeps us getting up every day and moving forward, no matter how difficult life can and does become.

I read a story the other day about a fire captain in southern California who took it upon himself while out driving to stop his vehicle upon a highway overpass, place the vehicle in park, walk to the security fence, scale that fence and jump to the freeway below. He met his untimely end at the front of a semi-truck. It should never have happened.

Last year according to the National Fire Protection Agency or NFPA 132 firefighters took their own lives in this great nation. One Hundred and Thirty Two firefighters woke up one morning and could no longer bear the thought of waking up another day.

We as a firefighting family are not doing a good enough job.

Those 132 human beings who sacrificed their lives for their community on a daily basis were let down by us their firefighting family. 132 lives taken, more than by injury or illness last year. Gone forever.

WE ARE LOSING

Firefighters take the wins and losses columns we are engrained with from childhood and we amplify them, placing them under a magnifying glass within our heads. Those win and loss columns mean more to us than our sports rec league basketball team, or our children’s baseball team. Winning at a football fantasy league or winning by finishing the build on your deck. Everything in life fits into these columns of success or failure and when it comes to our chosen profession they mean so much more because lives are attached within each column.

The way I see it we are failing to recognize that although we will never feel as though it is ok to lose, we do lose and we need to talk about it. We need to talk about those losses and how they affect us emotionally when we pull off the uniform. We need to quit treating these losses as if they are the elephant in the room everyone sees but no one wishes to speak about.

Imagine everyday going to work, trying hard and though you have minor wins here and there the losses over time begin to pile up. In the beginning of your career its ok, you rebound well and pretend to not keep track. But after several years those losses begin to wear you down and after a while you can no longer pretend they don’t exist. You stop waking up each morning thinking like a winner! You begin to dread that first cup of coffee where before you would grab it on the way out the door thinking today is the day for another win!

The wins are there, don’t get me wrong, but soon stopping the spread of fire through a structure quickly or rescuing a family from an overturned vehicle doesn’t equate to the loss of life you have been party too. You feel remorse for not having done the job better, or quicker because in the end people are still injured and some things just can’t be unseen! The feeling of success slowly becomes fewer and father between.

Someone once told me that each incident truly bothering me is like a rock, and I am coping by placing those rocks in an emotional back pack. The problem is no one has taught me how to unload the back pack, so I walk around with more weight than I can bear on a daily basis and someday it will be so heavy the thought of just giving up, no longer wishing to carry this backpack will enter my mind.

We wear the wins on the outside, we carry the losses in our backpack. We are no longer well balanced and what we carry around is just our work, let alone what we load onto ourselves from our personal home life. Like a rat in an unwinnable maze we become emotionally trapped.

The faces from our past begins haunting us, showing up at incidents, during our family time, holidays and worst of all in our sleep, our dreams. We transfer guilt and blame, death and loss onto those we love and we hate ourselves for every minute our psyche allows participation in this pointless mental interaction.

This Christmas when you are with family and friends look around, is there a firefighter, police officer or emergency medical worker with you? Talk with them, show them love, let them know how very grateful you are to have them in your life. They may not be reeling from stagnation within the wins and losses column, their back pack may not be full, but if they have been doing any of these glorious jobs for any amount of time they might not yet recognize its ramifications. They only need an ear, an ability to tell a story, and be allowed to feel everything is ok.

If one of these people you know shows any signs of depression, withdrawal or strange behavior, don’t be afraid to lend a hand. Don’t be afraid to tell them you love them and find the assistance they need. Be that pillar of strength they are looking for.

I don’t have all the answers, but I know this; on this Christmas Eve 2016 it is all I can think about. That somewhere out there a person such as myself is wondering if another is ok. If they need help, and is there anything that can be done to help them. We can’t keep losing, we can’t keep feeling as though we are losing and we can no longer turn a blind eye to Post Traumatic Stress Disorder in the emergency services field.

1 firefighter lost is one to many, 132 is simply unacceptable! I don’t have the numbers for Police or Emergency Services (ER rooms, Ambulances) but we are one large family. Let’s work hard to make 2017 the breakout year for PTSD acceptance. Build programs so our own can reach out to help our own who are struggling.

No firefighter should feel as though the only option they have is to scale a fence and jump. Leaving behind everything they ever loved, everything that fell into the win column on a daily basis.

Be thankful for what you have, for who you love and for who loves you in return. Merry Christmas and a very happy New Year..

Betty….

If you sense someone is in trouble:

Call 911

The National Suicide Prevention Line: 1-800-273-8255

Contact the 10-33 foundation for more information

www.1033foundation.org

Betty’s AKA:

Fire Engineer James Franceschi

22 years of service to the citizens of Dixon California

 

 

 

Nana, nana, boo, boo, You hate me and I hate you! Now vote one of us in as President!

theycallmebetty3 Comments

I promised I wasn’t going to do it! I swore to heavens and earth above I wouldn’t bite! There was in no way, no how going to be anything spewing forth publicly from this miniscule opinion generating brain. My voice doesn’t matter, my thoughts don’t count, I am but a spec upon this island for no one but time, and sun to erode.

And then we watched the Presidential debates, together, as a family.

Betty has been very quiet, nothing to report on the home front and no great stories to share. But this is too great and it involves family which is what my blog is solely about! Now being an aforementioned on occasion very opinionated individual, there has been thankfully an edge removed by years of experiences and of course age. So before I ramble further into this dissertation let me profess my utmost admiration to those who are so passionate about their political affiliations. So driven, and fueled by a belief system that they would die upon the cross of either blue or red before ever, and I mean ever wavering from the platform for which they stand upon.

I can no longer possess those feelings.

Call it age, temperance, wisdom, having lived 5 generations or personally been a part of 5 elected US Presidents. The thought of voting even today is something not taken for granted, although this year I have slacked and been running a “vote for none of the above” or “vote for me” satirical campaign. It has been purely for fun! Yet voting is one of the most important benefits of living in a free society. The very passion these individuals drive onward with in regards to their personal political affiliation has become the angriest, most overrated and vile show of blinder wearing, eyes covered, ears deafened allegiance I have ever witnessed. If there was ever a time in history when thousands of Americans felt more powerless, as if their vote didn’t count after witnessing through TV, social media and every news or supposed news outlet on the planet this anger, bullying, and condescending political climate thrust upon us every day citizens. It is right now!

Thus we get to the gist of family and why I am expounding away my political angst.

We as a family have watched this circus together as we would for any political process. Doing our very best in explaining to our children how important it is for us to vote in a candidate that best represents us, not the American people, but us! As in their mother and I, as in who my oldest best feels follows his beliefs and how he feels the country should be run. We have tried hard to instill values within our children in regards to hard work equals reward, to always step up and do the right thing, that cheaters never prosper, and as long as you keep honesty in your heart while standing by your convictions you will never fail.

So then how on earth do these two candidates measure up?

One son believes they are both crooked idiots who have no business running this country, the other likes the Donald with no plausible explanation, my daughter isn’t so sure of either but as she put it; between the two I would always vote for the girl and my youngest just looks up funny parodies of both candidates on You tube!

Much like each of the moderators during this debate season it has been a challenge trying to keep not only ourselves but our kids focused on facts and or issues. Never in my life do I remember a series of debates or a presidential run that boiled down to nothing more than supposed political experts arguing over idiotic soundbites, clips, and excerpts of such magnitude! Watching these post-debate bobble heads rattle on with such one sided rhetoric and overwhelming disdain is hard to process as an adult, let alone trying to find some gem of truth or knowledge to help one make an INFORMED (key word) decision or translate any usable information to four children sitting mouth aghast at the verbal carnage they have just witnessed.

One candidate has multiple investigations against them, truths, possible untruths, alleged voter fraud, and supposedly placing in house personnel to incite violence at rallies of their opponent! Of course there is also claims of mishandling money, policies and overseas affairs including military actions. Standing tall this person professes the importance of woman’s rights, protecting women, and highlighting what an example she will set for all women to come while hiding behind a history of allowing then covering up her husband’s multiple infidelities while intimidating those who may oppose her. A candidate with more political experience than many others, a history of also making positive changes not just here in America but around the globe through humanitarian efforts both her and her husband chair. Oh a certain opponent claims Haiti hates this couple but having served in Haiti over two summers I personally know the Haitian people love this family and appreciate all they have provided. She remains someone who by all rights is the single most powerful woman in America and that does not come from portraying oneself as a soft loving Ms. Cleaver type much to the chagrin of several male counterparts! To be a woman of power in today’s tough highly charged political arena I believe one must be much tougher than their male adversaries (which is a sad state of equality), making tough decisions and then standing by them! But it is hard to stand for something by being against something only to stand for it again when the political climate suits you! Another point lost on me during this whole process. It seems we as a society have forgotten it is ok to change one’s mind! It is how we grow as human beings, evolve. But to change it back and forth shows no growth, but weakness to appease a person or group for which you are surrounded. One must also be able to hold their head high and admit when a mistake has or was made, along with answering for any actions or charges if that is what’s owed of that mistake. What message do we send our youth when time and again a political subject continually circumvents the system to their own benefit! Using wealth and power to purchase themselves from a punishment any of us average citizens would be crucified over. You the candidate are by the people, of the people and for the people! So you should answer to the people! Not profess you forgot or just don’t recall!

This candidates responses during each of the debates were well rehearsed, well formulated, with impeccable timing and delivery. They made us feel all warm and fuzzy like a blanket on a cold winter’s night. Protecting. They were so well done, that no one in my house, not even my youngest believed her. Through the eyes of a child I suppose. But when a child listens, looks and proclaims you seem to be lying, you may very well be doing just that, for that declaration comes through the eyes of innocence.

What to do, what to do!

Oh yes, there is the OTHER candidate!

This man, oh lord where to begin? He comes across as a school yard bully, the type that never had anyone punch them right in the nose! Something we as a society have gotten away from with our belief that all violence is bad. I am sorry, but some of the best lessons I ever learned about reading people came in the school yard. Learning when and where to say something and just how far you could push an agenda. This of course came to conclusion at the end of a well-placed fist! Sometimes people just need their reset button tripped! No one has ever tripped his! He says what he wants, when he wants and doesn’t give two shits who is at the receiving end! Although many believe this is what we need in the White House, my personal belief and history says not so. Even the toughest of talking former presidents had tact, he does not. What this man does is not admirable, it’s not awe inspiring, it makes no headway with any one; it is careless, reckless and not Presidential at all. This old saying pops into my head when I think about the power this office holds and what it means to be President of these United States.

Be nice, be nice some more, be as nice as you can be until it is time to no longer be nice. Then make no mistake about your ability to act or incite a change. The smartest person in the room is the one who gets their opponent to thank them for the beating when it is over. Those who stand tall with honor and dignity stand fast.

There is no honor, there is no dignity, and this appears as nothing more than a sideshow playtime for this individual. Another season of a reality show for which he is the star; another episode of the Apprentice! Because in reality that is what he is right now!!! An apprentice to the highest office in our land! He only cares about ratings and tweets! We were all talking about him acting like a child during the debate with such strong retorts as: No you’re a puppet! No you are! You are a puppet! Wrong! Wrong! Wrong! Why not finish it off with; I know you are but what am I? I’m like oil and you’re like glue, words slip off me and stick to you! ARRRRGGGGGG!!!!

I will say this; this is a business man, not a politician. Both a positive and a curse. He has built something from nothing. I don’t care where he got his loan from to start his business, and even our children were smart enough to understand some of the counter arguments against him fall flat. For as a businessman your loan could be $5000.00 or $5,000000.00 dollars it doesn’t matter, you need to succeed, you must succeed and you are going to take advantage of every loop hole and tax law afforded you to succeed! You are going to outsource to make a profit and there are going to be people you employ who are going to either love you or hate your dam guts! It is the nature of the beast! He has made something from nothing, he has succeeded, you can clamor all you want about bankruptcy, loans, unpaid debt but in the end he has succeeded several times over and I believe our country does need someone like that in a position of power. A person to renegotiate some very bad deals made in the past, someone with the ability to negotiate future upcoming deals or propositions that put our country on the edge both financially and humanitarianly. But for the love of all that is holy, have a plan! Share that plan, all of your plan not just bits and pieces in soundbites or on your web site; and again, much like your counterpart, quit pandering to the middle class! You have no idea what being middle class is like so don’t act like you recognize our strife! Because you both don’t! Please give us something with meat, not just really good quotes, teasing those who refuse to do their homework into believing you are the coming savior! You and you alone are going to ride in on a white unicorn farting skittles rainbows righting all that is wrong! You are not the messiah of financial resurgence within our low income and middle classes; because if you Mr. Candidate truly believe that you are; then Mr. Candidate you haven’t done your homework! The middle class have carried the burden of this country for a very long time and one proposed future president with a few ideas is not going to change that or even make life a little better for us over night as you make it appear!!! We have heard this speech, our parents have heard this speech and none of us are buying it! Explaining to my children while trying my best to read between this candidates lines has been nightmarish to say the least.

So what do we do? No one in my family and that includes those who cannot vote believe either candidate is worthy of this office. Friends and family who are undecided such as ourselves also toss about a resounding vote for the least of two evils.

The problem with that assumption is I can’t bring myself to vote for the lessor! I am trying to teach our children to stand by their convictions, don’t vote for something because you have too! Don’t give up your ethics, or moral beliefs to fill someone else’s needs! Be your own person! Your say matters and if your say is none of the above then so be it! If enough people speak up and scream none of the above then our government needs to listen! Right? A resounding NO means end of story!

Or is it!

You know that pesky little thing us Americans refer to as our Constitution? You know that long, wordy piece of parchment by which our entire country was built upon! Well the U.S. Constitution has something to say about that! As I explained to our children a very, very long time ago there was this group of really old guys who enjoyed wearing wigs (that always gets a chuckle) and besides dressing in funny outfits while donning said wigs they had one thing on their mind. Our country. Our countries ability to evolve over time, grow and become one land run by free thinking men, men with vision, men who understood oppression and the ramifications of leadership built upon power, money and over taxation. These visions involving the ultimate freedom of man empowered them through hard work and an ability to form a constituency that kept those beliefs while moving our country forward.

Hence the 12th amendment.

The 12th Amendment replaced a procedure provided in Article ll, section 1, Clause 3 by which the Electoral College functioned. Problems with the original procedure arose in the elections of 1796 and 1800. The Twelfth Amendment refined this process whereby a President and Vice President are elected by the Electoral College. The Amendment was proposed by Congress on December 9, 1803 and ratified by the requisite three-fourth majority on June 15, 1804 and reads as such;

The Electors shall meet in their respective states, and vote by ballot for President and Vice-President, one of whom, at least, shall not be an inhabitant of the same state with themselves; they shall name in their ballots the person voted for as President, and in distinct ballots the person voted for as Vice-President, and they shall make distinct lists of all persons voted for as President, and all persons voted for as Vice-President and of the number of votes for each, which lists they shall sign and certify, and transmit sealed to the seat of the government of the United States, directed to the President of the Senate.

The President of the Senate shall, in the presence of the Senate and House of Representatives, open all the certificates and the votes shall then be counted.

The person having the greatest Number of votes for President, shall be the President, if such number be a majority of the whole number of Electors appointed; and if no person have such majority, then from the persons having the highest numbers not exceeding three on the list of those voted for as President, the House of Representatives shall choose immediately, by ballot, the President. But in choosing the President, the votes shall be taken by states, the representation from each state having one vote; a quorum for this purpose shall consist of a member or members from two-thirds of the states, and a majority of all the states shall be necessary to a choice. And if the House of Representatives shall not choose a President whenever the right of choice shall devolve upon them, before the fourth day of March next following, then the Vice-President shall act as President, as in the case of the death or other constitutional disability of the President.

 

The person having the greatest number of votes as Vice-President, shall be the Vice-President, if such number be a majority of the whole number of Electors appointed, and if no person have a majority, then from the two highest numbers on the list, the Senate shall choose the Vice-President; a quorum for the purpose shall consist of two-thirds of the whole number of Senators, and a majority of the whole number shall be necessary to a choice. But no person constitutionally ineligible to the office of President shall be eligible to that of Vice-President of the United States.

So yes; Hate both candidates all you like, in the end either The House of Representatives will vote one of them into office for you, or the Vice President with the most votes cast will assume office.

With that being said; explaining to our children the importance of our voting process has just become more of a priority than I envisioned. The Electoral College rules the day. In reality WE the people voted for everyone who currently sits in government positions, WE the people chose who WE believe best represents us from the local county commission to a state senate seat. So WE have no one but ourselves to blame if those individuals have now placed these two amazingly entertaining human beings before us. Our votes really do matter, no matter what anyone tells you, though it is unfortunate the majority have come to believe the smaller offices don’t mean as much in the grand scheme of things, and therefore our President and Vice President are all we should really care about when elections come around.

In the end, three years of multiple people pandering for your support, two individuals chosen to represent the two major parties, three debates between those two to hopefully enlighten us, and three chances for us to take off the party aligned blinders so we may look, listen and hear, I mean actually hear what these two are proposing. Three perfectly good chances to exemplify, show our children the majesty that is the electoral process. Hoping in the end they walk away feeling the importance and honor it is to have an opportunity for casting a vote in this wonderful country or ours. Something so many take for granted, including the political thumping die hard party liners. We are blessed to live in a land filled with human beings from around the world searching for freedom, hope and a chance for a better life much as our great grandfathers did many years ago.

Instead, on this evening, the last evening of debate all we walked away with was nana nana boo boo you hate me and I hate you! Yup, that pathetic. Along with four teenage jaws, wide open on the ground at witnessing another deplorable example of our modern day ratings centered, hatred mongering, no class future filled with dishonesty, lack of trust, and all out discord while proving if you bend the rules hard enough, or say enough nasty things about your opponent you too may one day become President of these United States.

God help us all..

 

 

 

 

 

In the rodeo arena; from my point of view.

theycallmebetty2 Comments

I read a story today. (I know shocking right) This story was in regards to ethical behavior, sportsman like conduct and the fine art of propping your competitors up instead of tearing them down in and around an arena. It was a great read focusing on industry and personal growth through teamwork, leadership and mentoring. Although its main reference was rodeo or equestrian sports its message can easily be applied to any discipline.

It also got me to thinking.

Our children learn how to behave early on by emulating us, their parents. As they grow and expand, their brains began telling them to separate from mom and dad, create their own identity and show the world an individualistic side. Yet at the end of the day you, your spouse or significant other have created the very foundation for which they stand upon.

In saying this I have taken note on each one of my children and how completely different they all have become. With differing skill sets, likes and dislikes, mannerism and of course beliefs. Yet underneath it all their mom and I expect them to carry on the very values for which we have instilled. They may shape those values, build upon them, add or subtract certain aspects but at the end of the day there had better be some basics that never wain otherwise I feel we as parents have failed.

Today after reading this story titled: 6 reasons to ignore arena chatter. Found on a FB page named Earn Your Spurs, it also became clear to me that I care about your children as well. I may not know them, but I care about them as only a parent can.

Every rodeo you can find me somewhere around the arena. Whether helping at the stripping chutes, manning a gate, working turn back for the cutting, announcing in the small arena or just being there for our kids and their friends behind the bucking chutes. You will undoubtedly find me with a smile on my face and a kind word of encouragement for your kid, my kid, their kid, hell any kid. I don’t need to know you, I don’t need to personally know your kid, and it is just something I have always done for as long as I can remember. Baseball, swimming, soccer, school events, you name it, I can’t keep my mouth shut.

I used to think I enjoyed working the events because I hate sitting still ( I really do hate sitting still!!!) or because as parents we need to put our time in; events don’t run themselves and it takes a small army to put one of these rodeos on! But I was wrong. I enjoy doing all these things because I believe what these kids are doing is amazing! No matter the sport or dedication, and although for this articles reference my point is centered on rodeo, it makes no difference. To have the guts and heart as a child to participate in these activities we put in front of them, to overcome fear and just participate, well that’s amazing in itself. Yet in this instance from the beginner to the seasoned senior, this sport, this way of life, takes drive, dedication and heart. It is not just you and a ball, or a bat or a pair of pads. It is you and a horse, steer or a bull! A 200-1500 pound animal who at any time can either have the best or worst day possible. It takes dedication away from the arena and the power of a positive attitude to even begin dreaming about winning! It takes an even stronger positive attitude to brush off a loss or mistake and move onto the next event ready to accept any challenge with confidence! But what makes this sport even better is knowing there is a wall of support behind you! That’s right everyone and I mean EVERYONE has your back! Your friends, your parents, and your fellow competitors! These are the people you will rodeo with your whole life, and if you are lucky one day you will meet back here at these hallowed rodeo grounds as parents to foster the next generation of athletes! What an amazing honor!

And that’s what it is for me! It is an honor as a parent to be able to participate in these jobs. To work with other dedicated parents! To be by your or my own child’s side with a positive attitude and some kind words whether they nailed it or messed up big time! It is a privilege to catch their horse, pat them on the back, help them shrug off an awful run and even remind them from time to time that in most cases they need to check themselves before becoming angry with their horse. It is our job as parents to nurture that next generation, teach them that winning at all costs is not fulfilling! Winning comes from hard work and drive, fulfillment comes after giving back and if you are lucky as a competitor you will experience both! If we as adults show this attitude then teach our children correctly, we can stand back and watch with pride as it trickles down or is payed forward.

Having our children give or share knowledge with the new kids on the block is the key to success! Never excluding, but always including them into the imaginary “inner” circle. Showing these scared young new kids they a part of something big! Then sharing their secrets on how to succeed, better themselves, maybe ride their horses a little better, come out of that chute centered and solid, or drop into the pocket quicker and smoother or simply offering to practice on one of their own tie down dummies. Giving back at its best!

When you see this happening, it should be fostered. We are a team. Even though these kids are competing against each other, they should always be propping each other up, cheering each other on and never looking down upon another competitor in our arena. Because in reality if we are all working together, (parents as well) we all win! The goal each and every year is to bring our best to state, then front load the National team with as many of our districts kids as possible! That can only be achieved if we take an as a team attitude right here, right now! Not after the season is over, and we are headed to state and definitely not after state is over, because by then the ability to recognize the importance of supporting one another or our “team” is long lost. If that is the case then we as parents, and our children as competitors will head out into the ring of competition with an “it’s all about me” attitude. It’s hard to compete feeling alone, it’s even harder when you are alone. And for a child, nothing is more devastating than learning the people who supposedly had your back are now tearing you down (parents included) from behind you.

So this year, we should all take a moment to say; good job! Tell a kid they did great, doesn’t matter whose kid it is, let your kids see you propping up others. Re-enforce the amazing benefits of being a team player, a mentor or coach to your children. Remind them they started at the bottom once too and point them towards a new kid to the show. Parents make a point of meeting other parents, new parents and help them along the way. A friendly face and helping hand builds trust. Trust builds confidence and confidence breeds winners.

And the way I see it from my point of view that is what we should all be remembered for.

Not just winning an event, but winning at life….

 

Let’s go, let’s show, let’s rodeo.

theycallmebetty3 Comments

Red was loaded down. The old truck held every conceivable piece of equipment one needed for a successful weekend. Saddles, bits, hay, shavings, chairs, clothes, food and one 33 foot long trailer. Three horses tucked neatly together separated by aluminum dividers munched on hay pressed into a bag that hung directly before their faces.

As we pulled out of the driveway the truck sputtered a few times, we even had to shut it off once or twice to reset the computer so she would keep dragging this heavy load. But no one cared. Any other weekend old reds antics would bring a look of nervousness upon our faces, an eye roll or two that this 208,000 mile beast was acting up again. But on this day we carried a bit more weight, and with that weight came a feeling of ease. Like we couldn’t do any wrong. I have to admit, even my feelings about whether we would make it or not waned.

For in the back seat, smiling from ear to ear, nestled between her two smallest children with a bag of needed supplies at her feet was Ms. Jacy!

Ms. Jacy had decided after two years of missing out on rodeo, not being a part of her children’s lives, unable to laugh and have fun in camp at night with all our friends, she was going to this rodeo hell or high water! No cancer, no leukemia, no AML, no bone marrow transplant, no GvHD, no nothing!! And so after carefully packing her bags, loading supplies into the trailer, GO, is exactly what she did!

There were plenty of worries/fears to go around. What if it is too dusty for her lungs to handle? What if she has an issue with her breathing? What if she becomes so fatigued she can’t move? What if she develops an infection from being around the animals??? What if, what if, what if?????

What if she was never able to personally witness the joys of her children participating in the one activity they really love ever again? Yeah, we believe that one thought outweighed all the other “what ifs”.

In reality, Ms. Jacy has been getting stronger. Her lungs still don’t want to fully co-operate, and neither does her body, but she has taken the stance of what doesn’t kill me should make me stronger! With that stance also comes a belief that she can look at life two ways.

  1. Sit in the house all day waiting for things to change, hoping they change, praying they change then regretting having done nothing but wait.
  2. Muscle through the pain, the discomfort and focus on what’s important. Living life, any life no matter what that life holds because in the end you can sit and watch it go by or jump on board and ride the wave!

Now as her husband I cannot lie, she worries me constantly. But if you know my wife then you know there is nothing, and I mean NOTHING anyone can say or do to change her stubborn Cuban mind once it is set!

So with that being said, she came along, which is exactly what we all wanted and it was a fabulous weekend! She was so happy to see her close friends, to watch her children perform, their children perform and to just be a part of life again! It was tough at times, by mid to late afternoon her feet would swell, she would be exhausted, but the kids were great, her friends were fantastic, and she never, not even once felt like a burden to anyone!

At one point during the rodeo we came back to find a poster on the side of our trailer! It was created by all the kids and it told of just how much she was missed and loved. It melted her heart.

Each morning she awoke with a smile, ready to watch rodeo, participate in any way possible, drink coffee, take pictures and catch up with people she hadn’t seen in years. It was the very best therapy anyone could have asked for!

The kids all did great! It was the best first rodeo I can remember in a long time! Oh Jessica struggled with her new horse and at one point actually fell off (of course she laughed at herself), Jake had a great Saturday but a stubborn Sunday and Parker didn’t quite get his steer wrestled, but it was a weekend filled with laughter and plenty of smiles.

Sunday night the traveling circus rolled back onto the ranch. Old red made it without a single hiccup which I found unusual. But as we cleared the front gate and rolled towards the barn, there lay three people, all half asleep, all exhausted from the weekend, all with looks of contentment upon their faces. (Jess rode home with friends) It was a thing of beauty.

Now of course this was short lived for as soon as I parked they all abandoned me to unload everything as if I was somehow their personal servant or barn boy which of course sent me into another stratosphere!!! But I digress…. Deep breath…. Phew…. Ok….

The point being, for a weekend, our family was back together, doing what we love, with momma in the stands cheering them on, sending them momma powers, and good mom mojo while I worked the arena, helped get horses ready and coached them along. It was the way it was supposed to be at that very moment in time. A step closer, as if life was almost back to normal.

It was a perfect weekend.

 

 

 

My name is Betty and I have an addiction..

theycallmebetty2 Comments

Sitting in the stands watching junior rodeo today I couldn’t help but continually pull my phone from the upper left pocket of my shirt. Now this doesn’t seem like much of a “to do” as it were but as I kept referencing the electronic brain keeper between events it occurred to me I might just have somewhat of a problem. Not a dang it’s not working fast enough or shoot I left the sprinklers on or even an oops my wife texted me I forgot to call her type of a problem. But something much bigger than that! I believe I have an addiction?

Yep an addiction to instant gratification of flowing information spewing forth from this 2×4 inch screen! Every minute I am not moving this “apple” of a device comes out to fill an imagined or ill perceived void within my life! Seriously while I am typing right now my gaze continues to wander over towards this mesmerizing gismo as if it’s going to leave me, run away! You know self-destruct in Mission Impossible grandeur or heaven forbid its screen will just stay black, never to illuminate my life again with such mind bending information like what the hell Ryan Lochte is doing at this very moment or if a cage match has been declared between the two most unfit individuals to ever run a presidential campaign! Better yet I wonder who is posting something awesome on Facebook the “real” reality on the internet! Wait, ok that’s not a bad thing, I really like keeping up with all my friends. Until FB there were lots of people I cared about but lost touch with so the good intent or reason it was created side of FB still keeps a thumbs up from me! But with all of this power to reach out into our world instantaneously at my fingertips (once again I am not saying it is a complete bad thing) I also realized there is a bigger problem than my addiction to reading about Joe from Tennessee’s disgusting racism or Cheryl’s equally disgusting reverse racism or Brock the rapists light sentence (asshole) while along with all the inequalities, injustices and hatred pounding our senses every day making us wonder if we are headed towards anarchy and civil war (which is exactly what every other country hopes for) or if we can pull our heads out of are arses and get things together with love and understanding! Yes people there is a larger problem for me the newly crazed information junkie!!!

You see this open age of rapid fire information has changed my ability to read, absorb and understand! Ok I know that’s not worse than the direction our country is headed but hey, I needed a buildup so cut me some slack!

Yep, information today is fast and spun so well; but with whatever source it comes from who knows if it’s true or not and in reality I don’t think people really care! The way I read through stuff now is more like an Evelyn Wood reading dynamics course (only us older folks will understand that reference) than with retainable substance. If you don’t get me hooked within the first couple of lines well this magic device will find someone or something that will! Hence the ability to feed our minds with miss-information is formed. Don’t think for a second the story writing internet gurus don’t know this! Through careful data collection they have determined sensationalism earns clicks, clicks equal views and views equal a chance for an advertiser to be seen which in turn creates well spent advertising dollars funding the source or writer! The best part is these stories don’t have to be accurate or even good, and judging from the atrocious grammar contained within them it is obvious no one cares. But the damage done is there for all to see! When I read anything now I no longer settle in, gaining traction on whatever the author is describing; no absorbing relevant information or deducing a hypothesis from a well written piece. Nope, my brain begins to rapid fire after the second paragraph, I may stick it out through a couple more paragraphs but you better get to the point and quick or I begin scanning ahead, looking for key words to help me extrapolate what the author is “really” saying because let’s face it there is a hidden agenda in every written internet piece right? I mean that’s what all the commenting, shit stirring trolls who have anything to say about anything on any posting want you to believe while they are throwing emotional grenades in all directions just waiting for the explosion creating more hatred and discontent!

Also don’t get me started on what it has done for my ability to simply relax and enjoy a novel. My brain can no longer sit that long, moving slowly from page to page, waiting for a story to build, characters to develop, a plot to thicken as it were! Nope I might as well read just enough to learn who the characters are and then jump to the back of the book! There novel finished, case closed, I wonder what’s happening in the real world! Great job James Patterson killed your latest work in 42 pages! Don’t really care about the other 326! I Googled a review of the book helping me to plug in the missing clues. Cue me picking up my phone and OH LOOK IT’S A BABY IN A SKUNK COSTUME CRAWLING ON THE FLOOR FREAKING PEOPLE OUT!!!!! AWWWWWWW ISNT THAT CUTE! I MUST SHARE!!! Wait someone has commented it is child abuse, another has commented the child is suffering under the weight of that heavy costume and the parents should be arrested! Oh look a third says its Obamas fault! Yay!!!! Instantaneous gratification of idiot proportion right here at my fingertips!!! Ahhhh the world is right again, just as fucked up as when I put down my phone to try and read this stupid novel! Thank god that 15 minutes of my life I’ll never get back is over and I am on to more web surfing! My daily fix is in.

Now this is all happening to me; a 50 year old fairly educated, well-spoken adult who has no problems saying it like it is while being in command of his personal abilities to say yes or no to anything. Time and life experiences have brought me to this point. As an adult yourself I am sure you could probably draw the very same conclusion? Because you’re a smart, witty, thoughtful, educated, filled with life experiences person with the ability to put down that phone, turn off that pad or laptop at any time. Right?

So let me ask you this.

If a phone, pad or laptop with such far reaching potential and the power to change my personal ability to read, disseminate information, come to conclusions, and not just any conclusion but well education conclusions can change the way I learn and retain information, warp my sensibility, and control the extent of my emotions all while allowing me the freedom to say what I want when I want to anyone within the world wide web’s reach without repercussion can do this to me as an adult.

What do you think it is doing to our children?

Put it down, I dare you. Leave it down for the day, two days, a week! I dare you! I double dog dare you!!!

You can’t! Neither can I! We are addicted! Our children are addicted too and it is rewriting the hardwiring program witin their brains! I see it in our youth with emotional outbursts if juniors pad is taken away or it’s nowhere to be found. An inability to work our way through problems of any kind because the answer is on another web page or the YouTube channel! Kids becoming completely disorganized and afraid of trying anything away from their computer devices. I have heard stories of children in their rooms at almost midnight still scanning the internet with eyes either wide open and bloodshot or passed out with an iridescent glow upon their faces.

Teenager’s necks straining downward looking at their phones while walking, riding bikes recklessly, or sitting in their cars. A world of wonder passing them by all why they laugh at an instagramapictuetubeasnapchatamoment. They have no idea where they are when traveling with family because they are focused on their phones and can’t go a minute without texting someone, anyone, about anything. They are continually afraid they are missing some magic social moment, a minute shared between friends while moving blindly through life. Once I heard a story about a child’s phone that was broken and she had no device for a few weeks. According to a friend she was a different child, she was the daughter they had before biting into the apple.

Does any of this sound like addictive personality traits to you?

It is, I recognize it as an adult. I worry about what all of this is doing to our children and I worry what is to become of our country as we continue let the “benefits” of an electronic age rule our very lives.. The dumbing down of a society, the dependence on electronics, an inability to think for ourselves and the desensitizing of our youth. What about us adults? As we become more dependent what is it doing to our abilities to interact with others? We have a shield for our hatred, a hiding place for our sorrows and slowly our abilities to interact with each other are fading too as we sit together but rest alone, everyone focused on our individual portals to the world, ignoring what is right in front of our face. Other human beings.

I am no different, I am not preaching, I am simply stating what appears to me as fact.

My name is Betty and I have an addiction…

 

I can’t…

theycallmebetty7 Comments

This morning I sat down, stared at the screen and thought; it has been awhile, I need to write. Hmm? What will I write about today? Maybe something funny, or pertaining to recently turning 50? I certainly do not wish to write anything sad. After reading a few of my last postings, I found my writings to be a tad whiney, or heavy. People certainly must be tired of the same old story.

Then as paragraph after paragraph littered the screen only to be erased by the mighty stroke of a delete button it came to pass I was trying too hard. So I asked myself; Self, why haven’t you written in a while?

And that’s where this posting truly began.

Betty, why haven’t you been writing?

The answer comes from a conversation openly held in the day room of a busy firehouse. Sitting in my recliner listening to others and their crazy busy lives. Camping trips, play dates with friends for themselves and their children. Fantastic vacations or simple evenings at home surrounded by family. Listening to life moving on as it should.

What was my answer?

Because I can’t…

Every time I think about writing lately, I stare at the screen and from the darkest bowels of my inner thinking machine a voice rises above all conscious thought and whispers; you can’t.

Getting up in the morning is a struggle. Oh I received 6-8 hours of sleep, yet the moment I must rise a fight with my inner voice arises. I can’t is all I hear. I may wander over to ensure the kids are up but then against my old daily routine I just climb back into bed, pull the covers over my head and pretend I’m not there because inside I just can’t see myself doing another day. I get over it and most days turn out pretty good after running into some of my favorite parents, co-workers and friends. But it is becoming an increasingly difficult struggle to get past step one of the day.

There is a mile long list of repairs and maintenance around our house. I wrote the list, and continually add to the list, yet I cannot seem to accomplish the list. I may get one or two of the easy things done, but then I panic, feel sick, and want to sit down near Jacy and veg-out. Excuses like needing to pick up the kids in an hour or man I am really tired all come to the forefront. But in the end, I just can’t seem to see myself getting anything done. I am sure it is no different with any other busy father, but for some reason that feeling is more burdensome than ever before.

Ever cry at sappy movies? Apparently the water works now turn on for just about anything! Ok watching the SPCA commercial where Sara McLaughlin is singing while sad eyed, unadoptable, abused animals are trapped at the shelter doesn’t count. You have to be pretty heartless to not squeeze a little water out of those orbital areas of yours after watching puppies cry. I found myself tearing up explaining a reality show the other day where the daughter of the contestant showed up to tell him he won! Kids doing well on Americas got talent, winning a round of American Ninja Warrior, or watching the friend’s episode where Ross and Rachel finally kiss!! Yep they all bring on the rain! WTF???? Hell Tommy Boy was on the other day and I was crying at the passing of Big Tom Callahan!!! I just can’t keep crying at everything it is wearing me out!

My fuse is much shorter and I can’t seem to control it or keep that Irish/Italian temper from rearing its ugly head. Poor Jake has been bearing the brunt lately. Now some of it rightly deserved but in hind sight more than a few times have gone over the line with things said that cannot be taken back. He always smiles at my apologies and says it ok he forgives me but all I can think about is deep inside I am probably hurting him, hurting his ability to grow and handle stressful situations. I am afraid one day I’ll snap over something stupid and he will have had enough. Irreversible damage complete. Then what? Oh well I can’t seem to wrap my mind around the parental complexities of this issue right now because I will start crying again and no one needs to see that here at work.

Everything seems impossible. From completing my monthly budget, paying bills, changing a light bulb or even just being something, anything. It all seems too much right now.

As I am writing this I just realized my heart rate has doubled. I figure it’s my fight or flight response to even mentioning any of this in combination with feelings trapped inside that I can neither recognize nor willingly let out.

I keep using the analogy that I am a bottle filling with sand. Burdensome, gritty, heavy sand. This sand has reached the top and either I am able to upset the bottle, pouring out this heavy, gritty, burdensome property carefully into a container of contentment or it will overflow, and we all know what happens when sand pours upon us against our will. We end up carrying it home, it’s stuck in the crack of our ass and it takes a month of vacuuming to get it out of the car!

Our life has been incredibly hard. It remains that way. Watching my wife suffer daily is taking a toll on me. Of course I have no right to complain in comparison to the toll it is taking on her. It has been a long, long road.

Jacy has had several hospital stays of late. The other day they put a port back in to help with her current treatment which feels like a giant set back. The steroids have doubled the size of her face and left her weaker than normal. The other day while at a friend’s house doing her very best to live life as normal as possible she fell. Yep, a simple walk down a 10 yard path from patio to arena and her legs just quit! She ended up with a bloody, black and blue eye as her sunglasses tore open the fragile flesh under her eye. She feels consistent insult to injury on a daily basis.

My wife has decided to live life, to go to rodeos, make trips to the store, and do her best to become the mom that she was pre-BMT. She doesn’t have the energy or the strength, but she does have the resiliency or ballsy moxie to do exactly what she wants, family or doctors be damned! I admire her on many levels. I do my best to let her accomplish what she wishes within reason, while at the same time worrying if she is doing more harm than good? Once again though, who am I to say? I don’t currently have the body of an elderly woman, no strength, no vision, with pain surging throughout my entire body 24/7. I don’t need to consume 23 meds, three times a day while also partaking in breathing treatments (4 different kinds) wearing oxygen and doing my best to keep myself fed when I either don’t wish to eat at all or only crave crap food of no real substance? I may be her husband, the only person she can truly confide in, the one who promised in sickness and health, till death do us part. Yes that may buy me some vote, but if it was me? If it was me this was all happening too, would I have the strength to make it another day for my kids the way she does every single day? Would I wake up every morning, take my meds, and then do my best to smile while making school lunches even though I really can’t see? Could I sit in a chair for most of the day either passed out from the very same medications or wide awake scanning the internet feeling like shit because I couldn’t go outside with my horses? Could I kiss my kids goodnight with confidence that tomorrow will be a better day like she does? She is angry, she is sad, she is happy, she is resentful, she is hopeful, she still wishes every day for one more day, one more week, one more month, and one more year. Another camping trip or the ability to take a family cruise. She is amazing.

Could I be like her?

I can’t………………………..

 

At the end of the day, whiny or not, dark and gloomy be damned. I decided to write these blog postings journaling my wife so others who may be feeling the same way would know it is ok. It is part of this weird, sometimes unforgiving magical mystery tour we are on and you are not alone. To those currently in treatment. This may be the way your caretaker or spouse is feeling and to know they love you, care about you and will do anything to make your life, your situation easier for you. We will never leave your side, so don’t be afraid to be who you want to be, use what strength you have to enjoy whatever moment you wish to enjoy and know the whole time we will be standing right by your side. Even though right now I feel as though “I can’t” when it comes to many things, I will always believe in the “can” most of us hold deep inside. I also believe that for the most part all people are good caring human beings and no matter the situation we all rise to the occasion.

Ok, I’m done. I can’t write anymore….

 

 

 

 

So this is 50…

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“A man who views the world the same at fifty as he did at twenty has wasted 30 years of his life”

                                                                                                                                ~Muhammad Ali~

 

I can distinctly remember awakening on my 15th birthday, lying in bed while pondering the importance of this day. You see it was my last year before complete freedom, six months from now with a little effort I would obtain a learners permit, then if I kept my nose clean a full-fledged driver’s license would soon follow. I had dreamed of obtaining my license from the very moment I fell in love with cars and now we were but 12 short months from it becoming a reality!

And that my friends started a habit that has both served me well and left me face first in the dirt wondering why more times than I can count. The habit is known as looking forward.

Most people look forward to a vacation or the purchase of some tangible object. I on the other hand began looking forward to landmark dates and moments in time where my life would hopefully just fall into place. Laying my head upon the pillow at night I would count off the time. 5 years until I turn 20 then I will be able to drink legally, 5 more years and I will be 25, either dead or married but either way that’s 10 years away! Plenty of time in between to explore and have fun! 5 years after that I’ll be a dad that’s if some woman is stupid enough to marry me!! Wow think about that! At 30, 15 short years from now, I will become a father to some snot nosed kid! Ten years after that I will become 40 years old! Who wants to be forty that’s freaking old!! Oh well, I will still be the same just I will have a couple kids to hang out with, go skateboarding, ride bikes and work on cars!! It will be fun, like having your best friends over every day because of course they will see how obviously awesome I am!! Ten years later I will be 50 and then, well then I will be really old! Like the teachers with gray hair I see feebly walking the halls, or the old men that every morning make their way into Fords Café. Pretty sure they are too old to actually have a job, they’re just killing time. Wake up early, go meet with other old dudes who are counting the days until they die, eat breakfast, drink coffee, and repeat! At least when I am 50+ my kids will be grown and gone, and I will be able to party hard once again while watching my ancient body wither away..

 

Ahhh the mind of a young man without a clue. So sure of himself, self-absorbed and completely unrealistic.

I turned 50 years old yesterday. Really not sure what I was expecting to happen, but going to bed the night before was held with great trepidation. Moving my pillow, placing items on my nightstand in perfect unison as if by awaking the following morning to find they were moved held some form of significance in determining my age.

Staring at the ceiling I began my usual looking forward process, except this time I wasn’t looking forward but instead mourning the past. Rolling back in five and ten year segments, memories flooded my conscience and with it joy, pain, fear, sadness and tears. We work so hard at looking forward, to the next conquest, challenge or milestone in our lives I think we forget to honor the past. Not just remember the past but actually honor the past. Without the past we wouldn’t be able to say; hey you remember when we…..???? Or you remember that time….???? And of course; I can’t believe we/I survived……????

We forget to not just remember the good times because all of our good times whether we admit it or not are tempered by that portion of our brain protecting us from pain, but to remember while holding in the highest regards the bad times as well. I know you are thinking what, but I want to forget the bad times! Who needs that kind of grief in their lives? In reality if we don’t take a moment to remember our struggles, relive our pain, relish in strengths formed from having our souls drug through the deepest of dark pits, we would be doing ourselves a huge disservice. It is those struggles and pain that forge the human being we are today. Life is easy and lived well when you are always happy never feeling the burdens life can provide. Life is cherished and held even closer when you struggle then survive, rise above the darkest of times always searching for a better moment to bask under. The struggle helps us to become who we are and creates a human being who cares about others, feels empathy, and knows the importance of tolerance and understanding even during the most challenging of times.

I laid in bed for an hour watching my usual round of The Daily Show, The Amazing Race and Amy Schumer. My eyes were watching but my mind was a million miles away. 50 years old, double the amount of time I really thought I would live. Every person who walked through my life over the last 40 years that was no longer with us crossed my mind. Grandparents, friends of my parents, other family members and of course close personal friends. Human lives never afforded the chance to make it to 50 years of age. Life played out is hand and they were gone way to soon leaving those around them suffering with the stark reality that when it’s over, it’s over. We have no say, no choice and life is not a guarantee. So I ask myself, why am I different? Why did I make it here and the others didn’t? Some lost their lives in accidents while others to cancer, illness or the hard realities of a life not lived well. But here I was getting prepared to embark on this landmark (by societies standards) birthday. 50 years old. Some didn’t make to 20, some 30, others in their early 40’s. Either way they were no longer with us. So why am I still here? What is my purpose? Because if I made it this far there must be a purpose otherwise I may as well be nothing more than the walking dead.

When I awoke, I sat up straight like Bill Murray in Groundhog day! I looked around and everything on my night stand was right where I left it. My phone was already loading up with well wishes from friends and the kids were beginning to rustle for school. Jacy had retreated downstairs as she does most mornings around 3:30/4am due to the wacky schedule her medications have her body beholden too. My morning was fairly uneventful for having just turned 50! No new pains, my joints still working fine and there appeared to be no new grey hairs sprouting mysteriously from my head. I still needed glasses to see and when I stepped on the scale there appeared to be no rapid weight gain possibly warranting the use of suspenders with my belt. Brushing these 50 year old teeth I found myself thankful they were all still there and once my hair was combed it didn’t look as though it had thinned any more than normal. I guess you could say it was turning into an uneventful morning, nothing like what my inner fears told me turning 50 would become.

The 15 year old boy still trapped deep inside calling me an old man was happy none of his premonitions had come true.

Today I am much more cognoscente of my surroundings at 50 years old. Birds, fields, a certain smell or breeze that is just the right temperature hitting my face floods my brain with memories. Good, bad or otherwise. I appreciate life, not just my life, but any life. Animals hold a dear place in my heart, I cannot stand to see any animal mistreated; if you are mistreating an animal rest assured I will mistreat you! Nothing brings more joy than a nuzzle  from a horse, the purr of a cat or the slobbery happiness of a dog. I finally have the patience when fishing I wish I held when I was younger. A morning working a horse can erase an entire day of shit! There is something so calming about learning a horse, its character, abilities and personality. Happiness definitely comes from spending time with my children, whether at a rodeo, playing ball, going to the beach, sitting at a school function or just reading together, they are my world. My overall temperament has changed as well, although those very same children I love can on occasion bring me close to the explosive person I could be when I was younger, I now have the ability to walk away, calm myself down and look at things from another’s point of view.

Understanding the power of commitment. My wife is an amazing human being, she fights every day for the simplest things we all take for granted. Time with her children, the ability to walk outside, go to the store, or even just drive the car without wanting to fall apart physically. She lives in fear of the unknown and wonders if she will ever feel better. Every day she wakes, and works hard at making lunches for her children so they know she is still here and she loves them. She sleeps a lot due to her medications and her body doesn’t help when it comes to walking from point A to point B. She worries about everyone and everything. She is my hero. I am terrified of a life without her.

I miss my dad. Wasn’t sure at times how I would feel about that since we butted heads a lot over my entire life, but I really do miss my dad. I have also come to understand in the circle of life his departure leaves me up to bat as it were. I would rather read than watch TV, sit in a quiet room than listen to music at a million decibels, although there are the occasional times alone in the car or at work in my cubicle I have been known to crank up some Zeppelin or Van Hagar! (only those my age will understand the Van Hagar) I have grown fond of the complexities involved with classical music and nothing brings a smile to face faster than some down and dirty jazz. Real country music not that crap they play today is what is on my channel 80% of the time.

Mornings are amazing! Every morning is a little different and I now wonder why in my younger years I wasted all those mornings sleeping in when I could have been out watching in amazement as the earth rotates bringing a bright glowing sun from beneath the shadows of darkness. I feel the same way about a sunset. Something about dusk just speaks to me. It is the perfect time of day.

I worry about our future and what we are leaving behind for our children. There is so much hate in this world and our outlets for entertainment seem to thrive on exploiting only the negatives of life. We are developing a nation of self-centered glory hungry humans that care for no one but themselves. I know there is lots of good in this world I just wish there was more reporting of positives than negatives. I also feel as though we are ruining this planet and our great grandchildren are going to pay the price. If we don’t hurry up and make some major environmental changes than we will permanently damage this planet. It is our only home.

So as you can see the 15 year old no longer lives here and thank goodness! I think differently, and lord have mercy I look different! But looking forward will still be a part of my life as I grow older, just there will also be many more times where looking behind is just as important. There are many more challenges remaining in this life that I don’t WANT to accomplish but NEED to accomplish for my own growth and wellbeing and if I make it to my 60’s.70’s or god willing my 80’s I hope I still have the ability to dream big, love even bigger and hopefully are still able to help anyone who will listen to navigate this crazy thing called life so they can find out just who they are or are getting ready to become when they to hit the big 50.

[JF1]

Fear

theycallmebetty2 Comments

Let’s talk about fear.

Fear is a state induced by perceived danger or threat that occurs in certain types of organisms, which causes a change in metabolic and organ functions and ultimately a change in behavior, such as fleeing, hiding or freezing from perceived traumatic events.

Traumatic events?

Like watching your wife wither away to nothing, struggling to find happiness because she never feels as though there is any progress being made. To her it feels as though her body is just not getting any better! Gloom at only having only enough strength to make it from the bed upstairs to the chair downstairs then remain frozen in time as the world passes her by? Nightmares that she is still at Stanford, never to come home again.

A change in behavior?

Oh yes you mean as in a person once vibrant and bubbly now hiding from herself, the mirror and even people, for she no longer sees herself in reflection but the remnants of a weary, pharmaceutically scarred body? She no longer hears the echoes of love resonating but wallows in pictures from what once was feeling nothing but self-doubt. Trying her hardest every day to find a positive reflection only to collapse under the burden of repetitive negativity pounding in her brain.

Induced by perceived danger or threat?

As in cold sweat, elevated heart rate and blood pressure whenever the word “hospital” is uttered. A doctor insisting she walk through sterile front doors to an awaiting isolation room with no timeline for departure. The minute a fever arises or a cough lingers to long.

The thought of our children being alone, again. Waking up to an empty house, no wife to found, sad faces walking like zombies as they know they won’t see dad again for another few days. Family will help, faces will be there for comfort and assistance but it is not their parents. The threat of mom and dad not being home, wondering when they will come home and if mom will come home at all is always lingering.

And so fear grips us again as Jacy has made another journey to Stanford.

Work has been crazy hectic! Coming home on Wednesday after being at work for three days I walked into an empty house. The first day of school was in the books! Jacy’s one wish through all her recent complications was to make the first day of school. To be with her children and tell them she loved them as they exited the car. She accomplished her mission. After two years with me sending first day photos to her in the hospital I came home knowing my wife was going to be ecstatic! Yet one thing I did notice while at work, was she hadn’t posted anything on FB. Seriously! It is a first day tradition across this great nation to post your first day pic’s on Facebook!!!! Something must be wrong…

Making my way through the house what struck me was the utter silence, then as I made my way through the house I realized it was way too quiet. Calling for Jacy I received no answer. I really did expect her to be downstairs in her chair half crying/laughing waiting to tell me just how amazing it had been to drive her children to school and drop them off! She reached a milestone; living long enough to see her kids off to school one more time. But there was nothing, she was nowhere to be seen.

Checking the window to ensure I had in fact passed her car on the way up to the house. I turned and sprinted up the stairs, opened the door to our bedroom and there she lay, in a ball, crying/moaning. She wasn’t shedding tears of joy, but instead tears of pain. After a little conversation and a full patient assessment I asked if she wanted me to call Gayla her nurse coordinator. She asked me to wait until her pain meds kicked in, and so with hesitation I planted myself at the desk and waited. I didn’t need to wait long.

The pain was enormous, her head hurt, her body hurt and she felt nauseous. All bad signs. An immunocompromised subject’s body is constantly doing a fine juggling act between medications that both allow her immunosuppression system to work and drugs that suppress that very system. It is all in an effort to keep harmony while both allowing her white cells to protect the body but since they are not her white cells, keeping them from destroying the body which it sees as foreign all in the same stroke. Confusing, amazing and horrific at times to watch.

She finally stood up, looked me dead in the eye and said; I need to go to the hospital now! I again mentioned Stanford but was rebuffed as she could no longer tolerate the pain. We rapidly loaded a few things and headed to the Kaiser. Kaiser is no more than 5 miles from our home. We feel blessed to be so very close to such a wonderful facility. Arriving at the ER we were put in a room fairly quickly and were warmly greeted by staff. The on duty doctor was one of our favorites and within minutes (a lifetime to Jacy) she had IV pain meds which allowed to her to finally relax and feel some relief.

I stepped outside while a lumbar puncture was performed to call Gayla her nurse coordinator. After a brief explanation of her symptoms along with justification for the stop at Kaiser, Gayla assured me she would grab Dr. Muffly ASAP and call me right back. The phone rang within minutes and a transfer to Stanford was being arranged. Dr. Muffly wanted her there and she wanted her right now!

Of course Jacy wanted nothing to do with this plan! Fear had set in.

It was the first day of school and she wouldn’t be there when her babies returned, she promised she would be there! She didn’t want to be stuck at Stanford again, how long would they keep her, why are they keeping her, can’t she just go home after the headache subsides? She doesn’t feel like an inpatient, whatever they need to do can be on an outpatient status!

Fear makes you overlook the obvious. We all knew she needed to go. She was still in pain, we had no answers as to why her face was swollen, her head hurt so badly, and she was feeling nauseous. But fear can help you justify anything.

The ambulance came.

I had gone home, packed her some clothes and returned to the hospital just in time for the ambulance to arrive. We loaded her up and in usual Jacy fashion, people needed to come say goodbye and good luck. She is always making friends wherever she goes. Kissing her on the cheek, saying goodbye I closed the back doors of the ambulance like I have done a thousand times in my career. It didn’t feel right. I thanked the guys taking her and walked back to the car. Sitting in the driver’s seat with a very heavy heart I watched the ambulance slowly drive away.

My head hurt, my bones began to hurt and I felt nauseous. Here we go again.

I needed to work the next four days and Jacy made me promise I wouldn’t follow her down. I called her family and they agreed to meet her when she arrived so she wouldn’t be alone. I went home, greeted the kids, asked how their first day of school was and after a few jokes and giggles the elephant in the room reared its ugly head to bellow.

Where’s mom?

Now imagine being 10. Knowing your mom has been sick for a very long time, she goes to the hospital one day with the promise of being home in a couple of months. Instead you are living through her being absent from your life for 7 months while you travel back and forth to see her once a week. You now remember at one point it was very bad as nervous and scared adults circled around you, acting weird, treating you differently all because the end looked near. They kept it from you, but you knew because even though you are a kid, you are perceptive. Then you wake up one morning and mom is home! She is home in time for your birthday and all is right within your ten year old mind again. Now every time she goes to the doctor your 11 year old mind starts to worry. She comes back from the doctor each time, which makes you happy, but you still worry, and you are a little distrustful of information provided by adults in regards to your mom’s health.

That was look I had to deal with when asked; where’s mom? That look quickly turned into a squinty face and before I could even say; moms headed back to Stanford, the tears began to flow. They flowed hard and fast. Jessica looked in shock, Jake hung his head and Parker cried and cried some more. This little boy’s fear had come true and my heart was breaking. Some days I feel as though there is a constant grip around my chest and I just can’t take anymore.

The long and the short of it is this, we all face fear, each and every day in one way or another. Fear is gripping, mind bending and often time paralyzing.

I hate fear.

August 13, 2016

Today is day four at Stanford. I didn’t write anything or spread the word right away because I am having a hard time coming to grips with her being there again. It is weighing heavily on me and even though she most likely will go home on Tuesday evening each time it happens fear grips not only her but our entire family. We still have no word on the cause of her body pain or associated headache. Jacy had some severe swelling in her face that was most likely caused by a plugged salivary gland. She is partaking in *photopheresis?dialysis to hopefully clear her blood of any viruses still lingering around. Her steroids have been raised and they are tweaking her medications to be more proactive in this ongoing viral war. Getting her home can’t come soon enough!

More to come….

*Photopheresis

In medicine, photopheresis (aka extracorporeal photopheresis or ECP) is a form of apheresis and photodynamic therapy in which blood is treated with a photosensitizing agent and subsequently irradiated with specified wavelengths of light to achieve an effect.