What a difference a day makes

What a difference a day makes

Twenty four little hours

Brought the sun and the flowers

Where there used to be rain

~Stanley Adams-Maria Mendez Grever~

 

Yeah it’s a tad corny I know but you see yesterday Jacy and I had a meeting with her doctor. Now for the last 48 hours work has been my home. Any information received was met with fret as no alternative exists for me in regards to any form of action. In reality there is no “action” to provide for as hard as it is to abide, my wife’s wishes remain the same. Take care of children, ranch, work and you before coming to sit by my side. Being a good husband I try my hardest to fulfill her requests.

I digress… The last 48 was met with daily updates in regards to a nasty gastrointestinal bleed (yes the very same one we have been discussing for the last 7 days) which has grown considerably in volume since the last time we prayed for it to stop. Within the last two weeks another conversation has repeatedly taken place in regards to Jacys care should this bleed become unmanageable in combination with several other issues that keep rearing their ugly head! Not a very comfortable conversation to have.

Now back to the GI bleed. It just would not slow down! Her volume increased, several options were discussed and throughout the last 48 hours her intake of fresh blood and platelets expanded to a point where it became prudent for an offensive stance as opposed to continuing with the defensive wait and see position. Several phone calls were made, and I being trapped within the four walls of one second home (my fire station) began pacing the floor. Talk in regards to urgency of care, ICU and paperwork which appeared unclear to some being properly disseminated so there would be no doubt as to our wishes should this bleed progress with no option for repair.

Nuclear medicine was advised and late Wednesday evening she was shuttled down for a radionuclide scan. A very small portion of blood was drawn then mixed with radioactive isotopes. Once the two were “shaken not stirred” they were re-administered into her vascular system where a machine rapidly captured pictures using gamma rays emitting from her blood to track, trace and locate any bleeds. By 10pm no conclusive evidence had been found. Early Thursday morning after checking her numbers her doctor decided another round of photography was in order as her output was increasing. By noon we had our answer.

Arriving to Stanford at 1130 my mind was weary from 48 hours filled with negativity. You know the very demons I have written about prior, taking hold of common sense and reality, forcing you to dive into the deepest most negative places your mind can go. Yet, I did what I always do once my shoulders pass through those gigantic, elegant glass doors. I stood up straight, put on my best poker face, took a deep breath and walked through as if I hadn’t a care in the world! If only it were true.

I hadn’t been in the room long when Jacys doctor came in. Prepared for the worst, simply because that’s all I’d thought about for the last 48, plus after seeing how much better Jacy appeared I just knew her appearance couldn’t possibly be indicative to her reality. Doc greeted us both, sat down and proceeded to give us a general, sanitized run down of where we were in regards to status. You know, like that little teaser they print on the inside cover of a book that leaves you wanting to either buy it, mull it over or throw it as far as you can. Afterwards he took a deep breath, started talking quickly and confidently while throwing it all on the line. Something I truly admire about this man. Basically; Jacys body needs to start working! They located several bleeds in a section of small intestine and though many options had been tossed around from surgery (although there was some confusion as to where that little rumor started) to an endoscopy procedure where they would cauterize or put a spring style blocker in to slow and stop the bleeding, to continuing the current course which would be platelets and more blood.

This doctor is a fan of giving things a chance. He circumvented a solid push to have Jacys bladder treated with chemicals to stop it from bleeding. These chemicals would have left her incontinent. Why did he do this? He felt even though her bleeding bladder had gone on for much longer than need be, there were other pressing issues and he just wanted to give her body a chance! Result? Clear urine for the last two days! What, what!!!!

Now with many pushing for the invasive endoscopy procedure he stood his ground once again prefacing with: I will do whatever your primary doctor wishes, but you are my patient this month and I am going to fight to give your body a chance! All we need is blood, and we are the largest user of blood anywhere, believe me there is plenty on hand!

When asked how Jacy felt about this she stated that since yesterday the amount of blood coming out feels as though it has slowed down. Her nurse confirmed this to be true, in fact 1/3 as much fluid had been collected during the same previous period of time! To that we all smiled, he (her doctor) smiled the biggest and proceeded to cover some finer aspects of his plan to which we all happily agreed! So we proceed, more blood, more platelets, more waiting and more prayers! I believe not only is she in good hands with her doctor this month, but that something else might just have something to do with it!

What a difference a day makes? Yes this catchy little song popped into my head. I am a sucker for old music and this hypnotic little 1959 tune just naturally stuck. As her doc walked out the door he patted me on the shoulder as if to say; I got this, quit worrying, and relax for a while. After speaking with him, feeling the confidence he exudes in combination with his very straight forward and at times humble explanations what else could I do?

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2 thoughts on “What a difference a day makes

  1. Thank you for the update. Hugs today for you and family. God grant you all strength and patience as you wait it out. Debbie

  2. My thoughts and prayers for Jacy, you, and your family have never ceased and will not cease. This incredible journey you’ve been on amazes me and inspires me as to the courage, determination, hope and faith of you and Jacy.. I will pray with the “What a difference a day makes” theme. I will pray for all of Jacy’s caregivers. May each day ahead bring a positive difference even if it’s small. Dear Lord, You can make the difference…my prayer is that the difference will lead to Jacy being able to go home. Thank you Lord. Susan Joyce

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