One of “those” calls, the phone call we all dread.
We all know the story, have heard it recounted a million times whether through a friend or family, on television or in the movies. This haunting recollection is always recounted like an old wives tale and for some strange reason it chills even more so simply through its timing. Midnight to 5am.
The phone rings, its 4am. Nothing good comes from a phone call at 4am. No one I know lives on the other side of this big round world just waiting to chat my night away, no one I know has been counting down the minutes to converse with me during what would be considered to any other normal human being, bedtime? No one. Not one, single, solitary person.
So that means when the phone rings at 4am it is without a doubt bad news, it always means at 4am that it is bad news. Right? Publishers Clearing house is not calling to inform me I just won 10 million dollars at 4am! Although they could, seriously PCH call anytime, PLEASE!!!!!
It rings, I don’t hear it. Sound asleep, weary from a long emotionally charged week my body is in deep REM sleep. Somewhere in my dream there is an apparition yelling at me to arise, screaming to wake up, something is not right! I wearily crack an eye to a very dark bedroom only to recognize the sound of a voicemail populating my electronic gadget of life.
Heart rate doubles instantly like an electric shock, as though the bell has just gone off at the fire station and I hear the words “Structure Fire”. Bam! I am awake! Searching fumbling for the phone, fear instantly grips me, thoughts, horrible thoughts of what may be; enter my brain! They keep coming as my fingers can’t quite grasp this stupid phone! Nothing is working! Squinting hard, no recognition is working and I can’t find my damn glasses to see since my fear induced jolt knocked them off the nightstand. Like Ralphy from a Christmas story I carefully search the floor praying I don’t take a misstep thus hearing the cracking of a shattering lens.
I have them! I can see, hitting voicemail a somber, I am guessing through dialect Asian gentlemen calmly explains Jacy has been moved to ICU. Her O2 saturation is poor, her breathing is labored, her red cells are down and she is in need of one on one care. If I have any questions to call.
Thank God! She is still ok!
I lay down for a moment to stare at the ceiling.
Once the emotions are out of my system, my heart rate has returned to normal and I’m done being scared, a thought crosses my mind. Why? Why does a late night call always bring the worst instantaneously from our subconscious? I know history, tales of woe and an assumed perception of the worst has everything to do with it. But I just wish there was a way I could shake that thought process from my mind. Anywhoo, this is how my week was to begin, with a single, heightened, middle of the early morning phone call.
After arriving to the hospital, doctors announce she had contracted a form of pneumonia giving her grief which explained why her breathing had been so labored. Her doctors said the GVHD was still responding well to the experimental drug Jakafi and their hopes remained positive as far as continuing to slowly wean her from all steroids which would help with her continued muscle deterioration. She has recently developed diabetes which is being treated accordingly and is also one piece of the picture in regards to her continued loss of vision. On Wednesday she participated in a bronchoscopy which did not make our girl happy at all, having a camera shoved down your throat when you have no strength to fight left her feeling a bit more helpless. By Thursday for some reason she had reverted completely and was back to feeling a failure in her recovery. She needed all our love and care to snap her back into her super woman fighting spirit!
I contracted some form of a cold and have not been able to see her which has been difficult to say the least. It is hard when the woman you love wants you with her more than anything and there is nothing you can do but stay on top of your medications and pray this stupid cold goes away quickly.
She wants to come home, it is all she thinks about! She wants to see her children, to hold them to watch them, to simply sit down and do homework, participate in their lives. On days she feels like quitting all it takes is reminding her what’s waiting for her at home and we can usually snap her out of a funk.
As of today Jacy is doing much better. This incident happened on Tuesday morning and although there have been a few bumps in the road for the most part she has held her own. The tests came back from the bronchoscopy and she has HVV6 a herpes virus we all carry to some extent, it masks itself in a few ways including pneumonia. Good news is she was already being treated with the appropriate medications so a minor adjustment and we shall see in a week. Jacy can no longer walk as her muscles have finally weakened. She still has limited use of her eyes which has been the hardest on her. She works very hard at staying mentally strong which after 67 days can be a bit daunting for a person who is used to doing everything for herself. Thanks to the help of her family she can sit in a chair for about 45 minutes without assistance, she is participating in physical therapy daily which includes the use of bands giving her muscles some resistance. She recently was placed on a special air mattress to help with her bed sores. She is seriously one tough cookie and my hero.
Our family thanks everyone who continues to pray, help, and care. She is the light of our lives, the toughest woman I know and she will come home. It just may be a while..
Hopefully I don’t get another one of “those” calls…
12:11 Sunday: Just in as I place the final touches on this latest edition!! HVV6 responding well, her lungs are clearing up! She is off oxygen and finally saturating in the high 90’s on her own. She has also been moved from liquids restrictions and will be able to consume fluids which means solid foods are not far behind!
Keep those prayers coming, she needs prayers of strength to help her mentally feel like she is improving, keeping her spirits high!