(I apologize for not having written in a while, and though this isn’t the best, it hopefully will at least allow you all to know where I am at mentally)
Over the last 5 months plenty of time has passed for me to ponder the ramifications associated with cancer.
Endless days and even longer nights leaving me sleepless, cold, worried, angry, happy, sad, confused, and exhausted. Staring outwards into a twinkling nights sky, or straight down at my feet, lost, strained, asking God why. Ramifications indeed..
I have held a little boy who doesn’t understand why his mom needs to be gone all the time. One day at home then vanished into thin air, only to reappear 7-14 days later looking gaunt, pale and exhausted. This recurring abnormality in domestic motherhood just doesn’t compute in a 9 year olds brain. He needs his dad alright but there is nothing like the hug his mom can bestow upon him and the smile that shines on his face afterwards.
I have driven to games, practices, and rodeos alone. Elicited the help of many wonderful caring friends who dropped what they were doing without so much as a whimper to ensure my family was cared for in my absence. Helped (not well, but hey who said I was smart) with homework, read books and had books read to me, washed laundry, cleaned dishes, scrubbed floors, toilets, windows and walls. Watered flowers, cared for dogs, horses, goats and chickens. Folded laundry until 2 in the morning to ensure everyone had the right clothes for school, baseball, softball, hunting, etc…. And yes in a very strange bedraggled way I have cherished every minute.
Don’t get me wrong I performed all of those tasks prior to Jacy becoming sick as well, but they were shared tasks, and as with all relationships, some portions were performed by a certain partner because that partner excelled in one area over the other. Laundry has always been kind of my thing,(especially the folding portion) where as homework has always been Jacy’s (college grad/teacher and all).
Cancer has brought my children closer to me, helped me understand a little more of who they are as people. From seeing them handle this situation with their mother, to the inspiring abilities shown by the ones who have stepped up their games around the house during this time. Their interaction with the hoards of caring people stopping by our house or cornering them in a park, they have all made me proud. It has been a very hard, long frustrating road, but that road has also been filled with love, understanding, caring and commitment.
Cancer also filled my heart with fear. For every great moment I shared with our children, there was fear that Jacy would never see those moments. Fear our children would become used to their mom not being around, fear that she would not win this fight and the children would be left devastated, emotionless voids. Never remembering their childhood has one filled with great adventures, laughter, family and fun, but of the time their mother contracted Leukemia and perished. No child should watch their mother die. My fear is entrenched in losing faith. Something I have always had, a security which has kept me strong my entire life. Fear I will lose that feeling of always “knowing” what to do, how to behave, which direction to travel. Its faith which has kept me solid in those beliefs, it is my faith in God which has laid a foundation for me to build upon. Yet what if my faith eludes me? What then? More fear.
Up days and down days, days filled with forgetfulness, days filled with unexplainable irritability, days filled with an abundance of love, and days filled with dizziness, nausea and sleep. These are the emotional stages Jacy travels through. Highest of highs and lowest of lows. It’s a hard ride for me at times and it’s always an even harder ride for her. Yet each day is one day closer to the treatments being over, her body trying to heal itself and our lives returning to some form of normalcy.
She came home from her last treatment on Sunday. It was a day of joy. Only two more weeks of blood transfusions and testing, cumulating into a bone marrow draw somewhere during the third or fourth week. Many days ahead filled with more fears, watching her body decline time after time until her blood cells, both white and red begin producing normally on their own. Then waiting..
Fingers crossed, all goes well and Jacy will be able to finally claim to be cancer free! Over the next couple of years she will do her best to lead a relaxed, non stressed lifestyle and we will continue to pray Leukemia never returns.
5 months, five long and lonely months. I miss my friend, my spouse, the woman I love. To have her home and whole will indeed be a blessing. For five months I have slept alone many nights and like the true idiot I am, I never once slept in the middle of the bed! Always on my little 6 inch wide portion, leaving her side (which is 3/4’s the mattress) undisturbed. Out of habit or respect, I do not know, but wow, what an idiot! I really blew an opportunity to really stretch out and sleep like a king! It’s no wonder I never got any sleep! Oh well I digress….
A light is truly at the end of the tunnel, we can see it. Keep a prayer for us please, prayer is a powerful thing and I believe it helps keep my faith alive and her healing powers strong.
More to come, God bless you all…
I am rarely speechless or without words. What you have endured and all that you have managed to do makes me think of one word and that is…hero. I consider you a hero. I pray for God to grant you the strength to continue on with all that you have been doing for it takes great endurance with a situation like this. I pray that your dear wife will beat this evil disease and will return home and become healed. I pray for your children. Take good care of you. I do so admire all that you have done and your wife’s courage and determination. Sincerely, Susan Joyce
LikeLike
Thank you Susan, it has been a long road and I can feel the surge pushing us towards the end. Life is supposed to be a journey, and man am I on one hell of a ride!
LikeLike
Yes indeed, you are on one “hell of a ride” May that ride include a return to good health and joy and become a much happier life. Blessings to you. Susan
LikeLike