Wednesday morning we arrived inside Kaiser Vallejo room H22 at 0600. Jacy signed herself in and before long an elderly volunteer attendant called our name. She was in her 70’s and struggled a bit to stay on task. Her manner was direct as there was an apparent agenda to follow judging by the clipboard she maintained a death grip upon. It was obvious with her demeanor we were one of her first for the day but definitely wouldn’t be her last. I tried my hardest taking her seriously but every time we made eye contact I swear her wig moved a tad off kilter from one side to the next. She was sweet, a bit confused at times, but doing the very best job she could. I pictured her as a young military nurse either late in WW2 or during the Korean War. She just had that way about her. It was definitely a pleasure meeting her.
She scooped Jacy up and the two scurried away towards a prep room, her finger pointed my direction ordering me politely to sit and stay inside the waiting room. There was a large television inside the waiting room showing a row of numbers on the screens left side with colored bars running towards the right. These numbers were very reminiscent of college I.D. numbers used for testing purposes. Each number was assigned to a patient. A color bar associated with each number identifies which stage of treatment your loved one (patient) currently resides. It was a nice little system, allowing family members to know exactly what’s happening without constantly barraging the attendants for answers.
The old dame came back into the waiting room after around fifteen minutes, staring at her clipboard while trying her best to pronounce my last name. (Good luck right?) Reaching my feet she wanted confirmation that I was in fact Jacy’s husband? My first instinct was to remind her we had in fact talked not more than fifteen minutes ago and at no time during those fifteen minutes had I rushed out, found an attorney, judge and open courtroom to obtain a legal divorce! Anyways my mother taught me better, so politely I smiled and nodded yes! Yes I was still Jacy’s husband. Her retort was: phew! I almost had you confused with that gentleman over there who is wearing a shirt similar to yours. Watching her wipe her brow and shake a little more it was then I decided I loved her, she was perfect and nothing could possibly go wrong today! She motioned for me to follow her. She walked quickly and with purpose down a long hallway, explaining hospital rules for visiting; where I should sit, what I should say, while pointing out every door, corner and hallway, so when the time came I could find my way back. I bit my tongue for I didn’t want her to see me chuckling as she was quite serious and still cute as a button!
Moving into the prep room area which consisted of a long rectangular room housing multiple cubicle style, curtain separated mini rooms, lining the walls all the way around its corridor. A bed was placed inside each cubicle complete with computer, I.V. stands, oxygen, Sp02/heart monitor and so on. Jacy laid upon a bed, I.V. in place, one piece backless gown, the fashion rave of all hospitals, securely affixed and a hair net. It was quite odd a woman who holds not one scrap of hair to her body needed a hair net? But I suppose rules are rules.
Jacy smiled, I sat beside her and listened as her anesthesiologist went over procedures, how she would feel, along with what to expect. He was a curt German man with a fairly strong German accent. Now every German I have ever met has an incredible dry sense of humor (which I LOVE) and after a few moments of my wife and I winking at each other while dropping one liners his direction, he proved to be no different. He was witty, charming and an very interesting man to talk with. I was sad we didn’t get to spend more time with him.
Dr. Truong arrived, all smiles as always. She is hands down the coolest doctor I have ever had the pleasure of knowing. I cannot believe how above and beyond I feel she has gone with my wife. They have created an actual friendship outside of the doctor/patient relationship. Of course once you meet my wife it is very hard not to become her friend. We chatted about the marrow draw, how long it would take under sedation and she reaffirmed how sorry she was Mondays draw couldn’t be completed back in her office. It was understandable, Jacy just could not take any more pain, and with 6 prior draws from the same site, number 7 just wasn’t going to happen. We all kept talking as supplies were gathered and everyone laughed at a few self-deprecating jokes targeting us both. We laughed and told stories about our families and when the doctor gave her a dose of Versed which he explained allows the patient to forget the surgical experience; I looked him in the eye reiterating the whole she’ll forget everything portion to which he looked confused and stated; yes she will forget. Not wasting any time I grabbed Jacys hand announcing loudly there was something I needed to tell her! (Pause for effect) Everyone started cracking up and Jacy nodded off to sleep with a smile on her face!
40 minutes later Dr. Truong found me to report everything went as planned. She gave me a giant hug and asked how I was doing? I said fine, she smiled and we talked about what the future held for our girl. Basically it comes down to this marrow draw and the panel being tested. If Leukemia has resurfaced, off to chemotherapy we go. If little to no Leukemia is present, then off to receive a hysterectomy, followed with a few weeks rest and then? ANOTHER ROUND OF CHEMO!!!!! YAYYYYYY! Dr.Truong says Jacy is the perfect candidate! She is young, strong, and has handled chemotherapy better than most patients. Jacy also has a type of Leukemia which is chronic so the transplant is a must. There are some interesting markers hidden within her Leukemia cells or blasts that could be cause for concern, but doc thinks they are very manageable and if they become unmanageable there are some new experimental drugs with great success rates! So all things look great!
Once the final round of chemo is finished, we set the date and prepare for Stanford and a Bone Marrow transplant! Best case scenario we are looking to be in Stanford around the middle to end of June!
So keep the prayers coming! We feel them, Jacy definitely feels them. We are continually grateful to all who are following us in this journey, holding us and our family up in prayer.
God bless you all..
So happy that this draw went better than the last. You all continue to be in my thoughts and prayers. Your sense of humor is the best. Best Wishes
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Thank you 😃
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Continued prayers and positive thoughts for your family. My husband just finished induction chemo on Friday. I’m glad that’s over and now we wait for next BMT later this week. I’ve never been on such a roller coaster of emotions in all of my life.
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Remember to always keep positive thought! Are you headed straight for a Bone Marrow Transplant? Or are they going to do two follow up Chemo therapies and wait to see if he stays in remission?
Don’t be afraid of the BMT, advances in medicine have made it virtually painless. The follow up care is the scary part for the first couple months, but it means you are one step closer to remission!!!
You are in my thoughts and prayers as well! Please contact me any time!
~Betty…
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Sorry, I meant a BMB. We are still awaiting the chromosome test results but should have them this week. He is part of a trial study and they automatically test him and do a nationwide search for a donor match. Family is an option as well. I think the next step will be determined by those test results and whether or not the induction put him into remission. Thank you for the kind words and take care!
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